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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
When it comes to parenting a child with a hidden disability, everyone seems to have an opinion. Here, Naomi Simmons writes from experience, offering new solutions for when conventional parenting strategies just don't work. Whether it be autism, ADHD, OCD, a mood or anxiety disorder with or without a diagnosis, if you have a child with any hidden disability, this is the book for you. Naomi Simmons is a parent of children with a range of hidden disabilities. She provides candid guidance on how best to support children in this situation - dealing with meltdowns, school avoidance, self-harm, anxiety and depression - and shares the experiences of others who really do 'get it'. Addressing common concerns and hurdles, this book helps you respond to your child's needs and challenges while developing their unique strengths and talents.
Toilet training children with autism and related disorders is fraught with countless challenges stemming from the very core of their unique characteristics. The communication and sensory issues alone can create formidable barriers. As a result, typical strategies are frequently ineffective when used with children with special needs. Using a no-nonsense, often humorous approach, Judith Coucouvanis, MA, APRN, BC, shares strategies that have produced remarkable results for parents of children with autism and related disorders nationwide. Promising no "quick fixes," The Potty Journey systematically guides you through the entire toileting journey, step-by-step, to the ultimate destination - dry pants. By reading The Potty Journey, you will learn about... * how to tell if the child is "ready" * easy and time-saving data collection methods * the importance of routines and how to develop effective routines * the impact of a consistent schedule * usi
The primary message young children get in stuttering therapy is that they can and should manage their speech -- in other words, try to not sutter -- by utilizing speech tools and techniques. Is it possible that the anxiety this causes can create an even greater burden? Can that burden lead to excessive silence and disengagement -- a far greater handicap than the stuttering itself? Through personal narrative and extensive research, Voice Unearthed answers these questions with a resounding "yes " It also includes practical guidance that helps keep children talking, while minimizing everyone's anxiety around communicating. Voice Unearthed frees us from the pointless, painful chore of counting speech errors and reminds us to keep our eyes on what truly matters. It's also a wake-up call for parents, professionals, and the entire field of speech therapy -- and a reminder to "first do no harm."
'GORGEOUS, VIVIDLY ALIVE' NEW YORK TIMES 'BOLD, HONEST AND SUPERBLY WELL-WRITTEN' ANDRE ACIMAN, AUTHOR OF CALL ME BY YOUR NAME 'GRACEFUL AND SOUL-BARING' MELANIE REID, THE TIMES 'WHAT A GIFT . . . HAS THE RIGOR AND PRECISION OF JOAN DIDION AND MAGGIE NELSON AND A FORTHRIGHT HUMOR AND NAKED TRUTH ALL OF ITS OWN.' SARAH RUHL, AUTHOR OF SMILE I am in a bar in Brooklyn listening to two men, my friends, discuss whether or not my life was worth living. So begins Chloe Cooper Jones's bold account of moving through the world in a body that looks different than most. Born with a rare congenital condition called sacral agenesis, she must contend not only with her own physical pain, but the emotional discomfort of others. It is only when she unexpectedly becomes a mother that she confronts the demand to live life fully, propelling her on a journey across the globe, reclaiming the spaces she'd been denied, and denied herself. From Roman sculptures to a Beyonce concert, from a tennis tournament to the Cambodian Killing Fields, Jones interrogates the myths of beauty with spiky intelligence, aesthetic philosophy, love and humor, inviting us to find a new way of seeing.
- Do you want to add fun and adventure to your daily life? THIS BOOK IS DESIGNED TO BE USED WITH THE STOP RAISING EINSTEIN JOURNAL. Please see the accompanying Journal ISBN 9781599321738.
Healing Eye Diseases is a part of the Healing is Voltage series. Many eye diseases like macular degeneration, cataracts, glaucoma, and uveitis are believed to be incurable. However, using the Healing is Voltage paradigm, they can be reversed in most cases. This book discusses how it can be done.
In January 1988, aged twelve, Martin Pistorius fell inexplicably sick. First he lost his voice and stopped eating; then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told that an unknown degenerative disease had left him with the mind of a baby and he probably had less than two years to live. Martin went on to be cared for at centres for severely disabled children, a shell of the bright, vivacious boy he had once been. What no-one knew is that while Martin's body remained unresponsive his mind slowly woke up, yet he could tell no-one; he was a prisoner inside a broken body. Then, in 1998, when Martin was twenty-three years old, an aromatherapy masseuse began treating him and sensed some part of him was alert. Experts were dismissive, but his parents persevered and soon realised their son was as intelligent as he'd always been. With no memory of the time before his illness, Martin was a man-child reborn in a world he didn't know. He was still in a wheelchair and unable to speak, but he was brilliantly adept at computer technology. Since then, and against all odds, he has fallen in love, married and set up a design business which he runs from his home in Essex. Ghost Boy is an incredible, deeply moving story of recovery and the power of love. Through Martin's story we can know what it is like to be here and yet not here - unable to communicate yet feeling and understanding everything. Martin's emergence from his darkness enables us to celebrate the human spirit and is a wake-up call to cherish our own lives.
Taking a look at the most common sensory issues kids face, Raising Kids With Sensory Processing Disorders offers a compilation of unique, proven strategies that parents can implement to help their children move beyond their sensory needs. This updated second edition: Shows parents how to characterize their child's sensory issues into one of several profiles. Helps parents find the best adaptations and changes to their child's everyday routines. Provides a week-by-week series of activities and checklists. Helps improve children's performance on tasks like homework, transitions between activities, and interactions with friends. Is written by parents and occupational therapists. Whether it's having to remove tags from clothing or using special dimmed lighting when they study, kids with sensory disorders or special sensory needs often need adaptations in their everyday lives in order to find success in school and beyond.
Ilana Estelle grew up not knowing she had a disability, not knowing she had cerebral palsy... and it took forty-six years for her to find out. Spirituality has helped Ilana on her journey and in her new book, Spirituality, Healing and Me, she uses her experience of mental and physical disability in the healing process, to create positivity and healing for others. Packed with inspiring messages and real-life vignettes, Ilana's book shows how spirituality can help us cope with the modern world and reset our moral compass. Based on her own experiences of spirituality and healing, she shows how focusing on values such as understanding, compassion, tolerance, creativity and acceptance can help us find our inner calm. This book will help you to: - Improve emotional balance and wellness - Boost confidence and self-esteem - Stay self-aware, grounded and patient - Appreciate life and each other - Accept changing circumstances - Enhance positive emotions and personal healing
Labeled deaf, retarded, disturbed and insane, Donna Williams lived
in a world of her own. Alternating between rigid hostility and
extroversion, she waged what she termed her "war against the
world." She existed in a dreamlike state, parroting the voices of
those around her in the hope that they would leave her alone. Few
people understood her, least of all Donna helself. "From the Trade Paperback edition.
Amy Purdy, who inspired a nation on Dancing with the Stars and has been called a hero by Oprah Winfrey, reveals the intimate details of her triumphant comeback from the brink of death to making history as a Paralympic snowboarder. In this poignant and uplifting memoir, Dancing With the Stars sensation Amy Purdy reveals the story of how losing her legs led her to find a spiritual path. When the Las Vegas native was just nineteen, she contracted bacterial meningitis and was given less than a two percent chance of survival. In a near-death experience, she saw three figures who told her: "You can come with us, or you can stay. No matter what happens in your life, it's all going to make sense in the end." In that moment, Amy chose to live. Her glimpse of the afterlife-coupled with a mysterious premonition she'd had a month before -became the defining experiences that put Amy's life on a new trajectory after her legs had to be amputated. She wouldn't just beat meningitis and walk again; she would go on to create a life filled with bold adventures, big dreams, and boundless vitality-and share that spirit with the world. In 2014, Amy-the only competitor, male or female, with two prosthetic legs-claimed a bronze medal for the U.S. Paralympic team in adaptive snowboarding. She then became a contestant on season eighteen of Dancing With the Stars, and viewers were captivated as the girl with bionic legs managed to out-dance her competitors all the way to the finale. Amy's journey is a testament to the resilience of the human spirit and the capacity we all have to dream bigger, defy expectations, and rewrite our stories. Amy was given a second chance for a reason-to use her life to inspire others. Her powerful memoir urges us to live life to the fullest, because we are all a lot more capable than we could ever imagine.
This is the inspiring account of a family's struggle to break into their son's autistic world - and how a beautiful retreiver dog made the real difference. Dale was still a baby when his parents realised that something wasn't right. Worried, his mother Nuala took him to see several doctors, before finally hearing the word 'autism' for the first time. Scared but determined that Dale should live a fulfilling life, Nuala describes her despair at her son's condition, her struggle to prevent Dale being excluded from a 'normal' education and her sense of hopeless isolation. Dale's autism was severe and violent and family life was a daily battleground. But the Gardner's lives were transformed when they welcomed a gorgeous Golden Retriever into the family. The special bond between Dale and his dog Henry helped them to produce the breakthrough in Dale they had long sought. From taking a bath to saying 'I love you', Henry helped introduce Dale to all the normal activities most parents take for granted, and set him on the road to being the charming and well-adjusted young man he is today. This is a heartrending and fascinating account of how one devoted and talented dog helped a little boy conquer his autism.
Addressing frequently encountered emotional, behavioral, and academic difficulties, this essential guide shows how to help parents implement proven skills-building strategies with their kids (ages 5-17). The author draws on over 25 years of research and clinical practice to provide a flexible program for individual families or parent groups. The focus is on teaching kids the skills they need to get their development back on track and teaching parents to cope with and manage challenging behavior. Featuring vignettes and troubleshooting tips, the Practitioner Guide is packed with ideas for engaging clients and tailoring the interventions. In a large-size format for easy photocopying, it contains more than 60 reproducible handouts and forms. See also Skills Training for Struggling Kids, an invaluable client recommendation, which guides parents to implement Dr. Bloomquist's strategies and includes all of the handouts and forms they need.
Based on Nick Dubin's own experience, and drawing on the extensive knowledge of Dr Tony Attwood and Dr Isabelle Henault, this important book addresses the issues surrounding the autism spectrum, sexuality and the law. The complex world of sex and appropriate sexual behaviour can be extremely challenging for people with autism spectrum disorder (ASD) and, without guidance, many find themselves in vulnerable situations. This book examines how the ASD profile typically affects sexuality and how sexual development differs between the general population and those with ASD. It explains the legalities of sexual behaviour, how laws differ from country to country, and the possibility for adjustment of existing laws as they are applied to the ASD population. With advice on how to help people with autism spectrum disorder gain a better understanding of sexuality and a comprehensive list of resources, the book highlights the need for a more informed societal approach to the psychosexual development of people with ASD. A ground-breaking and honest account, this book will be an invaluable addition to the shelves of parents of children with ASD, mental health and legal professionals, teachers, carers and other professionals working with individuals on the spectrum.
This compact book uniquely examines individual lived experience with spinal cord injury (SCI). It provides education and a clearer understanding of the many facets of a SCI -- medical, physical, psychological, cognitive, personal, and social -- in a single compact volume, so that readers learn the effect a SCI can have on a person. The contents also include resources for more specific exploration of information. SCI is a direct public health concern due to not only the cause of the injury itself, most often of violent origin, but also how the individuals perceive themselves after the injury and their participation in society, as well as how society welcomes them back. This compact book has four distinct chapters, each one addressing a different component of SCI with a set of resources to guide the individual with SCI, their family and their friends in the process. It first explores the physical as a means to provide an understanding of what body changes occur. From there, it goes on to examine what is the subjective meaning and lived experience of disability for persons with SCI. The brief ends with an examination of what organizations and programs exist to promote independence and a sense of community for persons with SCI. The Physical, Personal, and Social Impact of Spinal Cord Injury: From the Loss of Identity to Achieving a Life Worth Living is a book with broad appeal. It is written in such a way that it serves as a useful and accessible resource for people who work with persons with SCI, students and instructors with an interest in the subject, as well as persons with SCI themselves and their families.
This is an audio CD with the voice of John Stonehouse. This book examines the conventional approaches to numerous problems that affect people who are blind (such as education, Braille literacy, economic inequities, stereotyping, job training and employment opportunities, poverty, rehabilitation and social services). Approximate running time: 320 minutes.
People with Asperger Syndrome have many characteristics that are frequently seen in a negative light. Brenda Boyd shows that for every characteristic of AS that can be looked at negatively, there are several positive aspects that can be drawn on and developed. Discussing AS in general terms, she talks through the reasons why people with AS approach life in the way they do, and what an enormous contribution they make to the world. She then explores different characteristics of AS; while she acknowledges the negative perception so many people have of these characteristics, she points out the large number of advantages to the Aspergers way of thinking for individuals with AS, those around them and society as a whole. For every negative, Boyd proves there are many more positives. From their refreshing honesty to their originality and potential to become leaders rather than followers, people with AS have many admirable personality traits that should be nurtured. This book shows that by adjusting our perceptions of what is 'normal' and embracing diversity, AS can not only be understood and accepted, but appreciated. Appreciating Asperger Syndrome is a celebration of AS which should be read by individuals with AS, family members, and anyone who knows or works professionally with individuals with AS.
This practical resource is designed to help professionals, parents, and carers on their journey to independence with children and young people with vision impairments. Building on the ideas and practices introduced in Supporting Life Skills for Young Children with Vision Impairment and Other Disabilities, this book addresses middle childhood, the period from when the child starts school, through to the onset of puberty. It offers a wealth of practical strategies and activities to enhance key skills, including personal safety, advanced dressing, personal hygiene, dealing with puberty, social skills, time, money and organisational skills, eating, drinking and food preparation skills, and the transition to secondary school. This book: Addresses the main independent living skills areas for vision impaired children in middle childhood, by providing simple explanations of skills and offering practical strategies and techniques to support progression onto the next stage Is written in a fully accessible style, with photocopiable pages and additional downloadable eResources Provides a variety of documentation to chart the child's development and show progress over time This invaluable resource puts the changes that occur during middle childhood into context and will help busy professionals, families and carers start preparing children with a vision impairment for adulthood, allowing them to become confident and independent individuals.
Young people with autism can be particularly susceptible to setbacks, often leading to depression and a sense of hopelessness. Using Social Stories (TM), this book introduces a different way of looking at common life setbacks, and offer tools to overcome these obstacles, build resilience and develop coping strategies for the future. Based on Carol Gray's highly effective Social Stories (TM) model, this new guide shows how to help individuals with autism deal with challenges specific to them, and how to bounce back from the negative experiences that they encounter. This book is an invaluable guide for learning to create personalised Social Stories (TM) that can be used to develop resilience in people with autism and help them to cope better with adversity.
Philip Quinlan was a promising 15-year-old athlete who packed his bags one Sunday morning in November 1989 to play a game of football. A day later, his mother was told he had a 25% chance to live. Part investigative tale, part time capsule, And a Bang on the Ear sees Philip painstakingly piece together the events that led up to, and followed, the accidental clash of heads that left him in a coma before waking up to 30 years of pain and paralysis. Full of hope and humour, rage and rehabilitation, this is an autobiography unlike any other.
Marc Fleisher's new self-help guide for autistic teenagers and adults will help readers improve their quality of life and overcome many everyday challenges, be it through the development of independent living skills, building a more varied and fulfilling social life, or mastering a course in higher education and broadening one's opportunities for the future. Marc Fleisher speaks from first hand experience about the coping strategies he himself has had to learn - often the hard way. Written particularly for young people who are just beginning to become independent from their parents, perhaps living in their own home for the first time, this book shows how to approach apparent problems with hope and the expectation of an improved quality of life. Survival Strategies is an invaluable source of advice and reassurance for people with ASDs across a wide age range. Other readers such as relatives and friends of people on the autism spectrum, and professionals such as educators or therapists will find it provides a host of new insights.
Counselling for Asperger Couples is the first book to provide a complete model for counselling couples where one partner has Asperger Syndrome (AS). The book provides details of the seven different stages of the model and includes anecdotal evidence from clients who have used it and whose relationships have been greatly helped by it. The author explains the importance of initial separate counselling and describes the co-counselling process, using case studies to demonstrate how the process works. The book offers a wealth of valuable advice on improving communication and cooperation and includes photocopiable activity sheets that couples can fill in and use to help understand each other better. Strategies and visual aids are also offered for dealing with or preventing anticipated future miscommunications. Based on considerable experience, this book will be invaluable for counsellors treating couples where one partner has Asperger Syndrome, or for couples that want to improve their relationship but may not have access to counselling. It will also be useful to teachers wanting better communication with AS pupils or parents wanting better communication with an AS child.
From the moment she first held her new-born son in her arms, Anne Crosby knew something was wrong with him. Although the staff at the London hospital dismissed her response as cruel and unmaternal, her instincts were correct: Matthew had Down syndrome. Struggling with feelings of shock and grief, Crosby determined that she would do whatever she could to help Matthew lead as full a life as possible. This is the moving, candid, insightful, and often surprising account of the life Matthew made with the help of his mother and other caring people. With her painter's eye for the colourful detail and a Dickensian ear for the voices of her characters, Crosby describes Matthew's family and friends, doctors and teachers - a large cast that includes Alice Strong, his Cockney caregiver, the famous child psychologist D W Winnicott, and Princess Anne, a benefactor of MacIntyre, Matthew's boarding school. Crosby evokes the forbidding atmosphere of Normansfield, the residential institution founded by the man who gave his name to Down syndrome; the spacious beauty of Mentmore, the country estate where she often took Matthew for outings; and the touching camaraderie of the hospital ward in which Matthew died of heart failure at twenty-four. In this remarkable memoir, Crosby also explores Matthew's inner life, revealing his playful mimicry and unexpected humour, his outbursts of affection and occasional fits of temper, his gallantry toward his first love, and his disappointment over the loss of his first job. Anne Crosby's portrait of her son gives us an abiding image of Matthew that deepens our understanding of what it means to be human.
Sharing the experience of bringing up a child with nonverbal learning disability (NLD), this warm and accessible book offers advice on subjects ranging across diagnosis and therapy, children's interaction with each other, suitable activities for a child with NLD and how to discuss NLD with children. An essential guide, this book will reassure, advise and inform parents and professionals who work with children with NLD. |
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