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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Jane Alison Sherwin's honest and uplifting account provides insight into the challenges of bringing up a child with Pathological Demand Avoidance (PDA). After years of misdiagnosis, Jane's daughter, Mollie, was diagnosed with PDA at the age of seven, and we follow her experiences pre and post diagnosis to age 10 as she attends school, interacts with the outside world and approaches adolescence. Throughout, Jane provides commentary on her daughter's behaviour and the impact it has on her family, explaining the 'why' of PDA traits, including the need for control, meltdowns, obsessive behaviour and sensory issues. She reveals the strategies that have worked for Mollie and provides essential advice and information on obtaining a diagnosis and raising awareness of PDA. The book also includes an interview with Mollie. Full of advice and support, and with a focus on understanding the child and how he or she sees the world, this book will be of immeasurable value to the parents and families of children with PDA as well as the professionals working with them, particularly teachers and teaching assistants, SEN co-ordinators, psychologists, outreach workers and social workers.
In the spirit of The Blind Side and Friday Night Lights comes a tender and profoundly moving memoir about an ESPN producer's unexpected relationship with two disabled wrestlers from inner city Cleveland, and how these bonds-blossoming, ultimately, into a most unorthodox family-would transform their lives. When award-winning ESPN producer Lisa Fenn returned to her hometown for a story about two wrestlers at one of Cleveland's toughest public high schools, she had no idea that the trip would change her life. Both young men were disadvantaged students with significant physical disabilities. Dartanyon Crockett was legally blind as a result of Leber's disease; Leroy Sutton lost both his legs at eleven, when he was run over by a train. Brought together by wrestling, they had developed a brother-like bond as they worked to overcome their disabilities. After forming a profound connection with Dartanyon and Leroy, Fenn realized she couldn't just walk away when filming ended; these boys had had to overcome the odds too many times. Instead, Fenn dedicated herself to ensuring their success long after the reporting was finished and the story aired-and an unlikely family of three was formed. The years ahead would be fraught with complex challenges, but Fenn stayed with the boys every step of the way-teaching them essential life skills, helping them heal old wounds and traumatic pasts, and providing the first steady and consistent support system they'd ever had. This powerful memoir is one of love, hope, faith, and strength-a story about an unusual family and the courage to carry on, even in the most extraordinary circumstances.
"When I was growing up, I learned that if you were a girl you went to school and college, then you married, became a wife and had a family. . . . When I became disabled, my journey, I was pretty sure, was not going to take me in those directions. What was I supposed to be? What kind of life was I supposed to have?" Once polio had made her a quadriplegic, Cass Irvin didn't know where she fit in or what would become of her. Neither did her parents, teachers, counselors, or rehabilitation therapists. And so began her search for a place to call home. In this memoir, Cass Irvin tells of the remarkable journey that transformed her from a young girl too timid to ask for help to a community activist and writer who speaks forcefully about the needs of people with disabilities. As a young girl she was taken to Warm Springs, Georgia, where she learned about living as a disabled person and found a hero in Franklin Delano Roosevelt, the famously if silently disabled president. Bright and inquisitive, Cass soon began to question the prevailing assumptions of a society that had no place for her and to question her own meekenss. In time, her keen sense of injustice gave her the courage to fight for a college education. That personal victory emboldened her to find the means to live independently, but it also persuaded her that political work is the key to enabling all people with disabilities to live fulfilling lives. This book, then, is testimony to the importance of community building and organizing as well as the story of one woman's struggle for independence.
The Routledge Handbook of Visual Impairment examines current debates as well as cross-examining traditionally held beliefs around visual impairment. It provides a bridge between medical practice and social and cultural research drawing on authentic investigations. It is the intention of this Handbook to provide an opportunity to engage with academic researchers who wish to ensure a coherent and rigorous approach to research construction and reflection on visual impairment that is in collaboration with, but sometimes is beyond, the medical realm. This Handbook is divided into ten thematic areas in order to represent the wide range of debates and concepts within visual impairment. The ten themes include: cerebral visual impairment; education; sport and physical exercise; assistive technology; understanding the cultural aesthetics; socio-emotional and sexual aspects of visual impairment; orientation, mobility, habitation, and rehabilitation; recent advances in "eye" research and sensory substitution devices; ageing and adulthood. The 27 chapters that explore the social and cultural aspects of visual impairment can be taken and used in a variety of different ways in order to promote research and generate debate among practitioners and scholars who wish to use this resource to inform their practice in supporting and developing positive outcomes for all.
This practical resource is designed to help professionals, parents and carers as they support children with vision impairments to develop independence in everyday tasks. Using the Early Years Foundation Stage framework as a basis, it provides a wealth of strategies and activities to develop key skills, including dressing, maintaining personal hygiene, eating and drinking and road safety. This is an invaluable tool that can be dipped in and out of to help make learning fun, boosting the child's confi dence and helping create a positive 'can- do' attitude when faced with new challenges. This book: Addresses the main problem areas for babies and young visually impaired children and their families, by providing simple explanations of skills and offering strategies and techniques to support progression onto the next stage. Is written in a fully accessible style, with photocopiable pages and additional downloadable resources. Provides a variety of documentation to chart the child's development and show progress over time. Research shows strong indicators that early intervention can reduce or eliminate developmental delays in children with a vision impairment. The supporting strategies in this book help busy professionals and carers to make every opportunity a learning opportunity, allowing children with a vision impairment to become confi dent and independent individuals.
Discover the importance of family in the treatment of
schizophrenia!
"To think of PDA as merely involving demand avoidance is to me akin to thinking of tigers as merely having stripes." This book is a unique window into adult Pathological Demand Avoidance (PDA), exploring the diversity of distinct PDA traits through the voices of over 70 people living with and affected by the condition. Sally Cat, an adult with PDA, has successfully captured the essence of a popular online support group in book form, making the valuable insights available to a wider audience, and creating a much-needed resource for individuals and professionals. Candid discussions cover issues ranging from overload and meltdowns, to work, relationships and parenting. This is a fascinating and sometimes very moving read.
In January 1988, aged twelve, Martin Pistorius fell inexplicably sick. Within eighteen months he was mute and wheelchair-bound, being cared for at centres for severely disabled children. What no-one knew is that while Martin's body remained unresponsive, his mind slowly woke up, yet he could tell no-one, a prisoner inside his own body. During this time, he suffered abuse of a kind that is barely imaginable, yet still he kept the spirit of hope alive. It wasn't until he was twenty-three that a gentle therapist realised he was alert to everything and, along with his parents, assisted his road to recovery. Since then, against all odds, he has fallen in love, married, and now runs a thriving web design business. Martin's extraordinary story is a deeply moving account of the power of love.
The deaf world is a complex one, divided by the allegiance of some to Deaf Culture, which emphasizes communication by sign-language, and by others to oralism, which emphasizes speech as the primary means of communication, and still others to a program called Total Communication, which stresses both signing and speaking. Today, more and more deaf people, especially children, are choosing oralism because it helps them fit into mainstream society better. This work presents interviews with fourteen extraordinary oral deaf role models from diverse backgrounds and professions. Wall Street banker Ralph Marra, paralegal Kristin Buehl, 1984 Olympic gold medalist Jeff Float, percussionist Evelyn Glennie, engineer George Oberlander, university mathematics professor Dr. David James, law professor Bonnie Poitras Tucker, executive Carolyn Ginsburg, foundation head Mildred Oberkotter, architect Tom Fields, accountant and institute executive director Ken Levinson, finance manager Michael Janger, school administrator Kathleen Suffridge Treni, and teacher Karen Kirby tell of their experiences and stories, discuss what helped and what hindered them, and offer advice to parents of deaf children. Instructors considering this book for use in a course may request an examination copy here.
"Dyslexia: Students in Need" offers a positive approach to students with dyslexia in further and higher education. Students with dyslexia gain degrees and professional qualifications, and successes of this kind often depend on appropriate educational and technological support and upon funding. "Dyslexia: Students in Need", in an easy-to-read typeface, tackles the problems and challenges identified by students themselves. It provides information on applications and admissions to colleges and universities, and on seeking information, support and funding about dyslexia from institutions. It provides information on how to apply for funding from the Disabled Students' Allowance (DSA), and study skills relevant to dyslexia and to course requirements, with examples of how to maximise the strengths and abilities associated with dyslexia. It also presents ideas about the use of computers, software and other technologies relevant to dyslexia, and how to cope with revision and exams. It includes personal case studies written by undergraduate and postgraduate students with dyslexia. This book is not only invaluable for dyslexic students, but valuable reading for Heads of Departments, admissions tutors, Equal Opportunities co-ordinators, lecturers, personal tutors and librarians.
CONTRIBUTIONS TO THE SOCIOLOGY OF LANGUAGE brings to students, researchers and practitioners in all of the social and language-related sciences carefully selected book-length publications dealing with sociolinguistic theory, methods, findings and applications. It approaches the study of language in society in its broadest sense, as a truly international and interdisciplinary field in which various approaches, theoretical and empirical, supplement and complement each other. The series invites the attention of linguists, language teachers of all interests, sociologists, political scientists, anthropologists, historians etc. to the development of the sociology of language.
People with speaking difficulties are at the mercy of insurance companies who are determining how often and for how long speech therapy services should be delivered. It is also a disturbing reality that the likelihood for therapy frequency and length of care is contingent upon either the level of competence or comfort level of the speech-language pathologist or the financial policies of each institution. Often it has nothing to do with the severity or need for speech therapy. Our health care system is in no position to bankroll the long-term therapy that many people need who have moderate to profound speaking difficulties. The goal of Teaching of Talking is to make sure that any loved one, caregiver or speech-language pathologist is thoroughly knowledgeable in methods to help people improve talking since it is never known when the plug will be pulled on speech and language therapy services. Ittleman says: "I see hundreds of people with speech and language difficulties each year. By reading and applying The Teaching of Talking, you will have the confidence to help your client or loved one, no matter what the insurance company or institution does. By learning to do what is in Teaching of Talking you will be more self-sufficient and will not have to rely on anyone to provide your loved one with expert speech therapy.
"Ah Jeeeze, not another book about Autism." But this one is
different It's not all rainbows, unicorns and blessings. "The Dark
Side of Autism" puts raising a child with special needs into
perspective with no sugar coating of the reality.
*Strong potential: early intervention is critical for kids with autism. *Provides easy-to-learn, playful ways for parents to help their toddlers and preschoolers. *Based on the authors' Early Start program, shown by research to improve communication, behavior, and IQ. *Early Start is one of the few validated programs for young children with ASD-and the only one for toddlers. *Doable strategies fit easily into family routines and are compatible with any type of treatment.
Almost 80% of autistic people have a co-occurring mental health condition, and this powerful book puts their voices front and centre, showcasing the human experience beyond the medicalised language and diagnoses. This poignant essay collection shines a light on voices that often go unheard in our society. Covering a range of experiences from multiple ages, genders and backgrounds, discussions include trauma, relationships, masking, healthcare, intersectionality and more. The essays are structured along the topics of hurt (personal experiences and how they shaped the contributor), help (the tools and tips which have helped on their personal journeys), and hope (looking forward to the future). At times touching, humorous, and also enraging, this book offers a frank and honest depiction of the challenges autistic people face and the knock-on effect on their mental health. A challenge to change how our society treats and values one another.
This collection begins with two premises: that our understanding of the nature and forms of creativity in later life remains limited and that dialogue between specialists in gerontology, the arts and humanities can produce the crucial new insights that are so obviously needed. Representing the outcome of ongoing dialogue across the disciplinary divide, the contributions of this volume reflect anew on what we share and how we differ; creating new narratives so as to build an understanding of late-life creativity that goes far beyond the narrow confines of the pervasively received idea of 'late style'. Creativity in Later Life encompasses a range of personal reflections and discussions of the boundaries of creativity, including: Canonical artistic achievements to community art projects Narratives of carers for those living with dementia Analyses of creative theory Through these insightful chapters, the authors consequently offer an understanding of creativity in later life as varied, socialised and - above all - located in the cultural and economic circumstances of the here and now. This title will appeal to academics, practitioners and students in the various gerontological, arts and humanities fields; and to anyone with an interest in the nature of creativity in later life and the forms it takes.
Written in response to the many requests for a practical and accessible guide to exercise for scoliosis sufferers, Curves, Twists and Bends combines the experience of Annette Wellings, who has major scoliosis, with that of Alan Herdman, the UK's leading Pilates teacher. This clear and concise book explains what scoliosis is, its symptoms, and its physical and psychological impact. It includes a series of Pilates exercises, designed by the authors specifically to promote flexibility, posture and muscle strength in scoliosis sufferers, and also vital information on what exercises to avoid. It offers basic strategies and practical tips for living with the condition, including useful advice on diet, rest, sitting, carrying and how to dress. Written with the full range of scoliosis sufferers in mind, Pilates for Scoliosis emphasises the importance and feasibility of gentle exercise for keeping the body as healthy and flexible as possible. Curves, Twists and Bends: A Practical Guide to Pilates for Scoliosis will be indispensible to individuals with scoliosis and their families as well as to physical therapists, Pilates instructors and other professionals who advise scoliosis patients on exercise and lifestyle options.
**NOW WITH AN AFTERWORD AND ADVICE FOR A NEW MOTHER** 'A powerful, moving and inspiring story - it opens up a whole new world of understanding.' Esther Freud 'This is wonderful. I urge you to read it. It is life enhancing and I defy you not to fall in love with Ben!' Natasha Poliszczuk, Books Editor, YOU Magazine 'An honest and unflinching account of Jessica's journey as the mother of a child born with complex needs. Essential reading... and a source of solace for those who may find themselves on a similar path.' Leah Hazard, author of Hard Pushed: A Midwife's Story 'Jessica's beautiful words gave me a deeper understanding about embracing disability. I am inspired and will be recommending this book to parents as a testament to following your parenting instincts.' Arabella Carter-Johnson, author of Iris Grace 'A gripping and vital insight into the lives of families trying to thrive in bureaucratic systems that all too often add to the challenges of providing disabled children with basic care and human rights. Impossible to put down.' Hannah Barham-Brown, deputy leader of the Women's Equality Party 'Rooted in love and is a moving story about the transformative power of adapting, practically and emotionally to changing circumstances. As a disabled adult, it was a joy to join the parent of a disabled child as they embrace Disability Culture and allyship.' Jess Thom, Touretteshero 'A courageous, heartrending story of grief, love and ultimately hope.' The Sun, 5 star review *** Jessica thought she was prepared for the experience of motherhood. Armed with advice from friends and family, parenting books and antenatal classes, she felt ready. After giving birth, she found herself facing a different, more uncertain reality. Her son, Ben, was fighting to stay alive. Jessica shares her journey raising Ben. His disability means he will never be able to move or communicate without assistance. Jessica has to learn how to feed Ben when he can't eat, wrestle with red tape to secure his education and defend his basic rights in the face of discrimination. But the act of reading to Ben enriches both their lives and brings them joy. As Ben begins to thrive, alongside his two younger siblings, Jessica finds that caring for a child with unique needs teaches her about appreciating difference and doing things your own way. This uplifting story is about the power of family love, finding inner strength and, above all, hope.
A thorough and comprehensive guide for both education professionals and those affected by dyslexia, this book is predominantly a guidebook. It includes lots of practical advice and is based on the authors' sound knowledge of current theory and practice. It includes: photocopiable materials contact and reference details personal organisation advice ways forward for potential problems information on secondary or associated difficulties.
Amit Patel is working as a trauma doctor when a rare condition causes him to lose his sight within thirty-six hours. Totally dependent on others and terrified of stepping outside with a white cane after he's assaulted, he hits rock bottom. He refuses to leave home on his own for three months. With the support of his wife Seema he slowly adapts to his new situation, but how could life ever be the way it was? Then his guide dog Kika comes along . . . But Kika’s stubbornness almost puts her guide dog training in jeopardy – could her quirky personality be a perfect match for someone? Meanwhile Amit has reservations – can he trust a dog with his safety? Paired together in 2015, they start on a journey, learning to trust each other before taking to the streets of London and beyond. The partnership not only gives Amit a renewed lease of life but a new best friend. Then, after a video of an irate commuter rudely asking Amit to step aside on an escalator goes viral, he sets out with Kika by his side to spread a message of positivity and inclusivity, showing that nothing will hold them back. From the challenges of travelling when blind to becoming a parent for the first time, Kika & Me is the moving, heart-warming and inspirational story of Amit’s sight-loss journey and how one guide dog changed his world.
Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two interdisciplinary social research teams in dementia, namely the Center for Dementia Research [CEDER] at Linkoeping University in Norrkoeping, Sweden and the Dementia and Ageing Research Team [DART] at The University of Manchester in Manchester, UK. Case examples are shared in each of the main chapters to help ground the social research method(s) in a real-life context and provide direction as to how learning can be applied to other settings. Chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students, as well as postdoctoral researchers, interested in fields such as: Research Methods, Qualitative Methods and Dementia Studies. |
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