An exceptional memoir that provides emotional insight and practical advice. "It's like planning a trip to Italy, only to get off the plane and discover you're actually in Holland. You need a new road map, and fast..." When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome. Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.

The #ActuallyAutistic Guide to Advocacy takes an in-depth look at the key elements of effective, respectful, inclusive advocacy and allyship. Every topic was chosen, shaped, and informed by #ActuallyAutistic perspectives. The step-by-step guide discusses various aspects of how autism is perceived, explores how best to speak up for individual needs, and introduces advocacy for the wider autistic community. Each step outlines one vital aspect of advocacy and allyship, such as emphasizing acceptance, avoiding assumptions and assuming competence. The advice and strategies laid out in this guide center the wisdom and experiences of Autistic people and enable the reader to confidently speak up with insight and understanding.

Written by a teenager with dyspraxia, this is a humorous and inspiring practical guide for young adults with dyspraxia and those around them trying to get to grips with the physical, social and psychological chaos caused by developmental co-ordination disorders (DCDs). In her own conversational style, Victoria Biggs explains the primary effects of dyspraxia - disorganization, clumsiness and poor short-term memory - as well as other difficulties that dyspraxic teenagers encounter, such as bullying and low self-esteem. Peppered with personal stories from other teens, this award-winning book offers down-to-earth advice on a wide range of adolescent issues, from puberty, health and hygiene to family life and making friends. The new edition includes an update from the author on her university and work experiences and how dyspraxia affects her now as an adult. Her positive approach and profound empathy with others in her situation make this book a must-read.

The Courage to Go Forward shows that individuals need to think differently about creating supportive communities to help each other set and achieve goals, both individually and collectively. Those interested in making a positive impact on society need to consider how to complement societal programs designed for the "average" person with customized approaches tailored to the unique needs and aspirations of every individual. Focused on the inspirational relationship between Cigna, a global health service company, and Achilles International, a nonprofit focused on encouraging disabled people to participate in mainstream athletics, The Courage to Go Forward demonstrates the power and triumph of the human spirit and provides valuable insight into the formation and importance of micro communities. David Cordani, president and CEO of Cigna, and Achilles International founder and president Dick Traum come from very different backgrounds yet share a similar set of passions that eventually brought them together, forming a relationship that has positively impacted communities ranging from inspired employees to thousands of disabled athletes competing at the highest levels. Filled with wisdom from two impactful leaders, a collection of inspiring profiles of Achilles athletes, and stunning imagery, The Courage to Go Forward offers a combination of powerful inspiration and important business lessons, including the potential power of partnership between for-profit and nonprofit organizations, and should be required reading for anyone who wants to drive positive societal change, and to encourage others-or themselves-to achieve beyond their perceived limitations.

We're Good is an inspiring story about a well-rounded teenage athlete whose life changed in the blink of an eye. Chris O'Brien innocently dove into the ocean, hit a sandbar, and was instantly paralyzed. Going from a D-1 athlete to quadriplegic at eighteen years old is life changing. Chris was a swimmer, sailor, and student in college going about life before the accident. First time author, Meg Keeshan McGovern, has beautifully captured the pathos that accompanies a family tragedy and illustrates how it can become triumph for all. Through narrative and personal stories she guides the reader through the various stages of grief, denial, anger, therapy and devotion that this one family went through to emerge on the other side stronger and full of more promise than ever.

From getting started choosing a career, tips on job interviews to information on life in employment, starting from induction onwards, daily management of a workload, selling strengths, and even guidance on how to build a good balance between work and home life, Amanda Kirby identifies the best strategies to use for success, both professionally and personally. While being in a new job can be exciting, it can also provoke anxious feelings of not being quite sure what to do and when to act. The information in this book is the ideal preparation for the challenges, and new opportunities, ahead. Drawing on decades of practical experience, as well as her academic expertise, Amanda Kirby provides a comprehensive range of helpful information built from contributions from many people with specific learning difficulties who have gone through this experience, and professionals working in the field. This is an easy to use guide that will prepare anyone for all aspects of life in employment (including links to useful apps and free software) and is a must-have guide for all employers.

In the twenty-first century there is increasing global recognition of pain relief as a basic human right. However, as Susan Honeyman argues in this new take on child pain and invisible disability, such a belief has historically been driven by adult, ideological needs, whereas the needs of children in pain have traditionally been marginalised or overlooked in comparison. Examining migraines in children and the socially disabling effects that chronic pain can have, this book uses medical, political and cultural discourse to convey a sense of invisible disability in children with migraine and its subsequent oppression within educational and medical policy. The book is supported by authentic migraineurs' experiences and first-hand interviews as well as testimonials from a range of historical, literary, and medical sources never combined in a child-centred context before. Representations of child pain and lifespan migraine within literature, art and popular culture are also pulled together in order to provide an interdisciplinary guide to those wanting to understand migraine in children and the identity politics of disability more fully. Child Pain, Migraine, and Invisible Disability will appeal to scholars in childhood studies, children's rights, literary and visual culture, disability studies and medical humanities. It will also be of interest to anyone who has suffered from migraines or has cared for children affected by chronic pain.

Today, healthy ageing and active, meaningful lives are core values and aims for international and national health policies. Health services are challenged to ensure that the recipients of their services are active participants in their own care and beyond. Participation allows patients to become less dependent on healthcare providers, increasing their control over their own treatment and health. Increasingly, the idea of 'participation' is shifting, from participation in services to participation in mainstream society. This book examines the concept of participation, as well as the different meanings it takes on in the context of health and welfare services. It asks how services can enable and stimulate participation outside of those services. The contributions in this volume particularly focus on participation as engagement in daily life and 'everyday life' in order to develop the field of participation beyond the sphere of health and social care services. This book will appeal to researchers in the fields of health and social care, social services, occupational therapy and the sociology of health and illness. It will be of interest to practitioners of health and welfare services.

Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. Contrary to the common belief that caregiving is nothing more than a stressful situation to be endured, memoirs describe a life transforming experience-self-discovery, a reordering of one's priorities, and a changed view of the world. "The Caregiver's Tale" offers insight and comfort to individuals caring for a loved one and is a valuable resource for all health care professionals.

Identifying common themes, Burack-Weiss describes how the illness career and social meaning of cancer, dementia, HIV/AIDS, mental illness, and chemical dependence affect the caregiving experience. She applies the same method to an examination of family roles: parents caring for ailing children, couples and siblings caring for one another, and adult children caring for aging parents.

Jamaica Kincaid, Sue Miller, Paul Monette, Kenzaburo O?, and Philip Roth are among the many authors who share their caregiving stories. Burack-Weiss provides an annotated bibliography of the more than one hundred memoirs and an accompanying chart to help readers locate those of greatest interest to them.

The long-awaited update to the definitive guide to successfully living with Parkinson's disease
Known for its upbeat, informative, and inspirational guidance, Living Well with Parkinson's includes a wealth of up-to-date medical information for Parkinson's sufferers, who number over 1 million in the U.S. alone. Combined with the author's poignant personal account of her own struggles with the disease, this new edition features coverage of pallidotomy (a new surgical technique), the dramatic implications of recent genetic research, and new drugs and therapies. The book also includes tips on dealing with social services and elder law, maintaining a positive attitude, handling issues with spouses and children, and finding support groups.
Glenna Wotton Atwood, a former home economics teacher from Maine, lived with Parkinson's for over two decades until her death in 1998. Lila Green Hunnewell (Rockaway, NJ) is a freelance writer and editor. Roxanne Moore Saucier (Bangor, ME) is a journalist with the Bangor Daily News.

The rising cost of illness and disability benefits are one of today's biggest social and labour market challenges. The promise of activation-oriented work disability policies was labour market engagement for all people, regardless of illness, injury or impairment. However, the reality has been more complex. The Science and Politics of Work Disability Policy addresses social and political economic contexts driving state work disability reform in 13 countries. In this first attempt to explain the history and future of work disability policy, this book asks new questions about work disability policy design, focus, and effects. It details how work disability policies have evolved with jurisdictions, why these take their current shape, and where they are heading. The well positioned authors draw on their insider knowledge and expertise in law, medicine, and social science to provide detailed case studies of their jurisdictions. This pathbreaking volume will be of interest to social security system policy makers, scholars, and students in the health and social sciences.

Sarah Merriman is just like any other urbane young woman in her twenties... She has a job in a Central London hotel, a boyfriend, commutes to work on the Tube, eats out, goes to films and theatre... This is all the more remarkable (though not to her) because Sarah was born with Down's Syndrome. Her parents having no prior inkling, it came as a huge shock to them that they now had a daughter with a disability. In 1999 her father Andy wrote a frank and moving book, A Minor Adjustment, about the challenge of her early years. The national publicity it gained saw it become a treasured resource for other families on a similar journey. Now he follows up with the inspirational story of how his daughter, whose favourite expression is `I love my life', has grown up, featured on Michel Roux's compelling Kitchen Impossible series, and is making a life of her own at a time when pre-natal testing is threatening the very existence of people with Down's syndrome. Sarah has contributed throughout.

Growing up with Asperger Syndrome (AS) can throw up all sorts of challenges, but never fear, The Brain Guru, The Sensory Detective and The Social Scientist are here to help! These likeable characters guide children with AS through some of the trickiest, stickiest conundrums known to humankind: from anxiety and negative thinking, to sensory overload, emotions, friendship and trust and social situations. By working through the activities and using the cut-out-and-keep tools with a parent, carer or teacher, children with AS will learn how to build upon their strengths and develop techniques for coping with areas of difficulty - as well as how to handle setbacks and celebrate successes along the way! The important topic of staying safe in the digital world is also covered, providing children with the knowledge and know-how they need to use the internet, social networking and text messaging safely. Original and highly interactive, with attractive colour illustrations throughout, this is an essential toolkit for every family with a child with AS.

A paradigm shifting look at the landscape of disabled parenting—the joys, stigma, and discrimination—and how disability culture holds the key to transforming the way we all raise our kids

Jessica Slice’s disability is exactly what her child needed as a newborn. After becoming disabled a handful of years prior from a shift in her autonomic nervous system, Jessica had done the hard work of disentangling her worth from productivity and learning how to prepare for an unpredictable and fragile world. Despite evidence to the contrary, nondisabled people and systems often worry that disabled people cannot keep kids safe and cared for, labeling disabled parents “unfit,” but disabled parents and culture provide valuable lessons for rejecting societal rules that encourage perfectionism and lead to isolation.

Blending her experience of becoming disabled in adulthood and later becoming a parent with interviews, social research, and disability studies, Slice describes what the landscape is like for disabled parents. From expensive or non-existent adaptive equipment to inaccessible healthcare and schools to the terror of parenting while disabled in public and threat of child protective services, Slice uncovers how disabled parents, out of necessity, must reject the rules and unrealistic expectations that all parents face. She writes about how disabled parents are often more prepared than nondisabled parents to navigate the uncertainty of losing control over bodily autonomy. In doing so, she highlights the joy, creativity, and radical acceptance that comes with being a disabled parent.

While disabled parents have been omitted from mainstream parenting conversations, Slice argues that disabled bodies and minds give us the hopeful perspectives and solutions we need for transforming a societal system that has left parents exhausted, stuck, and alone.

The definitive guide to eating well and staying healthy with diabetes

"Nutrition is pivotal to diabetes care. This book is a terrific tool for managing diabetes through good nutrition. It’s a guide you can use every day–a treasure chest of advice on how to eat healthfully."
–Richard M. Bergenstal, MD, Executive Director
International Diabetes Center, Minneapolis, Minnesota

From the American Dietetic Association comes this authoritative guide to choosing foods to control your blood sugar and maintain an active, healthy lifestyle. It provides the must-know basics of daily diabetes care–from designing a food plan and preventing low blood glucose levels to losing weight and carbohydrate counting–so you can personalize diabetes and food decisions to fit your needs. You’ll see how to manage blood fat levels and blood pressure–an important part of diabetes care–and gain invaluable insight into making healthy food choices and planning tasty meals. You’ll also find tips on reducing sugar and fat in foods; quick and easy meal ideas; and a special section on prevention of type 2 diabetes.

• Detailed menu plans for daily caloric levels of 1,200, 1,500, 1,800, 2,000, and 2,500 calories
• Includes fast-food restaurant and ethnic food guides
• Ratings for high, low, and moderate glycemic index foods

The onslaught of neoliberalism, austerity measures and cuts, impact of climate change, protracted conflicts and ongoing refugee crisis, rise of far right and populist movements have all negatively impacted on disability. Yet, disabled people and their allies are fighting back and we urgently need to understand how, where and what they are doing, what they feel their challenges are and what their future needs will be. This comprehensive handbook emphasizes the importance of everyday disability activism and how activists across the world bring together a wide range of activism tactics and strategies. It also challenges the activist movements, transnational and emancipatory politics, as well as providing future directions for disability activism. With contributions from senior and emerging disability activists, academics, students and practitioners from around the globe, this handbook covers the following broad themes: * Contextualising disability activism in global activism * Neoliberalism and austerity in the global North * Rights, embodied resistance and disability activism * Belonging, identity and values: how to create diverse coalitions for rights * Reclaiming social positions, places and spaces * Social media, support and activism * Campus activism in higher education * Inclusive pedagogies, evidence and activist practices * Enabling human rights and policy * Challenges facing disability activism The Routledge Handbook of Disability Activism provides disability activists, students, academics, practitioners, development partners and policy makers with an authoritative framework for disability activism.

What is Autism Spectrum Disorder? What does a diagnosis of ASD mean for the child and for you? How can you learn to fully understand behaviours common to ASD and help the child grow and prosper? This short introduction is an ideal starting point for anyone encountering ASD for the first time. The book covers all of the essential information needed to ground an understanding of the condition and offers effective practical strategies for assisting children who are living with ASD. It advocates putting aside conventional thinking and considering things from a different perspective - the way that the child with ASD sees the world. This concise and straight-talking guide to ASD will ensure parents, carers, teachers and other professionals feel confident, informed and able to cope with the road ahead.

Teenagers and older children on the autism spectrum are, like everyone else, surrounded by complex social codes and rules that govern everyday interaction, but have much more difficulty in interpreting them. Reading cues such as sarcasm, idioms and body language often presents an impossible challenge, but this book of realistic and thought-provoking stories provides much needed help. Written with both parent and teen in mind, every story outlines a real-life situation that young people on the autism spectrum are likely to encounter. Each story is followed by questions such as 'what else might he have done?', 'how do you think she felt?' and 'why do you think they were upset?' along with practical tips for parents on how to initiate constructive discussions. As teens consider these questions with adults, they will begin to be able to put themselves into someone else's shoes and think about how their actions and behaviour may affect those around them. This process will equip them to transfer this invaluable understanding and confidence to other everyday life situations. Packed with 60 stories exploring real-life situations, this book will be an essential tool for parents, caregivers, teachers, and anyone else wishing to enable young people on the autism spectrum to acquire great social skills.

Fibromyalgia has no known cause or cure and is impossible to detect through blood tests or other diagnostic techniques. Because it's so difficult to pinpoint or alleviate, fibromyalgia tends to cause guilt and shame in those who suffer from it.

Barbara Keddy examines the experiences of 20 female sufferers, and also investigates the disease within larger societal contexts of gender, class, and race. By taking an already existing personality theory (the highly sensitive person) developed by Elaine Aron and relating this theory to a specific physical condition, the author emphasizes societal and family pressures on women to overextend themselves to the detriment of their health.

'A great and inspiring book from Doncaster's bravest son. Read it in a day' - Jeremy Clarkson 'Ben is the embodiment of positive thinking. What he has achieved, in large part through willpower, is nothing short of miraculous. An inspiration to us all' - Ant Middleton The story of Ben Parkinson MBE, the most injured soldier to have survived Afghanistan --- What were you doing when you were 22? Where were you in the world? What did you want to do with your life? Ben Parkinson was a 6'4" Paratrooper. He was in Afghanistan fighting for his country. He wanted to always be a soldier, to be a father and to get home in one piece. But we don't always get what we want. So the question is: how do we react when that happens? Easy: You find something new to fight for. Ben Parkinson MBE is an inspiration to everyone. He suffered 37 injuries when his Land Rover hit a mine in Helmand in 2006, including brain damage, breaking his back and losing both his legs. This book follows the story of what led him to that moment his life changed forever - and what happened next. Doctors didn't think Ben could survive the trauma - then they didn't think he would wake up, or talk again, or walk again. Time after time, Ben pushed the ceiling on what was possible, going on to carry the Olympic flame in 2012 and receiving an MBE for the enormous feats he has undertaken for charity. What he has achieved in the face of adversity - for others as well as for himself - is nothing short of a miracle. Nerve-wracking, heart-warming and full of classic soldier's humour, Losing the Battle, Winning the War is a book you'll be thinking about long after the last page. 'Ben Parkinson is my hero. His story is one of immeasurable courage and character, a testament to the extraordinary resilience of the human spirit' - Dan Jarvis MP, author of Long Way Home

Amit Patel is working as a trauma doctor when a rare condition causes him to lose his sight within thirty-six hours. Totally dependent on others and terrified of stepping outside with a white cane after he's assaulted, he hits rock bottom. He refuses to leave home on his own for three months. With the support of his wife Seema he slowly adapts to his new situation, but how could life ever be the way it was? Then his guide dog Kika comes along . . .

But Kika’s stubbornness almost puts her guide dog training in jeopardy – could her quirky personality be a perfect match for someone? Meanwhile Amit has reservations – can he trust a dog with his safety? Paired together in 2015, they start on a journey, learning to trust each other before taking to the streets of London and beyond. The partnership not only gives Amit a renewed lease of life but a new best friend. Then, after a video of an irate commuter rudely asking Amit to step aside on an escalator goes viral, he sets out with Kika by his side to spread a message of positivity and inclusivity, showing that nothing will hold them back.

From the challenges of travelling when blind to becoming a parent for the first time, Kika & Me is the moving, heart-warming and inspirational story of Amit’s sight-loss journey and how one guide dog changed his world.

This book begins with a promise: people with severe vision loss can be trained and equipped to function as sighted. The author, himself legally blind for 30 years, fulfills that promise with precise information and guidance on improving life through visual rehabilitation. The book explains fundamental facts about eyes and vision, including the causes and varieties of blindness, and then moves on to the new skills the partially sighted person must learn. Specific approaches and devices are covered in depth, including eccentric viewing and driving with telescopic glasses, and the visual and electronic aids that can help overcome the effects of vision loss. In spite of his own limited vision (20/240), Dr. Chapman uses a computer without a voice synthesizer, watches TV, and even drives, and he shows readers how to do the same.