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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
A rediscovered modern classic: a life-affirming account of one man's journey into blindness 'A gift to the whole of humanity' Cathy Rentzenbrink Days before the birth of his first son, writer and academic John M. Hull started to go blind. He would lose his sight entirely, unable to distinguish any sense of light or shadow. Isolated and claustrophobic, he sank into a deep depression. Soon, he had forgotten what his wife and daughter looked like. In Notes on Blindness, John reveals his profound sense of loss, his altered perceptions of time and space, of waking and sleeping, love and companionship. With astonishing lucidity of thought and no self-pity, he describes the horror of being faceless, and asks what it truly means to be a husband and father. And eventually, he finds a new way of experiencing the world, of seeing the light. Based on John's diaries recorded on audio tape, this is a profoundly moving, wise and life-affirming account of one man's journey into blindness. 'Poignant and wise' Andrew Solomon Published in partnership with Wellcome Collection.
The UN Convention on the Rights of Persons with Disabilities has facilitated the understanding that disability is both a human rights and development issue. In order to achieve the Sustainable Development Goals by 2030, the focus on disability inclusion has become increasingly important in the discourse of international and national efforts for "leaving no one behind", the motto of the SDGs. This book discusses pertinent and emerging themes such as disability rights, globalization, inequalities, international cooperation and representation. Evidence which has been obtained tends to show that persons with disabilities have been disproportionately left behind without proper representation, participation and inclusion. This book critically investigates the gaps at different levels, from top to bottom, and as importantly, within the global disability movement, for the realization of global disability rights, and theorizes the intersection of disability, globalization and human rights. Empirical case studies from different countries and contexts are introduced to deepen analysis on theories of critical disability studies from a global perspective. Co-edited by a disability researcher and the former United Nations Special Rapporteur on Disability, this book will be of interest to all students, academics, policy makers and practitioners working to advance the cause of disability rights around the world.
First published in 1986, Handicapping Conditions in Children provides an accessible overview of a wide range of handicapping conditions and their remediation, and gives a balanced perspective on the medical, educational and social issues. It will therefore be of value to a wide audience in these professions as well as to students and parents. Each chapter deals with one specific area but is presented to cover: description of the condition and its aetiology; its prevalence in the population and relatives; developmental characteristics; special problems and needs; educational and social provision; the potential for the future; and further reading lists. The book does not include every possible condition, but concentrates on those that are most frequent or problematic. This book is a reissue originally published in 1986. The language used is a reflection of its era and no offence is meant by the Publishers to any reader by this republication
The purpose of special needs planning is to create the best possible life for an adult with a disability. This book provides comprehensive guidance on creating a life plan to transition a special needs child to independence or to ensure they are well cared for in the future. Beginning with a vision of a meaningful life for the child, Hal Wright explains how to form a practical plan to reach these goals, how to mentor personal empowerment and task skills, and how to create circles of support to sustain a life plan. He next looks at employment and residential options, and government programs available in the United States. Finally he talks the reader through important financial and legal considerations, including how to fund and manage a special needs trust. This book will be essential reading for all parents or guardians of a child with a cognitive, mental or physical impairment. It will also be of interest to attorneys, financial planners, insurance agents, trust officers and other professionals looking to better serve the special needs community.
One of the perennial political/philosophical questions concerns whether it is ever justifiable for a third party to paternalistically restrict an adult's freedom to ensure their own, or society's, best interests are protected. Wherever one stands on this debate it remains the case that, unlike their non-impaired contemporaries, many intellectually disabled adults are subjected to a paternalistic regime of care. This is particularly the case regarding members of this population exercising more control of their sexuality. Utilizing rare empirical data, Foucault's theory of power and Kristeva's concept of abjection, this work shows that many non-disabled people - including family members - hold ambivalent attitudes towards people with visible disabilities expressing their sexuality. Through a careful examination of the autonomy/paternalism debate this is the first book to provide an original, provocative and philosophically compelling analysis to argue that where necessary, facilitated sex with prostitutes should be included as part of a new regime of care to ensure that sexual needs are met. Intellectual Disability and the Right to a Sexual Life is essential reading for scholars, students and policy-makers with an interest in philosophy, sociology, political theory, social work, disability studies and sex studies. It will also be of interest to anybody who is a parent or a sibling of an adult with an intellectual disability and those with an interest in human rights and disability more generally.
Potty training a child with developmental disorders can be a real challenge, and sometimes the extra difficulties make you feel as though you've tried everything, and failed. In this book, Brenda Batts shows how you can overcome problems, big and small, and provides tried and tested methods that really work, tailored to each individual child. Bursting with ideas on how to see past conventional strategies and adapt toilet training to suit your child, this book outlines methods that have helped even the most despairing of parents and caregivers. Examples of success stories range from two-year-olds to adults aged 20, and show that no matter how difficult it may seem, a little creativity and adaptation can get anyone toilet trained, however many previous attempts have failed. The program itself is supported by plenty of helpful hints and tips, as Brenda covers all you need to get your child past the diaper stage and help them to achieve a big step towards independence. This book is a must for anybody looking to toilet train someone with developmental disorders.
Being autistic, you might come across more challenges than others around you, such as dealing with ableism, discrimination in employment or difficulties in your relationships. Learning to successfully self-advocate will help you to build confidence, strengthen your relationships and ensure your needs are met. Written by two autistic activists, this book will give you the tools and strategies to advocate for yourself in any situation. It covers specific scenarios including work, school, and family and relationships, as well as looking at advocacy for the wider community, whether that's through social media, presentations or writing. Additionally, the book provides advice on building independence, developing your skills, standing up for others and resolving conflict. The authors also explore the overall impact of self-advocacy in all areas of your life, building a sense of confidence, resilience and control. Drawing on the authors' extensive experience, this book will help you to successfully prioritise your needs and rights, challenge what is unfair or unjust and make your voice heard.
This book sets out to understand how students with disabilities experience higher education and the transition to the workplace. It foregrounds the voices of students and graduates in order to explore identity, inclusion, participation and success of youth with disabilities in higher education, as well as their transition from university to employment. The author proposes a new understanding of disability, considered in terms of a continuum of abilities, balancing empirical data, theory and policy analysis with specific regard to the interests of youth with disabilities, making a unique contribution to discussions on access, inclusion and success in higher education and employment. These discussions inform social development and educational policy planning and implementation, not only in South Africa, but also in countries with a similar context, particularly in terms of remedial courses of action that bring social justice to people with disabilities. Students with Disabilities and the Transition to Work will be of interest to all scholars and students working in the fields of disability studies, particularly those with a focus on critical disability studies and disability in the global south, as well as those working in higher education, sociology, development studies and social policy.
Grounded in scientific research on thinking styles and learning, the guidance and advice throughout has been developed to help individuals put theory into practice Provides a unique hands-on approach to managing dyslexia/SpLD Presented in a dyslexic-friendly style, including visual learning aids such as mind-maps, boxed features and colour throughout Written by individuals with dyslexia, who fully understand the complexities of managing the condition
Social Research and Disability argues that the contemporary rules of sociological methods outlined in numerous research methods texts make a number of assumptions concerning the researcher including ambulance, sight, hearing and speech. In short, the disabled researcher is not considered when outlining the requirements of particular methods. Drawing upon these considerations, the volume emphasizes how disabled researchers negotiate the empirical process, in light of disability, whilst retaining the scientific rigour of the method. It also considers the negative consequences arising from disabled researchers' attempts at "passing" and the benefits that can emerge from a reflexive approach to method. This innovative and original text will, for the first time, bring together research-active academics, who identify as being disabled, to consider experiences of being disabled within a largely ableist academy, as well as strategies employed and issues faced when conducting empirical research. The driving force of this volume is to provide the blueprints for bringing how we conduct social research to the same standards and vision as how the social world is understood: multi-faceted and intersectional. To this end, this edited collection advocates for a sociological future that values the presence of disabled researchers and normalises research methods that are inclusive and accessible. The interdisciplinary focus of Social Research and Disability offers a uniquely broad primary market. This volume will be of interest not only to the student market, but also to established academics within the social sciences.
Readers' Choice Awards Honorable Mention Distinguished Honorable Mention, from Byron Borger, Hearts and Minds Bookstore "No matter how old you are or how many degrees you have or don't have-when grace takes you to school, you start in kindergarten." This was the experience of Reverend Glandion Carney when he was given the life-altering news that he has Parkinson's disease. He was plunged into denial and despair. This was not supposed to be his journey. How could he face it? With poignant vulnerability, The Way of Grace describes one man's journey into a new land of God's amazing grace. Both his honesty and his resilience will inspire and inform your own times of difficulty. In each chapter we are introduced to a spiritual practice that can carry us through difficult days: acceptance, relinquishment, community, simplicity and more. And a guide at the end of each chapter carries us into a brief and refreshing experience with each of the practices. God's unmerited grace saves us, strengthens us and sanctifies us. We too can experience lives full of grace and truth, courageously searching out God's wonders every day.
* This anthology has been curated by a seasoned playwright, academic, director and actor who has lived experience of being deaf. * Would be recommended reading in deaf studies and deaf culture courses across the world. * This book is the first anthology of its kind.
Every restless child is not necessarily hyperactive Cline Causse
wrote this book precisely to prevent that type of stereotype. The
word hyperactivity actually conceals a precise disease: attention
deficit hyperactivity disorder or ADHD. Author of a dissertation on
ADHD, Cline Causse uses her dual background as a doctor and
journalist in this book to explain this neurobehavioral disorder.
She discusses how to recognize it, treat it and cope with it in
everyday life, giving parents and teachers advice recommended by
the best specialists.
Current understandings of ageing and diversity are impoverished in three main ways. Firstly, with regards to thinking about what inequalities operate in later life there has been an excessive preoccupation with economic resources. On the other hand, less attention has been paid to cultural norms and values, other resources, wider social processes, political participation and community engagement. Secondly, in terms of thinking about the 'who' of inequality, this has so far been limited to a very narrow range of minority populations. Finally, when considering the 'how' of inequality, social gerontology's theoretical analyses remain under-developed. The overall effect of these issues is that social gerontology remains deeply embedded in normative assumptions which serve to exclude a wide range of older people. Ageing, Diversity and Equality aims to challenge and provoke the above described normativity and offer an alternative approach which highlights the heterogeneity and diversity of ageing, associated inequalities and their intersections. The Open Access version of this book, available at https://www.taylorfrancis.com/books/9781351851329, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 licence.
The rising cost of illness and disability benefits are one of today's biggest social and labour market challenges. The promise of activation-oriented work disability policies was labour market engagement for all people, regardless of illness, injury or impairment. However, the reality has been more complex. The Science and Politics of Work Disability Policy addresses social and political economic contexts driving state work disability reform in 13 countries. In this first attempt to explain the history and future of work disability policy, this book asks new questions about work disability policy design, focus, and effects. It details how work disability policies have evolved with jurisdictions, why these take their current shape, and where they are heading. The well positioned authors draw on their insider knowledge and expertise in law, medicine, and social science to provide detailed case studies of their jurisdictions. This pathbreaking volume will be of interest to social security system policy makers, scholars, and students in the health and social sciences.
Here is a practical, compassionate book parents can turn to when they first recognize that their child has a "problem" -- but aren't sure what it is or where to seek help. At this very moment, millions of children across the U.S. are falling behind in school, acting out impulsively at home, having problems making friends, suffering dramatic mood swings, and more. Their parents are frustrated and afraid, aware that something's wrong, but not sure where to turn for help or how to cope with their child's behavior. "Is it a learning disorder, ADHD, anxiety disorder, or some combination?" they wonder. "Are these moods and behaviors normal or abnormal? Will my child outgrow them?" This book by a noted neuropsychologist explains the different and overlapping symptoms of learning, mood, and behavior disorders and guides parents in getting the right diagnosis and treatment. Dr. Newby demystifies the process and empowers parents. Step by step, he explains: --How to observe and chart your child's behavior--a critical diagnostic tool --What to expect during the evaluation and treatment process --How to partner with medical and school professionals to assist your child and what to do when conflicts arise Clear and comprehensive, this supportive guide will be every parent's first line of defense in helping a troubled child.
Efforts to reduce discrimination and increase diversity on campuses, coupled with shrinking budgets causing administrators to devote more resources toward recruiting and retaining students with disabilities, are fuelling an explosion of research in the area of inclusive education. An important focus that has been largely neglected is the place of teachers with disabilities in academe. International Perspectives on Teaching with Disability brings together 25 multi-disciplinary scholars with disabilities from Africa, Canada, the Caribbean, the UK, Israel and the United States to share their struggles and successes in teaching with disability. The 18 chapters are written largely from autoethnographic perspectives grounded in solid academic research but full of anecdotes and self-reflexive narratives that provide insights into the lived experiences of the authors. Woven into the narratives are discussions of the complexities of self-disclosure and self-advocacy; the varied-and often problematic-ways disability is experienced, perceived and discussed in society and in the classroom; the challenges of navigating academe with disability, the value of disability pedagogy, the positive student outcomes achieved by teaching through disability, as well as practical applications and lessons learned that will benefit educators, administrators and students preparing to become teachers. This book is written to champion the integral place and role of disabled educators in academe. Current educators with disability will be affirmed. Those with disability aspiring to become teachers will be encouraged. Temporarily able-bodied administrators and educators will be challenged. Everyone will be informed. This book will be a welcome addition to reading lists in a wide array of academic fields including: Education, Pedagogy, Disability Studies, Human Resources Management, and Sociology.
Winner of the Michael Ramsay Prize 2016 Dementia is one of the most feared diseases in Western society today. Some have even gone so far as to suggest euthanasia as a solution to the perceived indignity of memory loss and the disorientation that accompanies it. In this book John Swinton develops a practical theology of dementia for caregivers, people with dementia, ministers, hospital chaplains, and medical practitioners as he explores two primary questions: * Who am I when I've forgotten who I am? * What does it mean to love God and be loved by God when I have forgotten who God is? Offering compassionate and carefully considered theological and pastoral responses to dementia and forgetfulness, Swinton's Dementia: Living in the Memories of God redefines dementia in light of the transformative counter story that is the gospel.
Sarah Merriman is just like any other urbane young woman in her twenties... She has a job in a Central London hotel, a boyfriend, commutes to work on the Tube, eats out, goes to films and theatre... This is all the more remarkable (though not to her) because Sarah was born with Down's Syndrome. Her parents having no prior inkling, it came as a huge shock to them that they now had a daughter with a disability. In 1999 her father Andy wrote a frank and moving book, A Minor Adjustment, about the challenge of her early years. The national publicity it gained saw it become a treasured resource for other families on a similar journey. Now he follows up with the inspirational story of how his daughter, whose favourite expression is `I love my life', has grown up, featured on Michel Roux's compelling Kitchen Impossible series, and is making a life of her own at a time when pre-natal testing is threatening the very existence of people with Down's syndrome. Sarah has contributed throughout.
This honest, to-the-point guide illuminates the experience of young Autistic girls and explores the situations they can easily fall victim to. Powerful case studies show how easily misunderstandings can arise for Autistic girls and help the reader to identify common patterns of abuse. Providing professionals with access to safeguarding strategies that are straightforward to implement and highly effective, this is essential reading for everyone who wants to better understand the challenges faced by this vulnerable group, and ensure they have access to the same opportunities to secure a good education and build safe and happy relationships as their peers.
Written for dyslexic adults or anyone who thinks they might be dyslexic, this bold and imaginative book is deliberately concise and easy to dip into.
This unique guide to overcoming the day-to-day difficulties associated with dyslexia will also be of great interest to employers, colleagues, teachers, friends and family of those with dyslexia.
The social position of learning disabled people has shifted rapidly over the last 20 years, from long-stay institutions, first into community homes and day centres, and now to a currently emerging goal of "ordinary lives" for individuals using person-centred support and personal budgets. These approaches promise to replace a century and a half of "scientific" pathological models based on expert assessment, and of the accompanying segregated social administration which determined how and where people led their lives, and who they were. This innovative volume explains how concepts of learning disability, intellectual disability and autism first came about, describes their more recent evolution in the formal disciplines of psychology, and shows the direct relevance of this historical knowledge to present and future policy, practice and research. Goodey argues that learning disability is not a historically stable category and different people are considered "learning disabled" as it changes over time. Using psychological and anthropological theory, he identifies the deeper lying pathology as "inclusion phobia", in which the tendency of human societies to establish an in-group and to assign out-groups reaches an extreme point. Thus the disability we call "intellectual" is a concept essential only to an era in which to be human is essentially to be deemed intelligent, autonomous and capable of rational choice. Interweaving the author's historical scholarship with his practice-based experience in the field, Learning Disability and Inclusion Phobia challenges myths about the past as well as about present-day concepts, exposing both the historical continuities and the radical discontinuities in thinking about learning disability.
This volume analyzes representations of disability in art from antiquity to the twenty-first century, incorporating disability studies scholarship and art historical research and methodology. This book brings these two strands together to provide a comprehensive overview of the intersections between these two disciplines. Divided into four parts: Ancient History through the 17th Century: Gods, Dwarfs, and Warriors 17th-Century Spain to the American Civil War: Misfits, Wounded Bodies, and Medical Specimens Modernism, Metaphor and Corporeality Contemporary Art: Crips, Care, and Portraiture and comprised of 16 chapters focusing on Greek sculpture, ancient Chinese art, Early Italian Renaissance art, the Spanish Golden Age, nineteenth century art in France (Manet, Toulouse-Lautrec) and the US, and contemporary works, it contextualizes understandings of disability historically, as well as in terms of medicine, literature, and visual culture. This book is required reading for scholars and students of disability studies, art history, sociology, medical humanities and media arts.
First published in 1985, this book considers the financial consequences of parents and other relatives caring for severely disabled children at home. At the time of publication little reliable information was available on the costs incurred by 'informal carers', which this book set to rectify. The volume interweaves hard statistical material about money with the detailed personal responses of parents. It examines the claim that disablement in a child reduces parents' earnings while simultaneously creating an extra expense. The author compares the incomes and expenditure patterns of more than 500 families with disabled children and 700 control families of the time showing that the financial effects of disablement in a child can be far-reaching and pervasive. This book discusses contemporary policy implications of these findings in a chapter dealing with the rational for compensating families with disabled children, and in the final chapter. Although the book was original published in 1985, it references issues that are still important today and, whilst its main concern is families with disabled children, it will also be useful to anyone caring for other kinds of dependent people, such as the elderly.
First published in 1990, this book was the first informed study to focus on care within the voluntary sector. Written with the child in mind, it is a sensitive work which explores the administration, strategy, and problems facing carers in children's homes, at that time. Centring on small, community-based facilities, the authors discuss the processes involved in setting up and running such facilities. They examine the difficulties of evaluating progressive services that are influenced by the philosophy of normalisation, and highlight the lessons from which other providers of services are able to learn. Written by experienced researchers with contributions from service managers, Normalisation in Practice offers pragmatic advice on managing innovation efficiently without neglecting the needs of the child. Detailed interviews are combined with theoretical insight to provide an important guide for students and practitioners and a model for academics undertaking evaluative research. Although written at the start of the 1990s, this book contains discussions and material that are still very relevant to the subject today. |
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