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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Young, Disabled and LGBT+ brings together the work of an international team interested in exploring the intersection of sexuality, gender identity, and disability in the lives of young people and aims to further develop this area as a distinct area of study. This volume features original research and writing into lives that are often misunderstood, marginalised and under-represented in research. It is framed with artwork, poetry and writing from young disabled LGBT+ people, and centralises the voices and lives of young disabled LGBT+ people throughout. Drawing from disciplines including: sociology, psychology, disability and youth studies, and with contributions from practitioners, it examines experiences and research from a number of perspectives, such as education, personal lives and activism. Featuring work from the UK, Canada, United States, India and Australia, it is a timely and topical book which will appeal to scholars particularly interested in sexuality, gender, disability and youth studies; professionals within health, education, social work and youth work who aim to understand and support young disabled LGBT+ people; and young people themselves.
The purpose of special needs planning is to create the best possible life for an adult with a disability. This book provides comprehensive guidance on creating a life plan to transition a special needs child to independence or to ensure they are well cared for in the future. Beginning with a vision of a meaningful life for the child, Hal Wright explains how to form a practical plan to reach these goals, how to mentor personal empowerment and task skills, and how to create circles of support to sustain a life plan. He next looks at employment and residential options, and government programs available in the United States. Finally he talks the reader through important financial and legal considerations, including how to fund and manage a special needs trust. This book will be essential reading for all parents or guardians of a child with a cognitive, mental or physical impairment. It will also be of interest to attorneys, financial planners, insurance agents, trust officers and other professionals looking to better serve the special needs community.
The boom in trained service animal use and access has transformed the lives of travelers with disabilities. As a result, tens of thousands of people in the United States and Canada enjoy travel options that were difficult or impossible just a few years ago. Henry Kisor and Christine Goodier provide a narrative guidebook full of essential information and salted with personal, hands-on stories of life on the road with service dogs and miniature horses. As the travel-savvy human companions of Trooper (Kisor's miniature schnauzer/poodle cross) and Raylene (Goodier's black Labrador), the authors share experiences from packing for your animal partner to widely varying legal protections to the animal-friendly rides at Disneyland. Chapters cover the specifics of air, rail, road, and cruise ship travel, while appendixes offer checklists, primers on import regulations and corporate policies, advice for emergencies, and a route-by-route guide to finding relief walks during North American train trips. Practical and long overdue, Traveling with Service Animals provides any human-animal partnership with a horizon-to-horizon handbook for exploring the world.
Grateful parents and professionals worldwide have welcomed this essential guide to the highly recommended Floortime approach for treating children with any of the autism spectrum disorders (ASD). Now available in paperback, Engaging Autism includes new, exciting information on neuroscience research into the effects of this approach, plus guidance for parents navigating the controversies surrounding the treatment of autism. Unlike approaches that focus on changing specific behaviour, Greenspan's program promotes the building blocks of healthy emotional and behavioural development. He shows that, remarkably, children with ASD do not have a fixed, limited potential, and may often join their peers to lead full, psychologically healthy lives. The Floortime approach can also be applied at any age,including early infancy, when the first signs of risk for ASD may appear,so that preventing the full development of autism becomes a real possibility.
The #ActuallyAutistic Guide to Advocacy takes an in-depth look at the key elements of effective, respectful, inclusive advocacy and allyship. Every topic was chosen, shaped, and informed by #ActuallyAutistic perspectives. The step-by-step guide discusses various aspects of how autism is perceived, explores how best to speak up for individual needs, and introduces advocacy for the wider autistic community. Each step outlines one vital aspect of advocacy and allyship, such as emphasizing acceptance, avoiding assumptions and assuming competence. The advice and strategies laid out in this guide center the wisdom and experiences of Autistic people and enable the reader to confidently speak up with insight and understanding.
ADHD - Anxiety - Nonverbal - Communication - Disorders -
Visual/Spatial - Disorders - Executive Functioning Difficulties
This book sets out to understand how students with disabilities experience higher education and the transition to the workplace. It foregrounds the voices of students and graduates in order to explore identity, inclusion, participation and success of youth with disabilities in higher education, as well as their transition from university to employment. The author proposes a new understanding of disability, considered in terms of a continuum of abilities, balancing empirical data, theory and policy analysis with specific regard to the interests of youth with disabilities, making a unique contribution to discussions on access, inclusion and success in higher education and employment. These discussions inform social development and educational policy planning and implementation, not only in South Africa, but also in countries with a similar context, particularly in terms of remedial courses of action that bring social justice to people with disabilities. Students with Disabilities and the Transition to Work will be of interest to all scholars and students working in the fields of disability studies, particularly those with a focus on critical disability studies and disability in the global south, as well as those working in higher education, sociology, development studies and social policy.
Participatory Case Study Work shows academic co-researchers how to adapt and implement their methods so that data collection and analysis is authentically participatory. At the heart of this text is advocating a participatory approach to case study work, with co-construction as a catalyst for shared understanding and action in advancing ageing studies. Whilst case study research has a relatively long tradition in the canon of research methodologies, little attention has so far been paid to the importance and value of participatory case study work. This is surprising as its egalitarian and democratic value-base naturally lends itself to the co-production and co-creation of personal and collective theory drawn directly from lived experience. The book brings together over 15 years' worth of participatory case study work in ageing studies in which the editors have been actively involved as either front-line researchers or as supervisors to PhD and MPhil studies adopting the methodology, and from where each of the contributors is selected. Real-life case examples are shared in the main chapters of the book and they provide direction as to how learning can be applied to other settings. The chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students as well as postdoctoral researchers interested in fields such as research methods, qualitative methods, ageing studies and mental health studies.
Social Research and Disability argues that the contemporary rules of sociological methods outlined in numerous research methods texts make a number of assumptions concerning the researcher including ambulance, sight, hearing and speech. In short, the disabled researcher is not considered when outlining the requirements of particular methods. Drawing upon these considerations, the volume emphasizes how disabled researchers negotiate the empirical process, in light of disability, whilst retaining the scientific rigour of the method. It also considers the negative consequences arising from disabled researchers' attempts at "passing" and the benefits that can emerge from a reflexive approach to method. This innovative and original text will, for the first time, bring together research-active academics, who identify as being disabled, to consider experiences of being disabled within a largely ableist academy, as well as strategies employed and issues faced when conducting empirical research. The driving force of this volume is to provide the blueprints for bringing how we conduct social research to the same standards and vision as how the social world is understood: multi-faceted and intersectional. To this end, this edited collection advocates for a sociological future that values the presence of disabled researchers and normalises research methods that are inclusive and accessible. The interdisciplinary focus of Social Research and Disability offers a uniquely broad primary market. This volume will be of interest not only to the student market, but also to established academics within the social sciences.
Sarah Merriman is just like any other urbane young woman in her twenties... She has a job in a Central London hotel, a boyfriend, commutes to work on the Tube, eats out, goes to films and theatre... This is all the more remarkable (though not to her) because Sarah was born with Down's Syndrome. Her parents having no prior inkling, it came as a huge shock to them that they now had a daughter with a disability. In 1999 her father Andy wrote a frank and moving book, A Minor Adjustment, about the challenge of her early years. The national publicity it gained saw it become a treasured resource for other families on a similar journey. Now he follows up with the inspirational story of how his daughter, whose favourite expression is `I love my life', has grown up, featured on Michel Roux's compelling Kitchen Impossible series, and is making a life of her own at a time when pre-natal testing is threatening the very existence of people with Down's syndrome. Sarah has contributed throughout.
Happily married to her husband with Asperger Syndrome for 25 years, Ashley Stanford is an expert on how Autism Spectrum Disorder (ASD) can affect a relationship and her bestselling book has helped thousands of couples. Brought fully up to date, this second edition clarifies the new DSM-5 diagnostic criteria and explains how, without a solid awareness of the condition, ASD behaviors can easily be misinterpreted. Stanford's book provides a wealth of strategies for living with the more uncompromising aspects of ASD, pointing out that ASD also brings enormous strengths to a relationship. It shows how understanding the intentions, motivations and reasoning behind ASD behaviors can lead to better communication, relief of tension, and ultimately to a happier, more mutually fulfilling relationship.
What are the motivations and desires behind relationship choices and sexual behaviour? Are they very different for those with Asperger Syndrome (AS) than for anyone else? Does having extreme sensitivity to physical touch or an above average need for solitude change one's expectation of relationships or sexual experience? Many people on the autism spectrum have limited knowledge of how to establish or conduct sexual relationships: drawing on extensive research with people on the autism spectrum, the book openly explores such questions. For the first time people with AS discuss their desires, needs and preferences in their own words. AS attitudes to issues such as gender, sexual identity and infidelity are included, as well as positive advice for developing relationships and exploring options and choices for sexual pleasure. This accessible book is an invaluable source of information and support for those with Asperger Syndrome and couples in which one or both partners has Asperger Syndrome, as well as counsellors and health and social care professionals.
Get moving on that injury with this humorous guide to rehabilitation from the comfort of your home! Does it Hurt When I Do This? is designed to educate readers on the workings of the human body, how to keep it healthy, and how to prevent and rehabilitate injuries. In a light, humorous style that has endeared him to thousands of patients, Mark Salamon presents this "owner's manual for the human body" in a logical order, starting with very basic concepts and progressing gradually to more complex ideas. His continual references back to the basics stem from his observations over twenty-five years of patients who were frustrated because their doctors or therapists had never explained them. With a better understanding of how the body's different parts work together to protect itself from injury and repair itself if one occurs, readers learn how to care for all the parts together so injuries become less frequent and easier to fix. Guiding readers through hows and whys of rehabilitating injuries to specific body parts, starting with the feet and working up, Salamon emphasizes that this knowledge is meant to enhance, not replace, the reader's relationship with their physical therapist and doctor. When poor insurance coverage or high co-pays limit the number of office visits, the knowledge gleaned from this work helps patients better understand how to enhance and stick with their home programs, and when to seek help when things are not improving as expected.
Does My Child Have Autism? is a question so many parents are asking themselves today. Is he avoiding eye contact? Why can't she talk? Is my child's development normal or does he have an Autism Spectrum Disorder? Parents know that if their child is somewhere on that spectrum, they need to intervene as early as possible to maximize the benefits of early treatment. This groundbreaking book, by one of the foremost experts, teachers, and clinicians in the field, provides a guide for parents about what to look for at home at twenty-four months or even earlier, what to do, and how to get the right kind of help from doctors, counselors, therapists, and other professionals. Step-by-step, Stone walks you through the diagnostic process for young children with autism and offers vital information about what will be expected of you and your child during the clinical assessment. The book reveals the critical importance of early intervention and outlines the various types of interventions that are currently available. In addition, Does My Child Have Autism? gives you practical tips, activities, and teaching tools that can be used at home to improve your child's social, communication, and play skills. "Clear and compassionate ... takes families through early
warning signs, understanding the diagnostic process, and what types
of early treatment might be helpful. A must-read for families with
children who may have or do have an Autism Spectrum Disorder as
well as clinicians and caregivers of children and families with
ASD."
In January 1988, aged twelve, Martin Pistorius fell inexplicably sick. Within eighteen months he was mute and wheelchair-bound, being cared for at centres for severely disabled children. What no-one knew is that while Martin's body remained unresponsive, his mind slowly woke up, yet he could tell no-one, a prisoner inside his own body. During this time, he suffered abuse of a kind that is barely imaginable, yet still he kept the spirit of hope alive. It wasn't until he was twenty-three that a gentle therapist realised he was alert to everything and, along with his parents, assisted his road to recovery. Since then, against all odds, he has fallen in love, married, and now runs a thriving web design business. Martin's extraordinary story is a deeply moving account of the power of love.
In the twenty-first century there is increasing global recognition of pain relief as a basic human right. However, as Susan Honeyman argues in this new take on child pain and invisible disability, such a belief has historically been driven by adult, ideological needs, whereas the needs of children in pain have traditionally been marginalised or overlooked in comparison. Examining migraines in children and the socially disabling effects that chronic pain can have, this book uses medical, political and cultural discourse to convey a sense of invisible disability in children with migraine and its subsequent oppression within educational and medical policy. The book is supported by authentic migraineurs' experiences and first-hand interviews as well as testimonials from a range of historical, literary, and medical sources never combined in a child-centred context before. Representations of child pain and lifespan migraine within literature, art and popular culture are also pulled together in order to provide an interdisciplinary guide to those wanting to understand migraine in children and the identity politics of disability more fully. Child Pain, Migraine, and Invisible Disability will appeal to scholars in childhood studies, children's rights, literary and visual culture, disability studies and medical humanities. It will also be of interest to anyone who has suffered from migraines or has cared for children affected by chronic pain.
Includes tips and strategies for kids, teens, and adults with
dyslexia
Murphys Don't Quit is a story of hope and resilience as one family rallies together during a tragedy. Colleen Murphys' daughter, Lauren, suffered severe brain damage after a tragic accident. Lauren remained in the hospital unidentified for several hours, she was not expected to survive. This story is a raw, honest account of the pitfalls and challenges a family faces while navigating life through brain injury. Murphys Don't Quit shows how one family combined a never-give-up attitude with faith, hope, and love. Throughout the chapters, readers see not just the highs, but the heartbreaking lows. Due to the family's Irish wit, humor often diffuses the devastating subject matter. Through the many grueling hours of therapy and by visiting specialists all over the country, Lauren was able to find her way back to a life filled with purpose and is now a highly sought after inspirational public speaker.
The Courage to Go Forward shows that individuals need to think differently about creating supportive communities to help each other set and achieve goals, both individually and collectively. Those interested in making a positive impact on society need to consider how to complement societal programs designed for the "average" person with customized approaches tailored to the unique needs and aspirations of every individual. Focused on the inspirational relationship between Cigna, a global health service company, and Achilles International, a nonprofit focused on encouraging disabled people to participate in mainstream athletics, The Courage to Go Forward demonstrates the power and triumph of the human spirit and provides valuable insight into the formation and importance of micro communities. David Cordani, president and CEO of Cigna, and Achilles International founder and president Dick Traum come from very different backgrounds yet share a similar set of passions that eventually brought them together, forming a relationship that has positively impacted communities ranging from inspired employees to thousands of disabled athletes competing at the highest levels. Filled with wisdom from two impactful leaders, a collection of inspiring profiles of Achilles athletes, and stunning imagery, The Courage to Go Forward offers a combination of powerful inspiration and important business lessons, including the potential power of partnership between for-profit and nonprofit organizations, and should be required reading for anyone who wants to drive positive societal change, and to encourage others-or themselves-to achieve beyond their perceived limitations.
'A hymn to life, love, family, and spirit' DAVID MITCHELL, author of Cloud Atlas The vividly told, gloriously illustrated memoir of an artist born with disabilities who searches for freedom and connection in a society afraid of strange bodies. ***WINNER OF THE BARBELLION PRIZE*** ***SHORTLISTED FOR THE NATIONAL BOOK CRITICS CIRCLE AWARD*** In 1958, amongst the children born with spina bifida is Riva Lehrer. At the time, most such children are not expected to survive. Her parents and doctors are determined to 'fix' her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark-it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits-inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she's been told her whole life about her body, her sexuality, and other measures of normal. Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human. 'Riva Lehrer is a great artist and a great storyteller. This is a brilliant book, full of strangeness, beauty, and wonder' AUDREY NIFFENEGGER 'This astonishing, heart soaring and often shocking memoir of a Jewish woman with spina Bifida born in the 50's is bright and dark, terrifying and wonderful. An ode to art and the beauty of disability' CERRIE BURNELL
In 2011 the world was shocked when the news broke that Joost van der Westhuizen, known for years as the golden boy of South African rugby and a former Springbok captain, had been diagnosed with motor neuron disease (MND). This rare condition attacks the central nervous system, causing progressive disability. There is no known cure. All who have seen Joost in action will know that he is not one to give up without a fight. His game-changing prowess as a brilliant scrum half is now focused on a battle for survival and, more importantly, on making a difference to the lives of others with the disease. In a race against time, Joost has a dream to fulfil. He says: “In the beginning you go through all the emotions and you ask, ‘Why me?’ It’s quite simple. ‘Why not me?’ If I have to go through this to help future generations, why not me?” His acceptance of his symptoms is equally pragmatic: “One day you can’t move your arm, another day you don’t have speech. Every day you are reborn and you take the day as it comes.” Glory Game – The Joost van der Westhuizen Story is a compelling narrative of redemption set against the backdrop of an illustrious career in rugby. It is the story of a modern-day warrior forced to face his own human frailty. Joost shows us that beyond ambition, success and fame lies the true wealth of family and friends, and that within a ravaged body the spirit can remain invincible.
Up-to-date, reliable information about Tourette Syndrome and related disorders for teachers and parents Children with TS are often teased and punished for the unusual yet uncontrollable symptoms of their disorder. Academic failure is common. The Tourette Syndrome/OCD Checklist helps parents and teachers to better understand children and youth with TS and/or OCD and provide the support and interventions these children need. Presented in a simple, concise, easy-to-read checklist format, the book is packed with the latest research, practical advice, and information on a wide range of topics.Provides a wealth of information on Tourette Syndrome, Obsessive-Compulsive Disorder, and related conditionsIncludes strategies for discipline and behavior management, advice on supporting and motivating kids with TS and OCD, homework tips, and moreShows how to educate peer students about TS and OCD Loaded with practical information, strategies, and resources, this book helps parents and teachers to better understand Tourette Syndrome and OCD and shows how every individual can reach their potential in school and in life. |
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