In the twenty-first century there is increasing global recognition of pain relief as a basic human right. However, as Susan Honeyman argues in this new take on child pain and invisible disability, such a belief has historically been driven by adult, ideological needs, whereas the needs of children in pain have traditionally been marginalised or overlooked in comparison. Examining migraines in children and the socially disabling effects that chronic pain can have, this book uses medical, political and cultural discourse to convey a sense of invisible disability in children with migraine and its subsequent oppression within educational and medical policy. The book is supported by authentic migraineurs' experiences and first-hand interviews as well as testimonials from a range of historical, literary, and medical sources never combined in a child-centred context before. Representations of child pain and lifespan migraine within literature, art and popular culture are also pulled together in order to provide an interdisciplinary guide to those wanting to understand migraine in children and the identity politics of disability more fully. Child Pain, Migraine, and Invisible Disability will appeal to scholars in childhood studies, children's rights, literary and visual culture, disability studies and medical humanities. It will also be of interest to anyone who has suffered from migraines or has cared for children affected by chronic pain.

Today, healthy ageing and active, meaningful lives are core values and aims for international and national health policies. Health services are challenged to ensure that the recipients of their services are active participants in their own care and beyond. Participation allows patients to become less dependent on healthcare providers, increasing their control over their own treatment and health. Increasingly, the idea of 'participation' is shifting, from participation in services to participation in mainstream society. This book examines the concept of participation, as well as the different meanings it takes on in the context of health and welfare services. It asks how services can enable and stimulate participation outside of those services. The contributions in this volume particularly focus on participation as engagement in daily life and 'everyday life' in order to develop the field of participation beyond the sphere of health and social care services. This book will appeal to researchers in the fields of health and social care, social services, occupational therapy and the sociology of health and illness. It will be of interest to practitioners of health and welfare services.

Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. Contrary to the common belief that caregiving is nothing more than a stressful situation to be endured, memoirs describe a life transforming experience-self-discovery, a reordering of one's priorities, and a changed view of the world. "The Caregiver's Tale" offers insight and comfort to individuals caring for a loved one and is a valuable resource for all health care professionals.

Identifying common themes, Burack-Weiss describes how the illness career and social meaning of cancer, dementia, HIV/AIDS, mental illness, and chemical dependence affect the caregiving experience. She applies the same method to an examination of family roles: parents caring for ailing children, couples and siblings caring for one another, and adult children caring for aging parents.

Jamaica Kincaid, Sue Miller, Paul Monette, Kenzaburo O?, and Philip Roth are among the many authors who share their caregiving stories. Burack-Weiss provides an annotated bibliography of the more than one hundred memoirs and an accompanying chart to help readers locate those of greatest interest to them.

The long-awaited update to the definitive guide to successfully living with Parkinson's disease
Known for its upbeat, informative, and inspirational guidance, Living Well with Parkinson's includes a wealth of up-to-date medical information for Parkinson's sufferers, who number over 1 million in the U.S. alone. Combined with the author's poignant personal account of her own struggles with the disease, this new edition features coverage of pallidotomy (a new surgical technique), the dramatic implications of recent genetic research, and new drugs and therapies. The book also includes tips on dealing with social services and elder law, maintaining a positive attitude, handling issues with spouses and children, and finding support groups.
Glenna Wotton Atwood, a former home economics teacher from Maine, lived with Parkinson's for over two decades until her death in 1998. Lila Green Hunnewell (Rockaway, NJ) is a freelance writer and editor. Roxanne Moore Saucier (Bangor, ME) is a journalist with the Bangor Daily News.

The rising cost of illness and disability benefits are one of today's biggest social and labour market challenges. The promise of activation-oriented work disability policies was labour market engagement for all people, regardless of illness, injury or impairment. However, the reality has been more complex. The Science and Politics of Work Disability Policy addresses social and political economic contexts driving state work disability reform in 13 countries. In this first attempt to explain the history and future of work disability policy, this book asks new questions about work disability policy design, focus, and effects. It details how work disability policies have evolved with jurisdictions, why these take their current shape, and where they are heading. The well positioned authors draw on their insider knowledge and expertise in law, medicine, and social science to provide detailed case studies of their jurisdictions. This pathbreaking volume will be of interest to social security system policy makers, scholars, and students in the health and social sciences.

Sarah Merriman is just like any other urbane young woman in her twenties... She has a job in a Central London hotel, a boyfriend, commutes to work on the Tube, eats out, goes to films and theatre... This is all the more remarkable (though not to her) because Sarah was born with Down's Syndrome. Her parents having no prior inkling, it came as a huge shock to them that they now had a daughter with a disability. In 1999 her father Andy wrote a frank and moving book, A Minor Adjustment, about the challenge of her early years. The national publicity it gained saw it become a treasured resource for other families on a similar journey. Now he follows up with the inspirational story of how his daughter, whose favourite expression is `I love my life', has grown up, featured on Michel Roux's compelling Kitchen Impossible series, and is making a life of her own at a time when pre-natal testing is threatening the very existence of people with Down's syndrome. Sarah has contributed throughout.

Growing up with Asperger Syndrome (AS) can throw up all sorts of challenges, but never fear, The Brain Guru, The Sensory Detective and The Social Scientist are here to help! These likeable characters guide children with AS through some of the trickiest, stickiest conundrums known to humankind: from anxiety and negative thinking, to sensory overload, emotions, friendship and trust and social situations. By working through the activities and using the cut-out-and-keep tools with a parent, carer or teacher, children with AS will learn how to build upon their strengths and develop techniques for coping with areas of difficulty - as well as how to handle setbacks and celebrate successes along the way! The important topic of staying safe in the digital world is also covered, providing children with the knowledge and know-how they need to use the internet, social networking and text messaging safely. Original and highly interactive, with attractive colour illustrations throughout, this is an essential toolkit for every family with a child with AS.

A paradigm shifting look at the landscape of disabled parenting—the joys, stigma, and discrimination—and how disability culture holds the key to transforming the way we all raise our kids

Jessica Slice’s disability is exactly what her child needed as a newborn. After becoming disabled a handful of years prior from a shift in her autonomic nervous system, Jessica had done the hard work of disentangling her worth from productivity and learning how to prepare for an unpredictable and fragile world. Despite evidence to the contrary, nondisabled people and systems often worry that disabled people cannot keep kids safe and cared for, labeling disabled parents “unfit,” but disabled parents and culture provide valuable lessons for rejecting societal rules that encourage perfectionism and lead to isolation.

Blending her experience of becoming disabled in adulthood and later becoming a parent with interviews, social research, and disability studies, Slice describes what the landscape is like for disabled parents. From expensive or non-existent adaptive equipment to inaccessible healthcare and schools to the terror of parenting while disabled in public and threat of child protective services, Slice uncovers how disabled parents, out of necessity, must reject the rules and unrealistic expectations that all parents face. She writes about how disabled parents are often more prepared than nondisabled parents to navigate the uncertainty of losing control over bodily autonomy. In doing so, she highlights the joy, creativity, and radical acceptance that comes with being a disabled parent.

While disabled parents have been omitted from mainstream parenting conversations, Slice argues that disabled bodies and minds give us the hopeful perspectives and solutions we need for transforming a societal system that has left parents exhausted, stuck, and alone.

The definitive guide to eating well and staying healthy with diabetes

"Nutrition is pivotal to diabetes care. This book is a terrific tool for managing diabetes through good nutrition. It’s a guide you can use every day–a treasure chest of advice on how to eat healthfully."
–Richard M. Bergenstal, MD, Executive Director
International Diabetes Center, Minneapolis, Minnesota

From the American Dietetic Association comes this authoritative guide to choosing foods to control your blood sugar and maintain an active, healthy lifestyle. It provides the must-know basics of daily diabetes care–from designing a food plan and preventing low blood glucose levels to losing weight and carbohydrate counting–so you can personalize diabetes and food decisions to fit your needs. You’ll see how to manage blood fat levels and blood pressure–an important part of diabetes care–and gain invaluable insight into making healthy food choices and planning tasty meals. You’ll also find tips on reducing sugar and fat in foods; quick and easy meal ideas; and a special section on prevention of type 2 diabetes.

• Detailed menu plans for daily caloric levels of 1,200, 1,500, 1,800, 2,000, and 2,500 calories
• Includes fast-food restaurant and ethnic food guides
• Ratings for high, low, and moderate glycemic index foods

What is Autism Spectrum Disorder? What does a diagnosis of ASD mean for the child and for you? How can you learn to fully understand behaviours common to ASD and help the child grow and prosper? This short introduction is an ideal starting point for anyone encountering ASD for the first time. The book covers all of the essential information needed to ground an understanding of the condition and offers effective practical strategies for assisting children who are living with ASD. It advocates putting aside conventional thinking and considering things from a different perspective - the way that the child with ASD sees the world. This concise and straight-talking guide to ASD will ensure parents, carers, teachers and other professionals feel confident, informed and able to cope with the road ahead.

Fibromyalgia has no known cause or cure and is impossible to detect through blood tests or other diagnostic techniques. Because it's so difficult to pinpoint or alleviate, fibromyalgia tends to cause guilt and shame in those who suffer from it.

Barbara Keddy examines the experiences of 20 female sufferers, and also investigates the disease within larger societal contexts of gender, class, and race. By taking an already existing personality theory (the highly sensitive person) developed by Elaine Aron and relating this theory to a specific physical condition, the author emphasizes societal and family pressures on women to overextend themselves to the detriment of their health.

Teenagers and older children on the autism spectrum are, like everyone else, surrounded by complex social codes and rules that govern everyday interaction, but have much more difficulty in interpreting them. Reading cues such as sarcasm, idioms and body language often presents an impossible challenge, but this book of realistic and thought-provoking stories provides much needed help. Written with both parent and teen in mind, every story outlines a real-life situation that young people on the autism spectrum are likely to encounter. Each story is followed by questions such as 'what else might he have done?', 'how do you think she felt?' and 'why do you think they were upset?' along with practical tips for parents on how to initiate constructive discussions. As teens consider these questions with adults, they will begin to be able to put themselves into someone else's shoes and think about how their actions and behaviour may affect those around them. This process will equip them to transfer this invaluable understanding and confidence to other everyday life situations. Packed with 60 stories exploring real-life situations, this book will be an essential tool for parents, caregivers, teachers, and anyone else wishing to enable young people on the autism spectrum to acquire great social skills.

This book begins with a promise: people with severe vision loss can be trained and equipped to function as sighted. The author, himself legally blind for 30 years, fulfills that promise with precise information and guidance on improving life through visual rehabilitation. The book explains fundamental facts about eyes and vision, including the causes and varieties of blindness, and then moves on to the new skills the partially sighted person must learn. Specific approaches and devices are covered in depth, including eccentric viewing and driving with telescopic glasses, and the visual and electronic aids that can help overcome the effects of vision loss. In spite of his own limited vision (20/240), Dr. Chapman uses a computer without a voice synthesizer, watches TV, and even drives, and he shows readers how to do the same.

About 12% of all school children are disabled from birth defects, accidents, illnesses or other causes. This means 700 children are born each day who need special care, and the number appears to be growing. Raising a Handicapped Child offers a complete, practical, and reassuring guide for parents who care for these children.
Widely acclaimed by parents and professionals since its first publication, this revised and expanded handbook is still the only one of its kind to discuss both the emotional and physical problems of raising a child with a disability. A recognized authority in her field, Dr. Charlotte Thompson anticipates and addresses the questions and difficulties parents have to face from the initial diagnosis to adulthood, sharing the survival tools she has learned in over 35 years of practice. Her practical advice includes tips on how to select educational programs, how to find the best professional help, keep up with the latest in medical treatments, and how to cope with the costs. She deals compassionately and effectively with emotional issues, too, counseling parents on how to handle sorrow, anger, and guilt resulting from a devastating diagnosis or a progressive disease. Also including comprehensive appendices, Raising a Handicapped Child will be a great source of inspiration and information for parents of children with a disability and for anyone who works with disabled children.

Meet Harry - a young boy with sensory processing difficulties. Harry invites readers to learn about why he finds it hard to process sensory information effectively, and how even simple thing such as washing, dressing and coping with meal times can be challenging for him. He also talks about difficulties he faces at school and why large groups and loud noises are especially hard. He explains how other people can have different sensory processing issues and talks about what he and those around him can do to help. This illustrated book is ideally suited for readers aged 7 and upwards and occupational therapists, teachers, parents, family members and friends of those with sensory processing difficulties.

To lose a child is tragic; to lose a child who still lives is beyond comprehension. Yet this is the experience of the mothers and fathers who tell their very personal stories in this important book. Their children, born healthy and happy, lost their minds to a mysterious disorder with no known cause or cure: Childhood Disintegrative Disorder (CDD). Also called late-onset autism, this malady differs from typical autism in that it afflicts children after one or even two years of apparently normal development. In the long term, deterioration leads to still poorer behavioral and developmental functioning.

How do families respond to such ever-present loss? In When Autism Strikes, the parents of eight such children from around the world present their own stories, in their own words. They describe their first suspicions, their struggles to find a cause, and the means by which they cope, day to day. By turns heartbreaking and inspiring, this courageous document brings to light a scientific mystery and a human tragedy.

A Good Day at School presents life-changing tools to show parents how to help their children have a peaceful day and enjoy the subjects and activities they love. Family coach, mother and metaphysician, Kat Mulvaney, is no stranger to the emotions children face. She works with families who are seeking more ease and flow in their family dynamic after trying many conventional solutions. Many of her clients' children do not conform well to traditional school, and in a time of great world change, they are seeking new ideas. Kat guides families out of emotional turmoil and into genuine, conscious connection. In A Good Day at School, Kat lays out her 5 principles for parents to show them: The superpowers we were all born with and how kids need knowledge of them now, more than ever That many children are here to guide us into this new world The truth about why their child feels emotions so strongly and what to do about it today Tools and games their family can rely on during times of stress by using items they already own The universal laws that great minds have been using for centuries to achieve peace, clarity, and connection

For people on the autism spectrum dating is so often an elusive art form, requiring the very skills--in communication, and in social perception--that don't come naturally to them. This book presents strategies for overcoming social skills deficits and sensory issues, to make for relationship success. Emilia Murry Ramey and Jody John Ramey, both on the spectrum, reflect on their dating experiences and provide recommendations for relationships in both the short- and long-term. Their advice includes how to choose venues for meeting people that are free from discomfiting features; coping with typical experiences in the light of sensory issues such as close proximity with a partner, eye-contact, and physical intimacy; and moving on to extended, committed relationships, co-habiting and continuing to date after marriage. Thorough, accessible, and very encouraging, this book is a must-read for Autistic people, those who love them, and those who are in love with them.

Positive, practical and realistic, this book offers a wealth of information on women, dating and relationships for men with Asperger Syndrome (AS). Many AS men are totally confused and bewildered by women and relationships and find it hard to know what to do, what to say and how to get it right. For these men, understanding the emotional side to relationships and women's needs can be a complete mystery and they often get it disastrously wrong. This practical handbook provides the answers to Asperger men's most frequently asked questions about women, dating and relationships, helping them to understand the way relationships work and increasing their confidence and ability to have successful relationships. This comprehensive handbook is essential reading for men with Asperger Syndrome (and their partners). It will also be of immeasurable use to counsellors and other professionals working with such individuals.

From its beginnings in the 1970s and 1980s, interest in the topic of gender and migration has grown. Gender and Migration seeks to introduce the most relevant sociological theories of gender relations and migration that consider ongoing transnationalization processes, at the beginning of the third millennium. These include intersectionality, queer studies, social inequality theory and the theory of transnational migration and citizenship; all of which are brought together and illustrated by means of various empirical examples. With its explicit focus on the gendered structures of migration-sending and migration-receiving countries, Gender and Migration builds on the most current conceptual tool of gender studies-intersectionality-which calls for collective research on gender with analysis of class, ethnicity/race, sexuality, age and other axes of inequality in the context of transnational migration and mobility. The book also includes descriptions of a number of recommended films that illustrate transnational migrant masculinities and femininities within and outside of Europe. A refreshing attempt to bring in considerations of queer theory and sexual identity in the area of gender migration studies, this insightful volume will appeal to students and researchers interested in fields such as sociology, social anthropology, political science, intersectional studies and transnational migration.

Can you imagine not being able to speak or communicate? The silence, the loneliness, the pain. But, inside you disappear to magical places, and even meet your best friend there. However, most of the time you remain imprisoned within the isolation. Waiting, longing, hoping. Until someone realises your potential and discovers your key, so your unlocking can begin. Now you are free, flying like a wild bird in the open sky. A voice for the voiceless. Jonathan Bryan has severe cerebral palsy, a condition that makes him incapable of voluntary movement or speech. He was locked inside his own mind, aware of the outside world but unable to fully communicate with it until he found a way by using his eyes to laboriously choose individual letters, and through this make his thoughts known. In Eye can Write, we read of his intense passion for life, his mischievous sense of fun, his hopes, his fears and what it's like to be him. This is a powerful book from an incredible young writer whose writing ability defies age or physical disability - a truly inspirational figure. Foreword by Sir Michael Morpurgo A portion of the proceeds from the sale of this book will be donated to Jonathan Bryan's charity, Teach Us Too. http://www.teachustoo.org.uk/

What does 'sexual citizenship' mean in practice for people with mobility impairments who may need professional support to engage in sexual activity? The book explores this subject through empirical investigation based on case studies conducted in four countries - Sweden, England, Australia and the Netherlands - and develops the abstract notion of 'sexual citizenship' to make it practically relevant to disabled people, professionals in disability services and policy-makers. Through a cross-national approach, it demonstrates the variability of how sexual rights are understood and their culturally specific nature. It also shows how the personal is indeed political: states' different policy approaches change the outcomes for disabled people in terms of support to explore and express their sexualities. By proposing a model of sexual facilitation that can be used in policy development, to better cater to disabled service users' needs as well as furthering the theoretical understanding of sexual rights and sexual citizenship, this book will be of interest to professionals in disability services and policy-makers as well as academics and students working in the following subject areas: Disability Studies, Sociology, Social Policy, Sexuality Studies/Sexology, Social Work, Nursing, Occupational Therapy and Public Health.