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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Fragile X syndrome is one of the main causes of child developmental delay and autism spectrum disorders. A premutated form of the same gene is also the basis for neurological disabilities in adults. This book breaks down the complex science of this genetic disorder and provides the facts and advice that every bewildered parent or professional needs to support individuals with Fragile X syndrome. This is a straightforward introduction that clearly explains the condition on both a scientific and practical level. With sections on diagnosis, symptoms and treatment, as well as discussions of various emotional and behavioural considerations, this guide covers all aspects of Fragile X syndrome, its implications, and the possibilities open to families affected by it. It demonstrates how, with the right therapies, progress can be made and emphasises how music can be used effectively to promote communication, interaction, fine motor skills and responsiveness in children with the condition. This is an essential reference tool for families of individuals with Fragile X syndrome, as well as therapists and healthcare professionals who are unfamiliar with the condition and are looking to find out more.
'What a story and what an inspirational human. Ed is a total legend.' Joe Wicks 'A life-affirming story . . . inspirational' Tim Peake As seen in the Daily Mail From tragedy to triumph, one step at a time - an inspirational story of triumph over adversity against the odds At just 28 years old, Ed Jackson was told he would never walk again. After a miscalculated dive into a pool, he suffered multiple cardiac arrests, a broken neck and a partially severed spinal cord. Lying paralysed in intensive care, the former rugby player knew his life would never be the same. But he wasn't ready to give up hope. Driven by relentless determination, Ed embarked on an incredible journey to independence. Millimetre by millimetre, he began to regain movement in his fingers and toes. Defying the expectations of even the most optimistic doctors, step by step, Ed began to walk again. Fuelled by a renewed appreciation for life and a determination to help others suffering similar injuries to his own, Ed set his sights on a new challenge: mountaineering. Embarking on a gruelling climb to raise funds for a spinal unit in Kathmandu, Ed realises that, once again, the odds are stacked against him. Will he be able to overcome his own life-changing injury and transform others' lives for the better? Lucky is the story of how Ed faced the impossible when it seemed all hope was lost, and shows how you, too, can overcome the biggest challenges that life sends your way. Lucky was a Sunday Times bestseller in the w/b August 9th 2021
This welcome guide explains how to treat tics and Tourette's syndrome using natural and alternative therapies, from nutritional therapy, behavioral and counseling therapies, EEG biofeedback, and homeopathy to bodywork, energy medicine, and Chinese medicine. Author Sheila Rogers discusses categories of tics including spasmodic facial movements, eye blinking, mild sounds, and humming. She persuasively counters the medical establishment's standard claim that such disorders are "mysterious" and based in genetics. The dramatic spike in cases, she argues, belies this explanation. "Natural Treatments for Tics and Tourette's "takes a closer look at the environmental factors and underlying physical imbalances that trigger these conditions' symptoms. In this second edition to "Tics and Tourette's: Breakthrough Discoveries in NaturalTreatments," Rogers offers a detailed natural treatment plan. No more will patients have to rely on traditional, drug-based treatments that often carry multiple side effects. In eight sections, the book offers advice from medical experts, the latest reports in medical research, a checklist of common tic triggers, inspirational stories from families who have successfully conquered tics and Tourette's, and practical worksheets for readers to use in their treatment and research. Each of the 23 chapters includes a place for notes and "Takeaway Tips" summarizing key points.
People with autism often experience difficulty in understanding and expressing their emotions and react to losses in different ways or in ways that carers do not understand. In order to provide effective support, carers need to have the understanding, the skills and appropriate resources to work through these emotional reactions with them. Autism and Loss is a complete resource that covers a variety of kinds of loss, including bereavement, loss of friends or staff, loss of home or possessions and loss of health. Rooted in the latest research on loss and autism, yet written in an accessible style, the resource includes a wealth of factsheets and practical tools that provide formal and informal carers with authoritative, tried and tested guidance. This is an essential resource for professional and informal carers working with people with autism who are coping with any kind of loss.
College life is particularly stressful for students with Asperger Syndrome (AS) and the resources that colleges provide for such students are often inadequate. This much needed guide provides information to help these students prepare successfully for the rites and rituals of studying, interact with staff and fellow students, cope with expectations and pressures, and understand their academic and domestic responsibilities. How will I cope with the workload? What do I do if I feel ill? How do I make friends and initiate relationships with the opposite sex? Drawing on first hand interviews with AS students and direct clinical experience, the authors address these and many other questions thoughtfully and thoroughly, making practical recommendations. Succeeding in College with Asperger Syndrome demystifies the range of college experiences for students with AS. It is a must for these students, their parents and counsellors alike, providing benefits that will continue throughout the college years and beyond.
The trauma of brain injury affects many people besides the injured one, and this book offers hope to all of them. A guide to psychological recovery after the loss and upheaval that follow such an event, this book is full of new ideas and experience -- something many survivors and their caregivers have run out of. In clear language and with easy-to-follow exercises, the authors lead the reader through the four stages of psychological recovery: becoming more self-aware, recovering emotionally, thinking in new ways, and changing behaviour.
" This book is an extremely easy read - no jargon or ambiguous clinical terms. It serves as an informative tool, by creating awareness through first hand accounts, which could be used by both sufferers and professionals." - Anxious Times `It is a highly readable book based largely on the experiences of the author...I would highly recommend it to all emetophobes. Equally, I would recommend it to friends and family of sufferers because it will help non-sufferers understand why emets act in the way we do and, via fascinating insights into how our minds work, why we find certain situations very difficult to cope with.' -www.gut-reaction.freeserve.co.uk, June 2007 Emetophobia, the extreme fear of vomiting, can affect just about every aspect of sufferer's life, from everyday considerations (`what food will be "safe" for me to eat?') to matters that involve making huge, potentially devastating decisions (`I can't have this baby, I can't face morning sickness'). Nicolette Heaton-Harris has first-hand experience of the phobia and its effects. She suggests strategies for coping with the high levels of anxiety that are intrinsic to the phobia, as well as pre-empting and avoiding anxiety attacks. The experiences of fellow sufferers of all ages, male and female, are shared throughout the book and a list of useful organisations providing further information and support services is also included. Living with Emetophobia is a must-have for anyone suffering from emetophobia, anyone living with an emetophobic as well as professionals treating or supporting people with emetophobia.
Challenging kids don't behave badly on purpose -- they are simply struggling to "catch up" in key areas of psychological and cognitive development. If your child or teen's emotional or behavioral difficulties are getting in the way of success at home, at school, or in social situations, this is the book for you. Dr. Michael Bloomquist has spent decades helping parents to understand acting-out kids and support their healthy development. In these pages, he presents tried-and-true ways you can build your 5- to 17-year-old's skills to: *Follow rules and behave honestly. *Curb angry outbursts. *Make and maintain friendships. *Express feelings productively. *Stay on task at school. *Resolve conflicts with siblings. *Manage stress. Loads of checklists, worksheets, and troubleshooting tips help you select and implement the strategies that meet your child's specific needs. You'll also build your own skills for parenting effectively when the going gets tough. Systematic, compassionate, and practical, the book is grounded in state-of-the-art research. The road to positive changes for your child and family starts here. Mental health professionals, see also the related title The Practitioner Guide to Skills Training for Struggling Kids.
'A great and inspiring book from Doncaster's bravest son. Read it in a day' - Jeremy Clarkson 'Ben is the embodiment of positive thinking. What he has achieved, in large part through willpower, is nothing short of miraculous. An inspiration to us all' - Ant Middleton The story of Ben Parkinson MBE, the most injured soldier to have survived Afghanistan --- What were you doing when you were 22? Where were you in the world? What did you want to do with your life? Ben Parkinson was a 6'4" Paratrooper. He was in Afghanistan fighting for his country. He wanted to always be a soldier, to be a father and to get home in one piece. But we don't always get what we want. So the question is: how do we react when that happens? Easy: You find something new to fight for. Ben Parkinson MBE is an inspiration to everyone. He suffered 37 injuries when his Land Rover hit a mine in Helmand in 2006, including brain damage, breaking his back and losing both his legs. This book follows the story of what led him to that moment his life changed forever - and what happened next. Doctors didn't think Ben could survive the trauma - then they didn't think he would wake up, or talk again, or walk again. Time after time, Ben pushed the ceiling on what was possible, going on to carry the Olympic flame in 2012 and receiving an MBE for the enormous feats he has undertaken for charity. What he has achieved in the face of adversity - for others as well as for himself - is nothing short of a miracle. Nerve-wracking, heart-warming and full of classic soldier's humour, Losing the Battle, Winning the War is a book you'll be thinking about long after the last page. 'Ben Parkinson is my hero. His story is one of immeasurable courage and character, a testament to the extraordinary resilience of the human spirit' - Dan Jarvis MP, author of Long Way Home
This book offers a comprehensive overview of clinical, research and personal perspectives on Asperger Syndrome, including contributions from parents and experts in the fields of psychology, social work, psychiatry, genetics, sexology and vocational counselling. It includes first-hand accounts from adults with AS, highlighting their difficulties in areas such as social competence and education. Specialist perspectives on AS, including sexuality and relationships, finding and keeping employment and anxiety and depression are sensitively addressed. The viewpoints of parents explore experiences of parenting AS individuals. These varied approaches to living with AS complement the emerging literature on theory, research and practice in this area. The broad scope of Children, Youth and Adults with Asperger Syndrome guarantees a wide readership among practitioners, students, parents, young people and adults with AS, educates service providers how to assist people with AS and suggests a model of interdisciplinary collaboration for administrators and funders.
Communication is one of the biggest challenges faced by people with Asperger's Syndrome (AS), yet an Asperger marriage requires communication more than any other relationship. Thousands of people live in Asperger marriages without knowing the answers to important questions such as `What behaviours indicate that my spouse has AS?' `Is it worthwhile to get a diagnosis?' `Is there hope for improvement?' Katrin Bentley has been married for 18 years. Since receiving her husband's diagnosis of AS, their marriage has improved substantially. They learnt to accept each other's different approaches to life and found ways to overcome problems and misunderstandings. Today they are happily married and able to communicate effectively. Alone Together shares the struggle of one couple to rescue their marriage. It is uplifting and humorous, and includes plenty of tips to making an Asperger marriage succeed. This book offers couples hope, encouragement and strategies for their own marriages.
Auditory Processing Disorder (APD) is a debilitating neurological condition in which the brain is unable to effectively process sounds and speech. An estimated 5 - 10% of children are affected uniquely. APD can have a significant impact on all aspects of lifelong communication. This authoritative guide includes advice on how to identify, diagnose and support the condition in children, teenagers and adults. It provides everyday strategies based on 20 years of research to try at home, at school and at work. This book aims to help families, teachers and other professionals to understand and support those living with this complex invisible disability. Containing supportive case studies, the book addresses a range of prevalent issues, including relationships, self-esteem, confidence and mental health, making this a comprehensive guide for all things APD.
Over 500,000 people of all ages in the UK have disorders in the autistic spectrum. About one-third also have varying degrees of learning difficulty. All of them have impairment of social interaction, communication and imagination - to them the world appears a bewildering and sometimes frightening place. This guide explains how people with autism experience the world and why they need an organized, structured environment. Ways of improving communication, developing abilities and enlarging social interaction are described, and advice is given on coping with stresses within the family.
This hands-on practical guide provides dyslexic young people with techniques to improve their observational drawing skills, showing them how they can work around the issues commonly reported by students with SLDs. Many creative and talented individuals with neurological differences report difficulties with short-term memory, co-ordination and planning ahead within a project, and a lack of specialised teaching may even dissuade them from pursuing art at school. This book addresses those challenges. The authors, who have many years' experience of teaching art to dyslexic and dyspraxic students, also include examples not just of the techniques described, but also of the creative ideas other neurodiverse students have come up with. Fully illustrated, with clear explanations, and space to draw and sketch, this much needed book will provide dyslexic art students with the tools and confidence to achieve their goals and become the creative professionals of the future.
Written by internationally renowned autism trainer, teacher, and advocate and best-selling author Catherine Faherty, the workbook is engaged by the autistic child or adult to enhance self-understanding and awareness and foster communication with others about needs, preferences, and identity. Almost every facet of a person's life is explored, including areas particular to autism, and areas every person engages with. Among these are: Ways of thinking, including focused interests Perfection versus doing your best The support of schedules Sensory experience, including stimming Creative expression Learning about and interacting with people Writing Social Stories Understanding speech and expressions in others Types of communication, including verbal or nonverbal Self-advocacy and miscommunication Supportive structures for school and approaching ieps Friendship, play, online acquaintances and safety Emotions, including feeling anxious or upset, depression, and outbursts The book concludes with an extended section on happiness, including relaxation, exercise, gratitude, forgiveness, kindness, positive attitude, and making the world a better place. Extensive materials designed especially for older readers, as well as for parents, therapists, and teachers, are included. Understanding what's actually true and supporting acceptance and appreciation form the cornerstones of Catherine's approach and the workbook. This new book is completely updated and revised from the original edition with the "Asperger's" title. It adds more than 150 pages of brand new material and worksheets.
'A great and inspiring book from Doncaster's bravest son. Read it in a day' - Jeremy Clarkson 'Ben is the embodiment of positive thinking. What he has achieved, in large part through willpower, is nothing short of miraculous. An inspiration to us all' - Ant Middleton The story of Ben Parkinson MBE, the most injured soldier to have survived Afghanistan --- What were you doing when you were 22? Where were you in the world? What did you want to do with your life? Ben Parkinson was a 6'4" Paratrooper. He was in Afghanistan fighting for his country. He wanted to always be a soldier, to be a father and to get home in one piece. But we don't always get what we want. So the question is: how do we react when that happens? Easy: You find something new to fight for. Ben Parkinson MBE is an inspiration to everyone. He suffered 37 injuries when his Land Rover hit a mine in Helmand in 2006, including brain damage, breaking his back and losing both his legs. This book follows the story of what led him to that moment his life changed forever - and what happened next. Doctors didn't think Ben could survive the trauma - then they didn't think he would wake up, or talk again, or walk again. Time after time, Ben pushed the ceiling on what was possible, going on to carry the Olympic flame in 2012 and receiving an MBE for the enormous feats he has undertaken for charity. What he has achieved in the face of adversity - for others as well as for himself - is nothing short of a miracle. Nerve-wracking, heart-warming and full of classic soldier's humour, Losing the Battle, Winning the War is a book you'll be thinking about long after the last page. 'Ben Parkinson is my hero. His story is one of immeasurable courage and character, a testament to the extraordinary resilience of the human spirit' Dan Jarvis MP, author of Long Way Home
The story of how Abdel Sellou (a charismatic ex-con) came to be the caretaker of Philippe Pozzo di Borgo (a paralyzed French aristocrat) inspired the award-winning French movie Les Intouchables (2012), which became an international phenomenon and broke records as one of the most successful French movies of all time. Now, The Upside, the American remake of Les Intouchables, starring Kevin Hart, Bryan Cranston, and Nicole Kidman will be released in both the US and the UK in January 2019. Abdel Sellou and Philippe Pozzo di Borgo were two people marginalized by society: Sellou a wisecracking, unemployed immigrant, just out on parole; Pozzo a man born to wealth and privilege, recently paralyzed from the neck down after a paragliding accident. How they came to help each other, and the unlikely friendship that became a lifeline for them both, is an uplifting story that's now been told and retold around the world. |
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