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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Challenging existing approaches to autism that limit, and sometimes
damage, the individuals who attract and receive the label, this
book questions the lazy prejudices and assumptions that can
surround autism as a diagnosis in the 21st Century. Arguing that
autism can only be understood through examining 'it' as a socially
or culturally produced phenomenon, the authors offer a critique of
the medical model that has produced a perpetually marginalising
approach to autism, and explain the contradictions and difficulties
inherent in existing attitudes. They examine and dispute the
scientific validity of diagnosis and 'treatment', asking whether
autism actually exists at the biological level, and question the
value of diagnosis in the lives of those labelled with autism. The
book recognises that there are no easy answers but encourages
engagement with these essential questions, and looks towards
service provision and practice that moves beyond a reliance on
all-encompassing labels. This unique contribution to the growing
field of critical autism studies brings together authors from
clinical psychiatry, clinical and community psychology, social
sciences, disability studies, education and cultural studies, as
well as those with personal experiences of autism. It is essential
and challenging reading for anyone with a personal, professional or
academic interest in 'autism'.
For those growing up with an intellectual disability or autism,
comfortable, safe and independent travel will prove an invaluable
life skill. The key to pursuing fulfilling work and leisure
activities and developing as an individual, it also brings a
liberating level of self-sufficiency and reassurance of equality
within society. Arriving at this goal can be daunting. Dr
Gallimore's straightforward five-step system will guide parents and
professionals through successful training for children of any age
and ability. Focusing on understanding each child's individual
goals and challenges, it gives you the 'ingredients' needed to
fully prepare for each journey in advance, and shows how to judge
when to step back and let the child progress alone. Addressing
specific fears and obstacles that make travel difficult for
children with learning difficulties, it sets out all the
precautions necessary to safeguard children and others as they
learn to reach their chosen destinations. Clear-cut and
far-reaching, this book is enriched by Dr Gallimore's extensive
experience as a psychologist, mobility specialist and
travel-trainer. It is a heartening resource and will be necessary
reading for anyone working with a child to get them on their path
to independent travel.
'My life was changing and I didn't like it. Everything was so out
of my control, even my own body...' Happy-go-lucky Evie Meg was an
award-winning teenage gymnast who dreamed of becoming a teaching
assistant. But when she developed a hiccup tic that gave way to
increasingly severe health problems the doctors couldn't solve,
could the power of an online community stop her from disappearing
into the darkness? My Nonidentical Twin is a heartbreakingly
inspirational story about finding friendship in unlikely places,
what it truly means to be neurodivergent, and how hope can spring
from even the bleakest of times. Why readers love Evie Meg... 'I
could not put this book down' 'One of the most powerful books I
have ever read' 'Well worth reading through the tears' 'It deserves
more than 5 stars' 'Love love love'
"A skilled science translator, Denworth makes decibels, teslas and
brain plasticity understandable to all."-Washington Post Lydia
Denworth's third son, Alex, was nearly two when he was identified
with significant hearing loss that was likely to get worse.
Denworth knew the importance of enrichment to the developing brain
but had never contemplated the opposite: deprivation. How would a
child's brain grow outside the world of sound? How would he
communicate? Would he learn to read and write? An acclaimed science
journalist as well as a mother, Denworth made it her mission to
find out, interviewing experts on language development, inventors
of groundbreaking technology, Deaf leaders, and neuroscientists at
the frontiers of brain plasticity research. I Can Hear You Whisper
chronicles Denworth's search for answers-and her new understanding
of Deaf culture and the exquisite relationship between sound,
language, and learning.
Written by a teenager with dyspraxia, this is a humorous and
inspiring practical guide for young adults with dyspraxia and those
around them trying to get to grips with the physical, social and
psychological chaos caused by developmental co-ordination disorders
(DCDs). In her own conversational style, Victoria Biggs explains
the primary effects of dyspraxia - disorganization, clumsiness and
poor short-term memory - as well as other difficulties that
dyspraxic teenagers encounter, such as bullying and low
self-esteem. Peppered with personal stories from other teens, this
award-winning book offers down-to-earth advice on a wide range of
adolescent issues, from puberty, health and hygiene to family life
and making friends. The new edition includes an update from the
author on her university and work experiences and how dyspraxia
affects her now as an adult. Her positive approach and profound
empathy with others in her situation make this book a must-read.
The ability to speak is an important part of human interaction. In
this book, a glimpse into the lived realities of 37 adults and 3
children with communication disorders whose humanism is somewhat
compromised by their speech, language, or voice disorders is
offered in humorous and heartbreaking detail. The patient's
struggle to communicate is often matched by their listeners, who
are struggling to understand. Stories are presented of patients
treated in medical settings for such problems as aphasia, dementia,
Parkinson's disease (PD), amyotrophic lateral sclerosis (ALS) and
other CNS diseases, apraxia, and head trauma. Other stories look at
people who were treated in university clinics for such disorders as
cerebral palsy and stuttering. The last few stories look at
speech/voice treatment for a transgender woman, the loss of voice
in a young man in a state penitentiary, and finally a humorous
story of a pilot with left hemiplegia flying the author. Seasoned
specialist Daniel Boone does not offer therapy suggestions for
either the SLP or the patient's family or friends to try. Rather,
for anyone with a communication disorder, he strongly recommends
that such patients should seek the guidance and therapy of an
ASHA-certified speech-language pathologist (SLP). The SLP
determines what to do in therapy and practice. The stories
illustrate the struggles of those who cannot always make their
listeners understand. They may only be able to repeat the same
phrase over and over. They may not be able to articulate words
clearly enough to be understood. They may give bizarre, confusing
answers to everyday questions. Taken together, they also illustrate
the difficulties listeners, those who wish to understand, have in
trying to make heads or tails of the intended communication.
Ultimately, this work provides a sensitive look at the various
disorders people have, their attempts to overcome them, the
treatments that might be available, and the actions listeners can
take in making communication easier and more productive.
Meet Sophie - a girl with cerebral palsy (CP). Sophie invites
readers to learn about CP from her perspective, helping them to
understand what it is like to use a wheelchair to move around and
assistive technology to communicate. She also introduces readers to
some of her friends who have different forms of CP and explains
that living with CP can sometimes be difficult, but there are many
ways she is supported so that she can lead a full and happy life.
This illustrated book is ideal for young people aged 7 upwards, as
well as parents, friends, teachers and professionals working with
children with CP. It is also an excellent starting point for family
and classroom discussions.
Meet Harry - a young boy who stutters. Harry invites readers to
learn about what it is like to stutter from his perspective and how
it affects his daily life and makes him feel. He talks about
techniques that can help reduce stuttering and describes how
friends, family and others can help him to feel at ease and reduce
his stutter further. This illustrated book is full of useful
information and will be an ideal introduction for young people,
aged 7 upwards, as well as parents, friends, teachers and speech
therapists working with children who stutter. It is also an
excellent starting point for group discussions at home or school.
A resource of fun games for parents or teachers to help young
children learn social and motor skills
Barbara Sher, an expert occupational therapist and teacher, has
written a handy resource filled with games to play with young
children who have Autistic Spectrum Disorder (ASD) or other sensory
processing disorders (SPD). The games are designed to help children
feel comfortable in social situations and teach other basic lessons
including beginning and end, spatial relationships, hand-eye
coordination, and more. Games can also be used in regular
classrooms to encourage inclusion.A collection of fun, simple games
that can improve the lives of children with ASD or other SPDs.Games
can be played by parents or teachers and with individual children
or groups.Games are designed to make children more comfortable in
social situations and to develop motor and language skillsAlso
included are a variety of interactive games to play in water,
whether in a backyard kiddie pool, community swimming pool, or
lakeAll the games are easy-to-do, utilizing common, inexpensive
materials, and include several variations and modifications
Autism diagnosis can be an overwhelming time for many families.
This is an accessible, easy to navigate guide for parents,
answering the questions they may have before, during and after
diagnosis. Written by a highly experienced author team, this book
will support parents from the moment somebody mentions autism,
through the diagnosis process and beyond. It provides reliable
advice on every stage, with guidance on what to do during the long
wait for assessment and diagnosis. Working from a
pro-neurodiversity perspective it encourages parents to see beyond
the diagnosis and to celebrate each child's unique personality and
strengths. Combining information on medical diagnosis, educational
needs and more, the book shares case studies and direct quotes from
families to help parents to give their children the best start
following an autism diagnosis, and help them to achieve their full
potential. There is also a bonus downloadable chapter with
information from the key professionals involved in the diagnostic
process, so you know who you can turn to for the support and help
you need.
A four-stage programme for parents and families looking to
introduce a dog into their home for the therapeutic and practical
benefits that can be brought to a child with autism, including
development of communication skills and toilet training. Based on
first-hand knowledge, the programme was created through the
successful experience the author had bringing up two children at
opposite ends of the autism spectrum. This guide is comprehensive
and highly practical, with case examples, tips and advice
throughout. It covers all aspects of responsible ownership and
training of the dog as a companion dog, and it provides tips
throughout the dog's entire life cycle. Accessible for families and
professionals alike, this innovative programme can have a huge
impact on the life of children with disabilities.
This step-by-step manual explains how to adapt CBT (Cognitive
Behaviour Therapy) approaches to OCD (Obsessive Compulsive
Disorder) for autistic children and adults. It outlines why there
is the need to adapt treatment for the autistic population, and
includes detailed guidance on each phase of the approach. It
explains assessment of OCD in autism, the links between the two
conditions and difficulties in identifying aspects of OCD in
autistic people. The book offers advice on dealing with difficult
issues and on the next steps after treatment is complete.
Accompanying worksheets and handouts are available to download.
'Whenever I see Martino I am reminded of how little I know about
life and death compared to him. How we don't know what is within us
or what may lie on the other side. I hope it's as magical and
beautiful as this book.' RUSSELL BRAND 'Raw, brave, heart-lifting.'
STEF PENNY, author of UNDER THE POLE STAR When film producer
Martino Sclavi began experiencing intense headaches, he attributed
them to his frenetic lifestyle. As it turned out, he had grade 4
brain cancer and was given 18 months to live. After undergoing
brain surgery - while awake - Martino found he had lost the ability
to recognise words. His response was to close his eyes and begin to
move his fingers across the keyboard to write this, an account of
life before diagnosis and since. Martino defied all predictions,
words read out to him by the monotone of a computerised voice he
calls Alex. Learning to live in a new way. This book - that he has
written but could not read - charts the effects of his experience:
on his relationship with his young son, his marriage, his work and
with himself. In the wake of his illness, everything must be
reconfigured and Martino is made to question the habits, dreams and
beliefs of his old life and confront the present. What he finds is
strange and beautiful. Searching for the words between life and
death, Sclavi shows that with determination and a subtle,
persistent sense of humour, it is possible to change the story of
our lives.
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