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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Fragile X syndrome is one of the main causes of child developmental
delay and autism spectrum disorders. A premutated form of the same
gene is also the basis for neurological disabilities in adults.
This book breaks down the complex science of this genetic disorder
and provides the facts and advice that every bewildered parent or
professional needs to support individuals with Fragile X syndrome.
This is a straightforward introduction that clearly explains the
condition on both a scientific and practical level. With sections
on diagnosis, symptoms and treatment, as well as discussions of
various emotional and behavioural considerations, this guide covers
all aspects of Fragile X syndrome, its implications, and the
possibilities open to families affected by it. It demonstrates how,
with the right therapies, progress can be made and emphasises how
music can be used effectively to promote communication,
interaction, fine motor skills and responsiveness in children with
the condition. This is an essential reference tool for families of
individuals with Fragile X syndrome, as well as therapists and
healthcare professionals who are unfamiliar with the condition and
are looking to find out more.
Can you imagine not being able to recognize those you know if they
wore glasses, changed their hairstyle, or perhaps put on a hat?
Prosopagnosia is a severe facial recognition disorder that is
thought to impact around two per cent of the population. Frequently
found in children on the autism spectrum, those with the condition
have difficulties distinguishing between one face and the next,
meaning that they may not recognize even those who are closest to
them. Nancy L. Mindick provides parents, teachers, and other
professionals with an accessible explanation of the different
types, causes, and characteristics of prosopagnosia. Providing an
insider's perspective on the condition, she suggests ways to
recognize the signs of facial recognition difficulties in children,
and offers specific ideas for ensuring that they are properly
supported in their learning and social development. The issues of
diagnosis and disclosure are explored, and the author offers
practical management strategies for helping children to cope with
the condition and to navigate the many different social situations
they will encounter at home, at school, and in the community. This
book offers specific, practical information for parents, teachers,
child psychologists, and anyone else who wishes to support the
learning and development of a child with a facial recognition
disorder.
Playing the dating game is often tricky: all the more so for
individuals with Asperger's Syndrome. How do AS adolescents and
their families cope with sexual feelings and behaviour? What help
can be given if a man with AS oversteps the mark in expressing his
sexuality? How do people with AS deal with intimacy and
communication in sexual relationships? In this comprehensive and
unique guide, Isabelle Henault delivers practical information and
advice on issues ranging from puberty and sexual development,
gender identity disorders, couples' therapy to guidelines for sex
education programs and maintaining sexual boundaries. This book
will prove indispensable to parents, teachers, counsellors and
individuals with AS themselves.
Anxiety, meltdowns and emotional regulation can be hugely
challenging for autistic people. This book is full of proactive
strategies for understanding, accepting and respecting the
processing differences in autism. It contains tools for reducing
sensory, social and mental drain, and offers strategies to protect
from ongoing stress and anxiety. These help minimize shutdowns and
burnout, while maximizing self-esteem, autistic identity and mental
health. Learn strategies for matching environmental demands to the
person's processing needs, how to support vulnerabilities, and how
to prevent and manage meltdowns while protecting the identify and
self-esteem of the individual with autism.
Communication is one of the biggest challenges faced by people with
Asperger's Syndrome (AS), yet an Asperger marriage requires
communication more than any other relationship. Thousands of people
live in Asperger marriages without knowing the answers to important
questions such as `What behaviours indicate that my spouse has AS?'
`Is it worthwhile to get a diagnosis?' `Is there hope for
improvement?' Katrin Bentley has been married for 18 years. Since
receiving her husband's diagnosis of AS, their marriage has
improved substantially. They learnt to accept each other's
different approaches to life and found ways to overcome problems
and misunderstandings. Today they are happily married and able to
communicate effectively. Alone Together shares the struggle of one
couple to rescue their marriage. It is uplifting and humorous, and
includes plenty of tips to making an Asperger marriage succeed.
This book offers couples hope, encouragement and strategies for
their own marriages.
'A great and inspiring book from Doncaster's bravest son. Read it
in a day' - Jeremy Clarkson 'Ben is the embodiment of positive
thinking. What he has achieved, in large part through willpower, is
nothing short of miraculous. An inspiration to us all' - Ant
Middleton The story of Ben Parkinson MBE, the most injured soldier
to have survived Afghanistan --- What were you doing when you were
22? Where were you in the world? What did you want to do with your
life? Ben Parkinson was a 6'4" Paratrooper. He was in Afghanistan
fighting for his country. He wanted to always be a soldier, to be a
father and to get home in one piece. But we don't always get what
we want. So the question is: how do we react when that happens?
Easy: You find something new to fight for. Ben Parkinson MBE is an
inspiration to everyone. He suffered 37 injuries when his Land
Rover hit a mine in Helmand in 2006, including brain damage,
breaking his back and losing both his legs. This book follows the
story of what led him to that moment his life changed forever - and
what happened next. Doctors didn't think Ben could survive the
trauma - then they didn't think he would wake up, or talk again, or
walk again. Time after time, Ben pushed the ceiling on what was
possible, going on to carry the Olympic flame in 2012 and receiving
an MBE for the enormous feats he has undertaken for charity. What
he has achieved in the face of adversity - for others as well as
for himself - is nothing short of a miracle. Nerve-wracking,
heart-warming and full of classic soldier's humour, Losing the
Battle, Winning the War is a book you'll be thinking about long
after the last page. 'Ben Parkinson is my hero. His story is one of
immeasurable courage and character, a testament to the
extraordinary resilience of the human spirit' Dan Jarvis MP, author
of Long Way Home
Meet Jamie, a young boy with ADHD and a tic disorder called
Tourette Syndrome. He's not being fidgety or naughty - he really
can't help it! Jamie explains how he was diagnosed and what having
tics and ADHD is like for him. He also shares how he has learnt to
relieve his ADHD symptoms, minimise his tics, and how friends and
adults can help at home and school. This illustrated book comes in
two parts - one with interactive activities and heaps of useful
information about having both ADHD and tics. Jamie explains how it
can be really tricky to tell whether your fidgeting comes from
having ADHD, tics, or both! The second part tells the story of how
Jamie's Grandfather encouraged him to learn more about his tics.
Jamie and his friends who attend the after-school tic club learn
about each other by sharing their experiences of ADHD and tics at
home and at school. This book is ideal for children aged 7+ as well
as friends, teachers and professionals working with children with
ADHD and tic disorders, and a great starting point for family and
classroom discussions too!
Children on the Autism Spectrum often grow up to find they are
unable to cope effectively with the challenges of adult life. This
book shows that, with the appropriate lifelong care from parents
and carers, it is possible for those with neurodevelopmental
disabilities to achieve supported independence and live fulfilling
adult lives. Adults on the Autism Spectrum Leave the Nest provides
a guide for parents on how to prepare their children for adulthood,
and describes in detail the kinds of services people with Autism
Spectrum Disorders (ASDs) need in order to live independently, away
from the parental home. The author explains the importance of the
cognitive abilities that enable us to regulate behaviour and adapt
to changing situations, known as Executive Functions, and how an
individual's deficits in this area can be especially problematic in
the adult world. The book provides approaches to managing Executive
Function Deficits and describes an innovative therapeutic program
that successfully allows adults with ASDs to live with their peers
and develop meaningful adult relationships. This book provides
practical and accessible guidance for parents, therapists, people
with ASDs, and anyone with an interest in helping people on the
Autism Spectrum lead their lives with a sense of dignity and
independence.
Can you imagine not being able to speak or communicate? The
silence, the loneliness, the pain. But, inside you disappear to
magical places, and even meet your best friend there. However, most
of the time you remain imprisoned within the isolation. Waiting,
longing, hoping. Until someone realises your potential and
discovers your key, so your unlocking can begin. Now you are free,
flying like a wild bird in the open sky. A voice for the voiceless.
Jonathan Bryan has severe cerebral palsy, a condition that makes
him incapable of voluntary movement or speech. He was locked inside
his own mind, aware of the outside world but unable to fully
communicate with it until he found a way by using his eyes to
laboriously choose individual letters, and through this make his
thoughts known. In Eye can Write, we read of his intense passion
for life, his mischievous sense of fun, his hopes, his fears and
what it's like to be him. This is a powerful book from an
incredible young writer whose writing ability defies age or
physical disability - a truly inspirational figure. Foreword by Sir
Michael Morpurgo A portion of the proceeds from the sale of this
book will be donated to Jonathan Bryan's charity, Teach Us Too.
http://www.teachustoo.org.uk/
This resource provides practical strategies for helping teenagers
and adults with Asperger Syndrome to navigate social skills,
friendships and relationships at home and in the community. The
author offers advice and useful strategies for tackling day-to-day
problems such as visits to the dentist or the doctor, searching for
a job, sorting out personal finances, going on vacation, and
dealing with public transport, as well as more intimate topics such
as dating and acquiring and maintaining friendships. The chapters
are structured around real-life scenarios and the challenges they
present, followed by step-by-step solutions and suggestions. A
final section provides a set of practical self-help tools, which
encourage the reader to note down answers to the questions posed
and record personal reflections. This accessible guide will be
essential reading for teenagers and adults with Asperger Syndrome
and their families, teachers, therapists, counsellors, carers,
social and health work professionals.
Organisation and Everyday Life with Dyslexia and other SpLDs is the
second book in the series Living Confidently with Specific Learning
Difficulties (SpLDs). This book is about the wide impacts of
dyslexia/ SpLD on everyday life. All dyslexic/ SpLD people live
with the possibility that their mind will function in a dyslexic/
SpLD way at any moment, regardless of strategies that they have
acquired or developed. Even people with many strategies can
suddenly find themselves struggling with their dyslexia/ SpLD
again. This book is adressed to dyslexic/ spld readers.
Organisation is promoted as a tool to minimise the effets of
dyselxia /spLD. The book covers: * situations that might disrupt
organisation * a systematic approach to organisation * everyday
life, study peripherals and employment. It has many life stories to
help readers recognise the impacts of their own dyslexia/ SpLD.
Dyslexic/ SpLDs have the potential to offer skills and alternative
approaches to tasks. Often, the solutions that they devise for
themselves are very useful to the non-dyslexic/ SpLD people around
them, which can enhance their self-confidence. When organisation
suits the individual with SpLD innate intelligence and potential
can be realised.
It isn't easy being eight years old and having an older brother
whom other children often misunderstand. They don't realize that
when he doesn't laugh at their jokes it's because he doesn't
understand them. They don't know that when he doesn't speak to them
or look at them it's because he doesn't know what to say or how to
make eye contact. They don't realize that he behaves this way
because he has something called Asperger's Syndrome. Sam knows that
his brother Eric is different from him because his brain works
differently. So, when the other children bully Eric, it makes Sam
feel protective of him. But sometimes, when Eric behaves oddly, Sam
feels embarrassed too. Sometimes, when Eric gets lots of attention,
it makes Sam feel resentful - then, when he considers that Eric
needs a lot of help and attention, it makes Sam feel guilty for
feeling resentful. There are so many different feelings Sam
experiences! Brotherly Feelings explores the emotions that siblings
of children with Asperger's Syndrome (AS) commonly experience. With
illustrations throughout, this book will help siblings to
understand that their emotional responses - whatever they are - are
natural and OK. It is the ideal book for parents and professionals
to use with siblings to discuss their emotional experiences, and
will also help children with AS to form an understanding of the
feelings of other family members.
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Parenting a Dyslexic Child
(Paperback)
British Dyslexia Association; Contributions by Lindsay Peer, Katrina Cochrane, Helen Ross, Pennie Aston, …
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R616
R573
Discovery Miles 5 730
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Drawing on the expert knowledge and research gathered by the
British Dyslexia Association, this is a complete guide to parenting
a child with dyslexia. Covering assessment, diagnosis, home and
school support, emotional development and more, this empowering
book has everything you need to help your child reach their full
potential. With accessible guidance on reading, writing, spelling,
organisation and study skills, this book will also help you to
build self-belief in your child whilst ensuring that you care for
yourself along the way. This book provides clear information on how
dyslexia affects children and families at all stages of life, with
insights on communicating with schools and ensuring the best
support in all environments.
Auditory Processing Disorder (APD) is a debilitating neurological
condition in which the brain is unable to effectively process
sounds and speech. An estimated 5 - 10% of children are affected
uniquely. APD can have a significant impact on all aspects of
lifelong communication. This authoritative guide includes advice on
how to identify, diagnose and support the condition in children,
teenagers and adults. It provides everyday strategies based on 20
years of research to try at home, at school and at work. This book
aims to help families, teachers and other professionals to
understand and support those living with this complex invisible
disability. Containing supportive case studies, the book addresses
a range of prevalent issues, including relationships, self-esteem,
confidence and mental health, making this a comprehensive guide for
all things APD.
Will Attwood was finishing a three-year sentence in prison when he
was formally diagnosed with Asperger's syndrome for the first time.
After his diagnosis he recognised just how much it had been
affecting his life behind bars. This book is a practical advice
guide for people with autism who have been sentenced to time in
prison. Will shares his first-hand knowledge of what to expect and
how to behave within the penal system. He sheds light on topics
that are important for people with autism, answering questions such
as: How should you act with inmates and guards? How do you avoid
trouble? What about a prison's environmental stimuli may cause you
anxiety? His thoughtful, measured writing debunks rumours about
daily life in prison, and the useful tips and observations he
offers will help anyone with autism prepare for the realities of
spending time incarcerated, and be enormously helpful to those
working with offenders on the autism spectrum.
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Head Injury
(Paperback)
Audrey Daisley, Rachel Tams, Udo Kischka
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R449
R419
Discovery Miles 4 190
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Head injury affects approximately 1 in 300 families in England and
Wales. It happens 'out of the blue' - without warning and therefore
can be a bewildering and frightening experience, and frequently has
a dramatic and sometimes devastating effect on the lives of the
people involved. The sudden onset and the uncertainty surrounding
recovery means that head injury often presents families with a wide
array of emotions such as fear, guilt and sadness. With no previous
experiences to guide them, people with head injury and their
families can feel overwhelmed.
This book begins with essential information about head injury
including basic knowledge about the brain and how it is damaged.
The book goes on to explore typical problems associated with a head
injury and how to cope with specific issues. The third section
provides support and guidance about how to deal with the long term
consequences of a head injury, including information on where to
find further support. Head Injury: The Facts is a family guide to
understanding and coping with the practical and emotional problems
that head injury brings.
In this new book Simon Baron-Cohen summarizes the current
understanding of autism and Asperger Syndrome. He explains the
process of diagnosis, as well as the options for education and
intervention for those with these conditions. Taking a lifespan
approach, Professor Baron-Cohen considersa how the conditions
affect very young children through to adulthood. He also outlines
his new Empathizing-Systemizing (ES) theory, which aims to explain
all of the psychological features of autistic-spectrum conditions.
This book is designed firstly for people with these conditions and
their families. It will be useful to clinicians, teachers, and
other professionals involved in the care and support of people on
the autistic spectrum. The book will also provide an invaluable
introduction to the topic for students in the social and biological
sciences.
This is a simple, research-based guide to overcoming attention
problems through mindfulness and meditation. The heart of the book
is an 8-step programme that teaches simple yet powerful midfulness
practices, adapted for those struggling with ADHD.
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