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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Motor neurone disease (MND) is a progressive condition that damages the nervous system, leaving muscles wasted and weak, and causing loss of mobility, and difficulties with speech, swallowing and breathing. MND tends to affect people over 40 and is most common between the ages of 50 and 70. There are about 5,000 people with MND at any one time in the UK. The cause remains a mystery and there is no cure. The third edition of this book gives a full update of treatments and resources available to help those diagnosed live life to the full. Topics include what the disease is, what the doctors will do, and how to cope with the difficulties. This new edition also examines possible dietary factors in causing the disease, the latest on benefits, and up to date thinking on drug trials. Dr David Oliver, a leading expert on MND, shows how to treat not just the physical effects but also the emotional ones for the whole family. Dr Oliver also explains the vital role of the Motor Neurone Disease Association.
First published in 1986, Handicapping Conditions in Children provides an accessible overview of a wide range of handicapping conditions and their remediation, and gives a balanced perspective on the medical, educational and social issues. It will therefore be of value to a wide audience in these professions as well as to students and parents. Each chapter deals with one specific area but is presented to cover: description of the condition and its aetiology; its prevalence in the population and relatives; developmental characteristics; special problems and needs; educational and social provision; the potential for the future; and further reading lists. The book does not include every possible condition, but concentrates on those that are most frequent or problematic. This book is a reissue originally published in 1986. The language used is a reflection of its era and no offence is meant by the Publishers to any reader by this republication
This is a memoir about hope - hope in others, hope in systems, and hope for the future. I've never quite known where to begin when someone asks me what I've been up to. I've never quite known how to explain what our daily life is like. I wanted to write how it is in order to give others a greater understanding of disability and caring. And to be totally honest, I wanted to write something that would make people consider being Louis's friend. So here is me introducing you: Louis, this is your story. Readers, this is my son.
Autistic people often feel they have to present as neurotypical or perform neurotypical social behaviours in order to fit in. So-called 'masking' is a social survival strategy used by autistic people in situations where neurodiversity is not understood or welcomed. While this is a commonly observed phenomenon in the autistic community, the complexities of masking are still not widely understood. This book combines the latest research with personal case studies detailing autistic experiences of masking. It explains what masking is and the various strategies used to mask in social situations. The research also delves into the psychology behind masking and the specifics of masking at school, at social events with peers, and at work. The book looks at the consequences of masking, including the toll it can have on mental and physical health, and suggests guidance for family, professionals, and employers to ameliorate negative effects. With a diverse range of voices, including perspectives across gender, ethnicity and age, this is the comprehensive guide to masking and how to support autistic people who mask.
Traumatic spinal cord injuries have become increasingly common, with nearly a quarter of a million Americans dealing with the condition and another 10,000 new cases each year. The need for a simple, authoritative guide to this disability has never been greater. The "Mayo Clinic Guide to Living with a Spinal Cord Injury" addresses that need. With all the information written, vetted, and endorsed by the world's most prestigious medical clinic, the book enables sufferers to return to an active and productive life within the limits of their disability. Here the Clinic's leading experts offer advice on everything from emotional adjustments to skin care to modifying homes and cars. This independence-granting book encourages readers to resume their favorite hobbies, participate in athletic activities, and return to the workplace quickly and safely.
**NOW WITH AN AFTERWORD AND ADVICE FOR A NEW MOTHER** 'A powerful, moving and inspiring story - it opens up a whole new world of understanding.' Esther Freud 'This is wonderful. I urge you to read it. It is life enhancing and I defy you not to fall in love with Ben!' Natasha Poliszczuk, Books Editor, YOU Magazine 'An honest and unflinching account of Jessica's journey as the mother of a child born with complex needs. Essential reading... and a source of solace for those who may find themselves on a similar path.' Leah Hazard, author of Hard Pushed: A Midwife's Story 'Jessica's beautiful words gave me a deeper understanding about embracing disability. I am inspired and will be recommending this book to parents as a testament to following your parenting instincts.' Arabella Carter-Johnson, author of Iris Grace 'A gripping and vital insight into the lives of families trying to thrive in bureaucratic systems that all too often add to the challenges of providing disabled children with basic care and human rights. Impossible to put down.' Hannah Barham-Brown, deputy leader of the Women's Equality Party 'Rooted in love and is a moving story about the transformative power of adapting, practically and emotionally to changing circumstances. As a disabled adult, it was a joy to join the parent of a disabled child as they embrace Disability Culture and allyship.' Jess Thom, Touretteshero 'A courageous, heartrending story of grief, love and ultimately hope.' The Sun, 5 star review *** Jessica thought she was prepared for the experience of motherhood. Armed with advice from friends and family, parenting books and antenatal classes, she felt ready. After giving birth, she found herself facing a different, more uncertain reality. Her son, Ben, was fighting to stay alive. Jessica shares her journey raising Ben. His disability means he will never be able to move or communicate without assistance. Jessica has to learn how to feed Ben when he can't eat, wrestle with red tape to secure his education and defend his basic rights in the face of discrimination. But the act of reading to Ben enriches both their lives and brings them joy. As Ben begins to thrive, alongside his two younger siblings, Jessica finds that caring for a child with unique needs teaches her about appreciating difference and doing things your own way. This uplifting story is about the power of family love, finding inner strength and, above all, hope.
The ultimate guide to ensuring school success for kids with attention deficits. School Success for Kids With ADHD offers parents and teachers the support they need to ensure children with attention deficits build on their strengths, circumvent their weaknesses, and achieve to their fullest potential. With the growing number of children diagnosed with attention problems, parents and teachers need practical advice for helping these children succeed in school. Topics include recognizing the causes and types of attention deficits and how they appear in the school context, requesting school evaluations and diagnoses, understanding the laws regarding students with special needs, advocating for these students in the school environment, and coaching students with attention deficits to success. The authors also include a brief overview of research and medical perspectives on attention deficits, strategies used by teachers of children with ADHD, and helpful tools for parents and teachers to employ, such as homework checklists and self-advocacy charts.
This book addresses the ways in which individualised, market-based models of disability support provision have been mobilised in and across different countries through cross-national investigation of individualised funding (IF) as an object of neoliberal policy mobility. Combining rich theoretical and interdisciplinary perspectives with extensive empirical research, the book provides a timely examination of the policy processes and mechanisms driving the spread of IF amongst countries at the forefront of disability policy reform. It is argued that IF's mobility is not attributable to neoliberalism alone but to the complex intersections between neoliberal and emancipatory agendas and to the transnational networks that have blended the two agendas in new ways in different institutional contexts. The book shows how disability rights struggles have synchronised with neoliberal agendas, which explains IF's propensity to move and mutate between different jurisdictions. Featuring first-hand accounts of the activists and advocates engaged in these struggles, the book illuminates the consequences and risks of the dangerous liaisons and political trade-offs that seemed necessary to get individualised funding on the policy agenda for disabled people. It will be of interest to all scholars and students working in disability studies, social policy, sociology and political science more generally.
In the book Witness 2 Healing, Angus Gordon decribes his journey to health after suffering the excruciating pain of spinal cord stenosis. Outspoken and with a firm belief in hilmself, Angus describes how he chose to heal his body his way without medication or surgery. Despite cautioning readers to obtain a medical opinion, Angus also provides a step-by-step process of basic healthy living choices for others to follow. Thses include appropriate exercises, nutrition, posture and mindset. Some delicious recipes are also included. Witness 2 Healing is simply written, speaks directly to the reader and provides a refreshing insight into an alternative healing.
Jane Alison Sherwin's honest and uplifting account provides insight into the challenges of bringing up a child with Pathological Demand Avoidance (PDA). After years of misdiagnosis, Jane's daughter, Mollie, was diagnosed with PDA at the age of seven, and we follow her experiences pre and post diagnosis to age 10 as she attends school, interacts with the outside world and approaches adolescence. Throughout, Jane provides commentary on her daughter's behaviour and the impact it has on her family, explaining the 'why' of PDA traits, including the need for control, meltdowns, obsessive behaviour and sensory issues. She reveals the strategies that have worked for Mollie and provides essential advice and information on obtaining a diagnosis and raising awareness of PDA. The book also includes an interview with Mollie. Full of advice and support, and with a focus on understanding the child and how he or she sees the world, this book will be of immeasurable value to the parents and families of children with PDA as well as the professionals working with them, particularly teachers and teaching assistants, SEN co-ordinators, psychologists, outreach workers and social workers.
This practical resource is designed to help professionals, parents and carers as they support children with vision impairments to develop independence in everyday tasks. Using the Early Years Foundation Stage framework as a basis, it provides a wealth of strategies and activities to develop key skills, including dressing, maintaining personal hygiene, eating and drinking and road safety. This is an invaluable tool that can be dipped in and out of to help make learning fun, boosting the child's confi dence and helping create a positive 'can- do' attitude when faced with new challenges. This book: Addresses the main problem areas for babies and young visually impaired children and their families, by providing simple explanations of skills and offering strategies and techniques to support progression onto the next stage. Is written in a fully accessible style, with photocopiable pages and additional downloadable resources. Provides a variety of documentation to chart the child's development and show progress over time. Research shows strong indicators that early intervention can reduce or eliminate developmental delays in children with a vision impairment. The supporting strategies in this book help busy professionals and carers to make every opportunity a learning opportunity, allowing children with a vision impairment to become confi dent and independent individuals.
How do we give a voice to those who so often remain unheard? Will You Read This, Please? is a frank and impactful collection of twelve stories as told to our best British writers, based on the lived experience of people who have faced mental illness in the UK. Edited by Joanna Cannon, the Sunday Times bestselling author of The Trouble with Goats and Sheep, Three Things About Elsie and A Tidy Ending, the stories told here are powerful, resonant and heart-breaking. This is a ground-breaking and unforgettable collection, shining a light on the stigma and isolation of living with mental illness, while also showing the strength and resilience of the human spirit.
"To think of PDA as merely involving demand avoidance is to me akin to thinking of tigers as merely having stripes." This book is a unique window into adult Pathological Demand Avoidance (PDA), exploring the diversity of distinct PDA traits through the voices of over 70 people living with and affected by the condition. Sally Cat, an adult with PDA, has successfully captured the essence of a popular online support group in book form, making the valuable insights available to a wider audience, and creating a much-needed resource for individuals and professionals. Candid discussions cover issues ranging from overload and meltdowns, to work, relationships and parenting. This is a fascinating and sometimes very moving read.
Discover the importance of family in the treatment of
schizophrenia!
"Ah Jeeeze, not another book about Autism." But this one is
different It's not all rainbows, unicorns and blessings. "The Dark
Side of Autism" puts raising a child with special needs into
perspective with no sugar coating of the reality.
People with speaking difficulties are at the mercy of insurance companies who are determining how often and for how long speech therapy services should be delivered. It is also a disturbing reality that the likelihood for therapy frequency and length of care is contingent upon either the level of competence or comfort level of the speech-language pathologist or the financial policies of each institution. Often it has nothing to do with the severity or need for speech therapy. Our health care system is in no position to bankroll the long-term therapy that many people need who have moderate to profound speaking difficulties. The goal of Teaching of Talking is to make sure that any loved one, caregiver or speech-language pathologist is thoroughly knowledgeable in methods to help people improve talking since it is never known when the plug will be pulled on speech and language therapy services. Ittleman says: "I see hundreds of people with speech and language difficulties each year. By reading and applying The Teaching of Talking, you will have the confidence to help your client or loved one, no matter what the insurance company or institution does. By learning to do what is in Teaching of Talking you will be more self-sufficient and will not have to rely on anyone to provide your loved one with expert speech therapy.
The deaf world is a complex one, divided by the allegiance of some to Deaf Culture, which emphasizes communication by sign-language, and by others to oralism, which emphasizes speech as the primary means of communication, and still others to a program called Total Communication, which stresses both signing and speaking. Today, more and more deaf people, especially children, are choosing oralism because it helps them fit into mainstream society better. This work presents interviews with fourteen extraordinary oral deaf role models from diverse backgrounds and professions. Wall Street banker Ralph Marra, paralegal Kristin Buehl, 1984 Olympic gold medalist Jeff Float, percussionist Evelyn Glennie, engineer George Oberlander, university mathematics professor Dr. David James, law professor Bonnie Poitras Tucker, executive Carolyn Ginsburg, foundation head Mildred Oberkotter, architect Tom Fields, accountant and institute executive director Ken Levinson, finance manager Michael Janger, school administrator Kathleen Suffridge Treni, and teacher Karen Kirby tell of their experiences and stories, discuss what helped and what hindered them, and offer advice to parents of deaf children. Instructors considering this book for use in a course may request an examination copy here.
CONTRIBUTIONS TO THE SOCIOLOGY OF LANGUAGE brings to students, researchers and practitioners in all of the social and language-related sciences carefully selected book-length publications dealing with sociolinguistic theory, methods, findings and applications. It approaches the study of language in society in its broadest sense, as a truly international and interdisciplinary field in which various approaches, theoretical and empirical, supplement and complement each other. The series invites the attention of linguists, language teachers of all interests, sociologists, political scientists, anthropologists, historians etc. to the development of the sociology of language.
This collection begins with two premises: that our understanding of the nature and forms of creativity in later life remains limited and that dialogue between specialists in gerontology, the arts and humanities can produce the crucial new insights that are so obviously needed. Representing the outcome of ongoing dialogue across the disciplinary divide, the contributions of this volume reflect anew on what we share and how we differ; creating new narratives so as to build an understanding of late-life creativity that goes far beyond the narrow confines of the pervasively received idea of 'late style'. Creativity in Later Life encompasses a range of personal reflections and discussions of the boundaries of creativity, including: Canonical artistic achievements to community art projects Narratives of carers for those living with dementia Analyses of creative theory Through these insightful chapters, the authors consequently offer an understanding of creativity in later life as varied, socialised and - above all - located in the cultural and economic circumstances of the here and now. This title will appeal to academics, practitioners and students in the various gerontological, arts and humanities fields; and to anyone with an interest in the nature of creativity in later life and the forms it takes.
A thorough and comprehensive guide for both education professionals and those affected by dyslexia, this book is predominantly a guidebook. It includes lots of practical advice and is based on the authors' sound knowledge of current theory and practice. It includes: photocopiable materials contact and reference details personal organisation advice ways forward for potential problems information on secondary or associated difficulties.
Written by a world authority on maths difficulties in children, this accessible guide provides tried and tested visual strategies and tailored techniques to help teachers and parents support children with SpLDs who need help with maths. Drawing on the latest research, into areas such as cognition and meta-cognition, along with the authors' decades of teaching experience, the book offers insight into how maths learning difficulties, including dyslexia, dyscalculia and maths anxiety, make maths difficult. Each chapter looks at foundational areas of maths learning that children may struggle with, from early number experiences to basic addition and subtraction, times tables, measurement and more. Essential reading for any teacher, learning assistant or parent supporting children with maths.
Potty training a child with developmental disorders can be a real challenge, and sometimes the extra difficulties make you feel as though you've tried everything, and failed. In this book, Brenda Batts shows how you can overcome problems, big and small, and provides tried and tested methods that really work, tailored to each individual child. Bursting with ideas on how to see past conventional strategies and adapt toilet training to suit your child, this book outlines methods that have helped even the most despairing of parents and caregivers. Examples of success stories range from two-year-olds to adults aged 20, and show that no matter how difficult it may seem, a little creativity and adaptation can get anyone toilet trained, however many previous attempts have failed. The program itself is supported by plenty of helpful hints and tips, as Brenda covers all you need to get your child past the diaper stage and help them to achieve a big step towards independence. This book is a must for anybody looking to toilet train someone with developmental disorders. |
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