The social position of learning disabled people has shifted rapidly over the last 20 years, from long-stay institutions, first into community homes and day centres, and now to a currently emerging goal of "ordinary lives" for individuals using person-centred support and personal budgets. These approaches promise to replace a century and a half of "scientific" pathological models based on expert assessment, and of the accompanying segregated social administration which determined how and where people led their lives, and who they were. This innovative volume explains how concepts of learning disability, intellectual disability and autism first came about, describes their more recent evolution in the formal disciplines of psychology, and shows the direct relevance of this historical knowledge to present and future policy, practice and research. Goodey argues that learning disability is not a historically stable category and different people are considered "learning disabled" as it changes over time. Using psychological and anthropological theory, he identifies the deeper lying pathology as "inclusion phobia", in which the tendency of human societies to establish an in-group and to assign out-groups reaches an extreme point. Thus the disability we call "intellectual" is a concept essential only to an era in which to be human is essentially to be deemed intelligent, autonomous and capable of rational choice. Interweaving the author's historical scholarship with his practice-based experience in the field, Learning Disability and Inclusion Phobia challenges myths about the past as well as about present-day concepts, exposing both the historical continuities and the radical discontinuities in thinking about learning disability.

Patienthood and Communication is an engagingly personal narrative detailing the author's experience living with, and adapting to, a degenerative and incurable eye disease (MacTel). Beyond the personal, this poignant story more broadly illustrates the ways in which communication enables individuals to adjust to serious health threats. Author and subject Peter Kellett highlights his important interactions with health care providers, family members, friends, colleagues, students, and others that provide shape to his journey. Kellett displays a compelling capacity for self-reflection in his descriptions of the life changes his vision loss imposes upon him, among them changes to his identity, in relationships and life plans. Adaptation and flexibility reveal themselves as central tenets of his learning to become a self-empowered patient. Perhaps the most crucial element to his adjustment is, however, positive communication, which is depicted throughout the book as the driving force in Kellett's journey into patienthood.

Patienthood and Communication is an engagingly personal narrative detailing the author's experience living with, and adapting to, a degenerative and incurable eye disease (MacTel). Beyond the personal, this poignant story more broadly illustrates the ways in which communication enables individuals to adjust to serious health threats. Author and subject Peter Kellett highlights his important interactions with health care providers, family members, friends, colleagues, students, and others that provide shape to his journey. Kellett displays a compelling capacity for self-reflection in his descriptions of the life changes his vision loss imposes upon him, among them changes to his identity, in relationships and life plans. Adaptation and flexibility reveal themselves as central tenets of his learning to become a self-empowered patient. Perhaps the most crucial element to his adjustment is, however, positive communication, which is depicted throughout the book as the driving force in Kellett's journey into patienthood.

First published in 1989, this book is about integrating or mainstreaming policies, looking specifically at how to improve circumstances for schoolchildren with disabilities or handicaps, and their teachers. The author draws on her experiences, both within and outside the academic institution, to conceptualise and theorise policy, so as to place this policy in a political framework and locate it in a wider model of social life. This model is then used to disentangle the nature and effects of policy practices surrounding integration and mainstreaming, looking at practice in various parts of Europe, the US and Australia, at that time. Although written at the end of the 1980s, this book discusses topics that are still relevant today.

The travel bible for parents of children with autism spectrum disorder and/or mood and distraction disorders, offering helpful tips to soothe any child's travel anxieties. Traveling with children is always challenging, but for parents of children with autism spectrum disorder and/or mood and attention and distraction disorders it can be especially intimidating. How should parents of children experiencing meltdowns deal with clueless and judgmental onlookers? What are the best methods to alleviate motion sickness when your child might already be on a cocktail of drugs? Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible, and the Neurodiverse answers these and many other questions parents may have when traveling with their children. Dawn M. Barclay presents travel strategies and anecdotes from Certified Autism Travel ProfessionalsTM, parents of special needs children, associations and advocates, and mental health professionals, broken down by mode of transportation and type of venue. The heart of the book outlines suggested itineraries for spectrum families as well as venues--such as museums--that cater to the unique special interests that are characteristic of individuals with autism. Less common accommodations such as dude ranches and houseboats are also included, as are vacations involving sports that might not immediately be associated with ASD, such as diving, skiing, and golf. The book culminates with a resource guide of travel agents who specialize in special needs travel--as well as where to find other experts--and lists of organizations that advocate for special needs families. Noted mental health professionals offer advice throughout the book and organizations that support the needs of this community are profiled and included in the resources. Travel brings the world together and now, thanks to a growing focus on the needs of those with special needs, it is more accessible than ever before. This work is an essential part of that effort, a resource designed to make the cultural, educational, and bonding benefits of vacations available to all.

First published in 1985, this book considers the financial consequences of parents and other relatives caring for severely disabled children at home. At the time of publication little reliable information was available on the costs incurred by 'informal carers', which this book set to rectify. The volume interweaves hard statistical material about money with the detailed personal responses of parents. It examines the claim that disablement in a child reduces parents' earnings while simultaneously creating an extra expense. The author compares the incomes and expenditure patterns of more than 500 families with disabled children and 700 control families of the time showing that the financial effects of disablement in a child can be far-reaching and pervasive. This book discusses contemporary policy implications of these findings in a chapter dealing with the rational for compensating families with disabled children, and in the final chapter. Although the book was original published in 1985, it references issues that are still important today and, whilst its main concern is families with disabled children, it will also be useful to anyone caring for other kinds of dependent people, such as the elderly.

First published in 1986, this study explores the increased public concern with policies of 'community care' and their effects on informal carers, at that time. It looks at the widespread evidence that one particular group of informal carers- parents looking after their severely disabled child- lack information, advice and a co-ordinated pattern of supporting services. The author, who carried out research on disabled children and their families for a number of years, describes in detail a low-cost experimental project in which specialist social workers set out to remedy these shortcomings. Drawing on the results of this particular study, the author argues strongly for widespread assignment of 'key' social workers to this and other groups of informal carers. Despite being written in the mid-1980s, this book discusses topic that will still be of interest and use today.

First published in 1990, this book was the first informed study to focus on care within the voluntary sector. Written with the child in mind, it is a sensitive work which explores the administration, strategy, and problems facing carers in children's homes, at that time. Centring on small, community-based facilities, the authors discuss the processes involved in setting up and running such facilities. They examine the difficulties of evaluating progressive services that are influenced by the philosophy of normalisation, and highlight the lessons from which other providers of services are able to learn. Written by experienced researchers with contributions from service managers, Normalisation in Practice offers pragmatic advice on managing innovation efficiently without neglecting the needs of the child. Detailed interviews are combined with theoretical insight to provide an important guide for students and practitioners and a model for academics undertaking evaluative research. Although written at the start of the 1990s, this book contains discussions and material that are still very relevant to the subject today.

A rediscovered modern classic: a life-affirming account of one man's journey into blindness 'A gift to the whole of humanity' Cathy Rentzenbrink Days before the birth of his first son, writer and academic John M. Hull started to go blind. He would lose his sight entirely, unable to distinguish any sense of light or shadow. Isolated and claustrophobic, he sank into a deep depression. Soon, he had forgotten what his wife and daughter looked like. In Notes on Blindness, John reveals his profound sense of loss, his altered perceptions of time and space, of waking and sleeping, love and companionship. With astonishing lucidity of thought and no self-pity, he describes the horror of being faceless, and asks what it truly means to be a husband and father. And eventually, he finds a new way of experiencing the world, of seeing the light. Based on John's diaries recorded on audio tape, this is a profoundly moving, wise and life-affirming account of one man's journey into blindness. 'Poignant and wise' Andrew Solomon Published in partnership with Wellcome Collection.

A thorough and comprehensive guide for both education professionals and those affected by dyslexia, this book is predominantly a guidebook. It includes lots of practical advice and is based on the authorsa (TM) sound knowledge of current theory and practice.

It includes:

• photocopiable materials
• contact and reference details
• personal organisation advice
• ways forward for potential problems
• information on secondary or associated difficulties.

A leading theologian recounts her journey of faith, shaped as it has been by caring for a profoundly disabled son for forty-five years, while also being a writer, university teacher and Methodist minister.

First Published in 2002. Routledge is an imprint of Taylor & Francis, an informa company.

There are more opportunities than ever before for young people with disabilities to participate in sport and adapted physical education. For example, there are more than 3.7 million athletes worldwide aligned to the Special Olympics organisation, with national associations active in more than 200 countries worldwide. Despite this rapid growth, all too often coaches and teachers lack adequate knowledge of the particular challenges faced by people with intellectual disabilities. The principal aim of this book is to improve the understanding and professional skills of coaches, teachers, practitioners and researchers, to promote awareness of successful programmes addressing the needs of such young people, and to challenge the prevailing myths and stereotypes surrounding their abilities. With contributions from leading researchers and practitioners around the world, this book is the first to explore in depth the topic of sport and intellectual disability from a coaching perspective. Including both theoretical discussion and empirical case-studies, the book covers a full range of contemporary issues and themes, including training and coaching, family support, perceptions of disability, athlete motivation, positive sport experiences, motor development programmes, and social and cultural aspects of disability. Sport Coaching and Intellectual Disability is important reading for any student, researcher, coach, teacher, manager or policy maker with an interest in disability sport, physical education, coaching, or mainstream disability studies.

* This anthology has been curated by a seasoned playwright, academic, director and actor who has lived experience of being deaf. * Would be recommended reading in deaf studies and deaf culture courses across the world. * This book is the first anthology of its kind.

First published in 1986, Handicapping Conditions in Children provides an accessible overview of a wide range of handicapping conditions and their remediation, and gives a balanced perspective on the medical, educational and social issues. It will therefore be of value to a wide audience in these professions as well as to students and parents. Each chapter deals with one specific area but is presented to cover: description of the condition and its aetiology; its prevalence in the population and relatives; developmental characteristics; special problems and needs; educational and social provision; the potential for the future; and further reading lists. The book does not include every possible condition, but concentrates on those that are most frequent or problematic. This book is a reissue originally published in 1986. The language used is a reflection of its era and no offence is meant by the Publishers to any reader by this republication

There are more opportunities than ever before for young people with disabilities to participate in sport and adapted physical education. For example, there are more than 3.7 million athletes worldwide aligned to the Special Olympics organisation, with national associations active in more than 200 countries worldwide. Despite this rapid growth, all too often coaches and teachers lack adequate knowledge of the particular challenges faced by people with intellectual disabilities. The principal aim of this book is to improve the understanding and professional skills of coaches, teachers, practitioners and researchers, to promote awareness of successful programmes addressing the needs of such young people, and to challenge the prevailing myths and stereotypes surrounding their abilities. With contributions from leading researchers and practitioners around the world, this book is the first to explore in depth the topic of sport and intellectual disability from a coaching perspective. Including both theoretical discussion and empirical case-studies, the book covers a full range of contemporary issues and themes, including training and coaching, family support, perceptions of disability, athlete motivation, positive sport experiences, motor development programmes, and social and cultural aspects of disability. Sport Coaching and Intellectual Disability is important reading for any student, researcher, coach, teacher, manager or policy maker with an interest in disability sport, physical education, coaching, or mainstream disability studies.

Zip Zip my brain harts is the result of collaboration between Buckland (a photographer) and HSRC researchers concerned with disability issues. There is a tendency for disability to be a secret. The challenges that face families of people with disabilities are also often hidden away. Part of the reason is that disability is still largely seen as a shame, a disgrace, and a source of stigma. Angie Buckland, the mother of a disabled child, Nikki, provides us with a personal account of how she has dealt with the challenge of disability. Some of the key issues considered are - what if disability was considered ordinary or everyday? What if disability were seen as just one among many differences that there already are between people? What if disability were defined not simply as a physical or mental medical state, but were understood to be a societal problem - in terms of the reaction of other people to disability, or how geographical and social spaces can be discriminatory? Zip Zip my brain harts hopes to open up a space for dialogue about the issue of disability and also to provide families and healthcare professionals with a compassionate, understanding and inspiring guide to ordinary people's real experiences.

Language which develops 'against all the odds' is very precious. Words were not enough for Tom; it was signs that made sense of a world silenced by meningitis. Confidence came via joyful and positive steps to communication from babyhood; a brush with epilepsy, a cochlear implant in his teens and life as an independent young adult followed.

Grounded in scientific research on thinking styles and learning, the guidance and advice throughout has been developed to help individuals put theory into practice Provides a unique hands-on approach to managing dyslexia/SpLD Presented in a dyslexic-friendly style, including visual learning aids such as mind-maps, boxed features and colour throughout Written by individuals with dyslexia, who fully understand the complexities of managing the condition

Sex. Slang. Slumber parties. The preoccupations of adolescents with Asperger Syndrome are no different than those of other teens, but they can be much more confusing. The lack of social skills and ability to grasp conversational nuances that characterize AS make adolescence the most difficult life stage.

aeWhy can I swear in front of my friends, but not in front of the teacher?AE
aeWhy do I have to pay attention when IAEm not interested in what my friend is saying?AE
aeWhat does it mean to aego outAE with somebody?AE

Asperger Syndrome is characterized by a reliance on clear guidelines, and in adolescence the social guidelines become murky and confusing. In "Asperger Syndrome and Adolescence," child psychologist Teresa Bolick presents strategies for helping the ten to eighteen-year-old achieve happiness and success by maximizing the benefits of AS and minimizing the drawbacks.

YouAEll Learn:
-How to work with the school to help the AS child learn and succeed.
-Strategies for turning common AS traits like preoccupations and routines into positive strengths.
-How to help the AS teen learn to manage unforeseen glitches with grace.
-The best ways to talk to your teen about friendship, love, romance, and sex.

Along the way, youAEll be inspired by success stories of dozens of AS teens. With the help of this book, youAEll learn that it is possible for an adolescent with Asperger Syndrome to achieve unimaginable success."

Taking Care, based on twenty-six interviews and other autobiographical narratives, challenges the negative stereotypes about mothers with disabilities. These women's stories tell of their successes despite the barriers they encounter from the society in which they live. Covering issues in the mothering cycle from pregnancy and birth to raising a child through adulthood, the mothers' experiences and strategies provide valuable information for other women with disabilities as well as for doctors and health and social service professionals. This book will provide a significant model for all parents.

"Ah Jeeeze, not another book about Autism." But this one is different It's not all rainbows, unicorns and blessings. "The Dark Side of Autism" puts raising a child with special needs into perspective with no sugar coating of the reality.
With firsthand experience raising a nonverbal child with autism and epilepsy, Angela talks openly and honestly about the true challenges parents face raising a child on the spectrum. With contentious opinions and candid observations, " The Dark Side of Autism" tells the truth about a dark and difficult subject people don't like to talk about while fostering awareness for this sometimes debilitating and mostly unknown neurological disorder.
This offhanded, direct and vulnerable parenting chronicle will give you a new appreciation for the simple things taken for granted with neuro-typical kids like taking a trip to Disneyland, a full night's sleep and haircuts. Angela often says things people only think to themselves in fear of offending someone.
Autism has a dark side---it's learning to cope with the darkness that can lift you up. If you are a parent with a child with special needs this book may read your mind. Angela is spot on with her darkly funny observations in the world of special needs---from the taunting beeping of a short bus to mastering IEPs with a reoccurring "don't ask, don't tell" theme.
If you know someone, and chances are you do, caring for a child with special needs, you will gain new insight on what it must be like for them. This book can be easily used as a guide to the stupid things NOT to say to a parent with a mentally or physically challenged child---without checking your "foot in the mouth meter" first. "The Dark Side of Autism" can help you be a kinder, more compassionate friend, parent, spouse and human.