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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
The current literature regarding employment among persons with disabilities produces research results dependent on definitions of work disability, the discipline within which research takes places, the model or paradigm of disability in which the research is framed, the methodology and measures used and the cultural context in which employment occurs. This volume seeks to address those factors which have made describing, predicting and examining the work experience of a person with a disability both different and difficult. Contributors examine less frequently anaylzed aspects of employment for persons with disabilities, and offer a variety of approaches to the conceptualization of work, how they differ across cultures, organizations, and types of disability. Topics covered include examination of range of contextual framing of employment for those with disabilities, well-being, the impact of gender, poverty and education and the collection concludes by examining the future of employment developments and trends and the impacts on inclusion of people with disabilities in the paid workforce.
A rediscovered modern classic: a life-affirming account of one man's journey into blindness 'A gift to the whole of humanity' Cathy Rentzenbrink Days before the birth of his first son, writer and academic John M. Hull started to go blind. He would lose his sight entirely, unable to distinguish any sense of light or shadow. Isolated and claustrophobic, he sank into a deep depression. Soon, he had forgotten what his wife and daughter looked like. In Notes on Blindness, John reveals his profound sense of loss, his altered perceptions of time and space, of waking and sleeping, love and companionship. With astonishing lucidity of thought and no self-pity, he describes the horror of being faceless, and asks what it truly means to be a husband and father. And eventually, he finds a new way of experiencing the world, of seeing the light. Based on John's diaries recorded on audio tape, this is a profoundly moving, wise and life-affirming account of one man's journey into blindness. 'Poignant and wise' Andrew Solomon Published in partnership with Wellcome Collection.
Meet Creatia, Persisto and Willforce. They are strong, determined and creative, and they represent the strengths that dyslexia can bring to your life. Together they encourage you to use your skills and talents to be confident in what you do - and shrink the villain Mr Dyspicibilia! This is a fun and interactive resource for grown-ups and children to work through together, with drawing and writing activities and examples to open up helpful discussions and find practical solutions that put the dyslexic child's self-esteem and self-understanding at the fore. The strategies in the book are brought to life through the three superheroes who help you develop a child's unique strengths to tackle the everyday challenges they may experience with reading, writing, staying organised or keeping track of the time. The colourful illustrations, cartoons and dialogue encourage children to name their feelings, identify challenges and recognise their own strengths in any situation.
Drawing on the author's first-hand experiences with families, this book provides crucial, accessible information and answers the difficult questions that often arise when a family member with an intellectual disability is diagnosed with dementia. Linking directly to policy and practice in both dementia and intellectual disability care, this book takes an outcome-focussed approach to support short, medium and long-term planning. With a particular emphasis on communication, the author seeks to ensure that families and organisations are able to converse effectively about a relative's health and care. The book looks at how to recognise when changes in the health of a relative with an intellectual disability could indicate the onset of dementia, as well as addressing common concerns surrounding living situations, medication and care plans. Each chapter is structured to identify strategies for support whilst working towards outcomes identified by families as dementia progresses.
Building on work in feminist studies, queer studies and critical race theory, this volume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and 'others', including dyslexics, autistics and ADHDers. This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neurodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questions the theoretical and mythological assumptions that produce the idea of the neurotypical. Working at the crossroads between sociology, critical psychology, medical humanities, critical disability studies, and critical autism studies, and sharing theoretical ground with critical race studies and critical queer studies, the proposed new field - neurodiversity studies - will be of interest to people working in all these areas.
In 2011 the world was shocked when the news broke that Joost van der Westhuizen, known for years as the golden boy of South African rugby and a former Springbok captain, had been diagnosed with motor neuron disease (MND). This rare condition attacks the central nervous system, causing progressive disability. There is no known cure. All who have seen Joost in action will know that he is not one to give up without a fight. His game-changing prowess as a brilliant scrum half is now focused on a battle for survival and, more importantly, on making a difference to the lives of others with the disease. In a race against time, Joost has a dream to fulfil. He says: “In the beginning you go through all the emotions and you ask, ‘Why me?’ It’s quite simple. ‘Why not me?’ If I have to go through this to help future generations, why not me?” His acceptance of his symptoms is equally pragmatic: “One day you can’t move your arm, another day you don’t have speech. Every day you are reborn and you take the day as it comes.” Glory Game – The Joost van der Westhuizen Story is a compelling narrative of redemption set against the backdrop of an illustrious career in rugby. It is the story of a modern-day warrior forced to face his own human frailty. Joost shows us that beyond ambition, success and fame lies the true wealth of family and friends, and that within a ravaged body the spirit can remain invincible.
It was the late 1940s when a tall, skinny sixth-grader picked up a shiny object off the ground in her small Missouri town and became the victim of a tragic circumstance-an explosive left carelessly behind took away her vision and changed her forever. With a quietly inspirational style, Nancy Burns shares her poignant life experiences as a blind woman with the hope of educating and enlightening others about certain societal misconceptions and attitudes regarding those who are disabled. Beginning with the moment when she woke up in the hospital-both eyes bandaged-and realized she would not receive the emotional comfort and guidance she so desperately needed, Burns offers a compelling glimpse into the fulfilling world she created for herself, despite her disability. Her personal story chronicles her struggles as a young girl learning to live with her vision loss, her family's inability to acknowledge her disability, and her determined journey to acquire the skills that led her to eventually become a vocational counselor who worked with disabled clients. In "Once Upon a Challenge: Hearing is Believing" Burns offers an important message-the way one chooses to live with challenges becomes the key to success in life.
'A must-read!' FINLAY GAMES This essential survival guide gives autistic trans and/or non-binary adults all the tools and strategies they need to live as their very best self. Blending personal accounts with evidence-based insights and up-to-date information, and written from a perspective of empowerment and self-acceptance, the book promotes pride, strength and authenticity, covering topics including self-advocacy, mental health and camouflaging and masking as well as key moments in life such as coming out or transitioning socially and/or physically. Written by two leading autistic trans activists, this book honestly charts what life is like as an autistic trans person and is vital, life-affirming reading.
The idea that some people think differently, though no less humanly, is explored in this inspiring book. Temple Grandin is a gifted and successful animal scientist, and she is autistic. Here she tells us what it was like to grow up perceiving the world in an entirely concrete and visual way - somewhat akin to how animals think, she believes - and how it feels now. Through her finely observed understanding of the workings of her mind, she gives us an invaluable insight into autism and its challenges.
The travel bible for parents of children with autism spectrum disorder and/or mood and distraction disorders, offering helpful tips to soothe any child's travel anxieties. Traveling with children is always challenging, but for parents of children with autism spectrum disorder and/or mood and attention and distraction disorders it can be especially intimidating. How should parents of children experiencing meltdowns deal with clueless and judgmental onlookers? What are the best methods to alleviate motion sickness when your child might already be on a cocktail of drugs? Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible, and the Neurodiverse answers these and many other questions parents may have when traveling with their children. Dawn M. Barclay presents travel strategies and anecdotes from Certified Autism Travel ProfessionalsTM, parents of special needs children, associations and advocates, and mental health professionals, broken down by mode of transportation and type of venue. The heart of the book outlines suggested itineraries for spectrum families as well as venues--such as museums--that cater to the unique special interests that are characteristic of individuals with autism. Less common accommodations such as dude ranches and houseboats are also included, as are vacations involving sports that might not immediately be associated with ASD, such as diving, skiing, and golf. The book culminates with a resource guide of travel agents who specialize in special needs travel--as well as where to find other experts--and lists of organizations that advocate for special needs families. Noted mental health professionals offer advice throughout the book and organizations that support the needs of this community are profiled and included in the resources. Travel brings the world together and now, thanks to a growing focus on the needs of those with special needs, it is more accessible than ever before. This work is an essential part of that effort, a resource designed to make the cultural, educational, and bonding benefits of vacations available to all.
In 2001 verander Erika Murray-Theron se lewe onherroeplik toe haar man, Tom, met parkinsonsiekte gediagnoseer word. Erika begin haar vertelling eers in 2011, toe Tom in ’n meer gevorderde stadium van die siekte verkeer. Dit is die rou optekening van saamleef met ’n geliefde met parkinsons: die ervaring om die fisieke en intellektuele aftakeling van jou lewensmaat te aanskou, die fisieke eise wat met die versorging van so iemand gepaard gaan, en die emosionele inspanning wat dit kos om jouself te staal teen dramatiese en stadige verlies.
Take a tour of ten national parks in this overview of the ways in which they can be accessed by those with physical, sensory and learning limitations and their companions. The National Parks of the U.S. are some of the most sought-after travel destinations in the world. But a visit to any one of them may seem daunting to someone with hearing, seeing, or other physical challenges. What many may not know is that the National Parks offer help to those with access needs. Here, Simon Hayhoe takes readers on a tour of ten National Parks and the accessibility options available to visitors and their companions. He covers three regions of national parks in the east, center and west of the US. The eastern parks include Acadia National Park in Maine, the Everglades National Park in Florida and the Gettysburg National Military Park in Pennsylvania. The central parks include Grand Canyon National Park in Arizona, Rocky Mountain National Park in Colorado, Yellowstone National Park, which is mostly in Wyoming and Zion National Park in Utah. The western parks include Denali National Park in Alaska, Olympic National Park in Washington State and Yosemite National Park in California. Knowing how and where to tap into access points is the first step on your journey. So come along, and let this work guide you.
All people should have access to all that is available in their community and beyond. Neurodiverse individuals often experience barriers when engaging with businesses, even when obstacles can be easily remedied. This book will provide business owners, leaders, managers, team members, and associates the tools to integrate strategies and techniques that will enhance neurodiversity and inclusion, improving the delivery of a quality experience and increasing a varied customer base.
provides an overview of the area of OBM-IDD summarizes the extant literature offers research-to-practice recommendations includes operational strategies for building successful service settings synthesizes the published literature and directs practice and research in the areas of assessment and evaluation, training, supervision, and performance improvement, systems interventions, and organizational development an integral aid for professionals looking to improve different aspects of service delivery
The rising cost of illness and disability benefits are one of today's biggest social and labour market challenges. The promise of activation-oriented work disability policies was labour market engagement for all people, regardless of illness, injury or impairment. However, the reality has been more complex. The Science and Politics of Work Disability Policy addresses social and political economic contexts driving state work disability reform in 13 countries. In this first attempt to explain the history and future of work disability policy, this book asks new questions about work disability policy design, focus, and effects. It details how work disability policies have evolved with jurisdictions, why these take their current shape, and where they are heading. The well positioned authors draw on their insider knowledge and expertise in law, medicine, and social science to provide detailed case studies of their jurisdictions. This pathbreaking volume will be of interest to social security system policy makers, scholars, and students in the health and social sciences.
Are you living away from home for the first time, graduating from school or perhaps getting a new job? These transitions can be especially overwhelming to deal with as a young autistic adult. This survival guide is bursting with neurodivergent-friendly advice from autistic people themselves (and a few neurotypicals too) for young adults embarking on their own journeys of self-discovery and independence. From guidance on organising your own money, looking after your home and organising your social life to tips on self-advocacy and important life skills such as driving, voting and volunteering, Haley Moss has you covered. Using personal stories, interviews with experts and tips from other young people, this book gives you tips and tools to boost your confidence, ready to make your mark on the world!
From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays exploring what it means to be black and disabled in a mostly able-bodied white America. Keah Brown loves herself, but that hadn't always been the case. Born with cerebral palsy, her greatest desire used to be normalcy and refuge from the steady stream of self-hate society strengthened inside her. But after years of introspection and reaching out to others in her community, she has reclaimed herself and changed her perspective. In The Pretty One, Brown gives a contemporary and relatable voice to the disabled-so often portrayed as mute, weak, or isolated. With clear, fresh, and light-hearted prose, these essays explore everything from her relationship with her able-bodied identical twin (called "the pretty one" by friends) to navigating romance; her deep affinity for all things pop culture-and her disappointment with the media's distorted view of disability; and her declaration of self-love with the viral hashtag #DisabledAndCute. By "smashing stigmas, empowering her community, and celebrating herself" (Teen Vogue), Brown and The Pretty One aims to expand the conversation about disability and inspire self-love for people of all backgrounds.
The collective volume seeks to respond to these questions by exploring crip time in disability performance as both a concept and a phenomenon. Out of time has many different meanings, amongst them outmoded, out of step, under time pressure, no time left, or simply delayed. In the disability context it may also refer to resistant attitudes of living in "crip time" that contradict time as a linear process with a more or less predictable future. According to Alison Kafer, "crip time bends the clock to meet disabled bodies and minds." What does this mean in the disability arts? What new concepts of accessibility, crip futures, and crip resistance can be staged or created by disability performance? And how does the notion of "out of time" connect crip time with pandemic time in disability performance? The book tackles the topic from two angles: on the one hand from a theoretical point of view that connects performance analysis with crip and performance theory, on the other hand from a practice-based perspective of disability artists who develop new concepts and dramaturgies of crip time based on their own lived experiences and observations in the field of the performing and disability arts. The book gathers different types of text genres, forms and styles that mirror the diversity of their authors. Besides theoretical and academic chapters on disability performance the book also includes essays, poems, dramatic texts, and choreographic concepts that reflect upon the alternative knowledge in the disability arts.
All people should have access to all that is available in their community and beyond. Neurodiverse individuals often experience barriers when engaging with businesses, even when obstacles can be easily remedied. This book will provide business owners, leaders, managers, team members, and associates the tools to integrate strategies and techniques that will enhance neurodiversity and inclusion, improving the delivery of a quality experience and increasing a varied customer base.
This practical resource is designed to help professionals, parents and carers as they support children with vision impairments to develop independence in everyday tasks. Using the Early Years Foundation Stage framework as a basis, it provides a wealth of strategies and activities to develop key skills, including dressing, maintaining personal hygiene, eating and drinking and road safety. This is an invaluable tool that can be dipped in and out of to help make learning fun, boosting the child's confi dence and helping create a positive 'can- do' attitude when faced with new challenges. This book: Addresses the main problem areas for babies and young visually impaired children and their families, by providing simple explanations of skills and offering strategies and techniques to support progression onto the next stage. Is written in a fully accessible style, with photocopiable pages and additional downloadable resources. Provides a variety of documentation to chart the child's development and show progress over time. Research shows strong indicators that early intervention can reduce or eliminate developmental delays in children with a vision impairment. The supporting strategies in this book help busy professionals and carers to make every opportunity a learning opportunity, allowing children with a vision impairment to become confi dent and independent individuals. |
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