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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Joey Evans has always loved bikes, from his first second-hand Raleigh Strika at the age of six to the powerful off-road machines that became his passion later on in his life. His dream was one day to ride the most gruelling off-road race in the world, the 9000km Dakar Rally. In 2007 his dream was shattered when he broke his back in a racing accident. His spinal cord was crushed, leaving him paralysed from just below his chest. Doctors gave him a 10 per cent chance of ever walking again. Many would have given up and become resigned to life in a wheelchair, but not Joey Evans. Not only would he get back on his feet and walk, but he would also keep his Dakar dream alive. It was a long and painful road to recovery, involving years of intensive rehabilitation and training, but he had the love and support of both family and friends and an incredible amount of determination. Joey shares the many challenges he and his family faced, relating the setbacks, as well as successes, along the way to the Dakar start line. But the start line was only the first goal – his sights were set on reaching the finish line, which he did in 2017 – the only South African to do so. From Para To Dakar is so much more than the story of one man reaching the Dakar finish line. It is a story of friendship and respect, compassion and kindness. It is about defying the odds to reach a dream, it is about grit, endurance and raw courage, and it is inspiring in its true heroism.
Die kranige sportman Alwyn Uys word in die fleur van sy lewe verlam. Ten spyte van dié verlies en ander terugslae bly Alwyn se gees ontembaar. Hy besluit om sy lewe ten volle te leef: Hy word onder andere die eerste parapleeg ooit wat van Robbeneiland na Bloubergstrand swem. Ongeskonde is Alwyn se openhartige vertelling van sy worsteling en hoe hy met genade van Bo besluit het om uit te styg bo sy beperkinge. Sy eerlike verhaal sal jou inspireer om jou eie uitdagings aan te pak en te oorkom.
In 2011 the world was shocked when the news broke that Joost van der Westhuizen, known for years as the golden boy of South African rugby and a former Springbok captain, had been diagnosed with motor neuron disease (MND). This rare condition attacks the central nervous system, causing progressive disability. There is no known cure. All who have seen Joost in action will know that he is not one to give up without a fight. His game-changing prowess as a brilliant scrum half is now focused on a battle for survival and, more importantly, on making a difference to the lives of others with the disease. In a race against time, Joost has a dream to fulfil. He says: “In the beginning you go through all the emotions and you ask, ‘Why me?’ It’s quite simple. ‘Why not me?’ If I have to go through this to help future generations, why not me?” His acceptance of his symptoms is equally pragmatic: “One day you can’t move your arm, another day you don’t have speech. Every day you are reborn and you take the day as it comes.” Glory Game – The Joost van der Westhuizen Story is a compelling narrative of redemption set against the backdrop of an illustrious career in rugby. It is the story of a modern-day warrior forced to face his own human frailty. Joost shows us that beyond ambition, success and fame lies the true wealth of family and friends, and that within a ravaged body the spirit can remain invincible.
This brand new book addresses disability issues, including inclusive education, advocacy and empowerment. Aimed specifically at students studying in South Africa, this book attempts to plug the gap between policy, services and rights for disabled people in South Africa, whilst also helping readers to find a new world view. This book is suitable for both first year undergraduates in inclusive education and senior students and also academics looking to advance theory and lay good foundations for comprehensive, evidence-based practice.
"Why walk when you can soar..." These are the opening words on Tracy Todd’s website and they are a powerful affirmation of the person Tracy is today – a sought-after inspirational speaker whose uplifting presentations have inspired and given hope to many people. But it is difficult to imagine what she has overcome in a tough and often lonely journey. At the age of twenty-eight her life was turned upside down when a horrific road accident left her a quadriplegic, paralysed from the neck down. Her life as an athletic, marathon-running young mother and teacher was abruptly shattered. Despite months of rehabilitation, Tracy often found herself wondering if her life was worth living. Everything she had taken for granted was now beyond her reach and frustration at her helplessness threatened to overwhelm her. Against the odds, Tracy chose to live. Her strength of character and determination prevailed and, sustained by the support of her son, family and friends, her care assistants, and an unbelievably caring community, she set about gaining the independence to rebuild her life and reclaim her identity – which she has done, with dignity and grace. Brave Lotus Flower Rides The Dragon is an honest, inspiring and engaging memoir in which Tracy’s natural warmth and humour are tangible and, most importantly, she embodies what the human spirit can achieve.
Hykie vertel in rou eerlikheid van sy stryd met ADHD. Van 'n weerlose seuntjie wat nie kon stilsit nie tot 'n jong man wat in Weskoppies opgeneem word en alles verloor. Hykie ondersoek die hele fenomeen van ADHD – hoeveel diagnoses daar gemaak word, hoe die medikasie ontstaan het, die samestelling en die newe-effekte daarvan. Hykie wys dat medikasie nie die enigste antwoord is nie. Hykie gee ook waardevolle raad aan Christene oor hoe om mense wat aan geestessiektes lei te ondersteun.
An inspirational and truly intersectional memoir from global humanitarian and social justice advocate Eddie Ndopu-a queer, Black wheelchair user and one of the UN Secretary-General's 17 Advocates for the SDGs. A memoir, penned with one good finger, about being profoundly disabled and profoundly successful. Global humanitarian Eddie Ndopu was born with spinal muscular atrophy, a rare degenerative motor neuron disease affecting his mobility. He was told that he wouldn't live beyond age five and yet, Ndopu thrived. He grew up loving pop music and haute couture, lip syncing to the latest hits, and was the only wheelchair user at his school, where he flourished academically. By his late teens, he had become a sought-after speaker, travelling the world to give talks on disability justice. When he is later accepted on a full scholarship into Oxford University, he soon learns that it's not just the medical community he must defy - it's the educational one too. In Sipping Dom Perignon Through a Straw, we follow Ndopu, sporting his oversized, bejewelled sunglasses, as he scales the mountain of success, only to find exclusion, discrimination, and neglect waiting for him on the other side. As he soars professionally, sipping champagne with world leaders, he continues to feel the loneliness and pressure of being the only one in the room. Determined to carve out his place in the world, he must challenge bias at the highest echelons of power and prestige. Searing, vulnerable and inspiring, Ndopu's remarkable journey to reach beyond ableism, reminds us never to let anyone else define our limits.
Kan ʼn rock-ster op ʼn Karooplaas bly en werk? Natuurlik, dis presies wat Mianke van den Hever van Hanover is en doen. Dié besondere plaasnooi, wat met Down-sindroom gebore is, boer en leef haar uit tussen perde, skape, beeste, wild, klein diertjies in die veld, haar honde en die plaasmense op Beestekuil. Pa GP het vertel dat Mianke van kleins af ʼn boek wou skryf, maar dat die verstaan van letters en woorde haar nie beskore is nie. GP vra of ek kan help om dié droom te verwesenlik? Sy het haar netjies voorbereide storie uit haar kop aan my vertel en dit is hier op skrif gestel, soos sy dit wou hê.
One of the most remarkable memoirs ever written. The diary of Jean-Dominique Bauby who, with his left eyelid (the only surviving muscle after a massive stroke) dictated a remarkable book about his experiences locked inside his body. A masterpiece and a bestseller in France. In December 1995, Jean-Dominique Bauby, editor-in-chief of French Elle and the father of two young children, suffered a massive stroke and found himself paralysed and speechless. But his mind remained as active and alert as it had ever been. Using his only functioning muscle - his left eyelid - he was determined to tell his remarkable story, painstakingly spelling it out letter by letter. The Diving-Bell and the Butterfly records Bauby's lonely existence but also the ability to invent a life for oneself in the most appalling of circumstances. It one of the most extraordinary books about the triumph of the human spirit ever written.
Ses jaar ná die verskyning van Bloedvreemd vertel Juliana Coetzer wat
hét geword van haar dogter, Anneke. In Bloedvreemd vertel die skrywer
hoe Anneke op sewejarige ouderdom ’n virus opgedoen wat haar brein
aangetas het, en geleidelik het sy verstandelik begin agteruitgaan. Die
werklikheid het egter nie stilgestaan nie. Ses jaar ná die boek vra
mense steeds – wat het geword van julle? Is Anneke oukei? Hoe maak ’n
mens met die voortdurende verlies, die agteruitgang?
Brent Meersman’s memoir of a humble yet eccentric upbringing in a Milnerton, Cape Town, flat in the 1970’s and 1980’s reads as a stirring eulogy to his schizophrenic mother, yet also as a vivid snapshot in time. His adoring mother, a horse-loving artist, received only rudimentary treatment and Brent, his brother and father had to look to each other for support. His father battled alcoholism and unemployment, at one point taking the whole family to Belgium, where he had found work, only for them to return a year later, defeated. Traversing a home environment constantly on high alert for something to go wrong, waiting for his mother’s fragile mental stability to shatter, not finding support in his father, whose drinking and absences from home took a punishing toll on the family, bred in the author an almost heroic resilience. This delicate yet brutal memoir, filled with wry humour, will resonate with many readers.
Roy lost his first leg at six years of age and his second leg at twenty-one. He had little schooling and walked with artificial legs, refusing to use a wheelchair until he was forty-six. As told through conversations with Richard Dunn, the reader gets to know Roy's fulfilled and incredible life-story and how he has, over the years, helped those less fortunate than himself.
In 2001 verander Erika Murray-Theron se lewe onherroeplik toe haar man, Tom, met parkinsonsiekte gediagnoseer word. Erika begin haar vertelling eers in 2011, toe Tom in ’n meer gevorderde stadium van die siekte verkeer. Dit is die rou optekening van saamleef met ’n geliefde met parkinsons: die ervaring om die fisieke en intellektuele aftakeling van jou lewensmaat te aanskou, die fisieke eise wat met die versorging van so iemand gepaard gaan, en die emosionele inspanning wat dit kos om jouself te staal teen dramatiese en stadige verlies.
Have you ever wondered what it is like to be dying? Knowing that you are within sight of reaching your own mortality? Sitting in a body that is not even recognised by your brain? Cilla knew! PSP (Progressive Supranuclear Palsy) affects thousands, yet there is little known about it. Perhaps the similarities between this illness and others have masked the effects, and for some this may come far too late due to misdiagnosis. This insight into the unique illness of PSP has been painstakingly put together for the exact purposes of showing how an illness can affect one person's life. The devotion to 'open up' in this frank, 'no holds barred' biography is to allow you, the reader, to see how an ordinary life can change in such a short time. This honest approach should allow both the sufferer and their eventual carers to help come to terms with both their illness and their own transience. Maybe, by proving how similar we all are, there might be an eventual understanding, which hopefully will go well beyond just one person. With the help of others, it has been possible to recall some human elements. Although, in truth, it is the sufferers own underlying feelings and personal memories that make this book so special. In this instance, like many of us, Cilla remembered what it felt like to be invincible. To be able to run, skip, hop, jump, climb and generally be able to do almost anything. Through this book, Cilla thought that if her experiences were made public then she could, at least, help othersa | indirectly or otherwise. The latter stages of the book, sadly, reflect the concluding stages of lifea | so be prepared to get to know Cilla in both life and her eventual death.
If you have arthritis, it's all too easy to let pain and restricted activity become a way of life. With this illustrated collection of easy-to-follow exercises, you can gently boost levels of fitness and flexibility. The exercises balance rest, movement and relaxation in a way adapted to the needs of those with arthritis. Topics include; Assessing your fitness level and how arthritis affects you; Getting started and keeping going; Warming up; Stretches and strengtheners; Checkpoints for each set of exercises; Relaxation techniques; Other forms of exercise you can do, including walking, swimming, cycling, yoga, Alexander technique and t'ai chi.
Dyspraxia, which involves difficulties with physical co-ordination, is believed to affect up to 10% of the population. Children with dyspraxia may find it hard to learn to write, tie shoelaces or join in PE lessons at school. Adults with dyspraxia may find everyday tasks problematic, such as driving, having a bath, playing sport or, in some cases, even speaking clearly. This updated edition of Coping with Dyspraxia explains how this condition may affect people at any stage of life, and looks at how to cope with it. Topics include; what causes dyspraxia?, getting a diagnosis, help for nursery- and school-age children, life skills for teenagers, support for adults, conventional treatment, complementary therapies, the future, sources of further information. Jill Eckersley provides the latest thinking on this complex condition, and suggests practical ways to make life with dyspraxia easier.
One 'alone, but not lonely' boy's triumph over adversity, motivated by his dream of becoming a professional footballer and a longing for truth and connection. Street's childhood memoir is a sensitive and honest portrayal, through a poetic autistic lens, of growing up with learning differences and epilepsy in an unconventional family during the 1950s and 60s. A unique and vivid social document of the period, highlighting much of the discrimination still faced by minority and disabled communities today.
Head Above Water takes us into a space of intimate conversations on illness and society's stigmatization of disabled bodies. We are invited in to ask the big questions about life, loss, and the place of the other. The narrative builds a bridge that reminds us of our common humanity and weaves the threads that tie us all together. Through conversations about women's identities, bodies, and our journeys through life, we arrive at a politics of love, survival, and hope.
A Deafblind writer and professor explores how the misrepresentation of disability in books, movies, and TV harms both the disabled community and everyone else. As a Deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness-much to the confusion of the world around her. While she cannot see well enough to operate without a guide dog or cane, she can see enough to know when someone is reacting to the visible signs of her blindness and can hear when they're whispering behind her back. And she certainly knows how wrong our one-size-fits-all definitions of disability can be. As a media studies professor, she's also seen the full range of blind and deaf portrayals on film, and here she deconstructs their impact, following common tropes through horror, romance, and everything in between. Part memoir, part cultural criticism, part history of the Deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all. |
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