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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Discover the importance of family in the treatment of
schizophrenia!
"To think of PDA as merely involving demand avoidance is to me akin to thinking of tigers as merely having stripes." This book is a unique window into adult Pathological Demand Avoidance (PDA), exploring the diversity of distinct PDA traits through the voices of over 70 people living with and affected by the condition. Sally Cat, an adult with PDA, has successfully captured the essence of a popular online support group in book form, making the valuable insights available to a wider audience, and creating a much-needed resource for individuals and professionals. Candid discussions cover issues ranging from overload and meltdowns, to work, relationships and parenting. This is a fascinating and sometimes very moving read.
In January 1988, aged twelve, Martin Pistorius fell inexplicably sick. Within eighteen months he was mute and wheelchair-bound, being cared for at centres for severely disabled children. What no-one knew is that while Martin's body remained unresponsive, his mind slowly woke up, yet he could tell no-one, a prisoner inside his own body. During this time, he suffered abuse of a kind that is barely imaginable, yet still he kept the spirit of hope alive. It wasn't until he was twenty-three that a gentle therapist realised he was alert to everything and, along with his parents, assisted his road to recovery. Since then, against all odds, he has fallen in love, married, and now runs a thriving web design business. Martin's extraordinary story is a deeply moving account of the power of love.
The deaf world is a complex one, divided by the allegiance of some to Deaf Culture, which emphasizes communication by sign-language, and by others to oralism, which emphasizes speech as the primary means of communication, and still others to a program called Total Communication, which stresses both signing and speaking. Today, more and more deaf people, especially children, are choosing oralism because it helps them fit into mainstream society better. This work presents interviews with fourteen extraordinary oral deaf role models from diverse backgrounds and professions. Wall Street banker Ralph Marra, paralegal Kristin Buehl, 1984 Olympic gold medalist Jeff Float, percussionist Evelyn Glennie, engineer George Oberlander, university mathematics professor Dr. David James, law professor Bonnie Poitras Tucker, executive Carolyn Ginsburg, foundation head Mildred Oberkotter, architect Tom Fields, accountant and institute executive director Ken Levinson, finance manager Michael Janger, school administrator Kathleen Suffridge Treni, and teacher Karen Kirby tell of their experiences and stories, discuss what helped and what hindered them, and offer advice to parents of deaf children. Instructors considering this book for use in a course may request an examination copy here.
The Complete Guide to Asperger's Syndrome is the definitive handbook for anyone affected by Asperger's syndrome (AS). Now including a new introduction explaining the impact of DSM-5 on the diagnosis and approach to AS, it brings together a wealth of information on all aspects of the syndrome for children through to adults. Drawing on case studies and personal accounts from Attwood's extensive clinical experience, and from his correspondence with individuals with AS, this book is both authoritative and extremely accessible. Chapters examine:
There is also an invaluable frequently asked questions chapter and a section listing useful resources for anyone wishing to find further information on a particular aspect of AS, as well as literature and educational tools. Essential reading for families and individuals affected by AS as well as teachers, professionals and employers coming in contact with people with AS, this book should be on the bookshelf of anyone who needs to know or is interested in this complex condition.
"Ah Jeeeze, not another book about Autism." But this one is
different It's not all rainbows, unicorns and blessings. "The Dark
Side of Autism" puts raising a child with special needs into
perspective with no sugar coating of the reality.
People with speaking difficulties are at the mercy of insurance companies who are determining how often and for how long speech therapy services should be delivered. It is also a disturbing reality that the likelihood for therapy frequency and length of care is contingent upon either the level of competence or comfort level of the speech-language pathologist or the financial policies of each institution. Often it has nothing to do with the severity or need for speech therapy. Our health care system is in no position to bankroll the long-term therapy that many people need who have moderate to profound speaking difficulties. The goal of Teaching of Talking is to make sure that any loved one, caregiver or speech-language pathologist is thoroughly knowledgeable in methods to help people improve talking since it is never known when the plug will be pulled on speech and language therapy services. Ittleman says: "I see hundreds of people with speech and language difficulties each year. By reading and applying The Teaching of Talking, you will have the confidence to help your client or loved one, no matter what the insurance company or institution does. By learning to do what is in Teaching of Talking you will be more self-sufficient and will not have to rely on anyone to provide your loved one with expert speech therapy.
Parenting isn't easy, and parenting a child with a Global Developmental Delay, Intellectual Disability, or Autism can be challenging. However, a lot of parenting strategies are straightforward once you get your head around them. With the right knowledge, environment, interactions, responses and understanding, you can help reduce your child's anxiety, build their confidence, and help them develop learning and communication skills. Based on his work as a Clinical Psychologist working with children developing differently, Dr Joshua Muggleton provides a comprehensive, step-by-step parenting plan that will support you to embed good practice at home from day one. The book outlines how to provide the right environment for your child to learn and grow, how to model and encourage new skills, how to organise routines, and how to make these strategies work in family life. By getting things right for your child early on, you can help prevent emotional and behavioural challenges before they arise, and will be better able to understand and support your child when they do. These strategies are designed to work across all neurodevelopmental conditions, and take into account co-occurring conditions such as ADHD, meaning none of the advice in the book requires your child to have a specific diagnosis. It also includes downloadable examples of charts, how-to guides for creating visual resources tailored to your child's individual needs, and downloadable chapters on sleep and siblings.
This collection begins with two premises: that our understanding of the nature and forms of creativity in later life remains limited and that dialogue between specialists in gerontology, the arts and humanities can produce the crucial new insights that are so obviously needed. Representing the outcome of ongoing dialogue across the disciplinary divide, the contributions of this volume reflect anew on what we share and how we differ; creating new narratives so as to build an understanding of late-life creativity that goes far beyond the narrow confines of the pervasively received idea of 'late style'. Creativity in Later Life encompasses a range of personal reflections and discussions of the boundaries of creativity, including: Canonical artistic achievements to community art projects Narratives of carers for those living with dementia Analyses of creative theory Through these insightful chapters, the authors consequently offer an understanding of creativity in later life as varied, socialised and - above all - located in the cultural and economic circumstances of the here and now. This title will appeal to academics, practitioners and students in the various gerontological, arts and humanities fields; and to anyone with an interest in the nature of creativity in later life and the forms it takes.
A thorough and comprehensive guide for both education professionals and those affected by dyslexia, this book is predominantly a guidebook. It includes lots of practical advice and is based on the authors' sound knowledge of current theory and practice. It includes: photocopiable materials contact and reference details personal organisation advice ways forward for potential problems information on secondary or associated difficulties.
'A hymn to life, love, family, and spirit' DAVID MITCHELL, author of Cloud Atlas The vividly told, gloriously illustrated memoir of an artist born with disabilities who searches for freedom and connection in a society afraid of strange bodies. ***WINNER OF THE BARBELLION PRIZE*** ***SHORTLISTED FOR THE NATIONAL BOOK CRITICS CIRCLE AWARD*** In 1958, amongst the children born with spina bifida is Riva Lehrer. At the time, most such children are not expected to survive. Her parents and doctors are determined to 'fix' her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark-it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits-inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she's been told her whole life about her body, her sexuality, and other measures of normal. Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human. 'Riva Lehrer is a great artist and a great storyteller. This is a brilliant book, full of strangeness, beauty, and wonder' AUDREY NIFFENEGGER 'This astonishing, heart soaring and often shocking memoir of a Jewish woman with spina Bifida born in the 50's is bright and dark, terrifying and wonderful. An ode to art and the beauty of disability' CERRIE BURNELL
"So while the assumption when I was born was that I was or would grow up to be a neurotypical heterosexual boy, that whole idea didn't really pan out long term." In this candid, first-of-its-kind memoir, Laura Kate Dale recounts what life is like growing up as a gay trans woman on the autism spectrum. From struggling with sensory processing, managing socially demanding situations and learning social cues and feminine presentation, through to coming out as trans during an autistic meltdown, Laura draws on her personal experiences from life prior to transition and diagnosis, and moving on to the years of self-discovery, to give a unique insight into the nuances of sexuality, gender and autism, and how they intersect. Charting the ups and downs of being autistic and on the LGBT spectrum with searing honesty and humour, this is an empowering, life-affirming read for anyone who's felt they don't fit in.
Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two interdisciplinary social research teams in dementia, namely the Center for Dementia Research [CEDER] at Linkoeping University in Norrkoeping, Sweden and the Dementia and Ageing Research Team [DART] at The University of Manchester in Manchester, UK. Case examples are shared in each of the main chapters to help ground the social research method(s) in a real-life context and provide direction as to how learning can be applied to other settings. Chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students, as well as postdoctoral researchers, interested in fields such as: Research Methods, Qualitative Methods and Dementia Studies.
Effective use of ICT can enhance many dyslexic pupils' access to the curriculum, but it has to be used appropriately. This book will be useful to all teachers, teaching assistants, SENCOs and parents who are keen to have practical advice on how to help a child in this way. Full of strategies and suggestions that are based on the author's extensive classroom experience, this accessible book is suitable for the ICT novice and more advanced user alike. The book has been fully updated to guide the user through the maze of hardware and software currently available, identifying those most suitable for different Key Stages and curriculum subjects as well as providing ICT solutions to the problems of assessing and screening for dyslexia.
Comprised of the accounts of twelve heterosexual couples in which the man is on the Autism Spectrum, this book invites both partners to discuss their own perspectives of different key issues, including anxiety, empathy, employment and socialising. Autism expert Tony Attwood contributes a commentary and a question and answer section for each of the twelve accounts. The first book of its kind to provide perspectives from both sides of a relationship on a variety of different topics, Neurodiverse Relationships is the perfect companion for couples in neurodiverse relationships who are trying to understand one another better.
Written by a world authority on maths difficulties in children, this accessible guide provides tried and tested visual strategies and tailored techniques to help teachers and parents support children with SpLDs who need help with maths. Drawing on the latest research, into areas such as cognition and meta-cognition, along with the authors' decades of teaching experience, the book offers insight into how maths learning difficulties, including dyslexia, dyscalculia and maths anxiety, make maths difficult. Each chapter looks at foundational areas of maths learning that children may struggle with, from early number experiences to basic addition and subtraction, times tables, measurement and more. Essential reading for any teacher, learning assistant or parent supporting children with maths.
This handbook provides a much-needed holistic overview of disability and sexuality research and scholarship. With authors from a wide range of disciplines and representing a diversity of nationalities, it provides a multi-perspectival view that fully captures the diversity of issues and outlooks. Organised into six parts, the contributors explore long-standing issues such as the psychological, interpersonal, social, political and cultural barriers to sexual access that disabled people face and their struggle for sexual rights and participation. The volume also engages issues that have been on the periphery of the discourse, such as sexual accommodations and support aimed at facilitating disabled people's sexual well-being; the socio-sexual tensions confronting disabled people with intersecting stigmatised identities such as LGBTBI or asexual; and the sexual concerns of disabled people in the Global South. It interrogates disability and sexuality from diverse perspectives, from more traditional psychological and sociological models, to various subversive and post-theoretical perspectives and queer theory. This handbook examines the cutting-edge, and sometimes ethically contentious, concerns that have been repressed in the field. With current, international and comprehensive content, this book is essential reading for students, academics and researchers in the areas of disability, gender and sexuality, as well as applied disciplines such as healthcare practitioners, counsellors, psychology trainees and social workers.
Haben grew up spending summers with her family in the enchanting Eritrean city of Asmara. There, she discovered courage as she faced off against a bull she couldn't see, and found in herself an abiding strength as she absorbed her parents' harrowing experiences during Eritrea's thirty-year war with Ethiopia. Their refugee story inspired her to embark on a quest for knowledge, traveling the world in search of the secret to belonging. She explored numerous fascinating places, including Mali, where she helped build a school under the scorching Saharan sun. Her many adventures over the years range from the hair-raising to the hilarious. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people. Haben pioneered her way through obstacles, graduated from Harvard Law, and now uses her talents to advocate for people with disabilities. HABEN takes readers through a thrilling game of blind hide-and-seek in Louisiana, a treacherous climb up an iceberg in Alaska, and a magical moment with President Obama at The White House. Warm, funny, thoughtful, and uplifting, this captivating memoir is a testament to one woman's determination to find the keys to connection.
'GORGEOUS, VIVIDLY ALIVE' NEW YORK TIMES 'BOLD, HONEST AND SUPERBLY WELL-WRITTEN' ANDRE ACIMAN, AUTHOR OF CALL ME BY YOUR NAME 'GRACEFUL AND SOUL-BARING' MELANIE REID, THE TIMES 'WHAT A GIFT . . . HAS THE RIGOR AND PRECISION OF JOAN DIDION AND MAGGIE NELSON AND A FORTHRIGHT HUMOR AND NAKED TRUTH ALL OF ITS OWN.' SARAH RUHL, AUTHOR OF SMILE I am in a bar in Brooklyn listening to two men, my friends, discuss whether or not my life was worth living. So begins Chloe Cooper Jones's bold account of moving through the world in a body that looks different than most. Born with a rare congenital condition called sacral agenesis, she must contend not only with her own physical pain, but the emotional discomfort of others. It is only when she unexpectedly becomes a mother that she confronts the demand to live life fully, propelling her on a journey across the globe, reclaiming the spaces she'd been denied, and denied herself. From Roman sculptures to a Beyonce concert, from a tennis tournament to the Cambodian Killing Fields, Jones interrogates the myths of beauty with spiky intelligence, aesthetic philosophy, love and humor, inviting us to find a new way of seeing.
Diagnosed with Pathological Demand Avoidance (PDA) at aged 12 and writing this memoir at age 37, Julia Daunt depicts the ins and out of PDA and its symptoms, while maintaining a positive outlook on what is possible to achieve. Co-written with professional specialist Ruth Fidler, it covers how PDA impacts Julia's life, including meltdowns, sensory issues and communication in relationships. Including examples of school reports and handwritten letters, a chapter written from Julia's partner's perspective and even an example of Julia's favourite recipe, this warm and personal look at living and thriving with PDA is informative and inspiring.
Asperger Syndrome and Alcohol exposes the unexplored problem of people with Autism Spectrum Disorders (ASDs) using alcohol as a coping mechanism to deal with everyday life. Alcohol can relieve the anxiety of social situations and make those with ASDs feel as though they can fit in. Ultimately, however, reliance on alcohol can lead the user down a path of self-destruction and exacerbate existing problems. Utilising their professional and personal experience, the authors provide an overview of ASDs and of alcohol abuse, and explore current knowledge about where the two overlap. Tinsley explores his own personal history as someone with an ASD who has experienced and beaten alcohol addiction. He discusses how the impact of his diagnosis and his understanding of the condition played a huge part in his recovery, and how by viewing his life through the prism of autism, his confusion has been replaced by a greater understanding of himself and the world around him. This inspiring book on an under-researched area will be of interest to professionals working with people with ASDs, as well as individuals with ASDs who may be dealing with alcohol or substance misuse, and their families.
Grateful parents and professionals worldwide have welcomed this essential guide to the highly recommended Floortime approach for treating children with any of the autism spectrum disorders (ASD). Now available in paperback, Engaging Autism includes new, exciting information on neuroscience research into the effects of this approach, plus guidance for parents navigating the controversies surrounding the treatment of autism. Unlike approaches that focus on changing specific behaviour, Greenspan's program promotes the building blocks of healthy emotional and behavioural development. He shows that, remarkably, children with ASD do not have a fixed, limited potential, and may often join their peers to lead full, psychologically healthy lives. The Floortime approach can also be applied at any age,including early infancy, when the first signs of risk for ASD may appear,so that preventing the full development of autism becomes a real possibility. |
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