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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
WHEELS OF COURAGE reveals the never-before-told story of the world's first wheelchair athletes: U.S. soldiers, sailors, and Marines who were paralysed on the battlefield during World War II. They organised the first-ever wheelchair basketball teams within V.A. hospitals after the war, which quickly spread across the nation and changed the perception and treatment of disabled people. The book tells this story through the lens of three of these vets, describing their time in the military, their injuries, their recovery, and their role in creating wheelchair basketball. These men changed the narrative of disability, from pity for people whose lives were over to seeing them as capable people who happened to have a disability. Their doctors changed the way the medical community looked at and treated disabled patients by treating the whole patient instead of just trying to make the patient as comfortable as possible in a hopeless situation. And laws started changing to make the world more accessible to the disabled -- things we take for granted today, like sidewalk ramps. For the disabled, for sports fans, for veterans, for history buffs -- this is a narrative of hope, perseverance, and acceptance.
Approximately 2.5 million people in the United States--one percent
of the population--have an intellectual disability (previously
referred to as mental retardation). These conditions range from
genetic disorders such as Down syndrome to disabilities caused by
infectious diseases and brain injury. Intellectual Disability: A
Guide for Families and Professionals, by one of the country's
foremost authorities on intellectual disability, is a comprehensive
resource that will be of importance to anyone with a personal
connection to a child or adult with a neurodevelopmental disorder.
Almost 80% of autistic people have a co-occurring mental health condition, and this powerful book puts their voices front and centre, showcasing the human experience beyond the medicalised language and diagnoses. This poignant essay collection shines a light on voices that often go unheard in our society. Covering a range of experiences from multiple ages, genders and backgrounds, discussions include trauma, relationships, masking, healthcare, intersectionality and more. The essays are structured along the topics of hurt (personal experiences and how they shaped the contributor), help (the tools and tips which have helped on their personal journeys), and hope (looking forward to the future). At times touching, humorous, and also enraging, this book offers a frank and honest depiction of the challenges autistic people face and the knock-on effect on their mental health. A challenge to change how our society treats and values one another.
Current understandings of ageing and diversity are impoverished in three main ways. Firstly, with regards to thinking about what inequalities operate in later life there has been an excessive preoccupation with economic resources. On the other hand, less attention has been paid to cultural norms and values, other resources, wider social processes, political participation and community engagement. Secondly, in terms of thinking about the 'who' of inequality, this has so far been limited to a very narrow range of minority populations. Finally, when considering the 'how' of inequality, social gerontology's theoretical analyses remain under-developed. The overall effect of these issues is that social gerontology remains deeply embedded in normative assumptions which serve to exclude a wide range of older people. Ageing, Diversity and Equality aims to challenge and provoke the above described normativity and offer an alternative approach which highlights the heterogeneity and diversity of ageing, associated inequalities and their intersections. The Open Access version of this book, available at https://www.taylorfrancis.com/books/9781351851329, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 licence.
Efforts to reduce discrimination and increase diversity on campuses, coupled with shrinking budgets causing administrators to devote more resources toward recruiting and retaining students with disabilities, are fuelling an explosion of research in the area of inclusive education. An important focus that has been largely neglected is the place of teachers with disabilities in academe. International Perspectives on Teaching with Disability brings together 25 multi-disciplinary scholars with disabilities from Africa, Canada, the Caribbean, the UK, Israel and the United States to share their struggles and successes in teaching with disability. The 18 chapters are written largely from autoethnographic perspectives grounded in solid academic research but full of anecdotes and self-reflexive narratives that provide insights into the lived experiences of the authors. Woven into the narratives are discussions of the complexities of self-disclosure and self-advocacy; the varied-and often problematic-ways disability is experienced, perceived and discussed in society and in the classroom; the challenges of navigating academe with disability, the value of disability pedagogy, the positive student outcomes achieved by teaching through disability, as well as practical applications and lessons learned that will benefit educators, administrators and students preparing to become teachers. This book is written to champion the integral place and role of disabled educators in academe. Current educators with disability will be affirmed. Those with disability aspiring to become teachers will be encouraged. Temporarily able-bodied administrators and educators will be challenged. Everyone will be informed. This book will be a welcome addition to reading lists in a wide array of academic fields including: Education, Pedagogy, Disability Studies, Human Resources Management, and Sociology.
This book teaches drama and immersive theatre-based activities for parents and professionals working with children and young people on the autism spectrum. The exercises follow the author's simple, person-centred '3C pathway' of connecting, calming and communicating, and enable parents to gain an understanding of the challenges an autistic child may face by 'walking in their shoes', while empowering children to become more self-aware and express themselves in healthy ways. The activities included in the book are tried-and-tested, accessible and easy to implement, such as breathing exercises, mirroring movements, and treasure hunts. Using these activities, parents and professionals can gain insight into the sensory and social challenges experienced by those on the spectrum and can work to build a positive and trusting relationship, offering a secure base for children's emotional development.
Patienthood and Communication is an engagingly personal narrative detailing the author's experience living with, and adapting to, a degenerative and incurable eye disease (MacTel). Beyond the personal, this poignant story more broadly illustrates the ways in which communication enables individuals to adjust to serious health threats. Author and subject Peter Kellett highlights his important interactions with health care providers, family members, friends, colleagues, students, and others that provide shape to his journey. Kellett displays a compelling capacity for self-reflection in his descriptions of the life changes his vision loss imposes upon him, among them changes to his identity, in relationships and life plans. Adaptation and flexibility reveal themselves as central tenets of his learning to become a self-empowered patient. Perhaps the most crucial element to his adjustment is, however, positive communication, which is depicted throughout the book as the driving force in Kellett's journey into patienthood.
The social position of learning disabled people has shifted rapidly over the last 20 years, from long-stay institutions, first into community homes and day centres, and now to a currently emerging goal of "ordinary lives" for individuals using person-centred support and personal budgets. These approaches promise to replace a century and a half of "scientific" pathological models based on expert assessment, and of the accompanying segregated social administration which determined how and where people led their lives, and who they were. This innovative volume explains how concepts of learning disability, intellectual disability and autism first came about, describes their more recent evolution in the formal disciplines of psychology, and shows the direct relevance of this historical knowledge to present and future policy, practice and research. Goodey argues that learning disability is not a historically stable category and different people are considered "learning disabled" as it changes over time. Using psychological and anthropological theory, he identifies the deeper lying pathology as "inclusion phobia", in which the tendency of human societies to establish an in-group and to assign out-groups reaches an extreme point. Thus the disability we call "intellectual" is a concept essential only to an era in which to be human is essentially to be deemed intelligent, autonomous and capable of rational choice. Interweaving the author's historical scholarship with his practice-based experience in the field, Learning Disability and Inclusion Phobia challenges myths about the past as well as about present-day concepts, exposing both the historical continuities and the radical discontinuities in thinking about learning disability.
Patienthood and Communication is an engagingly personal narrative detailing the author's experience living with, and adapting to, a degenerative and incurable eye disease (MacTel). Beyond the personal, this poignant story more broadly illustrates the ways in which communication enables individuals to adjust to serious health threats. Author and subject Peter Kellett highlights his important interactions with health care providers, family members, friends, colleagues, students, and others that provide shape to his journey. Kellett displays a compelling capacity for self-reflection in his descriptions of the life changes his vision loss imposes upon him, among them changes to his identity, in relationships and life plans. Adaptation and flexibility reveal themselves as central tenets of his learning to become a self-empowered patient. Perhaps the most crucial element to his adjustment is, however, positive communication, which is depicted throughout the book as the driving force in Kellett's journey into patienthood.
Disabled women represent one of the most marginalised minority groups in the world, hence they are largely silent while their sexuality is ignored, suppressed, forbidden and buried underneath the carpet. Until recently, most of the Global Northern published literature on the subject of the sexuality of disabled women has predominantly been constructed from hearsay and second-hand narratives in studies which draw from the perspectives of parents, service providers and advocates, without much consultation of the relevant women. By facilitating the voice of disabled women in Zimbabwe and illuminating their experiences of sexuality, this book hopes to shift the experiences of sexuality of disabled women from the periphery of society to the fore.
First published in 1984, this book focuses on the support and reassurance needed by parents of children with handicaps. It provides a practical guide in relation to daily care and is equally as relevant to professionals, therapists, teachers, doctors and psychologists who must advise parents. Written by an Occupational Therapist, the book highlights the need to make such children as independent as possible and gives advice on care of a special baby, modifications to the home environment, the needs of a child with a physical handicap, problems of educational handicap, and the place of a child in the family and community.
A thorough and comprehensive guide for both education professionals and those affected by dyslexia, this book is predominantly a guidebook. It includes lots of practical advice and is based on the authorsa (TM) sound knowledge of current theory and practice. It includes:
First published in 1985, this book considers the financial consequences of parents and other relatives caring for severely disabled children at home. At the time of publication little reliable information was available on the costs incurred by 'informal carers', which this book set to rectify. The volume interweaves hard statistical material about money with the detailed personal responses of parents. It examines the claim that disablement in a child reduces parents' earnings while simultaneously creating an extra expense. The author compares the incomes and expenditure patterns of more than 500 families with disabled children and 700 control families of the time showing that the financial effects of disablement in a child can be far-reaching and pervasive. This book discusses contemporary policy implications of these findings in a chapter dealing with the rational for compensating families with disabled children, and in the final chapter. Although the book was original published in 1985, it references issues that are still important today and, whilst its main concern is families with disabled children, it will also be useful to anyone caring for other kinds of dependent people, such as the elderly.
First published in 1990, this book was the first informed study to focus on care within the voluntary sector. Written with the child in mind, it is a sensitive work which explores the administration, strategy, and problems facing carers in children's homes, at that time. Centring on small, community-based facilities, the authors discuss the processes involved in setting up and running such facilities. They examine the difficulties of evaluating progressive services that are influenced by the philosophy of normalisation, and highlight the lessons from which other providers of services are able to learn. Written by experienced researchers with contributions from service managers, Normalisation in Practice offers pragmatic advice on managing innovation efficiently without neglecting the needs of the child. Detailed interviews are combined with theoretical insight to provide an important guide for students and practitioners and a model for academics undertaking evaluative research. Although written at the start of the 1990s, this book contains discussions and material that are still very relevant to the subject today.
First published in 1986, this study explores the increased public concern with policies of 'community care' and their effects on informal carers, at that time. It looks at the widespread evidence that one particular group of informal carers- parents looking after their severely disabled child- lack information, advice and a co-ordinated pattern of supporting services. The author, who carried out research on disabled children and their families for a number of years, describes in detail a low-cost experimental project in which specialist social workers set out to remedy these shortcomings. Drawing on the results of this particular study, the author argues strongly for widespread assignment of 'key' social workers to this and other groups of informal carers. Despite being written in the mid-1980s, this book discusses topic that will still be of interest and use today.
First published in 1989, this book is about integrating or mainstreaming policies, looking specifically at how to improve circumstances for schoolchildren with disabilities or handicaps, and their teachers. The author draws on her experiences, both within and outside the academic institution, to conceptualise and theorise policy, so as to place this policy in a political framework and locate it in a wider model of social life. This model is then used to disentangle the nature and effects of policy practices surrounding integration and mainstreaming, looking at practice in various parts of Europe, the US and Australia, at that time. Although written at the end of the 1980s, this book discusses topics that are still relevant today.
First Published in 2002. Routledge is an imprint of Taylor & Francis, an informa company.
There are more opportunities than ever before for young people with disabilities to participate in sport and adapted physical education. For example, there are more than 3.7 million athletes worldwide aligned to the Special Olympics organisation, with national associations active in more than 200 countries worldwide. Despite this rapid growth, all too often coaches and teachers lack adequate knowledge of the particular challenges faced by people with intellectual disabilities. The principal aim of this book is to improve the understanding and professional skills of coaches, teachers, practitioners and researchers, to promote awareness of successful programmes addressing the needs of such young people, and to challenge the prevailing myths and stereotypes surrounding their abilities. With contributions from leading researchers and practitioners around the world, this book is the first to explore in depth the topic of sport and intellectual disability from a coaching perspective. Including both theoretical discussion and empirical case-studies, the book covers a full range of contemporary issues and themes, including training and coaching, family support, perceptions of disability, athlete motivation, positive sport experiences, motor development programmes, and social and cultural aspects of disability. Sport Coaching and Intellectual Disability is important reading for any student, researcher, coach, teacher, manager or policy maker with an interest in disability sport, physical education, coaching, or mainstream disability studies.
First published in 1979, this book concerns itself primarily with the mothers of mentally handicapped children. It discusses the problems of assistance that they may have experienced from their families, the community, or the available services. Whilst arguing for far more support for mothers when they are the main carer, this book also suggests reasons why some families are more easily able to cope with the problems of caring for severely handicapped children. This study is based on research that was conducted for and funded by the Department of Health and Social Security between 1973 and 1976.
In the spirit of The Blind Side and Friday Night Lights comes a tender and profoundly moving memoir about an ESPN producer's unexpected relationship with two disabled wrestlers from inner city Cleveland, and how these bonds-blossoming, ultimately, into a most unorthodox family-would transform their lives. When award-winning ESPN producer Lisa Fenn returned to her hometown for a story about two wrestlers at one of Cleveland's toughest public high schools, she had no idea that the trip would change her life. Both young men were disadvantaged students with significant physical disabilities. Dartanyon Crockett was legally blind as a result of Leber's disease; Leroy Sutton lost both his legs at eleven, when he was run over by a train. Brought together by wrestling, they had developed a brother-like bond as they worked to overcome their disabilities. After forming a profound connection with Dartanyon and Leroy, Fenn realized she couldn't just walk away when filming ended; these boys had had to overcome the odds too many times. Instead, Fenn dedicated herself to ensuring their success long after the reporting was finished and the story aired-and an unlikely family of three was formed. The years ahead would be fraught with complex challenges, but Fenn stayed with the boys every step of the way-teaching them essential life skills, helping them heal old wounds and traumatic pasts, and providing the first steady and consistent support system they'd ever had. This powerful memoir is one of love, hope, faith, and strength-a story about an unusual family and the courage to carry on, even in the most extraordinary circumstances.
* This anthology has been curated by a seasoned playwright, academic, director and actor who has lived experience of being deaf. * Would be recommended reading in deaf studies and deaf culture courses across the world. * This book is the first anthology of its kind.
This practical resource is designed to help professionals, parents, and carers on their journey to independence with children and young people with vision impairments. Building on the ideas and practices introduced in Supporting Life Skills for Young Children with Vision Impairment and Other Disabilities, this book addresses middle childhood, the period from when the child starts school, through to the onset of puberty. It offers a wealth of practical strategies and activities to enhance key skills, including personal safety, advanced dressing, personal hygiene, dealing with puberty, social skills, time, money and organisational skills, eating, drinking and food preparation skills, and the transition to secondary school. This book: Addresses the main independent living skills areas for vision impaired children in middle childhood, by providing simple explanations of skills and offering practical strategies and techniques to support progression onto the next stage Is written in a fully accessible style, with photocopiable pages and additional downloadable eResources Provides a variety of documentation to chart the child's development and show progress over time This invaluable resource puts the changes that occur during middle childhood into context and will help busy professionals, families and carers start preparing children with a vision impairment for adulthood, allowing them to become confident and independent individuals.
Locates social attitudes towards blindness in a personal and cultural landscape. Is interdisciplinary in its crossing of lines among education, the humanities, and the social sciences. Includes case-studies from Canada, Cyprus, India, Indonesia, Italy, Poland, the United States, the United Kingdom, South Africa, South America, and Spain.
Meet Harry. Harry likes to play football, climb trees, and hang out with friends, but Harry doesn't like reading. That is until his teacher explains that Harry has dyslexia, which makes things like reading and writing particularly hard for him - and with help from his mum, teacher and an educational psychologist, Harry learns specific strategies for reading with dyslexia. This delightful picture book for children aged 5-11 includes tips for reading with dyslexia and lovable, supportive characters who show that it's ok to discuss dyslexia and to seek help when needed. |
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