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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
In January 1988, aged twelve, Martin Pistorius fell inexplicably sick. Within eighteen months he was mute and wheelchair-bound, being cared for at centres for severely disabled children. What no-one knew is that while Martin's body remained unresponsive, his mind slowly woke up, yet he could tell no-one, a prisoner inside his own body. During this time, he suffered abuse of a kind that is barely imaginable, yet still he kept the spirit of hope alive. It wasn't until he was twenty-three that a gentle therapist realised he was alert to everything and, along with his parents, assisted his road to recovery. Since then, against all odds, he has fallen in love, married, and now runs a thriving web design business. Martin's extraordinary story is a deeply moving account of the power of love.
Locates social attitudes towards disability in a contemporary cultural landscape. Interdisciplinary in its crossing of lines among education, the humanities, and the social sciences. 14 newly written chapters cover a broad range of disabilities and chronic conditions including blindness, autism, Down Syndrome, diabetes, cancer and HIV/AIDS.
Locates social attitudes towards disability in a contemporary cultural landscape. Interdisciplinary in its crossing of lines among education, the humanities, and the social sciences. 14 newly written chapters cover a broad range of disabilities and chronic conditions including blindness, autism, Down Syndrome, diabetes, cancer and HIV/AIDS.
By triangulating the Greco-Roman world, classical reception, and disability studies, this book presents a range of approaches that reassess and reimagine traditional themes, from the narrative voice to sensory studies. It argues that disability and disabled people are the 'forgotten other' of not just Classics, but also the Humanities more widely. Beyond the moral merits of rectifying this neglect, this book also provides a series of approaches and case studies that demonstrate the intellectual value of engaging with disability studies as classicists and exploring the classical legacy in the medical humanities. The book is presented in four parts: 'Communicating and controlling impairment, illness and pain'; 'Using, creating and showcasing disability supports and services'; 'Real bodies and retrieving senses: disability in the ritual record'; and 'Classical reception as the gateway between Classics and disability studies'. Chapters by scholars from different academic backgrounds are carefully paired in these sections in order to draw out further contrasts and nuances and produce a sum that is more than the parts. The volume also explores how the ancient world and its reception have influenced medical and disability literature, and how engagements with disabled people might lead to reinterpretations of familiar case studies, such as the Parthenon. This book is primarily intended for classicists interested in disabled people in the Greco-Roman past and in how modern disability studies may offer insights into and reinterpretations of historic case studies. It will also be of interest to those working in medical humanities, sensory studies, and museum studies, and those exploring the wider tension between representation and reality in ancient contexts. As such, it will appeal to people in the wider Humanities who, notwithstanding any interest in how disabled people are represented in literature, art, and cinema, have had less engagement with disability studies and the lived experience of people with impairments. FREE CHAPTER AVAILABLE! Please go to https://bit.ly/3pzpO7n to access the Introduction, which we have made freely available.
The onslaught of neoliberalism, austerity measures and cuts, impact of climate change, protracted conflicts and ongoing refugee crisis, rise of far right and populist movements have all negatively impacted on disability. Yet, disabled people and their allies are fighting back and we urgently need to understand how, where and what they are doing, what they feel their challenges are and what their future needs will be. This comprehensive handbook emphasizes the importance of everyday disability activism and how activists across the world bring together a wide range of activism tactics and strategies. It also challenges the activist movements, transnational and emancipatory politics, as well as providing future directions for disability activism. With contributions from senior and emerging disability activists, academics, students and practitioners from around the globe, this handbook covers the following broad themes: * Contextualising disability activism in global activism * Neoliberalism and austerity in the global North * Rights, embodied resistance and disability activism * Belonging, identity and values: how to create diverse coalitions for rights * Reclaiming social positions, places and spaces * Social media, support and activism * Campus activism in higher education * Inclusive pedagogies, evidence and activist practices * Enabling human rights and policy * Challenges facing disability activism The Routledge Handbook of Disability Activism provides disability activists, students, academics, practitioners, development partners and policy makers with an authoritative framework for disability activism.
Progressive, untreatable nerve and muscle diseases transformed the author's life from having been a college athlete to needing a wheelchair and special equipment for day-to-day activities. While dealing with his own conditions, he was faced with the unique challenge of being the sole caregiver for his wife who suffers from Alzheimer's disease. He has written this experience-based book to help people with life-altering medical conditions and those dealing with challenging caregiving responsibilities. Comprehensive in scope, it covers topics including grief, finances, safety and end-of-life planning. This is a resource book containing many references aimed at helping the reader overcome their challenges, maintain their independence and have happy, fulfilling lives.
This is the first book to offer an in-depth review of research pertaining to individuals with visual impairments across the full span of movement-related disciplines, from biomechanics and motor learning to physical education and Paralympic sport. Each chapter highlights current research trends, future research directions, and practical implications in a key discipline or area of professional practice, drawing on empirical research evidence and opening up new avenues for cross-disciplinary working. Covering physical activity across the life course, from children and young people through to older adults, and addressing the important topic of deafblindness in some depth, the book goes further than any other book published to date on visual impairment and movement. This is essential reading for all advanced students and researchers working in sport, exercise and disability, and an invaluable reference for practitioners and service providers, from in-service teachers and camp directors to physical therapists and physical activity promotion specialists.
This book provides an overview of the innovative, arts-based research method of body mapping and offers a snapshot of the field. The review of body mapping projects by Boydell et al. confirms the potential research and therapeutic benefits associated with body mapping. The book describes a series of body mapping research projects that focus on populations marginalised by disability, mental health status, and other vulnerable identities. Chapters focus on summarising the current state of the art and its application with marginalised groups; analytic strategies for body mapping; highlighting body mapping as a creation and a dissemination process; emerging body mapping techniques including web-based, virtual reality, and wearable technology applications; and measuring the impact of body maps on planning, practice, and behaviour. Contributors and editors include interdisciplinary experts from the fields of psychology, sociology, anthropology, and beyond. Offering innovative ways of engaging in body mapping research, which result in real-world impact, this book is an essential resource for postgraduate students and researchers.
This book explores the diverse ways in which disability activism and advocacy are experienced and practised by people with disabilities and their allies. Contributors to the book explore the very different strategies and campaigns they have used to have their demands for respect, dignity and rights heard and acted upon by their communities, by national governments and the international community. The book, with its contemporary global focus, makes a significant contribution to the field of disability and social justice studies, particularly at a time of major social, political and cultural upheaval. Global Perspectives on Disability Activism and Advocacy offers a significant intervention within the field of disability at a time of major social upheaval where actors, advocates and activists are seeking to hold onto existing claims for rights, equality and disability justice.
This book provides an in-depth analysis of the social and spatial experiences of people with dwarfism, an impairment that results in a person being no taller than 4' 10". This book engages with the concept that dwarfism's most prominent feature - body size and shape - can form the basis of social discrimination and disadvantages within society. By ignoring body size as a disability, it is hard to see the resulting disabling consequences of the built environment. Using a mixed-methods approach and drawing on the work undertaken by human geographers and disability studies academics, this book analyses how the relationship between harmful cultural stereotypes and space shapes everyday experiences of people with dwarfism and works to socially exclude them in diverse ways. Showing how spatial and social barriers are not mutually exclusive but can influence one another, this book responds to the limited academic work on the subject of dwarfism, whilst also contributing to the study of geographies of body size. It will be of interest to all scholars and students of disability studies, human geography, the built environment, sociology and medical humanities.
This handbook provides a much-needed holistic overview of disability and sexuality research and scholarship. With authors from a wide range of disciplines and representing a diversity of nationalities, it provides a multi-perspectival view that fully captures the diversity of issues and outlooks. Organised into six parts, the contributors explore long-standing issues such as the psychological, interpersonal, social, political and cultural barriers to sexual access that disabled people face and their struggle for sexual rights and participation. The volume also engages issues that have been on the periphery of the discourse, such as sexual accommodations and support aimed at facilitating disabled people's sexual well-being; the socio-sexual tensions confronting disabled people with intersecting stigmatised identities such as LGBTBI or asexual; and the sexual concerns of disabled people in the Global South. It interrogates disability and sexuality from diverse perspectives, from more traditional psychological and sociological models, to various subversive and post-theoretical perspectives and queer theory. This handbook examines the cutting-edge, and sometimes ethically contentious, concerns that have been repressed in the field. With current, international and comprehensive content, this book is essential reading for students, academics and researchers in the areas of disability, gender and sexuality, as well as applied disciplines such as healthcare practitioners, counsellors, psychology trainees and social workers.
Efforts to reduce discrimination and increase diversity on campuses, coupled with shrinking budgets causing administrators to devote more resources toward recruiting and retaining students with disabilities, are fuelling an explosion of research in the area of inclusive education. An important focus that has been largely neglected is the place of teachers with disabilities in academe. International Perspectives on Teaching with Disability brings together 25 multi-disciplinary scholars with disabilities from Africa, Canada, the Caribbean, the UK, Israel and the United States to share their struggles and successes in teaching with disability. The 18 chapters are written largely from autoethnographic perspectives grounded in solid academic research but full of anecdotes and self-reflexive narratives that provide insights into the lived experiences of the authors. Woven into the narratives are discussions of the complexities of self-disclosure and self-advocacy; the varied-and often problematic-ways disability is experienced, perceived and discussed in society and in the classroom; the challenges of navigating academe with disability, the value of disability pedagogy, the positive student outcomes achieved by teaching through disability, as well as practical applications and lessons learned that will benefit educators, administrators and students preparing to become teachers. This book is written to champion the integral place and role of disabled educators in academe. Current educators with disability will be affirmed. Those with disability aspiring to become teachers will be encouraged. Temporarily able-bodied administrators and educators will be challenged. Everyone will be informed. This book will be a welcome addition to reading lists in a wide array of academic fields including: Education, Pedagogy, Disability Studies, Human Resources Management, and Sociology.
Children enter the school doors today with many diverse needs: mental health problems, ADHD, anxiety, victims of physical or sexual abuse, homelessness, or facing some other type of trauma. Teachers in today's classrooms are struggling to understand the needs of their students and to provide a supportive and nurturing environment, while maintaining structure and routine. In whatever setting students are, teachers must understand the challenges that students come to school facing, know how to assess the needs of the children, build positive relationships with them, collaborate with others, and take care of themselves. The first book in this two book volume explored the needed components in setting the stage for meeting the needs of the students. This second volume provides the specific interventions that teachers will need to implement. Included in this volume are evidence-based academic interventions and behavioral interventions. Other chapters provide interventions to incorporate wellness and the creative arts. Strategies to teach social skills and to prepare students for independent living and the world of work are also an integral part of this volume.
The UN Convention on the Rights of Persons with Disabilities has facilitated the understanding that disability is both a human rights and development issue. In order to achieve the Sustainable Development Goals by 2030, the focus on disability inclusion has become increasingly important in the discourse of international and national efforts for "leaving no one behind", the motto of the SDGs. This book discusses pertinent and emerging themes such as disability rights, globalization, inequalities, international cooperation and representation. Evidence which has been obtained tends to show that persons with disabilities have been disproportionately left behind without proper representation, participation and inclusion. This book critically investigates the gaps at different levels, from top to bottom, and as importantly, within the global disability movement, for the realization of global disability rights, and theorizes the intersection of disability, globalization and human rights. Empirical case studies from different countries and contexts are introduced to deepen analysis on theories of critical disability studies from a global perspective. Co-edited by a disability researcher and the former United Nations Special Rapporteur on Disability, this book will be of interest to all students, academics, policy makers and practitioners working to advance the cause of disability rights around the world.
Following criticisms of the traditionally polarized view of understanding suffering through either medicine or social justice, Lowe makes a compelling argument for how the medical humanities can help to go beyond the traditional biographical and epistemic breaks to see into the nature and properties of suffering and what is at stake. Lowe demonstrates through analysis of major healthcare workforce issues and incidence of burnout how key policies and practices influence healthcare education and experiences of both patients and health professionals. By including first person narratives from health professionals as a tool and resource, she illustrates how dominant ideas about the self enter practice as a refusal of suffering. Demonstrating the relationship between personal experience, theory and research, Lowe argues for a pedagogy of suffering that shows how the moral anguish implicit in suffering is an ethical response of the emergent self. This is an important read for all those interested in medical humanities, health professional education, person-centred care and the sociology of health and illness.
First Published in 2002. Routledge is an imprint of Taylor & Francis, an informa company.
From its beginnings in the 1970s and 1980s, interest in the topic of gender and migration has grown. Gender and Migration seeks to introduce the most relevant sociological theories of gender relations and migration that consider ongoing transnationalization processes, at the beginning of the third millennium. These include intersectionality, queer studies, social inequality theory and the theory of transnational migration and citizenship; all of which are brought together and illustrated by means of various empirical examples. With its explicit focus on the gendered structures of migration-sending and migration-receiving countries, Gender and Migration builds on the most current conceptual tool of gender studies-intersectionality-which calls for collective research on gender with analysis of class, ethnicity/race, sexuality, age and other axes of inequality in the context of transnational migration and mobility. The book also includes descriptions of a number of recommended films that illustrate transnational migrant masculinities and femininities within and outside of Europe. A refreshing attempt to bring in considerations of queer theory and sexual identity in the area of gender migration studies, this insightful volume will appeal to students and researchers interested in fields such as sociology, social anthropology, political science, intersectional studies and transnational migration.
The highly anticipated fourth book from best-selling author Michael A. Boylan, Reach For Me, The Story of My Son Connor, is the inspirational true story of how his life changed abruptly upon receiving the news of his son's diagnosis of William's Syndrome, leading to the collapse of his marriage and family, the loss of his home, his business and life as he knew it, and the healing principles which are woven into a step-by-step process designed to help caregivers address and more effectively deal with all that comes at them over a lifetime of caregiving. Reach For Me is a powerful story of honesty, hope, determination, letting go and finding a deeper resiliency that all will be well, and that all caregivers have a unique need to be embraced and respected by the communities around them. Reach For Me, The Story of My Son Connor is also being compared to the international bestseller The Purpose Driven Life by Rick Warren because of its ability to generate discussion amongst caregivers wishing to address real-world challenges through the step-by-step process with other caregivers and their families.
Building on work in feminist studies, queer studies and critical race theory, this volume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and 'others', including dyslexics, autistics and ADHDers. This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neurodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questions the theoretical and mythological assumptions that produce the idea of the neurotypical. Working at the crossroads between sociology, critical psychology, medical humanities, critical disability studies, and critical autism studies, and sharing theoretical ground with critical race studies and critical queer studies, the proposed new field - neurodiversity studies - will be of interest to people working in all these areas.
This honest, to-the-point guide illuminates the experience of young Autistic girls and explores the situations they can easily fall victim to. Powerful case studies show how easily misunderstandings can arise for Autistic girls and help the reader to identify common patterns of abuse. Providing professionals with access to safeguarding strategies that are straightforward to implement and highly effective, this is essential reading for everyone who wants to better understand the challenges faced by this vulnerable group, and ensure they have access to the same opportunities to secure a good education and build safe and happy relationships as their peers.
This collection begins with two premises: that our understanding of the nature and forms of creativity in later life remains limited and that dialogue between specialists in gerontology, the arts and humanities can produce the crucial new insights that are so obviously needed. Representing the outcome of ongoing dialogue across the disciplinary divide, the contributions of this volume reflect anew on what we share and how we differ; creating new narratives so as to build an understanding of late-life creativity that goes far beyond the narrow confines of the pervasively received idea of 'late style'. Creativity in Later Life encompasses a range of personal reflections and discussions of the boundaries of creativity, including: Canonical artistic achievements to community art projects Narratives of carers for those living with dementia Analyses of creative theory Through these insightful chapters, the authors consequently offer an understanding of creativity in later life as varied, socialised and - above all - located in the cultural and economic circumstances of the here and now. This title will appeal to academics, practitioners and students in the various gerontological, arts and humanities fields; and to anyone with an interest in the nature of creativity in later life and the forms it takes.
Jane Alison Sherwin's honest and uplifting account provides insight into the challenges of bringing up a child with Pathological Demand Avoidance (PDA). After years of misdiagnosis, Jane's daughter, Mollie, was diagnosed with PDA at the age of seven, and we follow her experiences pre and post diagnosis to age 10 as she attends school, interacts with the outside world and approaches adolescence. Throughout, Jane provides commentary on her daughter's behaviour and the impact it has on her family, explaining the 'why' of PDA traits, including the need for control, meltdowns, obsessive behaviour and sensory issues. She reveals the strategies that have worked for Mollie and provides essential advice and information on obtaining a diagnosis and raising awareness of PDA. The book also includes an interview with Mollie. Full of advice and support, and with a focus on understanding the child and how he or she sees the world, this book will be of immeasurable value to the parents and families of children with PDA as well as the professionals working with them, particularly teachers and teaching assistants, SEN co-ordinators, psychologists, outreach workers and social workers.
Current understandings of ageing and diversity are impoverished in three main ways. Firstly, with regards to thinking about what inequalities operate in later life there has been an excessive preoccupation with economic resources. On the other hand, less attention has been paid to cultural norms and values, other resources, wider social processes, political participation and community engagement. Secondly, in terms of thinking about the 'who' of inequality, this has so far been limited to a very narrow range of minority populations. Finally, when considering the 'how' of inequality, social gerontology's theoretical analyses remain under-developed. The overall effect of these issues is that social gerontology remains deeply embedded in normative assumptions which serve to exclude a wide range of older people. Ageing, Diversity and Equality aims to challenge and provoke the above described normativity and offer an alternative approach which highlights the heterogeneity and diversity of ageing, associated inequalities and their intersections. The Open Access version of this book, available at https://www.taylorfrancis.com/books/9781351851329, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 licence.
Every restless child is not necessarily hyperactive Cline Causse
wrote this book precisely to prevent that type of stereotype. The
word hyperactivity actually conceals a precise disease: attention
deficit hyperactivity disorder or ADHD. Author of a dissertation on
ADHD, Cline Causse uses her dual background as a doctor and
journalist in this book to explain this neurobehavioral disorder.
She discusses how to recognize it, treat it and cope with it in
everyday life, giving parents and teachers advice recommended by
the best specialists.
Children enter the school doors today with many diverse needs: mental health problems, ADHD, anxiety, victims of physical or sexual abuse, homelessness, or facing some other type of trauma. Teachers in today's classrooms are struggling to understand the needs of their students and to provide a supportive and nurturing environment, while maintaining structure and routine. In whatever setting students are, teachers must understand the challenges that students come to school facing, know how to assess the needs of the children, build positive relationships with them, collaborate with others, and take care of themselves. This first book in a two book volume explores the needed components in setting the stage for meeting the needs of the students. The teachers who serve these children need a comprehensive set of tools to meet their needs. This volume, along with the second one that provides the specific interventions that teachers will need to implement, is that comprehensive resource for educators. |
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