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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
One 'alone, but not lonely' boy's triumph over adversity, motivated
by his dream of becoming a professional footballer and a longing
for truth and connection. Street's childhood memoir is a sensitive
and honest portrayal, through a poetic autistic lens, of growing up
with learning differences and epilepsy in an unconventional family
during the 1950s and 60s. A unique and vivid social document of the
period, highlighting much of the discrimination still faced by
minority and disabled communities today.
Ilana Estelle grew up not knowing she had a disability, not knowing
she had cerebral palsy... and it took forty-six years for her to
find out. Spirituality has helped Ilana on her journey and in her
new book, Spirituality, Healing and Me, she uses her experience of
mental and physical disability in the healing process, to create
positivity and healing for others. Packed with inspiring messages
and real-life vignettes, Ilana's book shows how spirituality can
help us cope with the modern world and reset our moral compass.
Based on her own experiences of spirituality and healing, she shows
how focusing on values such as understanding, compassion,
tolerance, creativity and acceptance can help us find our inner
calm. This book will help you to: - Improve emotional balance and
wellness - Boost confidence and self-esteem - Stay self-aware,
grounded and patient - Appreciate life and each other - Accept
changing circumstances - Enhance positive emotions and personal
healing
Deep inside everyone, a red beast lies sleeping. When it is asleep,
the red beast is quite small, but when it wakes up, it begins to
grow and grow. This is the story of a red beast that was awakened.
Danni is in the school playground when his friend, Charlie, kicks a
ball that hits him in the stomach, waking up the sleeping red
beast: `I hate you - I'm gonna get you!'. The red beast doesn't
hear the teacher asking if he's okay. It doesn't see that Charlie
is sorry - how can Danni tame the red beast? The second edition of
this vibrant fully illustrated children's storybook is written for
children aged 4-9, and has been updated with inclusive up-to-date
language and new illustrations to make sure every child's red beast
can learn to be tamed! This is an accessible, fun way to talk about
anger, with useful tips about how to 'tame the red beast' and
guidance for parents on how anger affects children who struggle to
regulate their emotions.
Being diagnosed with autism as an adult can be disorienting and
isolating; however, if you can understand the condition and how it
affects perceptions, relationships, and your relationship with the
world in general, a happy and successful life is attainable.
Through an introduction to the autism spectrum, and how the Level 1
diagnosis is characterised, the author draws on personal
experiences to provide positive advice on dealing with life,
health, and relationships following an adult diagnosis. The effect
of autism on social skills is described with tips for dealing with
family and personal relationships, parenting, living arrangements,
and employment. Important topics include disclosure, available
resources, and options for different therapeutic routes. On reading
this book, you will learn a lot more about the autism spectrum at
Level 1, be able to separate the facts from the myths, and gain an
appreciation of the strengths of autism, and how autism can affect
many aspects of everyday life. Drawing from the author's lived
experience, this book is an essential guide for all newly diagnosed
adults on the autism spectrum, their families and friends, and all
professionals new to working with adults with ASDs.
For people with ASDs, depression is common, and has particular
features and causes. This outstanding book provides a comprehensive
review of these aspects, and an effective self-help guide for
anyone with an autism spectrum disorder (ASD) affected by
depression. Written by the leading experts in the field, the book
explains and describes depression, the forms it can take, and how
it looks and feels for a person on the autism spectrum. The authors
draw on the latest thinking and research to suggest strategies for
coping with the effects of depression and provide a complete
step-by-step CBT self-help programme, designed specifically for
individuals with ASDs. The programme helps increase self-awareness,
including identifying personal triggers, and provides the tools to
combat depression.
Challenging existing approaches to autism that limit, and sometimes
damage, the individuals who attract and receive the label, this
book questions the lazy prejudices and assumptions that can
surround autism as a diagnosis in the 21st Century. Arguing that
autism can only be understood through examining 'it' as a socially
or culturally produced phenomenon, the authors offer a critique of
the medical model that has produced a perpetually marginalising
approach to autism, and explain the contradictions and difficulties
inherent in existing attitudes. They examine and dispute the
scientific validity of diagnosis and 'treatment', asking whether
autism actually exists at the biological level, and question the
value of diagnosis in the lives of those labelled with autism. The
book recognises that there are no easy answers but encourages
engagement with these essential questions, and looks towards
service provision and practice that moves beyond a reliance on
all-encompassing labels. This unique contribution to the growing
field of critical autism studies brings together authors from
clinical psychiatry, clinical and community psychology, social
sciences, disability studies, education and cultural studies, as
well as those with personal experiences of autism. It is essential
and challenging reading for anyone with a personal, professional or
academic interest in 'autism'.
'A hymn to life, love, family, and spirit' DAVID MITCHELL, author
of Cloud Atlas The vividly told, gloriously illustrated memoir of
an artist born with disabilities who searches for freedom and
connection in a society afraid of strange bodies. ***WINNER OF THE
BARBELLION PRIZE*** ***SHORTLISTED FOR THE NATIONAL BOOK CRITICS
CIRCLE AWARD*** In 1958, amongst the children born with spina
bifida is Riva Lehrer. At the time, most such children are not
expected to survive. Her parents and doctors are determined to
'fix' her, sending the message over and over again that she is
broken. That she will never have a job, a romantic relationship, or
an independent life. Enduring countless medical interventions, Riva
tries her best to be a good girl and a good patient in the quest to
be cured. Everything changes when, as an adult, Riva is invited to
join a group of artists, writers, and performers who are building
Disability Culture. Their work is daring, edgy, funny, and dark-it
rejects tropes that define disabled people as pathetic,
frightening, or worthless. They insist that disability is an
opportunity for creativity and resistance. Emboldened, Riva asks if
she can paint their portraits-inventing an intimate and
collaborative process that will transform the way she sees herself,
others, and the world. Each portrait story begins to transform the
myths she's been told her whole life about her body, her sexuality,
and other measures of normal. Written with the vivid, cinematic
prose of a visual artist, and the love and playfulness that defines
all of Riva's work, Golem Girl is an extraordinary story of
tenacity and creativity. With the author's magnificent portraits
featured throughout, this memoir invites us to stretch ourselves
toward a world where bodies flow between all possible forms of what
it is to be human. 'Riva Lehrer is a great artist and a great
storyteller. This is a brilliant book, full of strangeness, beauty,
and wonder' AUDREY NIFFENEGGER 'This astonishing, heart soaring and
often shocking memoir of a Jewish woman with spina Bifida born in
the 50's is bright and dark, terrifying and wonderful. An ode to
art and the beauty of disability' CERRIE BURNELL
This collection of narratives from autistic adults is structured
around their decades of experience of life, covering 20s, 30s, 40s,
50s, 60 and 70s+. These are varied and diverse, spanning different
continents, genders, sexualities and ethnicities, yet the author
highlights the common themes that unite them and skilfully draws
out these threads. Each chapter is based on accounts from one age
group and includes accounts from people of that age, giving an
insight into the history of autism and signifying how gaining a
diagnosis (or not) has changed people's lives over time. The book
is about ageing with an autistic mind, and helping the reader find
connections between neurotypical and neurodiverse people by
acknowledging the challenges we all face in our past, present and
futures.
The transition from high school to adulthood is one of the most
challenging times for young people on the autism spectrum. What
will happen when all their familiar teachers, educational
assistants and friends disappear after graduation? Who will replace
them in the adult world? How will they manage this drastic change?
Drawing on her experiences as the mother of a child on the autism
spectrum and a child psychiatrist, Katharina Manassis shares common
transition-related challenges and offers real solutions for each.
The book helps parents and teens plan for every stage of the
journey. The book includes discussion of what a successful
transition means and how to set realistic goals. It explores
specific aspects of the transition such as employment, independence
and social life, and looks at how to address long-term concerns
such as living arrangements and financial support.
A resource of fun games for parents or teachers to help young
children learn social and motor skills
Barbara Sher, an expert occupational therapist and teacher, has
written a handy resource filled with games to play with young
children who have Autistic Spectrum Disorder (ASD) or other sensory
processing disorders (SPD). The games are designed to help children
feel comfortable in social situations and teach other basic lessons
including beginning and end, spatial relationships, hand-eye
coordination, and more. Games can also be used in regular
classrooms to encourage inclusion.A collection of fun, simple games
that can improve the lives of children with ASD or other SPDs.Games
can be played by parents or teachers and with individual children
or groups.Games are designed to make children more comfortable in
social situations and to develop motor and language skillsAlso
included are a variety of interactive games to play in water,
whether in a backyard kiddie pool, community swimming pool, or
lakeAll the games are easy-to-do, utilizing common, inexpensive
materials, and include several variations and modifications
"A skilled science translator, Denworth makes decibels, teslas and
brain plasticity understandable to all."-Washington Post Lydia
Denworth's third son, Alex, was nearly two when he was identified
with significant hearing loss that was likely to get worse.
Denworth knew the importance of enrichment to the developing brain
but had never contemplated the opposite: deprivation. How would a
child's brain grow outside the world of sound? How would he
communicate? Would he learn to read and write? An acclaimed science
journalist as well as a mother, Denworth made it her mission to
find out, interviewing experts on language development, inventors
of groundbreaking technology, Deaf leaders, and neuroscientists at
the frontiers of brain plasticity research. I Can Hear You Whisper
chronicles Denworth's search for answers-and her new understanding
of Deaf culture and the exquisite relationship between sound,
language, and learning.
The ability to speak is an important part of human interaction. In
this book, a glimpse into the lived realities of 37 adults and 3
children with communication disorders whose humanism is somewhat
compromised by their speech, language, or voice disorders is
offered in humorous and heartbreaking detail. The patient's
struggle to communicate is often matched by their listeners, who
are struggling to understand. Stories are presented of patients
treated in medical settings for such problems as aphasia, dementia,
Parkinson's disease (PD), amyotrophic lateral sclerosis (ALS) and
other CNS diseases, apraxia, and head trauma. Other stories look at
people who were treated in university clinics for such disorders as
cerebral palsy and stuttering. The last few stories look at
speech/voice treatment for a transgender woman, the loss of voice
in a young man in a state penitentiary, and finally a humorous
story of a pilot with left hemiplegia flying the author. Seasoned
specialist Daniel Boone does not offer therapy suggestions for
either the SLP or the patient's family or friends to try. Rather,
for anyone with a communication disorder, he strongly recommends
that such patients should seek the guidance and therapy of an
ASHA-certified speech-language pathologist (SLP). The SLP
determines what to do in therapy and practice. The stories
illustrate the struggles of those who cannot always make their
listeners understand. They may only be able to repeat the same
phrase over and over. They may not be able to articulate words
clearly enough to be understood. They may give bizarre, confusing
answers to everyday questions. Taken together, they also illustrate
the difficulties listeners, those who wish to understand, have in
trying to make heads or tails of the intended communication.
Ultimately, this work provides a sensitive look at the various
disorders people have, their attempts to overcome them, the
treatments that might be available, and the actions listeners can
take in making communication easier and more productive.
Parenting an autistic child as a neurotypical adult can be
challenging but it doesn't need to feel impossible! This essential
guide will help you reshape your approaches to parenting. Packed
with lived-experience insight and easy-to-follow advice this
transformative guide will change how you view the behaviour of your
autistic child and challenge you to rewire your thinking to see the
world through the autistic lens. This guide challenges the common
misunderstandings surrounding autistic behaviour, such as emotional
dysregulation in public settings or meltdowns at mealtimes. Parents
and carers will be given a deeper understanding of why your child
behaves the way they do and how a change in your parenting approach
is key to relax and resolve difficult situations. This book gives
you all the tools you need to not only parent your autistic child,
but also to understand them. With tips on how to support and
interpret emotional dysregulation, meltdowns, food aversions and
much more, you will learn how to see the world through your child's
eyes, using communication techniques that will help you and your
child thrive.
Meet Harry - a young boy who stutters. Harry invites readers to
learn about what it is like to stutter from his perspective and how
it affects his daily life and makes him feel. He talks about
techniques that can help reduce stuttering and describes how
friends, family and others can help him to feel at ease and reduce
his stutter further. This illustrated book is full of useful
information and will be an ideal introduction for young people,
aged 7 upwards, as well as parents, friends, teachers and speech
therapists working with children who stutter. It is also an
excellent starting point for group discussions at home or school.
The purpose of special needs planning is to create the best
possible life for an adult with a disability. This book provides
comprehensive guidance on creating a life plan to transition a
special needs child to independence or to ensure they are well
cared for in the future. Beginning with a vision of a meaningful
life for the child, Hal Wright explains how to form a practical
plan to reach these goals, how to mentor personal empowerment and
task skills, and how to create circles of support to sustain a life
plan. He next looks at employment and residential options, and
government programs available in the United States. Finally he
talks the reader through important financial and legal
considerations, including how to fund and manage a special needs
trust. This book will be essential reading for all parents or
guardians of a child with a cognitive, mental or physical
impairment. It will also be of interest to attorneys, financial
planners, insurance agents, trust officers and other professionals
looking to better serve the special needs community.
A four-stage programme for parents and families looking to
introduce a dog into their home for the therapeutic and practical
benefits that can be brought to a child with autism, including
development of communication skills and toilet training. Based on
first-hand knowledge, the programme was created through the
successful experience the author had bringing up two children at
opposite ends of the autism spectrum. This guide is comprehensive
and highly practical, with case examples, tips and advice
throughout. It covers all aspects of responsible ownership and
training of the dog as a companion dog, and it provides tips
throughout the dog's entire life cycle. Accessible for families and
professionals alike, this innovative programme can have a huge
impact on the life of children with disabilities.
Growing up with Asperger Syndrome (AS) can throw up all sorts of
challenges, but never fear, The Brain Guru, The Sensory Detective
and The Social Scientist are here to help! These likeable
characters guide children with AS through some of the trickiest,
stickiest conundrums known to humankind: from anxiety and negative
thinking, to sensory overload, emotions, friendship and trust and
social situations. By working through the activities and using the
cut-out-and-keep tools with a parent, carer or teacher, children
with AS will learn how to build upon their strengths and develop
techniques for coping with areas of difficulty - as well as how to
handle setbacks and celebrate successes along the way! The
important topic of staying safe in the digital world is also
covered, providing children with the knowledge and know-how they
need to use the internet, social networking and text messaging
safely. Original and highly interactive, with attractive colour
illustrations throughout, this is an essential toolkit for every
family with a child with AS.
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