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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
'Whenever I see Martino I am reminded of how little I know about
life and death compared to him. How we don't know what is within us
or what may lie on the other side. I hope it's as magical and
beautiful as this book.' RUSSELL BRAND 'Raw, brave, heart-lifting.'
STEF PENNY, author of UNDER THE POLE STAR When film producer
Martino Sclavi began experiencing intense headaches, he attributed
them to his frenetic lifestyle. As it turned out, he had grade 4
brain cancer and was given 18 months to live. After undergoing
brain surgery - while awake - Martino found he had lost the ability
to recognise words. His response was to close his eyes and begin to
move his fingers across the keyboard to write this, an account of
life before diagnosis and since. Martino defied all predictions,
words read out to him by the monotone of a computerised voice he
calls Alex. Learning to live in a new way. This book - that he has
written but could not read - charts the effects of his experience:
on his relationship with his young son, his marriage, his work and
with himself. In the wake of his illness, everything must be
reconfigured and Martino is made to question the habits, dreams and
beliefs of his old life and confront the present. What he finds is
strange and beautiful. Searching for the words between life and
death, Sclavi shows that with determination and a subtle,
persistent sense of humour, it is possible to change the story of
our lives.
There have been sweeping changes to disability legislation in
recent years. Disability Discrimination in Employment considers the
impact of the Disability Discrimination Act 2005 which gives
disabled people greater employment rights and protection, and also
requires public bodies to promote equality of opportunity for
disabled people. The authors also analyze the additional guidance
on the definition of disability which came into force in May 2006
to update the 1996 guideline, as well as the effects of the
Equality Act 2006 and the Equality and Human Rights Commission.
Disability Discrimination in Employment is an invaluable guide for
employment lawyers. Written for those advising both claimants and
respondents, it provides a clear, accessible and thorough account
of this complex area of law. Incorporating the most recent
legislative changes and case law, this guide is a useful tool for
those practicing in the tribunal as well as for those providing non
contentious advice.
This book provides a comprehensive, practical and up to date
overview of litigating discrimination claims in the employment
tribunal, the Employment Appeal Tribunal, and the Higher Courts.
The authors analyze the important cases which cover issues such as:
general guidance on the approach to disability discrimination
cases; mental impairments; compensation in disability claims; and
reasonable adjustments and knowledge.
Disability Discrimination in Employment provides a lucid
distillation of the concepts set out in the legislation and allows
practitioners quick access to key cases and materials. Invaluable
practical advice, checklists, information on relevant procedural
rules, and useful precedents arepresented in a clear and accessible
format alongside the relevant legislation and case law.
As well as being extensively cross-referenced throughout each
chapter contains a useful summary of the law, a list of relevant
cases, a list of statutory provisions and references to the Code of
Practice and Guidance. The appendices contain a copy of Part II of
the Disability Discrimination Act 1995 marked up to show the
legislative changes as well as copies of the Guidance and the Code
of Practice.
Get off to a good start. Learn sensible, solid strategies that can
be put into practice with children on the autism spectrum right
away. "Starting Points: The Basics of Understanding and Supporting
Children and Youth with Asperger Syndrome" offers a variety of
strategies and visual supports that help children on the spectrum
such as: who have difficulty with abstract concepts and thoughts;
who have difficulty understanding and regulating emotions; who have
difficulty recognizing, interpreting, and empathizing with the
emotions of others; who find it easier to answer questions with
choices versus open-ended questions; need cues for how and when to
transition from an activity or place to the next; and, much more.
Starting from the premise that no two individuals with AS are the
same, Hudson and Myles provide a global perspective of how the core
characteristics of AS may appear separately and/or simultaneously,
and how they may manifest themselves in a variety of situations.
Each characteristic is then paired with a brief explanation,
followed by a series of bulleted interventions.
Bryna Siegel gives parents of autistic children what they need
most: hope. Her first book, The World of the Autistic Child, became
an instant classic, illuminating the inaccessible minds of
afflicted children. Now she offers an equally insightful,
thoroughly practical guide to treating the learning disabilities
associated with this heartbreaking disorder.
The trouble with treating autism, Siegel writes, is that it is a
spectrum disorder--a combination of a number of symptoms and
causes. To one extent or another, it robs the child of social
bonds, language, and intimacy--but the extent varies dramatically
in each case. The key is to understand each case of autism as a
discrete set of learning disabilities, each of which must be
treated individually. Siegel explains how to take an inventory of a
child's particular disabilities, breaks down the various kinds
unique to autism, discusses our current knowledge about each, and
reviews the existing strategies for treating them. There is no
simple cure for this multifarious disorder, she writes; instead, an
individual program, with a unique array of specific treatments,
must be constructed for each child. She gives practical guidance
for fashioning such a program, empowering parents to take the lead
in their child's treatment. At the same time, she cautions against
the proliferating, but questionable, treatments hawked to afflicted
families. She knows the panic to do something, anything, to help an
autistic child, and she offers parents reassurance and support as
well as sensible advice, combining knowledge from experience,
theory and research.
For parents, autism in a child is heartbreaking. But it need not
be overwhelming. Bryna Siegeloffers a new understanding, and a
practical, thoughtful approach, that will give parents new hope.
Advocacy skills must be taught because they are essential to life
success. Learn from people with ASD on how to teach these skills!
Edited by Stephen Shore, Ask and Tell: Self-Advocacy and Disclosure
for People on the Autism Spectrum helps people with autism
effectively self-advocate in their pursuit of independent,
productive, and fulfilling lives. Ask and Tell is unique in that
it'ss the first book to speak to the twin issues of self-advocacy
and disclosure for people with autism. This book also discusses how
advocacy begins in preschool and extends throughout the lifespan
with meaningful examples, such as showing how people with autism
have great value to society. It is written and illustrated entirely
by individuals with ASD, including a preface by Temple Grandin.
Overall, successful self-advocacy involves a degree of disclosure
about oneself that often carries some degree of risk in an effort
to reach the goal of better mutual understanding. Ask and Tell
offers countless practical ideas and advice adjusted for different
personalities and personal preferences, and always backed by the
real life experiences.
Ann Burack-Weiss explores a rich variety of published memoirs by
authors who cared for ill or disabled family members. Contrary to
the common belief that caregiving is nothing more than a stressful
situation to be endured, memoirs describe a life transforming
experience-self-discovery, a reordering of one's priorities, and a
changed view of the world. "The Caregiver's Tale" offers insight
and comfort to individuals caring for a loved one and is a valuable
resource for all health care professionals.
Identifying common themes, Burack-Weiss describes how the
illness career and social meaning of cancer, dementia, HIV/AIDS,
mental illness, and chemical dependence affect the caregiving
experience. She applies the same method to an examination of family
roles: parents caring for ailing children, couples and siblings
caring for one another, and adult children caring for aging
parents.
Jamaica Kincaid, Sue Miller, Paul Monette, Kenzaburo O?, and
Philip Roth are among the many authors who share their caregiving
stories. Burack-Weiss provides an annotated bibliography of the
more than one hundred memoirs and an accompanying chart to help
readers locate those of greatest interest to them.
Because of the unique needs of children with ASD, it is important
to pay special attention to the details of their experience in the
medical environment. Designed to help make the medical experience
easier for all involved, this book presents information on ASD, the
varying developmental levels, interventions, and assessments that
medical staff, parents, educators, and key service providers can
use to more effectively interact with and support children with ASD
while in the medical setting. The information and techniques
presented in "Prescription for Success" can be used by doctors,
nurses, medical technicians, residents, interns, and even
administrative staff to support children with ASD and their
families in what can otherwise be trying circumstances. There is a
CD at the back of the book that includes forms and worksheets that
can be printed and duplicated.
"When I grow up I want to be a screwdriver!" A small boy spins down
the sidewalk as his mother follows him with her eyes and heart.
Nicky has autism. Winner of the ASA Outstanding Literary Work of
the Year Award, Just This Side of Normal is a powerful story of a
parent's search for understanding in a world that sometimes makes
no sense. This book was one of the first autobiographies written by
a parent of a child with autism and it continues to inspire both
parents and professionals in the autism community.
In this heartwarming book, a grandfather offers loving advice in a
series of letters to his grandson Charlie, who has autism. His
letters educate and inspire, while painting a beautiful, positive
portrait of children with autism. He explains what autism is and
what it is not, offers social dos and don'ts, and encourages
Charlie to be who he is and follow his dreams. This title makes a
great gift for young adults on the spectrum.
Music therapy is the use of music to address non-musical goals.
More and more parents and professionals are finding that music can
break down barriers for children with autism in areas such as
cognition, communication, and socialization. While music therapists
are experienced professionals who create unique interventions, many
of the principles of music therapy can be implemented by other
therapists, teachers, and parents - even by people who do not
consider themselves musical! This book explains how to use the many
elements of music to foster communication, and teaches you how to
adapt music to meet a child's needs. Visual aids and
already-written songs will get you started!
Most people with Non-Verbal Learning Disorder (NLD) or Asperger
Syndrome (AS) are underemployed. This book sets out to change this.
With practical and technical advice on everything from job hunting
to interview techniques, from 'fitting in' in the workplace to
whether or not to disclose a diagnosis, this book guides people
with NLD or AS successfully through the employment mine field.
There is also information for employers, agencies and careers
counsellors on AS and NLD as 'invisible' disabilities, including an
analysis of the typical strengths of somebody with NLD or AS, and
how to use these positively in the workplace. Practical information
and lists of career resources are supported by numerous case
studies to inspire and advise. An essential resource for people
with NLD or AS seeking or in employment and their existing or
potential employers.
This extremely comprehensive book goes step-by-step through the
symptoms, definitions, assessments, and diagnoses of autism
spectrum disorders (ASDs). The authors describe ASDs in terms of
the parents, teachers, the school system, medical professionals,
adult service providers, and private agencies involved. In addition
to revealing what parents and professional can expect, this book
also provides practical strategies to improve the assessment
process and help the child or adult deal with the stress of the
evaluations. Finally, they tackle the controversial issues
surrounding the causes of ASD and available treatment options.
Raising NLD Superstars is essential reading for all those who come
into contact with children with nonverbal learning disorders (NLD).
Instead of insisting upon the one size fits all model of
intervention the author focuses on the individual nature of
children with NLD and offers practical, adaptable advice that will
help them find their place both in the family and in wider social
groups. The author shares her experiences of life as the parent of
a child with NLD with humanity and humor. She looks not only at day
to day practicalities such as making meal times easier for all the
family and reaching compromises on inappropriate clothing choices
but also at the long-term plan for independence. This book will
help parents and caregivers encourage children with NLD to reach
their emotional and cognitive potential while considering the views
and experiences of other family members.
If you or someone you know has been diagnosed with a pervasive
developmental disorder (autism, Asperger's Syndrome, Rett Syndrome,
Childhood Disintegrative Disorder, or PDD-NOS), this book is for
you. In an informative style, weaved with personal stories from
parents, author Mitzi Waltz covers various topics: getting a
diagnosis (including preparing for a diagnostic interview in a
medical, psychiatric, or school setting, with descriptions of all
diagnostic tests and checklists/questions used by professionals);
treatment options (such as medications/supplements, sensory
integration, occupational/physical/speech therapy, behavior
modification, 'Floor time', and more); and coping with diagnosis
and treatment (including emotions and support systems, insurance,
and educational plans).
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