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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
The ability to communicate is amazing. No other human ability is
so complicated, so sophisticated, so important to civilization-and
yet so taken for granted. How tragic would life be without the
marvelous ability to communicate? In "Simply Amazing: Communication
Sciences and Disorders," Dr. Dennis C. Tanner explores the stages
of the communication chain and examines the act of speech
communication from the speaker's thoughts to the listener's
understanding of them.
Relying on more than forty years of experience studying,
teaching, researching, and providing clinical services in the
communication sciences discipline, Tanner provides a frank and
informative discussion about the subject, including both
conventional and offbeat theories of human communication, unique
and sometimes bizarre disorders, and intriguing patients.
Through anecdotes, examples, illustrations, case studies, and
personal asides of the amazing human ability to communicate-as well
as the myriad disorders, defects, delays, and disabilities that can
lay waste to it-"Simply Amazing: Communication Sciences and
Disorders" provides keen insight into the world of
communication.
In 2001 verander Erika Murray-Theron se lewe onherroeplik toe haar man, Tom, met parkinsonsiekte gediagnoseer word.
Erika begin haar vertelling eers in 2011, toe Tom in ’n meer gevorderde stadium van die siekte verkeer. Dit is die rou optekening van saamleef met ’n geliefde met parkinsons: die ervaring om die fisieke en intellektuele aftakeling van jou lewensmaat te aanskou, die fisieke eise wat met die versorging van so iemand gepaard gaan, en die emosionele inspanning wat dit kos om jouself te staal teen dramatiese en stadige verlies.
In January 1988, aged twelve, Martin Pistorius fell inexplicably
sick. Within eighteen months he was mute and wheelchair-bound,
being cared for at centres for severely disabled children. What
no-one knew is that while Martin's body remained unresponsive, his
mind slowly woke up, yet he could tell no-one, a prisoner inside
his own body. During this time, he suffered abuse of a kind that is
barely imaginable, yet still he kept the spirit of hope alive. It
wasn't until he was twenty-three that a gentle therapist realised
he was alert to everything and, along with his parents, assisted
his road to recovery. Since then, against all odds, he has fallen
in love, married, and now runs a thriving web design business.
Martin's extraordinary story is a deeply moving account of the
power of love.
Captures the importance of belonging and the need for social
connectedness- a key driver for positive adjustment post-injury.
Highlights the issues around how people with brain injuries are
'managed' in a residential home environment that is predominantly
intended for elderly and frail individuals. Covers a decades-long
timespan of a survivor of brain injury. Provides much needed
support for patients and family members adjusting to life after
brain injury.
Mainstream gerontological scholarship has taken little heed of
people ageing with disability, and they have also been largely
overlooked by both disability and ageing policies and service
systems. The Handbook on Ageing with Disability is the first to
pull together knowledge about the experience of ageing with
disability. It provides a broad look at scholarship in this
developing field and across different groups of people with
disability in order to form a better understanding of commonalities
across groups and identify unique facets of ageing within specific
groups. Drawing from academic, personal, and clinical perspectives,
the chapters address topics stemming from how the ageing with
disability experience is framed, the heterogeneity of the
population ageing with disability and the disability experience,
issues of social exclusion, health and wellness, frailty, later
life, and policy contexts for ageing with disability in various
countries. Responding to the need to increase access to knowledge
in this field, the Handbook provides guideposts for researchers,
practitioners, and policy makers about what matters in providing
services, developing programmes, and implementing policies that
support persons ageing with long-term disabilities and their
families.
Locates social attitudes towards blindness in a personal and
cultural landscape. Is interdisciplinary in its crossing of lines
among education, the humanities, and the social sciences. Includes
case-studies from Canada, Cyprus, India, Indonesia, Italy, Poland,
the United States, the United Kingdom, South Africa, South America,
and Spain.
Much of the recent research in autism comes from a quantitative,
researcher's viewpoint. However, this book's mission is to look at
the "whole picture" in order to capture the meaning of Autism and
its effects on the family. The book is written primarily for social
work professionals in the field of autism and developmental
disabilities, Students, individuals affected with Autism Spectrum
Disorders and their families alike, and anyone who has a special
interest in the ASD field. In order to capture the impact of
autism, the autor utilizes her own personal and professional
experience in identifying the different aspects that make up the
culture of autism: its history, the biological and environmental
aspects; past and present governmental and educational policies;
the social impact of autism and its impact on the family unit.
Inside this book are reflections on the nature of vision and
blindness. Further, there are explorations of interpretive
research, and presentations of some seminal and contemporary
publications in the field of blindness. The other major fodder for
conversation with you the reader is an elaborated example of
empirical research entitled Blind Online Learners. Each element of
this inquiry is explicitly reflected upon as an example of
interpretive research. This book is intended for four intersecting
groups of readers. If you are a philosopher, closet or sanctioned,
then you cannot ponder the nature of being without due
consideration for vision, and cannot contemplate the role of seeing
in our lives without listening to the stories of those who are
blind. The tales within this text are particularly contemporaneous
because they are contextualized by the cyber-phenomena of online
learning. This segues to the second group of readers, as the
described empirical research was originally intended to bring
greater depth and breadth of understanding to the field of
educational technology, particularly as it intersects with
disability studies. There is a paucity of published literature that
has inquired into disabled online learners, and this research study
responds to that call. Third, this book may be used as a textbook
on approaches to interpretive empirical research. It is as close as
one may come to a recipe, walking students through a specific
example. Because it is situated in actual empirical research, the
intention was that it avoid the trap of being prescriptive or
formulaic. Finally, the text is intended for readers interested in
the field of blindness. The text reviews some of the seminal and
contemporary research on blindness, and then presents an elaborated
example of what we can and should expect to emerge in the knowledge
production industry, changing what it means to be blind.
Navigating the world with an ADHD brain can be exhausting. The
rollercoaster ride from clinical assessments through diagnosis to
treatment can leave you feeling anxious and isolated, worried about
failing or feeling different. This handy guide is here to change
all that. If you have (or suspect you have) ADHD, you'll know the
frustration of being given neurotypical or clinical advice - but
this is straight from an ADHD brain to you. The accessible A-Z
format, covering everything from burnout and finances to time
management and relationships, gives you the tips and confidence you
need to reach your full potential. It empowers you to understand
why ADHD brains work the way they do and how to harness your unique
mind to think creatively and overcome any hurdle life throws at
you. Easy to digest and full to the brim with practical life advice
including budgeting plans for impulsive spending, advice on
rejection sensitive dysphoria and ways to relax, this book provides
everything you need to feel confident and supported through your
ADHD diagnosis and beyond.
A book on dance-making, centred on practitioners with disabilities
but valuable for dancers in all situations. Aimed at the huge range
of dance-makers looking to make their work accessible, inclusive
and diverse. A leading book in the field on this topic, now updated
and expanded to reflect current trends and debates.
Learn how smart people with learning gaps struggle, survive, and
achieve Smart But Stuck, Second Edition is an updated look at how
smart people with learning gaps can not only overcome them, but
become successful in learning-and life. The new edition of this
classic explores the emotional aspects of learning disabilities and
imprisoned intelligence, showing how-and why-smart people with
learning disabilities are resilient in getting help in order to
struggle, survive, and achieve. The book also includes new material
on the relationship between learning disabilities and neuroscience
and a new foreword by Joseph Palombo, Founding Dean of the
Institute for Clinical Social Work in Chicago. This unique and
compelling new version takes into account that the reader may have
a learning disability, so it's easy to read and understand. Topics
build on each other so the reader's knowledge becomes cumulative
without dramatic effect and so emotional, biological, and social
issues are easily integrated as the reader learns to turn a
learning disability into an advantage. From the author: "Resilience
is the capacity to bounce back; in individuals with LD it's a
powerful tool. When people hit the chasm, shame is the outcome.
People can withdraw and give up. (Some people take solace in
substance abuse to ease the emotional pain.) Others keep trying. In
the process of not giving up, people learn to keep hope alive
because eventually new opportunities for learning become possible."
Smart But Stuck, Second Edition examines: * imprisoned intelligence
and resilience-how does it happen? * shame and resilience *
discovery and diagnosis * learning to live with the diagnosis * new
reflections * resilience and fulfilling potential * neurocognitive
foundations of learning disorders * self-psychology and imprisoned
intelligence * psychotherapy * fortitude and flexibility in people
with learning disabilities * and much more Smart But Stuck, Second
Edition is a must-read for people with learning disabilities and
their families, psychotherapists, social workers, educators,
parents, vocational counselors, and college counselors. Please
visit www.smartbutstuck.com for more information.
* Based on blog entries providing an authentic reflection of the
lived experience at some of the key stages along the road to
recovery. * Author has a medical background which provides an
articulate and interesting perspective into the difficulties around
providing and withdrawing intensive care therapy, focusing
particularly on understanding the wishes of patients with regard to
the treatment of critical injuries. * Provides a peer-level
approach to helping readers understand and navigate their new
lives, from pragmatic concerns about new daily difficulties, to
loftier concerns about their new place in life * Provides much
needed support for patients and family members adjusting to life
after brain injury.
Building on work in feminist studies, queer studies and critical
race theory, this volume challenges the universality of
propositions about human nature, by questioning the boundaries
between predominant neurotypes and 'others', including dyslexics,
autistics and ADHDers. This is the first work of its kind to bring
cutting-edge research across disciplines to the concept of
neurodiversity. It offers in-depth explorations of the themes of
cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype
communication; neurodiversity at work; and challenging brain-bound
cognition. It analyses the role of neuro-normativity in theorising
agency, and a proposal for a new alliance between the Hearing
Voices Movement and neurodiversity. In doing so, we contribute to a
cultural imperative to redefine what it means to be human. To this
end, we propose a new field of enquiry that finds ways to support
the inclusion of neurodivergent perspectives in knowledge
production, and which questions the theoretical and mythological
assumptions that produce the idea of the neurotypical. Working at
the crossroads between sociology, critical psychology, medical
humanities, critical disability studies, and critical autism
studies, and sharing theoretical ground with critical race studies
and critical queer studies, the proposed new field - neurodiversity
studies - will be of interest to people working in all these areas.
How can families of children with disabilities plan for lasting
financial security at every stage of life? Find clear answers in
The Special Needs Planning Guide, a step-by-step companion for
parents as they progress through the complexities of planning for
the future of their family and their child. Written by two
financial planning experts who are also a parent and a sibling of a
person with disabilities, and including contributions from a
nationally recognized advocate, this bestselling how-to guide is
now in its second edition. Revised, reorganized, and carefully
updated to reflect current law, this book gives families the
real-world advice, strategies, and actions needed to plan for both
their future and the well-being and security of their child. With
clarity and compassion, the authors guide families in addressing
five critical factors involved in special needs planning- family
and support, emotional, financial, legal, and government benefits
factors-at every stage of their child's life, from birth through
adulthood. Throughout the book, readers will learn from the stories
and advice of other caregivers, get helpful planning pointers and
key questions to answer, and take action with the chapter lists of
Next Steps. To help families customize the information in this book
for their specific needs, this new edition also offers a complete
package of online resources, including a fillable Special Needs
Planning Timeline, easy-to-use financial planning worksheets, and
an in-depth Letter of Intent template families can use to map out
their vision for their child's life. Informed by decades of
personal and professional experience, this reader-friendly
guidebook will help families educate themselves about financial
planning, create a complete action plan for their future, and
provide the knowledge and the tools they need to work toward a
secure and full life for their child. WHAT'S NEW: Fully revised
chapters and online resources A 10-step process that breaks complex
planning into manageable tasks Letter of Intent now available as a
fillable PDF Excel worksheets for easy planning New chapters on
Foundational Financial Strategies and Tools, and Advanced
Strategies and Special Circumstances Helpful information on ABLE
accounts, housing options, and military Survivor Benefit Plans New
planning tips, pointers, and case stories Guidance on creating a
Team to Carry On beyond the parents' lifetimes SELECTED TOPICS
COVERED: special needs trusts funding * trustee selection *
insurance strategies * investment guidance * estate planning *
legal settlements * government benefits, such as SSI, SSDI, and
housing benefits * goal-setting * advocacy * hiring financial and
legal professionals * sibling considerations * contributions of
extended support networks * retirement plans * guardianship and
less restrictive alternatives
Eliza Fricker gets it. Describing her perfectly imperfect
experience of raising a PDA child, with societal judgements and
internal pressures, it is easy to feel overwhelmed, resentful and
alone. This book's comedic illustrations explain these challenging
situations and feelings in a way that words simply cannot, will
bring some much-needed levity back into PDA parenting. Humorous
anecdotes with a compassionate tone remind parents that they are
not alone, and they're doing a great job. If children are safe,
happy, and you leave the house on time, who cares about some smelly
socks? A light-hearted and digestible guide to being a PDA parent
covering everything from tolerance levels, relationships and
meltdowns to collaboration, flexibility, and self care to dip in
and out as your schedule allows to help get to grips with this
complex condition. This book is an essential read for any parent
with a PDA child, to help better understand your child, build
support systems and carve out some essential self care time guilt
free.
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