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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Taking a look at the most common sensory issues kids face, Raising Kids With Sensory Processing Disorders offers a compilation of unique, proven strategies that parents can implement to help their children move beyond their sensory needs. This updated second edition: Shows parents how to characterize their child's sensory issues into one of several profiles. Helps parents find the best adaptations and changes to their child's everyday routines. Provides a week-by-week series of activities and checklists. Helps improve children's performance on tasks like homework, transitions between activities, and interactions with friends. Is written by parents and occupational therapists. Whether it's having to remove tags from clothing or using special dimmed lighting when they study, kids with sensory disorders or special sensory needs often need adaptations in their everyday lives in order to find success in school and beyond.
In this updated edition, Olga Bogdashina provides a theoretical foundation for understanding communication and language impairments specific to autism. She explores the effects of different perceptual and cognitive styles on the communication and language development of autistic children. She also stresses the importance of identifying each individual's nonverbal language - which can be visual, tactile, kinaesthetic, auditory, olfactory or gustatory - to establish verbal communication. Reflecting recent research and changes in terminology, the book explains why some approaches may work for some autistic children but not for others, and the 'What They Say' sections allow the reader to see through the eyes of autistic individuals and understand their language differences first-hand. 'What We Can Do to Help' sections throughout the book give practical recommendations for helping autistic individuals use their natural mechanisms to learn and develop social and communicative skills. The final chapters are devoted to assessment and intervention issues with recommendations for selecting appropriate methods and techniques to enhance communication, based on the specific mode of communication a person uses.
A powerful, eye-opening insight into navigating the world as a disabled young woman Women's lives are shaped by sexism and expectations. Disabled people's lives are shaped by ableism and a complete lack of expectations. But what happens when you're subjected to both sets of rules? This powerful, honest, hilarious, and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection: the struggles, the joys, and the unseen realities of being a disabled woman. From navigating the worlds of education and work, dating, and friendship to managing care, contemplating motherhood, and learning to accept your body against a pervasive narrative that it is somehow broken and in need of fixing, The View From Down Here shines a light on what it really means to move through the world as a disabled woman.
Almost 80% of autistic people have a co-occurring mental health condition, and this powerful book puts their voices front and centre, showcasing the human experience beyond the medicalised language and diagnoses. This poignant essay collection shines a light on voices that often go unheard in our society. Covering a range of experiences from multiple ages, genders and backgrounds, discussions include trauma, relationships, masking, healthcare, intersectionality and more. The essays are structured along the topics of hurt (personal experiences and how they shaped the contributor), help (the tools and tips which have helped on their personal journeys), and hope (looking forward to the future). At times touching, humorous, and also enraging, this book offers a frank and honest depiction of the challenges autistic people face and the knock-on effect on their mental health. A challenge to change how our society treats and values one another.
Written by a teenager with dyspraxia, this is a humorous and inspiring practical guide for young adults with dyspraxia and those around them trying to get to grips with the physical, social and psychological chaos caused by developmental co-ordination disorders (DCDs). In her own conversational style, Victoria Biggs explains the primary effects of dyspraxia - disorganization, clumsiness and poor short-term memory - as well as other difficulties that dyspraxic teenagers encounter, such as bullying and low self-esteem. Peppered with personal stories from other teens, this award-winning book offers down-to-earth advice on a wide range of adolescent issues, from puberty, health and hygiene to family life and making friends. The new edition includes an update from the author on her university and work experiences and how dyspraxia affects her now as an adult. Her positive approach and profound empathy with others in her situation make this book a must-read.
Autism diagnosis can be an overwhelming time for many families. This is an accessible, easy to navigate guide for parents, answering the questions they may have before, during and after diagnosis. Written by a highly experienced author team, this book will support parents from the moment somebody mentions autism, through the diagnosis process and beyond. It provides reliable advice on every stage, with guidance on what to do during the long wait for assessment and diagnosis. Working from a pro-neurodiversity perspective it encourages parents to see beyond the diagnosis and to celebrate each child's unique personality and strengths. Combining information on medical diagnosis, educational needs and more, the book shares case studies and direct quotes from families to help parents to give their children the best start following an autism diagnosis, and help them to achieve their full potential. There is also a bonus downloadable chapter with information from the key professionals involved in the diagnostic process, so you know who you can turn to for the support and help you need.
Discover the importance of family in the treatment of schizophrenia! Family Involvement in Treating Schizophrenia: Models, Essential Skills, and Process is a vital resource for developing clinical skills and programs designed to increase family involvement in the treatment of schizophrenia. The book is a hands-on learning tool to be used as a broad overview of many intervention models and/or for a more focused look at a particular model with details of its use, implementation, and effectiveness. Dr. James A. Marley presents case studies and vignettes of each intervention model in action, highlighting specific techniques and skills. He also examines self-help and family advocacy programs, and addresses professional issues that have a direct impact on the provision of family services. Family Involvement in Treating Schizophrenia: Models, Essential Skills, and Process examines the practical application of family therapy when working with families coping with schizophrenia. The book addresses the importance of family involvement, the different types of intervention models that best serve the family, the founding principles behind the major intervention models, how to design and implement the right model, and how family issues impact service delivery. It includes recommendations for additional reading and listings of related Internet resources. Among the therapies examined include: psychodynamic Bowenian experiential structural strategic systemic/Milan cognitive-behavioral narrative solution-focused multiple families psychoeducational Family Involvement in Treating Schizophrenia: Models, Essential Skills, and Process is a primary source of information for clinicians and students that's equally effective as a professional resource and as a textbook. The book is invaluable as an aid to developing sensitivity to the special needs of families coping with this debilitating disorder.
Dyscalculia is a learning difference affecting the ability to process numbers. This illustrated guide provides children aged 7+ with the tools and confidence to understand the condition, discover helpful techniques, and seek additional support. It guides parents and teachers on how to help at home and at school, and includes an extensive resource list.
'GORGEOUS, VIVIDLY ALIVE' NEW YORK TIMES 'BOLD, HONEST AND SUPERBLY WELL-WRITTEN' ANDRE ACIMAN, AUTHOR OF CALL ME BY YOUR NAME 'GRACEFUL AND SOUL-BARING' MELANIE REID, THE TIMES 'WHAT A GIFT . . . HAS THE RIGOR AND PRECISION OF JOAN DIDION AND MAGGIE NELSON AND A FORTHRIGHT HUMOR AND NAKED TRUTH ALL OF ITS OWN.' SARAH RUHL, AUTHOR OF SMILE I am in a bar in Brooklyn listening to two men, my friends, discuss whether or not my life was worth living. So begins Chloe Cooper Jones's bold account of moving through the world in a body that looks different than most. Born with a rare congenital condition called sacral agenesis, she must contend not only with her own physical pain, but the emotional discomfort of others. It is only when she unexpectedly becomes a mother that she confronts the demand to live life fully, propelling her on a journey across the globe, reclaiming the spaces she'd been denied, and denied herself. From Roman sculptures to a Beyonce concert, from a tennis tournament to the Cambodian Killing Fields, Jones interrogates the myths of beauty with spiky intelligence, aesthetic philosophy, love and humor, inviting us to find a new way of seeing.
- Do you want to add fun and adventure to your daily life? THIS BOOK IS DESIGNED TO BE USED WITH THE STOP RAISING EINSTEIN JOURNAL. Please see the accompanying Journal ISBN 9781599321738.
In January 1988, aged twelve, Martin Pistorius fell inexplicably sick. First he lost his voice and stopped eating; then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told that an unknown degenerative disease had left him with the mind of a baby and he probably had less than two years to live. Martin went on to be cared for at centres for severely disabled children, a shell of the bright, vivacious boy he had once been. What no-one knew is that while Martin's body remained unresponsive his mind slowly woke up, yet he could tell no-one; he was a prisoner inside a broken body. Then, in 1998, when Martin was twenty-three years old, an aromatherapy masseuse began treating him and sensed some part of him was alert. Experts were dismissive, but his parents persevered and soon realised their son was as intelligent as he'd always been. With no memory of the time before his illness, Martin was a man-child reborn in a world he didn't know. He was still in a wheelchair and unable to speak, but he was brilliantly adept at computer technology. Since then, and against all odds, he has fallen in love, married and set up a design business which he runs from his home in Essex. Ghost Boy is an incredible, deeply moving story of recovery and the power of love. Through Martin's story we can know what it is like to be here and yet not here - unable to communicate yet feeling and understanding everything. Martin's emergence from his darkness enables us to celebrate the human spirit and is a wake-up call to cherish our own lives.
"I'm looking at the Solar System display when I hear a child close by shouting at his mum, to which she replies 'No need to bite my head off!' I've heard of laughing your head off (to laugh a lot) and even biting your tongue (to be quiet) but biting someone's head off puts a rather more vivid picture into my mind!" During a trip to London, taking in tube announcements, guitar shops, and the Science Museum Michael Barton explores and explains the confusing "neurotypical" world of contradictory signage, hidden meanings and nonsensical figures of speech. His quirky and comic illustrations bring to life the journey from the comfort of his familiar university surroundings into the hectic bustle of central London. A fun and enlightening read for friends, family, caring professionals and anyone interested in an alternative viewpoint on the world. Sure to "strike a chord" with other day trippers on the autism spectrum.
Amy Purdy, who inspired a nation on Dancing with the Stars and has been called a hero by Oprah Winfrey, reveals the intimate details of her triumphant comeback from the brink of death to making history as a Paralympic snowboarder. In this poignant and uplifting memoir, Dancing With the Stars sensation Amy Purdy reveals the story of how losing her legs led her to find a spiritual path. When the Las Vegas native was just nineteen, she contracted bacterial meningitis and was given less than a two percent chance of survival. In a near-death experience, she saw three figures who told her: "You can come with us, or you can stay. No matter what happens in your life, it's all going to make sense in the end." In that moment, Amy chose to live. Her glimpse of the afterlife-coupled with a mysterious premonition she'd had a month before -became the defining experiences that put Amy's life on a new trajectory after her legs had to be amputated. She wouldn't just beat meningitis and walk again; she would go on to create a life filled with bold adventures, big dreams, and boundless vitality-and share that spirit with the world. In 2014, Amy-the only competitor, male or female, with two prosthetic legs-claimed a bronze medal for the U.S. Paralympic team in adaptive snowboarding. She then became a contestant on season eighteen of Dancing With the Stars, and viewers were captivated as the girl with bionic legs managed to out-dance her competitors all the way to the finale. Amy's journey is a testament to the resilience of the human spirit and the capacity we all have to dream bigger, defy expectations, and rewrite our stories. Amy was given a second chance for a reason-to use her life to inspire others. Her powerful memoir urges us to live life to the fullest, because we are all a lot more capable than we could ever imagine.
Addressing frequently encountered emotional, behavioral, and academic difficulties, this essential guide shows how to help parents implement proven skills-building strategies with their kids (ages 5-17). The author draws on over 25 years of research and clinical practice to provide a flexible program for individual families or parent groups. The focus is on teaching kids the skills they need to get their development back on track and teaching parents to cope with and manage challenging behavior. Featuring vignettes and troubleshooting tips, the Practitioner Guide is packed with ideas for engaging clients and tailoring the interventions. In a large-size format for easy photocopying, it contains more than 60 reproducible handouts and forms. See also Skills Training for Struggling Kids, an invaluable client recommendation, which guides parents to implement Dr. Bloomquist's strategies and includes all of the handouts and forms they need.
Roxy lives in the forest with her three best friends, who she loves to visit and play games with. Roxy is in a wheelchair, so sometimes it is harder for her to go to the same places and play the same games as the other animals. Roxy and her friends realise that by making a few small changes and working together, they can make the forest a better place for everyone. Roxy teaches us that there are bunches of ways to be more inclusive of those who have a disability so that everyone can join in. Part of the Truth & Tails series, which aims to eliminate prejudices and encourage acceptance in young children aged 4-8, the story of Roxy and her friends is accompanied by hand-drawn, watercolour illustrations.
Teenagers and older children on the autism spectrum are, like everyone else, surrounded by complex social codes and rules that govern everyday interaction, but have much more difficulty in interpreting them. Reading cues such as sarcasm, idioms and body language often presents an impossible challenge, but this book of realistic and thought-provoking stories provides much needed help. Written with both parent and teen in mind, every story outlines a real-life situation that young people on the autism spectrum are likely to encounter. Each story is followed by questions such as 'what else might he have done?', 'how do you think she felt?' and 'why do you think they were upset?' along with practical tips for parents on how to initiate constructive discussions. As teens consider these questions with adults, they will begin to be able to put themselves into someone else's shoes and think about how their actions and behaviour may affect those around them. This process will equip them to transfer this invaluable understanding and confidence to other everyday life situations. Packed with 60 stories exploring real-life situations, this book will be an essential tool for parents, caregivers, teachers, and anyone else wishing to enable young people on the autism spectrum to acquire great social skills.
John and Martha were an exceptionally ambitious and driven all-American couple. With six Harvard degrees between them, and living in the refined and competitive atmosphere of the Harvard campus, the last thing they expected was to become parents to a Down's Syndrome baby. Refusing to believe her child was 'defective', Martha decided to trust in the tiny life she felt growing inside her. And her hitherto ordinary life was transformed by magical visions and strange, heartstopping experiences which persisted throughout her pregnancy. By the time Adam was born, Martha and John had to redefine everything of value to them, question their deepest beliefs, and put all their faith in miracles. And it worked.
As a parent, a teacher and an Aspie herself, Jennifer O'Toole provides the definitive insider's view of Asperger syndrome. She shows how to help children on the spectrum by understanding how they think and by exploiting their special interests to promote learning. Her strategies work because she thinks like the children that she teaches. This exciting book is full of effective and fun ways of engaging with children with Asperger syndrome. Jennifer explains how theory of mind difficulties create the need for concrete forms of communication, and provides original methods to inspire imagination through sensorial experiences. In particular she reveals the untapped power of special interests, showing how to harness these interests to encourage academic, social and emotional growth. Affirming that different doesn't mean defective, this book offers the insight and guidance that parents, educators, and other professionals need to connect with the Asperkids in their life and get them excited about learning.
From the moment she first held her new-born son in her arms, Anne Crosby knew something was wrong with him. Although the staff at the London hospital dismissed her response as cruel and unmaternal, her instincts were correct: Matthew had Down syndrome. Struggling with feelings of shock and grief, Crosby determined that she would do whatever she could to help Matthew lead as full a life as possible. This is the moving, candid, insightful, and often surprising account of the life Matthew made with the help of his mother and other caring people. With her painter's eye for the colourful detail and a Dickensian ear for the voices of her characters, Crosby describes Matthew's family and friends, doctors and teachers - a large cast that includes Alice Strong, his Cockney caregiver, the famous child psychologist D W Winnicott, and Princess Anne, a benefactor of MacIntyre, Matthew's boarding school. Crosby evokes the forbidding atmosphere of Normansfield, the residential institution founded by the man who gave his name to Down syndrome; the spacious beauty of Mentmore, the country estate where she often took Matthew for outings; and the touching camaraderie of the hospital ward in which Matthew died of heart failure at twenty-four. In this remarkable memoir, Crosby also explores Matthew's inner life, revealing his playful mimicry and unexpected humour, his outbursts of affection and occasional fits of temper, his gallantry toward his first love, and his disappointment over the loss of his first job. Anne Crosby's portrait of her son gives us an abiding image of Matthew that deepens our understanding of what it means to be human.
This is an audio CD with the voice of John Stonehouse. This book examines the conventional approaches to numerous problems that affect people who are blind (such as education, Braille literacy, economic inequities, stereotyping, job training and employment opportunities, poverty, rehabilitation and social services). Approximate running time: 320 minutes.
This compact book uniquely examines individual lived experience with spinal cord injury (SCI). It provides education and a clearer understanding of the many facets of a SCI -- medical, physical, psychological, cognitive, personal, and social -- in a single compact volume, so that readers learn the effect a SCI can have on a person. The contents also include resources for more specific exploration of information. SCI is a direct public health concern due to not only the cause of the injury itself, most often of violent origin, but also how the individuals perceive themselves after the injury and their participation in society, as well as how society welcomes them back. This compact book has four distinct chapters, each one addressing a different component of SCI with a set of resources to guide the individual with SCI, their family and their friends in the process. It first explores the physical as a means to provide an understanding of what body changes occur. From there, it goes on to examine what is the subjective meaning and lived experience of disability for persons with SCI. The brief ends with an examination of what organizations and programs exist to promote independence and a sense of community for persons with SCI. The Physical, Personal, and Social Impact of Spinal Cord Injury: From the Loss of Identity to Achieving a Life Worth Living is a book with broad appeal. It is written in such a way that it serves as a useful and accessible resource for people who work with persons with SCI, students and instructors with an interest in the subject, as well as persons with SCI themselves and their families.
At the age of 19 Ian Waterman was suddenly struck down at work by a rare neurological illness that deprived him of all sensation below the neck. He fell on the floor in a heap, unable to stand or control his limbs, having lost the sense of joint position and proprioception, of that "sixth sense" of his body in space, which we all take for granted. After months in a neurological ward he was judged incurable and condemned to a life of wheelchair dependence. This is the first U.S. publication of a remarkable book by his physician, Jonathan Cole. It tells the compelling story, including a clear clinical description of a rare condition, of how Waterman reclaimed a life of full mobility against all expectations, by mental effort and sheer courage.Cole describes how Waterman gradually adapted to his strange condition. As the doctors had predicted, there was no neurological recovery. He had to monitor every movement by sight to work out where his limbs were, since he had no feedback from his peripheral nerves. But with astonishing persistence Waterman developed elaborate tricks and strategies to control his movements, enabling him to cope not only with the day-to-day problems of living, but even with the challenges of work, love, and marriage.
People with Asperger Syndrome have many characteristics that are frequently seen in a negative light. Brenda Boyd shows that for every characteristic of AS that can be looked at negatively, there are several positive aspects that can be drawn on and developed. Discussing AS in general terms, she talks through the reasons why people with AS approach life in the way they do, and what an enormous contribution they make to the world. She then explores different characteristics of AS; while she acknowledges the negative perception so many people have of these characteristics, she points out the large number of advantages to the Aspergers way of thinking for individuals with AS, those around them and society as a whole. For every negative, Boyd proves there are many more positives. From their refreshing honesty to their originality and potential to become leaders rather than followers, people with AS have many admirable personality traits that should be nurtured. This book shows that by adjusting our perceptions of what is 'normal' and embracing diversity, AS can not only be understood and accepted, but appreciated. Appreciating Asperger Syndrome is a celebration of AS which should be read by individuals with AS, family members, and anyone who knows or works professionally with individuals with AS. |
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