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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
'A hymn to life, love, family, and spirit' DAVID MITCHELL, author of Cloud Atlas The vividly told, gloriously illustrated memoir of an artist born with disabilities who searches for freedom and connection in a society afraid of strange bodies. ***WINNER OF THE BARBELLION PRIZE*** ***SHORTLISTED FOR THE NATIONAL BOOK CRITICS CIRCLE AWARD*** In 1958, amongst the children born with spina bifida is Riva Lehrer. At the time, most such children are not expected to survive. Her parents and doctors are determined to 'fix' her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark-it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits-inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she's been told her whole life about her body, her sexuality, and other measures of normal. Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human. 'Riva Lehrer is a great artist and a great storyteller. This is a brilliant book, full of strangeness, beauty, and wonder' AUDREY NIFFENEGGER 'This astonishing, heart soaring and often shocking memoir of a Jewish woman with spina Bifida born in the 50's is bright and dark, terrifying and wonderful. An ode to art and the beauty of disability' CERRIE BURNELL
Meet Harry. Harry likes to play football, climb trees, and hang out with friends, but Harry doesn't like reading. That is until his teacher explains that Harry has dyslexia, which makes things like reading and writing particularly hard for him - and with help from his mum, teacher and an educational psychologist, Harry learns specific strategies for reading with dyslexia. This delightful picture book for children aged 5-11 includes tips for reading with dyslexia and lovable, supportive characters who show that it's ok to discuss dyslexia and to seek help when needed.
Disabled women represent one of the most marginalised minority groups in the world, hence they are largely silent while their sexuality is ignored, suppressed, forbidden and buried underneath the carpet. Until recently, most of the Global Northern published literature on the subject of the sexuality of disabled women has predominantly been constructed from hearsay and second-hand narratives in studies which draw from the perspectives of parents, service providers and advocates, without much consultation of the relevant women. By facilitating the voice of disabled women in Zimbabwe and illuminating their experiences of sexuality, this book hopes to shift the experiences of sexuality of disabled women from the periphery of society to the fore. Disability and Sexuality in Zimbabwe presents original research on an issue that is thus far not found in local research data. Whilst addressing the paucity of literature on the subject, the book informs policy and practice and enhances the existing body of knowledge by making recommendations towards the development of a disability and sexuality framework that is rooted in the African context. This book is of interest to students and scholars of African studies, disability studies, sociology, psychology, social work, nursing, education studies, geography, women's and gender studies and interdisciplinary studies. Additional audiences include a wide range of health, social care, and educational professionals and practitioners, as well donors, disabled people's organisations, charities, government departments, NGOs, supranational organisations, and policy makers
In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience-the positive and the negative-as a mother of a now twenty-one-year-old son with severe autism. Lutz's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. We Walk is inspired by her own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language? Exploring these questions, We Walk directly-and humanly-examines social issues such as inclusion, religion, therapeutics, and friendship through the lens of severe autism. In a world where public perception of autism is largely shaped by the "quirky geniuses" featured on television shows like The Big Bang Theory and The Good Doctor, We Walk demands that we center our debates about this disorder on those who are most affected by its impacts.
*** 'A powerful, moving and inspiring story - it opens up a whole new world of understanding.' Esther Freud 'This is wonderful. I urge you to read it. It is life enhancing and I defy you not to fall in love with Ben!' Natasha Poliszczuk, Books Editor, You Magazine 'An honest and unflinching account of Jessica's journey as the mother of a child born with complex needs. Essential reading... and a source of solace for those who may find themselves on a similar path.' Leah Hazard, author of Hard Pushed: A Midwife's Story 'Jessica's beautiful words gave me a deeper understanding about embracing disability. I am inspired and will be recommending this book to parents as a testament to following your parenting instincts.' Arabella Carter-Johnson, author of Iris Grace 'A courageous, heartrending story of grief, love and ultimately hope.' The Sun, 5 star review *** Jessica Moxham thought she was prepared for the experience of motherhood. Armed with advice from friends and family, parenting books and antenatal classes, she felt ready. After giving birth, she found herself facing a different, more uncertain reality. Her son, Ben, was fighting to stay alive. When Jessica could finally take him home from hospital, the challenges were far from over. In this hopeful memoir, Jessica shares her journey in raising Ben. His disability means he will never be able to move or communicate without assistance. Jessica has to learn how to feed Ben when he can't eat, wrestle with red tape to secure his education and defend his basic rights in the face of discrimination. As Ben begins to thrive, alongside his two younger siblings, Jessica finds that caring for a child with unique needs teaches her about appreciating difference and doing things your own way. This uplifting story is about the power of family love, finding inner strength and, above all, hope.
One 'alone, but not lonely' boy's triumph over adversity, motivated by his dream of becoming a professional footballer and a longing for truth and connection. Street's childhood memoir is a sensitive and honest portrayal, through a poetic autistic lens, of growing up with learning differences and epilepsy in an unconventional family during the 1950s and 60s. A unique and vivid social document of the period, highlighting much of the discrimination still faced by minority and disabled communities today.
Eugene T. Kingsley led an extraordinary life: he was once described as "one of the most dangerous men in Canada." In 1890, Kingsley was working as a railway brakeman in Montana when an accident left him a double amputee, and politically radicalized. Ravi Malhotra and Benjamin Isitt trace Kingsley's political journey from soapbox speaker in San Francisco to prominence in the Socialist Party of Canada. They examine Kingsley's endeavours for justice against the Northern Pacific Railway, and how his life intersected with immigration law and free-speech rights. Able to Lead highlights Kingsley's profound legacy for the twenty-first-century political left.
This book teaches drama and immersive theatre-based activities for parents and professionals working with children and young people on the autism spectrum. The exercises follow the author's simple, person-centred '3C pathway' of connecting, calming and communicating, and enable parents to gain an understanding of the challenges an autistic child may face by 'walking in their shoes', while empowering children to become more self-aware and express themselves in healthy ways. The activities included in the book are tried-and-tested, accessible and easy to implement, such as breathing exercises, mirroring movements, and treasure hunts. Using these activities, parents and professionals can gain insight into the sensory and social challenges experienced by those on the spectrum and can work to build a positive and trusting relationship, offering a secure base for children's emotional development.
The #ActuallyAutistic Guide to Advocacy takes an in-depth look at the key elements of effective, respectful, inclusive advocacy and allyship. Every topic was chosen, shaped, and informed by #ActuallyAutistic perspectives. The step-by-step guide discusses various aspects of how autism is perceived, explores how best to speak up for individual needs, and introduces advocacy for the wider autistic community. Each step outlines one vital aspect of advocacy and allyship, such as emphasizing acceptance, avoiding assumptions and assuming competence. The advice and strategies laid out in this guide center the wisdom and experiences of Autistic people and enable the reader to confidently speak up with insight and understanding.
With the help of this handy guide, you can bring tried and tested occupational therapy activities into your home and encourage your child to succeed with everyday tasks while having fun in the process. This expanded edition of the award-winning book includes new advice on toilet training, coping with changes in routine, repetitive behaviors, self-regulation and much more. The simple explanations and easy exercises will soon make daily activities enjoyable and productive.
'I was born on 31 January 1979 - a Wednesday. I know it was a Wednesday, becasue the date is blue in my mind and Wednesdays are always blue, like the number nine or the sound of loud voices arguing.' Like the character Hoffman portrayed, he can perform extraordinary maths in his head, sees numbers as shapes, colours, textures and motions, and can learn to speak a language fluently from scratch in three days. He also has a compulsive need for order and routine. He eats exactly 45 grams of porridge for breakfast and cannot leave the house without counting the number of items of clothing he's wearing. If he gets stressed or unhappy he closes his eyes and counts. But in some ways Daniel is not all like the Rain Man. He is virtually unique amongst people who have severe autisitic disorders in being capable of living a fully-functioning, independent life. It is this incredible self-awareness and ability to communicate what it feels like to live in a totally extraordinary way that makes BORN ON A BLUE DAY so powerful.
Autistic girls can be frequently misunderstood, underestimated and therefore anxious in a school environment. This practical book offers an innovative life skills curriculum for autistic girls aged 11 to 15, based on the author's successful workshops and training, which show how to support girls' wellbeing and boost their self-esteem. Including an adapted PSHE curriculum, this is a straightforward guide to educating autistic children on the issues that matter most to them. It covers all essential areas of wellbeing, including communication, identity, self-regulation and triggers, safety, and physical and mental health, and offers the reader strategies to help the autistic girls in their lives enhance and develop these.
Priscilla Gilman, a teacher of romantic poetry who embraced Wordsworth's vision of childhood's spontaneous wonder, eagerly anticipated the birth of her first child, certain that he would come "trailing clouds of glory." But as Benjamin grew, his remarkable precocity was associated with a developmental disorder that would dramatically alter the course of Priscilla's dreams. In The Anti-Romantic Child, a memoir full of lyricism and light, Gilman explores our hopes and expectations for our children, our families, and ourselves--and the ways in which experience may lead us to re-imagine them. Using literature as a touchstone, Gilman reveals her journey through crisis to joy, illuminating the flourishing of life that occurs when we embrace the unexpected. The Anti-Romantic Child is a profoundly moving and compellingly universal book about family, parenthood, and love. The Anti-Romantic Child, Gilman's first book, was excerpted in Newsweek magazine and featured on the cover of its international edition in April 2011. It was an NPR Morning Edition Must-Read, Slate's Book of the Week, selected as one the Best Books of 2011 by the Leonard Lopate Show, and chosen as a Best Book of 2011 by The Chicago Tribune. The Anti-Romantic Child was one of five nominees for a Books for a Better Life Award for Best First Book.
Social Stories (TM) are acknowledged as a very successful way of teaching concepts and social understanding to children with autism spectrum disorders, but considerable skill is needed to write the most effective story. This clear and engaging book introduces ways of thinking about the issues your child finds difficult, and includes 32 stories created by Dr Siobhan Timmins for her son during his early years, with helpful explanations of how she did it, and what the underlying thinking was behind each set of stories. She explains how the stories build upon each other to help the child to understand further, more complex topics, and how to see the connections so that you can best help your child. From basic skills such as learning to listen, wait and share, to common fears, this book takes the mystery out of creating effective Social Stories (TM) and amply demonstrates how to put together a cohesive set of stories which your child can understand and relate to.
Written for dyslexic adults or anyone who thinks they might be dyslexic, this bold and imaginative book is deliberately concise and easy to dip into.
This unique guide to overcoming the day-to-day difficulties associated with dyslexia will also be of great interest to employers, colleagues, teachers, friends and family of those with dyslexia.
Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two interdisciplinary social research teams in dementia, namely the Center for Dementia Research [CEDER] at Linkoeping University in Norrkoeping, Sweden and the Dementia and Ageing Research Team [DART] at The University of Manchester in Manchester, UK. Case examples are shared in each of the main chapters to help ground the social research method(s) in a real-life context and provide direction as to how learning can be applied to other settings. Chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students, as well as postdoctoral researchers, interested in fields such as: Research Methods, Qualitative Methods and Dementia Studies.
Overcoming Grief and Loss after Brain Injury is a practical, comprehensive, and simply-written book that provides foundational brain injury information and coping resources for persons recovering from and living with the disabilities that accompany this devastating injury. The book guides the reader toward self-assessment of their own concerns related to common post injury domains of impairment. Following help in identifying individual injury-related problems, the book provides clients with instructions and practice in use of a multitude of evidence-based compensatory strategies and coping skills. Clients can use the book to improve their cognitive, emotional, and functional status after brain injury. The book is written to assist patients, even if they are not able to work with a therapist or counselor. The supportive and therapeutic components of the book include the normalizing of brain injury symptoms and emotional responses, supported self-assessment, stress and emotional management techniques, compensatory strategies for a wide range of typical post injury deficits, links to community resources, and ideas for returning to work.
Covering the period from Antiquity to Early Modernity, A Historical Sociology of Disability argues that disabled people have been treated in Western society as good to mistreat and - with the rise of Christianity - good to be good to. It examines the place and role of disabled people in the moral economy of the successive cultures that have constituted 'Western civilisation'. This book is the story of disability as it is imagined and re-imagined through the cultural lens of ableism. It is a story of invalidation; of the material habituations of culture and moral sentiment that paint pictures of disability as 'what not to be'. The author examines the forces of moral regulation that fall violently in behind the dehumanising, ontological fait accompli of disability invalidation, and explores the ways in which the normate community conceived of, narrated and acted in relation to disability. A Historical Sociology of Disability will be of interest to all scholars, students and activists working in the field of Disability Studies, as well as sociology, education, philosophy, theology and history. It will appeal to anyone who is interested in the past, present and future of the 'last civil rights movement'.
"I'm looking at the Solar System display when I hear a child close by shouting at his mum, to which she replies 'No need to bite my head off!' I've heard of laughing your head off (to laugh a lot) and even biting your tongue (to be quiet) but biting someone's head off puts a rather more vivid picture into my mind!" During a trip to London, taking in tube announcements, guitar shops, and the Science Museum Michael Barton explores and explains the confusing "neurotypical" world of contradictory signage, hidden meanings and nonsensical figures of speech. His quirky and comic illustrations bring to life the journey from the comfort of his familiar university surroundings into the hectic bustle of central London. A fun and enlightening read for friends, family, caring professionals and anyone interested in an alternative viewpoint on the world. Sure to "strike a chord" with other day trippers on the autism spectrum.
This book combines moving accounts of the lived experience of dyslexic adults with tips and strategies for surmounting the challenges you or a loved one or family member may face. Drawing on in-depth interviews, Kelli Sandman-Hurley explores common themes such as school experiences; the impact of dyslexia on mental wellbeing; literacy skills; and being a dyslexic parent, perhaps to a child who is also dyslexic. Interviewees share what helped them (or didn't), the strategies they use daily to tackle literacy-based tasks, anxiety and low self-esteem, the advice they would give to the parent of a dyslexic child who is struggling, and reflect on how their experience has impacted their own parenting style. Whether you're dyslexic yourself or supporting someone who is, this book sheds light on an underrepresented topic, providing much-needed guidance and insight around what life is really like for an adult with dyslexia.
Taking Flight provides the essential information students with disabilities will need to be successful in college. Rather than just focusing on the academic skills needed in college, Taking Flight addresses college as a system that needs to be mastered and the strategies and self-awareness needed to be successful. Thus, it explores topics including: The concept of disability Self-expression The college bureaucracy Roommate relationships And having fun! Perry T. LaRoque explores these topics by using personal stories, humor, frank advice, and years of expertise. Taking Flight addresses the truly relevant topics and issues needed for happiness and success in college and provides readers with not only how to do well in the system, but how to overcome a system not designed for today's diverse learners.
THE ADD AND ADHD CURE " The ADD and ADHD Cure will be welcomed by parents who reject drug protocols and/or whose children have not been successfully treated with drugs. I highly recommend this important and groundbreaking new book." -Jenny McCarthy "I rely on Dr. Jay for more than my children's health. No matter what I call about-concerns about a sick kid, a parenting question, or worries about nutrition-Dr. Jay has answers and presents them in the most parent-friendly way." -Julia Roberts "Dr. Jay's support will be a fantastic gift for parents facing ADD/ADHD. His words come from decades of experience and a wealth of real concern and compassion for your child and your family." -Matt and Lucy Damon "Every new parent sometimes feels in the dark. Dr. Jay has been a constantly bright light and guide. We can't say enough great things about him or adequately express our gratitude for the patient, honest, intelligent, compassionate care he has given to our children. We enthusiastically support him and his book." -Casey Affleck and Summer Phoenix "This empowering book will teach, inspire, and coach your entire family to break the unhealthy nutritional habits that prevent you and your children from living healthy, focused lives." -Tobey and Jennifer Maguire "With this guide, you can go from panic mode into proactive mode. You can take charge of your child's health-naturally." -Tea Leoni and David Duchovny "I have watched Dr. Jay Gordon care for children and families who needed his skill and experience as they faced ADD and other tough diagnoses. His techniques and advice will guide you from a medication-oriented treatment to sensible, scientific nutritional and behavioral care." -Edison de Mello, M.D., Ph.D., Director and founder, The Akasha Center for Integrative Medicine If you're hesitant about giving your child prescribed medication for hyperactivity, read The ADD and ADHD Cure: The Natural Way to Treat Hyperactivity and Refocus Your Child . Using the helpful information in this book, you can decide whether your child really does have ADD or ADHD, how you can cure the problem naturally with nutrition, and how to redirect your child's focus. Don't simply mask the symptoms with drugs; instead, follow and safe and effective non-drug protocol practiced by Dr. Jay Gordon for more than three decades.
Get off to a good start. Learn sensible, solid strategies that can be put into practice with children on the autism spectrum right away. "Starting Points: The Basics of Understanding and Supporting Children and Youth with Asperger Syndrome" offers a variety of strategies and visual supports that help children on the spectrum such as: who have difficulty with abstract concepts and thoughts; who have difficulty understanding and regulating emotions; who have difficulty recognizing, interpreting, and empathizing with the emotions of others; who find it easier to answer questions with choices versus open-ended questions; need cues for how and when to transition from an activity or place to the next; and, much more. Starting from the premise that no two individuals with AS are the same, Hudson and Myles provide a global perspective of how the core characteristics of AS may appear separately and/or simultaneously, and how they may manifest themselves in a variety of situations. Each characteristic is then paired with a brief explanation, followed by a series of bulleted interventions.
An exceptional memoir that provides emotional insight and practical advice. "It's like planning a trip to Italy, only to get off the plane and discover you're actually in Holland. You need a new road map, and fast..." When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome. Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted. |
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