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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
'I realised I had been camouflaging my whole life - I'd been trying
to mask my autistic traits and fit in with all the non-autistic
people around me.' Growing up autistic can often feel as though you
have to become a chameleon in social situations, camouflaging
yourself to fit in with a seemingly neurotypical world. Combining
lived experience with scientific research and practical advice,
this book is the essential guide to understanding why you mask and
how to feel confident without one. Focusing on diagnostic devices
like the Camouflaging Autistic Traits Questionnaire (CAT-Q) to
discover the situations in which you mask the most and why,
alongside a range of techniques, from CBT, compassion based
therapy, DBT, and mindfulness to relieve anxiety and reduce stress,
this guide gives you all the tools and confidence you need to
re-connect with yourself, the things you love and finally, take off
your mask.
One of the most remarkable memoirs ever written. The diary of
Jean-Dominique Bauby who, with his left eyelid (the only surviving
muscle after a massive stroke) dictated a remarkable book about his
experiences locked inside his body. A masterpiece and a bestseller
in France. In December 1995, Jean-Dominique Bauby, editor-in-chief
of French Elle and the father of two young children, suffered a
massive stroke and found himself paralysed and speechless. But his
mind remained as active and alert as it had ever been. Using his
only functioning muscle - his left eyelid - he was determined to
tell his remarkable story, painstakingly spelling it out letter by
letter. The Diving-Bell and the Butterfly records Bauby's lonely
existence but also the ability to invent a life for oneself in the
most appalling of circumstances. It one of the most extraordinary
books about the triumph of the human spirit ever written.
The impact of finding out your child is disabled can be wide
ranging. The author's experience as a psychologist and parent of a
disabled child informs this book which focuses on what helps, and
hinders, parent-carers' emotional wellbeing. Research shows that
mental health, relationships, family life, access to work and
leisure activities, as well as finances can all be affected. For
many parents the focus of those around them is solely on the child
and their own needs become neglected. The author re-focuses
attention onto the wellbeing of the parent. This includes
acknowledging emotions, connecting with positive others, empowering
yourself, regularly engaging in self-care and finding your own
sense of meaning and purpose in life. Identifying the myriad of
different emotions parents may experience as an understandable
reaction to an unexpected situation the book includes quotes from
parent carers. Connecting to psychological theories, such as
positive re-framing and post-traumatic growth, the book applies
these in practical ways to the parent-carer experience.
Acknowledging that the journey is neither linear nor simple and
transitions such as secondary school, puberty and adulthood require
further periods of adjustment. Parents rarely get the time or
support to stop and reflect on how they are feeling as they are
caught up in the day to day busyness of caring. The difficulty is
exacerbated by limited resources and battling for services.
Building on the author's Doctoral research and having supported
parent carers in different roles over the last 13 years this book
provides a compass to ensure parents know they are not alone.
Much of the recent research in autism comes from a quantitative,
researcher's viewpoint. However, this book's mission is to look at
the "whole picture" in order to capture the meaning of Autism and
its effects on the family. The book is written primarily for social
work professionals in the field of autism and developmental
disabilities, Students, individuals affected with Autism Spectrum
Disorders and their families alike, and anyone who has a special
interest in the ASD field. In order to capture the impact of
autism, the autor utilizes her own personal and professional
experience in identifying the different aspects that make up the
culture of autism: its history, the biological and environmental
aspects; past and present governmental and educational policies;
the social impact of autism and its impact on the family unit.
Inside this book are reflections on the nature of vision and
blindness. Further, there are explorations of interpretive
research, and presentations of some seminal and contemporary
publications in the field of blindness. The other major fodder for
conversation with you the reader is an elaborated example of
empirical research entitled Blind Online Learners. Each element of
this inquiry is explicitly reflected upon as an example of
interpretive research. This book is intended for four intersecting
groups of readers. If you are a philosopher, closet or sanctioned,
then you cannot ponder the nature of being without due
consideration for vision, and cannot contemplate the role of seeing
in our lives without listening to the stories of those who are
blind. The tales within this text are particularly contemporaneous
because they are contextualized by the cyber-phenomena of online
learning. This segues to the second group of readers, as the
described empirical research was originally intended to bring
greater depth and breadth of understanding to the field of
educational technology, particularly as it intersects with
disability studies. There is a paucity of published literature that
has inquired into disabled online learners, and this research study
responds to that call. Third, this book may be used as a textbook
on approaches to interpretive empirical research. It is as close as
one may come to a recipe, walking students through a specific
example. Because it is situated in actual empirical research, the
intention was that it avoid the trap of being prescriptive or
formulaic. Finally, the text is intended for readers interested in
the field of blindness. The text reviews some of the seminal and
contemporary research on blindness, and then presents an elaborated
example of what we can and should expect to emerge in the knowledge
production industry, changing what it means to be blind.
The new edition of Dyslexia is written for parents of dyslexic
children and the professionals who work with them, and provides
information on the role parents can play in supporting their
dyslexic child. This updated edition contains new material and
up-to-date discussions of current research and programs. * Empowers
parents by providing them with strategies for dealing with a wide
range of concerns including dyspraxia and dyscalculia * New
sections cover post-school issues, the emotional needs of young
people with dyslexia and information on how parents can help at
home * Features information on some of the more popular
interventions for dyslexia, and critical evaluations of alternative
treatments * Includes first hand accounts of parents hopes,
successes and setbacks, and extensive lists of organizations and
resources
Learn how smart people with learning gaps struggle, survive, and
achieve Smart But Stuck, Second Edition is an updated look at how
smart people with learning gaps can not only overcome them, but
become successful in learning-and life. The new edition of this
classic explores the emotional aspects of learning disabilities and
imprisoned intelligence, showing how-and why-smart people with
learning disabilities are resilient in getting help in order to
struggle, survive, and achieve. The book also includes new material
on the relationship between learning disabilities and neuroscience
and a new foreword by Joseph Palombo, Founding Dean of the
Institute for Clinical Social Work in Chicago. This unique and
compelling new version takes into account that the reader may have
a learning disability, so it's easy to read and understand. Topics
build on each other so the reader's knowledge becomes cumulative
without dramatic effect and so emotional, biological, and social
issues are easily integrated as the reader learns to turn a
learning disability into an advantage. From the author: "Resilience
is the capacity to bounce back; in individuals with LD it's a
powerful tool. When people hit the chasm, shame is the outcome.
People can withdraw and give up. (Some people take solace in
substance abuse to ease the emotional pain.) Others keep trying. In
the process of not giving up, people learn to keep hope alive
because eventually new opportunities for learning become possible."
Smart But Stuck, Second Edition examines: * imprisoned intelligence
and resilience-how does it happen? * shame and resilience *
discovery and diagnosis * learning to live with the diagnosis * new
reflections * resilience and fulfilling potential * neurocognitive
foundations of learning disorders * self-psychology and imprisoned
intelligence * psychotherapy * fortitude and flexibility in people
with learning disabilities * and much more Smart But Stuck, Second
Edition is a must-read for people with learning disabilities and
their families, psychotherapists, social workers, educators,
parents, vocational counselors, and college counselors. Please
visit www.smartbutstuck.com for more information.
Mainstream gerontological scholarship has taken little heed of
people ageing with disability, and they have also been largely
overlooked by both disability and ageing policies and service
systems. The Handbook on Ageing with Disability is the first to
pull together knowledge about the experience of ageing with
disability. It provides a broad look at scholarship in this
developing field and across different groups of people with
disability in order to form a better understanding of commonalities
across groups and identify unique facets of ageing within specific
groups. Drawing from academic, personal, and clinical perspectives,
the chapters address topics stemming from how the ageing with
disability experience is framed, the heterogeneity of the
population ageing with disability and the disability experience,
issues of social exclusion, health and wellness, frailty, later
life, and policy contexts for ageing with disability in various
countries. Responding to the need to increase access to knowledge
in this field, the Handbook provides guideposts for researchers,
practitioners, and policy makers about what matters in providing
services, developing programmes, and implementing policies that
support persons ageing with long-term disabilities and their
families.
Captures the importance of belonging and the need for social
connectedness- a key driver for positive adjustment post-injury.
Highlights the issues around how people with brain injuries are
'managed' in a residential home environment that is predominantly
intended for elderly and frail individuals. Covers a decades-long
timespan of a survivor of brain injury. Provides much needed
support for patients and family members adjusting to life after
brain injury.
* Based on blog entries providing an authentic reflection of the
lived experience at some of the key stages along the road to
recovery. * Author has a medical background which provides an
articulate and interesting perspective into the difficulties around
providing and withdrawing intensive care therapy, focusing
particularly on understanding the wishes of patients with regard to
the treatment of critical injuries. * Provides a peer-level
approach to helping readers understand and navigate their new
lives, from pragmatic concerns about new daily difficulties, to
loftier concerns about their new place in life * Provides much
needed support for patients and family members adjusting to life
after brain injury.
Building on work in feminist studies, queer studies and critical
race theory, this volume challenges the universality of
propositions about human nature, by questioning the boundaries
between predominant neurotypes and 'others', including dyslexics,
autistics and ADHDers. This is the first work of its kind to bring
cutting-edge research across disciplines to the concept of
neurodiversity. It offers in-depth explorations of the themes of
cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype
communication; neurodiversity at work; and challenging brain-bound
cognition. It analyses the role of neuro-normativity in theorising
agency, and a proposal for a new alliance between the Hearing
Voices Movement and neurodiversity. In doing so, we contribute to a
cultural imperative to redefine what it means to be human. To this
end, we propose a new field of enquiry that finds ways to support
the inclusion of neurodivergent perspectives in knowledge
production, and which questions the theoretical and mythological
assumptions that produce the idea of the neurotypical. Working at
the crossroads between sociology, critical psychology, medical
humanities, critical disability studies, and critical autism
studies, and sharing theoretical ground with critical race studies
and critical queer studies, the proposed new field - neurodiversity
studies - will be of interest to people working in all these areas.
This book explores the complex, evolving relationships between men,
masculinities, and social welfare in contemporary context. It is
inspired by themes examined in 'Men, Gender Divisions and Welfare',
an edited collection published in 1998 by Popay, Hearn, and
Edwards. While international policy agendas reflect a growing
commitment to critically addressing the relations between men,
masculinities, and policy, in policy and popular discussions,
societies continue to grapple with the question of 'what to do with
men?' This question reflects an ongoing tension between the
persistence of men's power and control over welfare and policy
development, alongside their ostensible avoidance of welfare
services. The collection constitutes an up-to-date account of the
gendered and social implications of policy and practice change for
men, and their inherent contradictions and complexities, tracing
both stability and change over the past 25 years. This book will
appeal to students and scholars in diverse fields, particularly in
sociology, social policy, applied social sciences, gerontology,
gender studies, youth studies, welfare studies, politics, and
social geography. Given the volume's empirical attention throughout
to both policies and practice developments, it will also be of
interest to those training in applied and vocational degrees such
as health and social care, social work, family support, and health
visiting.
The current literature regarding employment among persons with
disabilities produces research results dependent on definitions of
work disability, the discipline within which research takes places,
the model or paradigm of disability in which the research is
framed, the methodology and measures used and the cultural context
in which employment occurs. This volume seeks to address those
factors which have made describing, predicting and examining the
work experience of a person with a disability both different and
difficult. Contributors examine less frequently anaylzed aspects of
employment for persons with disabilities, and offer a variety of
approaches to the conceptualization of work, how they differ across
cultures, organizations, and types of disability. Topics covered
include examination of range of contextual framing of employment
for those with disabilities, well-being, the impact of gender,
poverty and education and the collection concludes by examining the
future of employment developments and trends and the impacts on
inclusion of people with disabilities in the paid workforce.
Have you ever been told you are chatty or fidgety at school? Do you
have a constantly whirring mind? Do you 'tune out' and daydream or
find it hard to pay attention? ADHD can impact your life in many
ways. This positive, self-affirming guide will increase your
knowledge about ADHD and empower you in your daily life. The
chapters are full of tips, tricks and life hacks so you can better
manage your time, harness your creativity, energy and enthusiasm,
and make more time for fun! Reflection activities and quizzes will
help you better understand yourself and learn strategies on how to
manage the intense emotions of rejection sensitivity. You'll learn
the fundamentals of great self-care and how to look forward to life
beyond school. Learn how ADHD brains work, and tricky concepts like
executive functioning. Quick chapter summaries let you pick which
sections are most relevant to you right now, and the strategies and
visuals are designed for ADHD brains and can be used with support
from parents, mentors or teachers. The Teenage Girl's Guide to
Living Well with ADHD gives you all you need to build on your
strengths and overcome challenges to fully embrace who you are and
live your best life.
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