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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Jane Alison Sherwin's honest and uplifting account provides insight into the challenges of bringing up a child with Pathological Demand Avoidance (PDA). After years of misdiagnosis, Jane's daughter, Mollie, was diagnosed with PDA at the age of seven, and we follow her experiences pre and post diagnosis to age 10 as she attends school, interacts with the outside world and approaches adolescence. Throughout, Jane provides commentary on her daughter's behaviour and the impact it has on her family, explaining the 'why' of PDA traits, including the need for control, meltdowns, obsessive behaviour and sensory issues. She reveals the strategies that have worked for Mollie and provides essential advice and information on obtaining a diagnosis and raising awareness of PDA. The book also includes an interview with Mollie. Full of advice and support, and with a focus on understanding the child and how he or she sees the world, this book will be of immeasurable value to the parents and families of children with PDA as well as the professionals working with them, particularly teachers and teaching assistants, SEN co-ordinators, psychologists, outreach workers and social workers.
Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.
There are more opportunities than ever before for young people with disabilities to participate in sport and adapted physical education. For example, there are more than 3.7 million athletes worldwide aligned to the Special Olympics organisation, with national associations active in more than 200 countries worldwide. Despite this rapid growth, all too often coaches and teachers lack adequate knowledge of the particular challenges faced by people with intellectual disabilities. The principal aim of this book is to improve the understanding and professional skills of coaches, teachers, practitioners and researchers, to promote awareness of successful programmes addressing the needs of such young people, and to challenge the prevailing myths and stereotypes surrounding their abilities. With contributions from leading researchers and practitioners around the world, this book is the first to explore in depth the topic of sport and intellectual disability from a coaching perspective. Including both theoretical discussion and empirical case-studies, the book covers a full range of contemporary issues and themes, including training and coaching, family support, perceptions of disability, athlete motivation, positive sport experiences, motor development programmes, and social and cultural aspects of disability. Sport Coaching and Intellectual Disability is important reading for any student, researcher, coach, teacher, manager or policy maker with an interest in disability sport, physical education, coaching, or mainstream disability studies.
Language which develops 'against all the odds' is very precious. Words were not enough for Tom; it was signs that made sense of a world silenced by meningitis. Confidence came via joyful and positive steps to communication from babyhood; a brush with epilepsy, a cochlear implant in his teens and life as an independent young adult followed.
In this updated edition, Olga Bogdashina provides a theoretical foundation for understanding communication and language impairments specific to autism. She explores the effects of different perceptual and cognitive styles on the communication and language development of autistic children. She also stresses the importance of identifying each individual's nonverbal language - which can be visual, tactile, kinaesthetic, auditory, olfactory or gustatory - to establish verbal communication. Reflecting recent research and changes in terminology, the book explains why some approaches may work for some autistic children but not for others, and the 'What They Say' sections allow the reader to see through the eyes of autistic individuals and understand their language differences first-hand. 'What We Can Do to Help' sections throughout the book give practical recommendations for helping autistic individuals use their natural mechanisms to learn and develop social and communicative skills. The final chapters are devoted to assessment and intervention issues with recommendations for selecting appropriate methods and techniques to enhance communication, based on the specific mode of communication a person uses.
Motor neurone disease (MND) is a progressive condition that damages the nervous system, leaving muscles wasted and weak, and causing loss of mobility, and difficulties with speech, swallowing and breathing. MND tends to affect people over 40 and is most common between the ages of 50 and 70. There are about 5,000 people with MND at any one time in the UK. The cause remains a mystery and there is no cure. The third edition of this book gives a full update of treatments and resources available to help those diagnosed live life to the full. Topics include what the disease is, what the doctors will do, and how to cope with the difficulties. This new edition also examines possible dietary factors in causing the disease, the latest on benefits, and up to date thinking on drug trials. Dr David Oliver, a leading expert on MND, shows how to treat not just the physical effects but also the emotional ones for the whole family. Dr Oliver also explains the vital role of the Motor Neurone Disease Association.
This volume analyzes representations of disability in art from antiquity to the twenty-first century, incorporating disability studies scholarship and art historical research and methodology. This book brings these two strands together to provide a comprehensive overview of the intersections between these two disciplines. Divided into four parts: Ancient History through the 17th Century: Gods, Dwarfs, and Warriors 17th-Century Spain to the American Civil War: Misfits, Wounded Bodies, and Medical Specimens Modernism, Metaphor and Corporeality Contemporary Art: Crips, Care, and Portraiture and comprised of 16 chapters focusing on Greek sculpture, ancient Chinese art, Early Italian Renaissance art, the Spanish Golden Age, nineteenth century art in France (Manet, Toulouse-Lautrec) and the US, and contemporary works, it contextualizes understandings of disability historically, as well as in terms of medicine, literature, and visual culture. This book is required reading for scholars and students of disability studies, art history, sociology, medical humanities and media arts.
First published in 1986, Handicapping Conditions in Children provides an accessible overview of a wide range of handicapping conditions and their remediation, and gives a balanced perspective on the medical, educational and social issues. It will therefore be of value to a wide audience in these professions as well as to students and parents. Each chapter deals with one specific area but is presented to cover: description of the condition and its aetiology; its prevalence in the population and relatives; developmental characteristics; special problems and needs; educational and social provision; the potential for the future; and further reading lists. The book does not include every possible condition, but concentrates on those that are most frequent or problematic. This book is a reissue originally published in 1986. The language used is a reflection of its era and no offence is meant by the Publishers to any reader by this republication
This is a memoir about hope - hope in others, hope in systems, and hope for the future. I've never quite known where to begin when someone asks me what I've been up to. I've never quite known how to explain what our daily life is like. I wanted to write how it is in order to give others a greater understanding of disability and caring. And to be totally honest, I wanted to write something that would make people consider being Louis's friend. So here is me introducing you: Louis, this is your story. Readers, this is my son.
Written by a world authority on maths difficulties in children, this accessible guide provides tried and tested visual strategies and tailored techniques to help teachers and parents support children with SpLDs who need help with maths. Drawing on the latest research, into areas such as cognition and meta-cognition, along with the authors' decades of teaching experience, the book offers insight into how maths learning difficulties, including dyslexia, dyscalculia and maths anxiety, make maths difficult. Each chapter looks at foundational areas of maths learning that children may struggle with, from early number experiences to basic addition and subtraction, times tables, measurement and more. Essential reading for any teacher, learning assistant or parent supporting children with maths.
Almost 80% of autistic people have a co-occurring mental health condition, and this powerful book puts their voices front and centre, showcasing the human experience beyond the medicalised language and diagnoses. This poignant essay collection shines a light on voices that often go unheard in our society. Covering a range of experiences from multiple ages, genders and backgrounds, discussions include trauma, relationships, masking, healthcare, intersectionality and more. The essays are structured along the topics of hurt (personal experiences and how they shaped the contributor), help (the tools and tips which have helped on their personal journeys), and hope (looking forward to the future). At times touching, humorous, and also enraging, this book offers a frank and honest depiction of the challenges autistic people face and the knock-on effect on their mental health. A challenge to change how our society treats and values one another.
Traumatic spinal cord injuries have become increasingly common, with nearly a quarter of a million Americans dealing with the condition and another 10,000 new cases each year. The need for a simple, authoritative guide to this disability has never been greater. The "Mayo Clinic Guide to Living with a Spinal Cord Injury" addresses that need. With all the information written, vetted, and endorsed by the world's most prestigious medical clinic, the book enables sufferers to return to an active and productive life within the limits of their disability. Here the Clinic's leading experts offer advice on everything from emotional adjustments to skin care to modifying homes and cars. This independence-granting book encourages readers to resume their favorite hobbies, participate in athletic activities, and return to the workplace quickly and safely.
The ultimate guide to ensuring school success for kids with attention deficits. School Success for Kids With ADHD offers parents and teachers the support they need to ensure children with attention deficits build on their strengths, circumvent their weaknesses, and achieve to their fullest potential. With the growing number of children diagnosed with attention problems, parents and teachers need practical advice for helping these children succeed in school. Topics include recognizing the causes and types of attention deficits and how they appear in the school context, requesting school evaluations and diagnoses, understanding the laws regarding students with special needs, advocating for these students in the school environment, and coaching students with attention deficits to success. The authors also include a brief overview of research and medical perspectives on attention deficits, strategies used by teachers of children with ADHD, and helpful tools for parents and teachers to employ, such as homework checklists and self-advocacy charts.
This book addresses the ways in which individualised, market-based models of disability support provision have been mobilised in and across different countries through cross-national investigation of individualised funding (IF) as an object of neoliberal policy mobility. Combining rich theoretical and interdisciplinary perspectives with extensive empirical research, the book provides a timely examination of the policy processes and mechanisms driving the spread of IF amongst countries at the forefront of disability policy reform. It is argued that IF's mobility is not attributable to neoliberalism alone but to the complex intersections between neoliberal and emancipatory agendas and to the transnational networks that have blended the two agendas in new ways in different institutional contexts. The book shows how disability rights struggles have synchronised with neoliberal agendas, which explains IF's propensity to move and mutate between different jurisdictions. Featuring first-hand accounts of the activists and advocates engaged in these struggles, the book illuminates the consequences and risks of the dangerous liaisons and political trade-offs that seemed necessary to get individualised funding on the policy agenda for disabled people. It will be of interest to all scholars and students working in disability studies, social policy, sociology and political science more generally.
In the book Witness 2 Healing, Angus Gordon decribes his journey to health after suffering the excruciating pain of spinal cord stenosis. Outspoken and with a firm belief in hilmself, Angus describes how he chose to heal his body his way without medication or surgery. Despite cautioning readers to obtain a medical opinion, Angus also provides a step-by-step process of basic healthy living choices for others to follow. Thses include appropriate exercises, nutrition, posture and mindset. Some delicious recipes are also included. Witness 2 Healing is simply written, speaks directly to the reader and provides a refreshing insight into an alternative healing.
This reassuring guide explains prescribed ADHD medicines for children in clear, everyday language. Based on questions the author has received from countless families in his work as a Consultant Psychiatrist, the expert information in this book answers the most pressing questions a parent will have about ADHD medicines: how they work, what they do, what is available and how to talk about them to your children. This book sheds light on why not all medicines are easily available, the differences between certain medications and their level of effectiveness, all based on scientific evidence. This information will support parents in discussions with medical professionals, explaining the practicalities and demystifying the terminology around medication and treatments. The book also provides insights into the decisions behind prescribing certain medicines and how they should be taken. Armed with this guide, parents - as well as teachers and others working with kids with ADHD - can feel confident and assured when their child is prescribed treatments for ADHD.
The Routledge Handbook of Visual Impairment examines current debates as well as cross-examining traditionally held beliefs around visual impairment. It provides a bridge between medical practice and social and cultural research drawing on authentic investigations. It is the intention of this Handbook to provide an opportunity to engage with academic researchers who wish to ensure a coherent and rigorous approach to research construction and reflection on visual impairment that is in collaboration with, but sometimes is beyond, the medical realm. This Handbook is divided into ten thematic areas in order to represent the wide range of debates and concepts within visual impairment. The ten themes include: cerebral visual impairment; education; sport and physical exercise; assistive technology; understanding the cultural aesthetics; socio-emotional and sexual aspects of visual impairment; orientation, mobility, habitation, and rehabilitation; recent advances in "eye" research and sensory substitution devices; ageing and adulthood. The 27 chapters that explore the social and cultural aspects of visual impairment can be taken and used in a variety of different ways in order to promote research and generate debate among practitioners and scholars who wish to use this resource to inform their practice in supporting and developing positive outcomes for all.
This practical resource is designed to help professionals, parents and carers as they support children with vision impairments to develop independence in everyday tasks. Using the Early Years Foundation Stage framework as a basis, it provides a wealth of strategies and activities to develop key skills, including dressing, maintaining personal hygiene, eating and drinking and road safety. This is an invaluable tool that can be dipped in and out of to help make learning fun, boosting the child's confi dence and helping create a positive 'can- do' attitude when faced with new challenges. This book: Addresses the main problem areas for babies and young visually impaired children and their families, by providing simple explanations of skills and offering strategies and techniques to support progression onto the next stage. Is written in a fully accessible style, with photocopiable pages and additional downloadable resources. Provides a variety of documentation to chart the child's development and show progress over time. Research shows strong indicators that early intervention can reduce or eliminate developmental delays in children with a vision impairment. The supporting strategies in this book help busy professionals and carers to make every opportunity a learning opportunity, allowing children with a vision impairment to become confi dent and independent individuals.
Haben grew up spending summers with her family in the enchanting Eritrean city of Asmara. There, she discovered courage as she faced off against a bull she couldn't see, and found in herself an abiding strength as she absorbed her parents' harrowing experiences during Eritrea's thirty-year war with Ethiopia. Their refugee story inspired her to embark on a quest for knowledge, traveling the world in search of the secret to belonging. She explored numerous fascinating places, including Mali, where she helped build a school under the scorching Saharan sun. Her many adventures over the years range from the hair-raising to the hilarious. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people. Haben pioneered her way through obstacles, graduated from Harvard Law, and now uses her talents to advocate for people with disabilities. HABEN takes readers through a thrilling game of blind hide-and-seek in Louisiana, a treacherous climb up an iceberg in Alaska, and a magical moment with President Obama at The White House. Warm, funny, thoughtful, and uplifting, this captivating memoir is a testament to one woman's determination to find the keys to connection.
Discover the importance of family in the treatment of
schizophrenia!
How do we give a voice to those who so often remain unheard? Will You Read This, Please? is a frank and impactful collection of twelve stories as told to our best British writers, based on the lived experience of people who have faced mental illness in the UK. Edited by Joanna Cannon, the Sunday Times bestselling author of The Trouble with Goats and Sheep, Three Things About Elsie and A Tidy Ending, the stories told here are powerful, resonant and heart-breaking. This is a ground-breaking and unforgettable collection, shining a light on the stigma and isolation of living with mental illness, while also showing the strength and resilience of the human spirit.
In January 1988, aged twelve, Martin Pistorius fell inexplicably sick. Within eighteen months he was mute and wheelchair-bound, being cared for at centres for severely disabled children. What no-one knew is that while Martin's body remained unresponsive, his mind slowly woke up, yet he could tell no-one, a prisoner inside his own body. During this time, he suffered abuse of a kind that is barely imaginable, yet still he kept the spirit of hope alive. It wasn't until he was twenty-three that a gentle therapist realised he was alert to everything and, along with his parents, assisted his road to recovery. Since then, against all odds, he has fallen in love, married, and now runs a thriving web design business. Martin's extraordinary story is a deeply moving account of the power of love.
The deaf world is a complex one, divided by the allegiance of some to Deaf Culture, which emphasizes communication by sign-language, and by others to oralism, which emphasizes speech as the primary means of communication, and still others to a program called Total Communication, which stresses both signing and speaking. Today, more and more deaf people, especially children, are choosing oralism because it helps them fit into mainstream society better. This work presents interviews with fourteen extraordinary oral deaf role models from diverse backgrounds and professions. Wall Street banker Ralph Marra, paralegal Kristin Buehl, 1984 Olympic gold medalist Jeff Float, percussionist Evelyn Glennie, engineer George Oberlander, university mathematics professor Dr. David James, law professor Bonnie Poitras Tucker, executive Carolyn Ginsburg, foundation head Mildred Oberkotter, architect Tom Fields, accountant and institute executive director Ken Levinson, finance manager Michael Janger, school administrator Kathleen Suffridge Treni, and teacher Karen Kirby tell of their experiences and stories, discuss what helped and what hindered them, and offer advice to parents of deaf children. Instructors considering this book for use in a course may request an examination copy here. |
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