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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Challenging existing approaches to autism that limit, and sometimes damage, the individuals who attract and receive the label, this book questions the lazy prejudices and assumptions that can surround autism as a diagnosis in the 21st Century. Arguing that autism can only be understood through examining 'it' as a socially or culturally produced phenomenon, the authors offer a critique of the medical model that has produced a perpetually marginalising approach to autism, and explain the contradictions and difficulties inherent in existing attitudes. They examine and dispute the scientific validity of diagnosis and 'treatment', asking whether autism actually exists at the biological level, and question the value of diagnosis in the lives of those labelled with autism. The book recognises that there are no easy answers but encourages engagement with these essential questions, and looks towards service provision and practice that moves beyond a reliance on all-encompassing labels. This unique contribution to the growing field of critical autism studies brings together authors from clinical psychiatry, clinical and community psychology, social sciences, disability studies, education and cultural studies, as well as those with personal experiences of autism. It is essential and challenging reading for anyone with a personal, professional or academic interest in 'autism'.
The ability to speak is an important part of human interaction. In this book, a glimpse into the lived realities of 37 adults and 3 children with communication disorders whose humanism is somewhat compromised by their speech, language, or voice disorders is offered in humorous and heartbreaking detail. The patient's struggle to communicate is often matched by their listeners, who are struggling to understand. Stories are presented of patients treated in medical settings for such problems as aphasia, dementia, Parkinson's disease (PD), amyotrophic lateral sclerosis (ALS) and other CNS diseases, apraxia, and head trauma. Other stories look at people who were treated in university clinics for such disorders as cerebral palsy and stuttering. The last few stories look at speech/voice treatment for a transgender woman, the loss of voice in a young man in a state penitentiary, and finally a humorous story of a pilot with left hemiplegia flying the author. Seasoned specialist Daniel Boone does not offer therapy suggestions for either the SLP or the patient's family or friends to try. Rather, for anyone with a communication disorder, he strongly recommends that such patients should seek the guidance and therapy of an ASHA-certified speech-language pathologist (SLP). The SLP determines what to do in therapy and practice. The stories illustrate the struggles of those who cannot always make their listeners understand. They may only be able to repeat the same phrase over and over. They may not be able to articulate words clearly enough to be understood. They may give bizarre, confusing answers to everyday questions. Taken together, they also illustrate the difficulties listeners, those who wish to understand, have in trying to make heads or tails of the intended communication. Ultimately, this work provides a sensitive look at the various disorders people have, their attempts to overcome them, the treatments that might be available, and the actions listeners can take in making communication easier and more productive.
"A skilled science translator, Denworth makes decibels, teslas and brain plasticity understandable to all."-Washington Post Lydia Denworth's third son, Alex, was nearly two when he was identified with significant hearing loss that was likely to get worse. Denworth knew the importance of enrichment to the developing brain but had never contemplated the opposite: deprivation. How would a child's brain grow outside the world of sound? How would he communicate? Would he learn to read and write? An acclaimed science journalist as well as a mother, Denworth made it her mission to find out, interviewing experts on language development, inventors of groundbreaking technology, Deaf leaders, and neuroscientists at the frontiers of brain plasticity research. I Can Hear You Whisper chronicles Denworth's search for answers-and her new understanding of Deaf culture and the exquisite relationship between sound, language, and learning.
A four-stage programme for parents and families looking to introduce a dog into their home for the therapeutic and practical benefits that can be brought to a child with autism, including development of communication skills and toilet training. Based on first-hand knowledge, the programme was created through the successful experience the author had bringing up two children at opposite ends of the autism spectrum. This guide is comprehensive and highly practical, with case examples, tips and advice throughout. It covers all aspects of responsible ownership and training of the dog as a companion dog, and it provides tips throughout the dog's entire life cycle. Accessible for families and professionals alike, this innovative programme can have a huge impact on the life of children with disabilities.
Ellen Notbohm and Veronica Zysk are authors who know how to take their own advice. Winner of Learning Magazine's Teachers' Choice Award, the first edition of 1001 Great Ideas has been a treasured resource in the autism community since 2004. Now, in this expanded edition, Ellen Notbohm (best-selling author of the revolutionary book Ten Things Every Child with Autism Wishes You Knew) and Veronica Zysk (award-winning author and editor of Autism Asperger's Digest magazine) present parents and educators with over 1800 ideas-try-it-now tips, eye-opening advice, and grassroots strategies. More than 600 fresh ideas join tried and true tactics from the original edition, while many ideas pick up where the first edition left off, offering modifications for older kids, honing in on Asperger's challenges, and enhancing already-effective ways to help your child or student achieve success at home, in school, and in the community. It helps you quickly find solutions, explanations, and strategies that speak to the variety of developmental levels, learning styles, and abilities inherent in children with autism or Asperger's.
Anxiety, meltdowns and emotional regulation can be hugely challenging for autistic people. This book is full of proactive strategies for understanding, accepting and respecting the processing differences in autism. It contains tools for reducing sensory, social and mental drain, and offers strategies to protect from ongoing stress and anxiety. These help minimize shutdowns and burnout, while maximizing self-esteem, autistic identity and mental health. Learn strategies for matching environmental demands to the person's processing needs, how to support vulnerabilities, and how to prevent and manage meltdowns while protecting the identify and self-esteem of the individual with autism.
There have been sweeping changes to disability legislation in
recent years. Disability Discrimination in Employment considers the
impact of the Disability Discrimination Act 2005 which gives
disabled people greater employment rights and protection, and also
requires public bodies to promote equality of opportunity for
disabled people. The authors also analyze the additional guidance
on the definition of disability which came into force in May 2006
to update the 1996 guideline, as well as the effects of the
Equality Act 2006 and the Equality and Human Rights Commission.
Get off to a good start. Learn sensible, solid strategies that can be put into practice with children on the autism spectrum right away. "Starting Points: The Basics of Understanding and Supporting Children and Youth with Asperger Syndrome" offers a variety of strategies and visual supports that help children on the spectrum such as: who have difficulty with abstract concepts and thoughts; who have difficulty understanding and regulating emotions; who have difficulty recognizing, interpreting, and empathizing with the emotions of others; who find it easier to answer questions with choices versus open-ended questions; need cues for how and when to transition from an activity or place to the next; and, much more. Starting from the premise that no two individuals with AS are the same, Hudson and Myles provide a global perspective of how the core characteristics of AS may appear separately and/or simultaneously, and how they may manifest themselves in a variety of situations. Each characteristic is then paired with a brief explanation, followed by a series of bulleted interventions.
Bryna Siegel gives parents of autistic children what they need
most: hope. Her first book, The World of the Autistic Child, became
an instant classic, illuminating the inaccessible minds of
afflicted children. Now she offers an equally insightful,
thoroughly practical guide to treating the learning disabilities
associated with this heartbreaking disorder.
The essential, up-to-date guide for helping children with language and listening problems Does your child have trouble getting the right words out, following directions, or being understood? In this revised new edition of "Childhood Speech, Language, and Listening Problems," speech-language pathologist Patricia Hamaguchi-who has been helping children overcome problems like these for more than thirty years-answers your questions to help you determine what's best for your child. This newest edition: * Expands on speech and articulation issues affecting toddlers* Includes a new chapter on socially "quirky" children Explains how to get the right help for your child, including when to wait before seeking help, how to find the right specialist, and how the problem may affect your child academically, socially, and at homeCovers major revisions in educational laws and programs and insurance coverage as well as current information on new interventions and cutting-edge research in the field Updates information on autism spectrum disorders, neurobiological disorders, and auditory processing disorders"Provides valuable information for parents of children with speech, language, and listening problems."-Sandra C. Holley, Ph.D., Former President, American Speech-Language-Hearing Association (on the "Second Edition") More than 1.1 million children receive special education services each year to address speech and language problems, and many others struggle with language and listening to some degree. If your child is one of them, this book gives you the crucial and up-to-date guidance you need to help him or her both in school and at home.
Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. Contrary to the common belief that caregiving is nothing more than a stressful situation to be endured, memoirs describe a life transforming experience-self-discovery, a reordering of one's priorities, and a changed view of the world. "The Caregiver's Tale" offers insight and comfort to individuals caring for a loved one and is a valuable resource for all health care professionals. Identifying common themes, Burack-Weiss describes how the illness career and social meaning of cancer, dementia, HIV/AIDS, mental illness, and chemical dependence affect the caregiving experience. She applies the same method to an examination of family roles: parents caring for ailing children, couples and siblings caring for one another, and adult children caring for aging parents. Jamaica Kincaid, Sue Miller, Paul Monette, Kenzaburo O?, and Philip Roth are among the many authors who share their caregiving stories. Burack-Weiss provides an annotated bibliography of the more than one hundred memoirs and an accompanying chart to help readers locate those of greatest interest to them.
"I always thought I'd rather be dead than paralysed: One slip, one moment and everything changes..." Most of us live life in a safe zone but some individuals look over the edge. A few years ago, Karen Darke was on a rock-climbing expedition on sea cliffs in Scotland. She fell, and was paralysed. This is Karen's story about coming to terms with her lost of movement from the chest down and regaining the will to live. Out of her disability comes strength to embrace, challenge and transform it into an opportunity to learn and grow. It is also about the borderline between body and spirit. Karen is drawn into the world of faith healing and spirit surgeons in the Brazilian jungle. In testing these improbable claims she explores her own inner world and self whilst regaining her confidence. Combining wheels with wilderness, Karen escapes the city and embarks on an evermore daring series of adventures by hand-cycle, ski and kayak. Karen's story is inspiring and energizing; it will help everybody who reads it to respond positively, to overcome adversity, and to strive for their dreams.
"This book reminds us of what we have in common: the power to create a good life for ourselves and for others, no matter what the world has in store for us." --Michael J. Fox This book reveals that people with disabilities are the invisible force that has shaped history. They have been instrumental in the growth of freedom and birth of democracy. They have produced heavenly music and exquisite works of art. They have unveiled the scientific secrets of the universe. They are among our most popular comedians, poets, and storytellers. And at 1.2 billion, they are also the largest minority group in the world. Al Etmanski offers ten lessons we can all learn from people with disabilities, illustrated with short, funny, inspiring, and thought-provoking stories of one hundred individuals from twenty countries. Some are familiar, like Michael J. Fox, Greta Thunberg, Stephen Hawking, Helen Keller, Stevie Wonder, and Temple Grandin. Others deserve to be, like Evelyn Glennie, a virtuoso percussionist who is deaf--her mission is to teach the world to listen to improve communication and social cohesion. Or Aaron Philip, who has revolutionized the runway as the first disabled, trans woman of color to become a professional model. The time has come to recognize people with disabilities for who they really are: authoritative sources on creativity, love, sexuality, resistance, dealing with adversity, and living a good life.
"When I grow up I want to be a screwdriver!" A small boy spins down the sidewalk as his mother follows him with her eyes and heart. Nicky has autism. Winner of the ASA Outstanding Literary Work of the Year Award, Just This Side of Normal is a powerful story of a parent's search for understanding in a world that sometimes makes no sense. This book was one of the first autobiographies written by a parent of a child with autism and it continues to inspire both parents and professionals in the autism community.
In this heartwarming book, a grandfather offers loving advice in a series of letters to his grandson Charlie, who has autism. His letters educate and inspire, while painting a beautiful, positive portrait of children with autism. He explains what autism is and what it is not, offers social dos and don'ts, and encourages Charlie to be who he is and follow his dreams. This title makes a great gift for young adults on the spectrum.
Most people with Non-Verbal Learning Disorder (NLD) or Asperger Syndrome (AS) are underemployed. This book sets out to change this. With practical and technical advice on everything from job hunting to interview techniques, from 'fitting in' in the workplace to whether or not to disclose a diagnosis, this book guides people with NLD or AS successfully through the employment mine field. There is also information for employers, agencies and careers counsellors on AS and NLD as 'invisible' disabilities, including an analysis of the typical strengths of somebody with NLD or AS, and how to use these positively in the workplace. Practical information and lists of career resources are supported by numerous case studies to inspire and advise. An essential resource for people with NLD or AS seeking or in employment and their existing or potential employers.
Music therapy is the use of music to address non-musical goals. More and more parents and professionals are finding that music can break down barriers for children with autism in areas such as cognition, communication, and socialization. While music therapists are experienced professionals who create unique interventions, many of the principles of music therapy can be implemented by other therapists, teachers, and parents - even by people who do not consider themselves musical! This book explains how to use the many elements of music to foster communication, and teaches you how to adapt music to meet a child's needs. Visual aids and already-written songs will get you started! |
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