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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Children enter the school doors today with many diverse needs: mental health problems, ADHD, anxiety, victims of physical or sexual abuse, homelessness, or facing some other type of trauma. Teachers in today's classrooms are struggling to understand the needs of their students and to provide a supportive and nurturing environment, while maintaining structure and routine. In whatever setting students are, teachers must understand the challenges that students come to school facing, know how to assess the needs of the children, build positive relationships with them, collaborate with others, and take care of themselves. This first book in a two book volume explores the needed components in setting the stage for meeting the needs of the students. The teachers who serve these children need a comprehensive set of tools to meet their needs. This volume, along with the second one that provides the specific interventions that teachers will need to implement, is that comprehensive resource for educators.
One of the perennial political/philosophical questions concerns whether it is ever justifiable for a third party to paternalistically restrict an adult's freedom to ensure their own, or society's, best interests are protected. Wherever one stands on this debate it remains the case that, unlike their non-impaired contemporaries, many intellectually disabled adults are subjected to a paternalistic regime of care. This is particularly the case regarding members of this population exercising more control of their sexuality. Utilizing rare empirical data, Foucault's theory of power and Kristeva's concept of abjection, this work shows that many non-disabled people - including family members - hold ambivalent attitudes towards people with visible disabilities expressing their sexuality. Through a careful examination of the autonomy/paternalism debate this is the first book to provide an original, provocative and philosophically compelling analysis to argue that where necessary, facilitated sex with prostitutes should be included as part of a new regime of care to ensure that sexual needs are met. Intellectual Disability and the Right to a Sexual Life is essential reading for scholars, students and policy-makers with an interest in philosophy, sociology, political theory, social work, disability studies and sex studies. It will also be of interest to anybody who is a parent or a sibling of an adult with an intellectual disability and those with an interest in human rights and disability more generally.
Roy lost his first leg at six years of age and his second leg at twenty-one. He had little schooling and walked with artificial legs, refusing to use a wheelchair until he was forty-six. As told through conversations with Richard Dunn, the reader gets to know Roy's fulfilled and incredible life-story and how he has, over the years, helped those less fortunate than himself.
Ten years after the results of the Cash and Counseling Demonstration and Evaluation were released, this book assesses the impact of this study, which developed individualized plans for helping people with disabilities to stay independent in the community. The study was the first wide-scale test of people with disabilities managing their own budgets and results from the random-controlled trial demonstrated significant positive outcomes, encouraging the US federal and state governments to provide this option as part of their community-based care programs. This volume looks at what people with disabilities and their caregivers are saying about this option ten years removed from the study, and what the latest research shows in terms of what it will take to improve this approach, making the option available for all people with disabilities. The contributions also discuss what needs remain unmet even when people can manage their own budgets, and present participants' and their family caregivers' views on what support broker activities really help (or hurt). Finally, the book summarizes the results of a project involving the Council of Social Work Education and nine schools of social work to develop modules to train future social workers on person-centred planning and participant direction. Of interest to those researchers studying social care with a focus on disabilities, this book would also be of use to those training social workers and support staff. The chapters in this book were originally published in the Journal of Gerontological Social Work and Home Health Care Services Quarterly.
Meet Harry. Harry likes to play football, climb trees, and hang out with friends, but Harry doesn't like reading. That is until his teacher explains that Harry has dyslexia, which makes things like reading and writing particularly hard for him - and with help from his mum, teacher and an educational psychologist, Harry learns specific strategies for reading with dyslexia. This delightful picture book for children aged 5-11 includes tips for reading with dyslexia and lovable, supportive characters who show that it's ok to discuss dyslexia and to seek help when needed.
WHEELS OF COURAGE reveals the never-before-told story of the world's first wheelchair athletes: U.S. soldiers, sailors, and Marines who were paralysed on the battlefield during World War II. They organised the first-ever wheelchair basketball teams within V.A. hospitals after the war, which quickly spread across the nation and changed the perception and treatment of disabled people. The book tells this story through the lens of three of these vets, describing their time in the military, their injuries, their recovery, and their role in creating wheelchair basketball. These men changed the narrative of disability, from pity for people whose lives were over to seeing them as capable people who happened to have a disability. Their doctors changed the way the medical community looked at and treated disabled patients by treating the whole patient instead of just trying to make the patient as comfortable as possible in a hopeless situation. And laws started changing to make the world more accessible to the disabled -- things we take for granted today, like sidewalk ramps. For the disabled, for sports fans, for veterans, for history buffs -- this is a narrative of hope, perseverance, and acceptance.
This book sets out to understand how students with disabilities experience higher education and the transition to the workplace. It foregrounds the voices of students and graduates in order to explore identity, inclusion, participation and success of youth with disabilities in higher education, as well as their transition from university to employment. The author proposes a new understanding of disability, considered in terms of a continuum of abilities, balancing empirical data, theory and policy analysis with specific regard to the interests of youth with disabilities, making a unique contribution to discussions on access, inclusion and success in higher education and employment. These discussions inform social development and educational policy planning and implementation, not only in South Africa, but also in countries with a similar context, particularly in terms of remedial courses of action that bring social justice to people with disabilities. Students with Disabilities and the Transition to Work will be of interest to all scholars and students working in the fields of disability studies, particularly those with a focus on critical disability studies and disability in the global south, as well as those working in higher education, sociology, development studies and social policy.
Current understandings of ageing and diversity are impoverished in three main ways. Firstly, with regards to thinking about what inequalities operate in later life there has been an excessive preoccupation with economic resources. On the other hand, less attention has been paid to cultural norms and values, other resources, wider social processes, political participation and community engagement. Secondly, in terms of thinking about the 'who' of inequality, this has so far been limited to a very narrow range of minority populations. Finally, when considering the 'how' of inequality, social gerontology's theoretical analyses remain under-developed. The overall effect of these issues is that social gerontology remains deeply embedded in normative assumptions which serve to exclude a wide range of older people. Ageing, Diversity and Equality aims to challenge and provoke the above described normativity and offer an alternative approach which highlights the heterogeneity and diversity of ageing, associated inequalities and their intersections. The Open Access version of this book, available at https://www.taylorfrancis.com/books/9781351851329, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 licence.
Approximately 2.5 million people in the United States--one percent
of the population--have an intellectual disability (previously
referred to as mental retardation). These conditions range from
genetic disorders such as Down syndrome to disabilities caused by
infectious diseases and brain injury. Intellectual Disability: A
Guide for Families and Professionals, by one of the country's
foremost authorities on intellectual disability, is a comprehensive
resource that will be of importance to anyone with a personal
connection to a child or adult with a neurodevelopmental disorder.
The social position of learning disabled people has shifted rapidly over the last 20 years, from long-stay institutions, first into community homes and day centres, and now to a currently emerging goal of "ordinary lives" for individuals using person-centred support and personal budgets. These approaches promise to replace a century and a half of "scientific" pathological models based on expert assessment, and of the accompanying segregated social administration which determined how and where people led their lives, and who they were. This innovative volume explains how concepts of learning disability, intellectual disability and autism first came about, describes their more recent evolution in the formal disciplines of psychology, and shows the direct relevance of this historical knowledge to present and future policy, practice and research. Goodey argues that learning disability is not a historically stable category and different people are considered "learning disabled" as it changes over time. Using psychological and anthropological theory, he identifies the deeper lying pathology as "inclusion phobia", in which the tendency of human societies to establish an in-group and to assign out-groups reaches an extreme point. Thus the disability we call "intellectual" is a concept essential only to an era in which to be human is essentially to be deemed intelligent, autonomous and capable of rational choice. Interweaving the author's historical scholarship with his practice-based experience in the field, Learning Disability and Inclusion Phobia challenges myths about the past as well as about present-day concepts, exposing both the historical continuities and the radical discontinuities in thinking about learning disability.
Efforts to reduce discrimination and increase diversity on campuses, coupled with shrinking budgets causing administrators to devote more resources toward recruiting and retaining students with disabilities, are fuelling an explosion of research in the area of inclusive education. An important focus that has been largely neglected is the place of teachers with disabilities in academe. International Perspectives on Teaching with Disability brings together 25 multi-disciplinary scholars with disabilities from Africa, Canada, the Caribbean, the UK, Israel and the United States to share their struggles and successes in teaching with disability. The 18 chapters are written largely from autoethnographic perspectives grounded in solid academic research but full of anecdotes and self-reflexive narratives that provide insights into the lived experiences of the authors. Woven into the narratives are discussions of the complexities of self-disclosure and self-advocacy; the varied-and often problematic-ways disability is experienced, perceived and discussed in society and in the classroom; the challenges of navigating academe with disability, the value of disability pedagogy, the positive student outcomes achieved by teaching through disability, as well as practical applications and lessons learned that will benefit educators, administrators and students preparing to become teachers. This book is written to champion the integral place and role of disabled educators in academe. Current educators with disability will be affirmed. Those with disability aspiring to become teachers will be encouraged. Temporarily able-bodied administrators and educators will be challenged. Everyone will be informed. This book will be a welcome addition to reading lists in a wide array of academic fields including: Education, Pedagogy, Disability Studies, Human Resources Management, and Sociology.
This book teaches drama and immersive theatre-based activities for parents and professionals working with children and young people on the autism spectrum. The exercises follow the author's simple, person-centred '3C pathway' of connecting, calming and communicating, and enable parents to gain an understanding of the challenges an autistic child may face by 'walking in their shoes', while empowering children to become more self-aware and express themselves in healthy ways. The activities included in the book are tried-and-tested, accessible and easy to implement, such as breathing exercises, mirroring movements, and treasure hunts. Using these activities, parents and professionals can gain insight into the sensory and social challenges experienced by those on the spectrum and can work to build a positive and trusting relationship, offering a secure base for children's emotional development.
This practical resource is designed to help professionals, parents, and carers on their journey to independence with children and young people with vision impairments. Building on the ideas and practices introduced in Supporting Life Skills for Young Children with Vision Impairment and Other Disabilities, this book addresses middle childhood, the period from when the child starts school, through to the onset of puberty. It offers a wealth of practical strategies and activities to enhance key skills, including personal safety, advanced dressing, personal hygiene, dealing with puberty, social skills, time, money and organisational skills, eating, drinking and food preparation skills, and the transition to secondary school. This book: Addresses the main independent living skills areas for vision impaired children in middle childhood, by providing simple explanations of skills and offering practical strategies and techniques to support progression onto the next stage Is written in a fully accessible style, with photocopiable pages and additional downloadable eResources Provides a variety of documentation to chart the child's development and show progress over time This invaluable resource puts the changes that occur during middle childhood into context and will help busy professionals, families and carers start preparing children with a vision impairment for adulthood, allowing them to become confident and independent individuals.
Patienthood and Communication is an engagingly personal narrative detailing the author's experience living with, and adapting to, a degenerative and incurable eye disease (MacTel). Beyond the personal, this poignant story more broadly illustrates the ways in which communication enables individuals to adjust to serious health threats. Author and subject Peter Kellett highlights his important interactions with health care providers, family members, friends, colleagues, students, and others that provide shape to his journey. Kellett displays a compelling capacity for self-reflection in his descriptions of the life changes his vision loss imposes upon him, among them changes to his identity, in relationships and life plans. Adaptation and flexibility reveal themselves as central tenets of his learning to become a self-empowered patient. Perhaps the most crucial element to his adjustment is, however, positive communication, which is depicted throughout the book as the driving force in Kellett's journey into patienthood.
Patienthood and Communication is an engagingly personal narrative detailing the author's experience living with, and adapting to, a degenerative and incurable eye disease (MacTel). Beyond the personal, this poignant story more broadly illustrates the ways in which communication enables individuals to adjust to serious health threats. Author and subject Peter Kellett highlights his important interactions with health care providers, family members, friends, colleagues, students, and others that provide shape to his journey. Kellett displays a compelling capacity for self-reflection in his descriptions of the life changes his vision loss imposes upon him, among them changes to his identity, in relationships and life plans. Adaptation and flexibility reveal themselves as central tenets of his learning to become a self-empowered patient. Perhaps the most crucial element to his adjustment is, however, positive communication, which is depicted throughout the book as the driving force in Kellett's journey into patienthood.
First published in 1984, this book focuses on the support and reassurance needed by parents of children with handicaps. It provides a practical guide in relation to daily care and is equally as relevant to professionals, therapists, teachers, doctors and psychologists who must advise parents. Written by an Occupational Therapist, the book highlights the need to make such children as independent as possible and gives advice on care of a special baby, modifications to the home environment, the needs of a child with a physical handicap, problems of educational handicap, and the place of a child in the family and community.
First published in 1990, this book was the first informed study to focus on care within the voluntary sector. Written with the child in mind, it is a sensitive work which explores the administration, strategy, and problems facing carers in children's homes, at that time. Centring on small, community-based facilities, the authors discuss the processes involved in setting up and running such facilities. They examine the difficulties of evaluating progressive services that are influenced by the philosophy of normalisation, and highlight the lessons from which other providers of services are able to learn. Written by experienced researchers with contributions from service managers, Normalisation in Practice offers pragmatic advice on managing innovation efficiently without neglecting the needs of the child. Detailed interviews are combined with theoretical insight to provide an important guide for students and practitioners and a model for academics undertaking evaluative research. Although written at the start of the 1990s, this book contains discussions and material that are still very relevant to the subject today.
First published in 1986, this study explores the increased public concern with policies of 'community care' and their effects on informal carers, at that time. It looks at the widespread evidence that one particular group of informal carers- parents looking after their severely disabled child- lack information, advice and a co-ordinated pattern of supporting services. The author, who carried out research on disabled children and their families for a number of years, describes in detail a low-cost experimental project in which specialist social workers set out to remedy these shortcomings. Drawing on the results of this particular study, the author argues strongly for widespread assignment of 'key' social workers to this and other groups of informal carers. Despite being written in the mid-1980s, this book discusses topic that will still be of interest and use today.
Disabled women represent one of the most marginalised minority groups in the world, hence they are largely silent while their sexuality is ignored, suppressed, forbidden and buried underneath the carpet. Until recently, most of the Global Northern published literature on the subject of the sexuality of disabled women has predominantly been constructed from hearsay and second-hand narratives in studies which draw from the perspectives of parents, service providers and advocates, without much consultation of the relevant women. By facilitating the voice of disabled women in Zimbabwe and illuminating their experiences of sexuality, this book hopes to shift the experiences of sexuality of disabled women from the periphery of society to the fore.
One of BookRiot's Ten Best Disability Books of 2023. A manifesto exploding what we think we know about disability, and arguing that disabled people are the real experts when it comes to technology and disability. When bioethicist and professor Ashley Shew became a self-described “hard-of-hearing chemobrained amputee with Crohn’s disease and tinnitus,” there was no returning to “normal.” Suddenly well-meaning people called her an “inspiration” while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don’t want what the abled assume they want―nor are they generally asked. Almost everyone will experience disability at some point in their lives, yet the abled persistently frame disability as an individual’s problem rather than a social one. In a warm, feisty voice and vibrant prose, Shew shows how we can create better narratives and more accessible futures by drawing from the insights of the cross-disability community. To forge a more equitable world, Shew argues that we must eliminate “technoableism”―the harmful belief that technology is a “solution” for disability; that the disabled simply await being “fixed” by technological wizardry; that making society more accessible and equitable is somehow a lesser priority. This badly needed introduction to disability expertise considers mobility devices, medical infrastructure, neurodivergence, and the crucial relationship between disability and race. The future, Shew points out, is surely disabled―whether through changing climate, new diseases, or even through space travel. It’s time we looked closely at how we all think about disability technologies and learn to envision disabilities not as liabilities, but as skill sets enabling all of us to navigate a challenging world.
First published in 1985, this book considers the financial consequences of parents and other relatives caring for severely disabled children at home. At the time of publication little reliable information was available on the costs incurred by 'informal carers', which this book set to rectify. The volume interweaves hard statistical material about money with the detailed personal responses of parents. It examines the claim that disablement in a child reduces parents' earnings while simultaneously creating an extra expense. The author compares the incomes and expenditure patterns of more than 500 families with disabled children and 700 control families of the time showing that the financial effects of disablement in a child can be far-reaching and pervasive. This book discusses contemporary policy implications of these findings in a chapter dealing with the rational for compensating families with disabled children, and in the final chapter. Although the book was original published in 1985, it references issues that are still important today and, whilst its main concern is families with disabled children, it will also be useful to anyone caring for other kinds of dependent people, such as the elderly.
First published in 1989, this book is about integrating or mainstreaming policies, looking specifically at how to improve circumstances for schoolchildren with disabilities or handicaps, and their teachers. The author draws on her experiences, both within and outside the academic institution, to conceptualise and theorise policy, so as to place this policy in a political framework and locate it in a wider model of social life. This model is then used to disentangle the nature and effects of policy practices surrounding integration and mainstreaming, looking at practice in various parts of Europe, the US and Australia, at that time. Although written at the end of the 1980s, this book discusses topics that are still relevant today.
A thorough and comprehensive guide for both education professionals and those affected by dyslexia, this book is predominantly a guidebook. It includes lots of practical advice and is based on the authorsa (TM) sound knowledge of current theory and practice. It includes:
* This anthology has been curated by a seasoned playwright, academic, director and actor who has lived experience of being deaf. * Would be recommended reading in deaf studies and deaf culture courses across the world. * This book is the first anthology of its kind. |
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