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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
On occasion nearly everyone experiences short-term back pain from sore or strained muscles. But for many who come to treat their back gingerly because they fear further "injury," a cycle of worry and inactivity results; this aggravates existing muscle tightness and leads them to think of themselves as having a "bad back." Even worse is the understandable but usually counterproductive assumption that back pain is caused by "abnormalities"–bulging disks, a damaged spine, and so on. However, these abnormalities are frequently found in those who have absolutely no pain whatsoever. In reality, most backs are strong and resilient, built to support our bodies for a lifetime; truly "bad backs" are rare.
In Saving Sight, Dr. Andrew Lam explains the intricacies of human sight and shines a light on the heroes who fought to save it, while also revealing the personal side of life as an eye surgeon - the stress and joy of a man who, on his best days, can turn darkness into light. Many remarkable life stories illuminate this autobiographical/biographical/historical work. Included are Louis Braille, Judah Folkman, Harold Ridley and many others who have enabled us to see in all kinds of unimaginable ways.
Drawing on the expert knowledge and research gathered by the British Dyslexia Association, this is a complete guide to parenting a child with dyslexia. Covering assessment, diagnosis, home and school support, emotional development and more, this empowering book has everything you need to help your child reach their full potential. With accessible guidance on reading, writing, spelling, organisation and study skills, this book will also help you to build self-belief in your child whilst ensuring that you care for yourself along the way. This book provides clear information on how dyslexia affects children and families at all stages of life, with insights on communicating with schools and ensuring the best support in all environments.
This ground-breaking book about sexuality speaks to women on the autism spectrum in fresh new ways, opening doors to discussion, and blowing the lid off taboo subjects. One of the many problems women on the spectrum face is not always understanding how relationships and boundaries work for other people. This book provides answers, plus more that they may not even have thought to ask. Covering one night stands, the importance of safe sex, self-respect, and double standards, there is a wealth of information about the ethics and self-understanding involved in relationships. Written with humour and honesty, this is the go-to guide for sex on the spectrum.
For thousands of loving and concerned parents of autistic children, the suspicion that something may be wrong comes long before the clinical diagnosis of autism, PDD (pervasive developmental disorder), or Asperger's syndrome. When rounds of testing and consultations confirm parents' worst fears, their emotional turmoil is matched by an overriding practical concern: What do we do next? The World of the Autistic Child is by far the most complete and comprehensive book ever written for the parents of autistic children, and for the teachers, child specialists, and other professionals that care for them. Written by Dr. Bryna Siegel, a developmental psychologist and director of a large university clinic for autistic children, it provides help and hope not only for the children, but for their families--the parents, grandparents, siblings, and other caregivers who must come to grips with their own grief and confusion following a diagnosis of autism or other related disorder. Dr. Siegel believes that parents' best defense is to acquire, as early as possible, the knowledge and the parenting skills they will need to work with professionals to help their child fulfill his or her potential. This book, therefore, is about understanding the diagnosis of autism, the available treatments, and how to decide what is best for a particular child with autism or PDD. Straightforward and sympathetic, Dr. Siegel guides readers through the thicket of symptoms and labels, explaining the crucial importance of intensive early education, and how to find the resources and help that are available. Behavior modification, the development of daily living skills, guidelines for selecting and designing schooling, mainstreaming, the role for traditional academics in educating higher functioning children and young people, building effective parent-teacher relationships, psychoactive medications, and dealing with the possibility of residential placement are all covered. Dr. Siegel teaches parents and professionals to use their own common sense and personal observations in evaluating the many highly publicized but unorthodox and often untested treatments for autism, including the much-touted facilitated communication (F/C), holding therapy, auditory training, "Options" therapy, allergy treatments, and special diets. Pulling together a wealth of long-needed information on the latest educational and medical advances, The World of the Autistic Child is a superb guide and resource that no one who cares about autistic or developmentally disabled young people will want to be without.
The primary message young children get in stuttering therapy is that they can and should manage their speech -- in other words, try to not sutter -- by utilizing speech tools and techniques. Is it possible that the anxiety this causes can create an even greater burden? Can that burden lead to excessive silence and disengagement -- a far greater handicap than the stuttering itself? Through personal narrative and extensive research, Voice Unearthed answers these questions with a resounding "yes " It also includes practical guidance that helps keep children talking, while minimizing everyone's anxiety around communicating. Voice Unearthed frees us from the pointless, painful chore of counting speech errors and reminds us to keep our eyes on what truly matters. It's also a wake-up call for parents, professionals, and the entire field of speech therapy -- and a reminder to "first do no harm."
In this accessible guide, developmental pediatrician Mark Bertin demystifies ADHD and offers advice to overwhelmed parents that includes clear explanations of:
Advice to help your child build self-esteem along with healthy relationships with peers and with "you"
Winner of the Autism Society of America's Literary Achievement Award, this heartwarming book was one of the first autobiographies to provide unique insight into the world of autism. Tom McKean grew up in a confusion of misdiagnosis, spending years in an institution and finally journeying into adulthood, seeking answers. He finally comes to a "working truce" with the neurotypical world and discovers he has various talents in fields such as computers and technical design, in addition to his passion for writing. His challenges, discoveries, and successes will move you as his poetry, songs, and humor delight you.
Childhood hearing loss is more common than most people assume, and yet this invisible condition can rob a child of the ability to develop close emotional relationships with family and friends. This book demystifies this condition and offers emotionally-supportive approaches to caring for the child and the whole family. It is written from the perspective of a pediatric audiologist who has diagnosed hearing loss in hundreds of newborns and young children, and who has shaped clinical best-practices during his career. Hearing loss is not an "all or nothing" condition, but a range from very subtle, slight challenges, to very little ability to hear. The impact that hearing loss can have on a child's language, intellectual, social and emotional development is enormous. But when the team of healthcare providers, developmental specialists, and parents are all working together, the hearing loss can become just another trait of this wonderful, unique child, rather than the single condition that defines the child and the family's experience raising that child. This book offers an explanation of "what is hearing loss" for parents, describes who is on the team working with the child (and team members' roles), and practical guidance for navigating what can be an uncertain path for families. Any family living with a child with hearing loss will benefit from the gentle guidance and hopeful stories found in this work.
Linda Olson and her husband, Dave Hodgens, were young doctors whose story had all the makings of a fairy tale. But then, while they were vacationing in Germany, a train hit their van, shattering their lives-and Linda's body. When Linda saw Dave for the first time after losing her right arm and both of her legs, she told him she would understand if he left. His response: "I didn't marry your arms or your legs. If you can do it, I can do it." In order to protect their loved ones, they decided to hide the truth about what really happened on those train tracks, and they kept their secret for thirty-five years. As a triple amputee, Linda learned to walk with prostheses and change diapers and insert IVs with one hand. She finished her residency while pregnant and living on her own. And she and Dave went on to pursue their dream careers, raise two children, and travel the world. Inspiring and deeply moving, Gone asks readers to find not only courage but also laughter in the unexpected challenges we all face. The day of the accident, no one envied Linda and Dave. Today, many do.
Bringing together a collection of narratives from those who are on the autism spectrum whilst also identifying as lesbian, gay, bisexual, transgender, queer, intersex and/or asexual (LGBTQIA), this book explores the intersection of the two spectrums as well as the diverse experiences that come with it. By providing knowledge and advice based on in-depth research and personal accounts, the narratives will be immensely valuable to teenagers, adults, partners and families. The authors round these stories with a discussion of themes across narratives, and implications for the issues discussed. In the final chapter, the authors reflect on commonly asked questions from a clinical perspective, bringing in relevant research, as well as sharing best-practice tips and considerations that may be helpful for LGBTQIA and ASD teenagers and adults. These may also be used by family members and clinicians when counselling teenagers and adults on the dual spectrum. With each chapter structured around LGBTQIA and autism spectrum identities, Gender Identity, Sexuality and Autism highlights the fluidity of gender identity, sexual orientation and neurodiversity and provides a space for people to share their individual experiences.
Toilet training can be a battleground for parents and children. In this book-the only one on the market dealing with the specific issues involved in toilet training children with autism-Maria Wheeler offers a detailed roadmap for success, based on over twenty years of experience. Easy-to-read bulleted lists offer over 200 do's and don'ts presented, along with more than fifty real-life examples. Learn, among other things, how to gauge "readiness," overcome fear of the bathroom, teach how to use toilet paper, flush and wash up, and deal with toileting in unfamiliar environments. A life preserver for parents and reluctant children! Helpful chapters include: The Importance of Toilet Training Determining Readiness Developing a Toileting Routine Communicating the Need to Use the Toilet Toileting in Unfamiliar Environments Nighttime Training Common Problems (and Solutions) Associated with Toilet Training Persons with Autism
Qigong massage has been used in China for thousands of years as a means to achieve health and wellbeing, and to treat a wide variety of ailments. This book teaches parents a simple qigong massage programme that has been developed specifically for the needs of children with autism spectrum disorders (ASDs). With step-by-step instructions and accompanying downloadable video content demonstrating the technique in action, this book offers parents clear guidance on how to adopt qigong massage into their child's daily routine successfully. The program is based around a core 15 minute massage that, when performed regularly, has been shown to greatly improve mood and behavior, sleeping patterns, and language and social skills. Also included is information on diet, advice on reading a child's body language during massage, and helpful progress checklists. Qigong massage is the ideal therapy for parents looking for an alternative way to strengthen the mind, body and sensory abilities of their young child with autism aged 6 and under. Previously published with a DVD, this material is now available online from www.jkp.com.
At ages nineteen and twenty-two, respectively, Jason Kingsley and Mitchell Levitz shared their innermost thoughts, feelings, hopes, and dreams, their lifelong friendship-- and their experiences growing up with Down syndrome. Their frank discussion of what mattered most in their lives-- careers, friendships, school, sex, marriage, finances, politics, and independence-- earned Count Us In numerous national awards, including the EDI Award from the National Easter Seal Society. More important, their wit, intelligence, candor, and charm made a powerful and inspirational statement about the full potential of people with developmental disabilities, challenging prevailing stereotypes. Now, thirteen years later, the authors discuss their lives since then-- milestones and challenges, developments expected and unexpected-- in a new afterword.
"This book reminds us of what we have in common: the power to create a good life for ourselves and for others, no matter what the world has in store for us." --Michael J. Fox This book reveals that people with disabilities are the invisible force that has shaped history. They have been instrumental in the growth of freedom and birth of democracy. They have produced heavenly music and exquisite works of art. They have unveiled the scientific secrets of the universe. They are among our most popular comedians, poets, and storytellers. And at 1.2 billion, they are also the largest minority group in the world. Al Etmanski offers ten lessons we can all learn from people with disabilities, illustrated with short, funny, inspiring, and thought-provoking stories of one hundred individuals from twenty countries. Some are familiar, like Michael J. Fox, Greta Thunberg, Stephen Hawking, Helen Keller, Stevie Wonder, and Temple Grandin. Others deserve to be, like Evelyn Glennie, a virtuoso percussionist who is deaf--her mission is to teach the world to listen to improve communication and social cohesion. Or Aaron Philip, who has revolutionized the runway as the first disabled, trans woman of color to become a professional model. The time has come to recognize people with disabilities for who they really are: authoritative sources on creativity, love, sexuality, resistance, dealing with adversity, and living a good life.
Author Marios Kyriazis brings a wealth of medical expertise to one of the most important breakthroughs in recent times to help combat a disease called senile cataract, which affects one in five people over the age of fifty-five. In the past, the only treatment available for this chronic condition was painful and potentially dangerous surgery to remove the cataract. Other treatments are now available, specifically, the new Russian breakthrough N-acetylcarnosine. In clinical trials, this treatment has shown dramatic and impressive results in treating age-related cataracts. The Cataract Cure also covers other associated eye disorders including: Glaucoma; Macular Degeneration; Infection of the cornea; Dry eye syndrome; Computer vision syndrome; Eyestrain; and Blurred vision. The Cataract Cure is an essential resource for those cataract sufferers who are looking for an alternative treatment and want to avoid eye surgery. The answer to curing senile cataract is clear - don't lose sight of it
Many young people on the autism spectrum struggle with anxiety, but did you know there are lots of simple things you can do to tackle it? This illustrated book will help you to identify what makes you anxious, and contains heaps of activities to calm your body and mind, stop unhealthy anxiety building up and head off anxious feelings in the future. Did you know that giving your anxiety a silly name (like Dr Dread!) will give you power over it? That pretending you are a jellyfish can make your body feel better? That writing your worries down and jumping on them as hard as you can will help to squash them? Ideal for children and young people aged 8 to 14, the ideas in this book will help you feel less stressed at home, at school and with friends, and give you healthy habits and coping techniques to last a lifetime.
The book has been designed to provide readers with an understanding of cerebral palsy (CP) as a developmental as well as a neurological condition. It details the nature of CP, its causes and its clinical manifestations. Using clear, accessible language (supported by an extensive glossary) the authors have blended current science with metaphor both to explain the biomedical underpinnings of CP and to share their awareness that there is much that can be done to promote child and family development, enhance the capabilities of young people with CP, empower their families, and chart a course into adulthood. The authors have reviewed classification and have emphasised the wide range of functional impairments that are seen in both children and adults with cerebral palsy. In doing so they have used the ICF framework and have described the range of interventions that may be applicable to people with cerebral palsy whilst emphasising that the condition is lifelong and that promotion of adaptation is a key component to understanding its nature and effects. Essential reading for parents and carers of those with cerebral palsy, clinicians, paediatricians, neurologists, occupational therapists and physiotherapists.
The second edition of this concise, plain-English guide fully explains all of the common areas of difficulty for more cognitively advanced individuals with autism, Asperger syndrome and PDD/NOS, and provides much-needed support, uncomplicated advice, and practical, positive solutions. Susan J. Moreno provides an accessible summary of up-to-date information on the diagnostic criteria of ASD, including the common traits and characteristics to look out for. She explores common areas of difficulty, offering a wealth of practical advice and tried-and-tested strategies for meeting the needs of each individual. Topics covered include the individual with autism at home, schooling, tips for teaching, sensory issues, and social skills and involvement in the community. The book closes with useful appendices of practical advice for parents, teachers, medical professionals, and others who care. This handy and informative guide is ideal for teachers, parents, health professionals, individuals on the autism spectrum and anyone else who would like to find out more about autism spectrum disorders.
With the help of this handy guide, you can bring tried and tested occupational therapy activities into your home and encourage your child to succeed with everyday tasks while having fun in the process. This expanded edition of the award-winning book includes new advice on toilet training, coping with changes in routine, repetitive behaviors, self-regulation and much more. The simple explanations and easy exercises will soon make daily activities enjoyable and productive.
This book takes a nonpathological approach to disability, viewing it as part of diversity rather than as deficit. The opening chapters introduce basic knowledge of teaching in disability communities, covering attitudes and behaviors that may be difficult for instructors to relate to. Next, the book delves into the three activities sections that increase in difficulty over the course of the book. The activities highlight barriers and psychosocial impediments that hamper progress in disability communities. Designed by an expert educator and clinician who is also an insider in the disability community, each of the 34 activities translate well in classroom environments or as homework, and each can be done individually or in group settings. All activities include a list of required materials, time expectation, goal setting criteria, possible outcomes, and talking and debriefing points for reflection, thereby facilitating effective planning and execution. The activities also recommend possible modifications to adjust the difficulty of the activities. This flexibility makes this a valuable resource for a wider audience of expertise and settings, ranging from introductory to sophisticated readers and users, students and non-students, in classrooms, in workshops, or in other surroundings. Lastly, the book concludes with a chapter on accessing outcomes, with six measures for evaluating knowledge and skill. Teaching Disability is a well-rounded, highly applicable tool for instructors and students in the disability community.
Fragile X syndrome is one of the main causes of child developmental delay and autism spectrum disorders. A premutated form of the same gene is also the basis for neurological disabilities in adults. This book breaks down the complex science of this genetic disorder and provides the facts and advice that every bewildered parent or professional needs to support individuals with Fragile X syndrome. This is a straightforward introduction that clearly explains the condition on both a scientific and practical level. With sections on diagnosis, symptoms and treatment, as well as discussions of various emotional and behavioural considerations, this guide covers all aspects of Fragile X syndrome, its implications, and the possibilities open to families affected by it. It demonstrates how, with the right therapies, progress can be made and emphasises how music can be used effectively to promote communication, interaction, fine motor skills and responsiveness in children with the condition. This is an essential reference tool for families of individuals with Fragile X syndrome, as well as therapists and healthcare professionals who are unfamiliar with the condition and are looking to find out more. |
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