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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
One person can't help stuttering. The other can't help laughing. And in the way one bodily betrayal of better intentions mirrors the other, we find ourselves in the gray area where mind and body connect--and, at the damnedest moments, disconnect. In a book that explores the phenomenon of stuttering from its practical and physical aspects to its historical profile to its existential implications, Marc Shell plumbs the depths of this murky region between will and flesh, intention and expression, idea and word. Looking into the difficulties encountered by people who stutter--as do fifty million worldwide--Shell shows that, however solitary stutterers may be in their quest for normalcy, they share a kinship with many other speakers, both impeded and fluent. "Stutter" takes us back to a time when stuttering was believed to be "diagnosis-induced," then on to the complex mix of physical and psychological causes that were later discovered. Ranging from cartoon characters like Porky Pig to cultural icons like Marilyn Monroe, from Moses to Hamlet, Shell reveals how stuttering in literature plays a role in the formation of tone, narrative progression, and character. He considers such questions as: Why does stuttering disappear when the speaker chants? How does singing ease the verbal tics of Tourette's Syndrome? How do stutterers cope with the inexpressible, the unspeakable? Written by someone who has himself struggled with stuttering all his life, this provocative and wide-ranging book shows that stuttering has implications for myriad types of expression and helps to define what it means to be human.
Navigating the world with an ADHD brain can be exhausting. The rollercoaster ride from clinical assessments through diagnosis to treatment can leave you feeling anxious and isolated, worried about failing or feeling different. This handy guide is here to change all that. If you have (or suspect you have) ADHD, you'll know the frustration of being given neurotypical or clinical advice - but this is straight from an ADHD brain to you. The accessible A-Z format, covering everything from burnout and finances to time management and relationships, gives you the tips and confidence you need to reach your full potential. It empowers you to understand why ADHD brains work the way they do and how to harness your unique mind to think creatively and overcome any hurdle life throws at you. Easy to digest and full to the brim with practical life advice including budgeting plans for impulsive spending, advice on rejection sensitive dysphoria and ways to relax, this book provides everything you need to feel confident and supported through your ADHD diagnosis and beyond.
"A Doody's Core Title 2012" This new illustrated guide to assistive technologies and devices chronicles the use of AT/AD - technology used by individuals with disabilities to perform functions that might otherwise be difficult or impossible. This book empowers people to use assistive technologies to overcome some of their physical or mental limitations and have a more equal playing field. It includes real-life examples about how people with disabilities are using assistive technology (AT) to assist them in daily tasks, and discusses emotional issues related to AT/AD.
Drawing on the author's first-hand experiences with families, this book provides crucial, accessible information and answers the difficult questions that often arise when a family member with an intellectual disability is diagnosed with dementia. Linking directly to policy and practice in both dementia and intellectual disability care, this book takes an outcome-focussed approach to support short, medium and long-term planning. With a particular emphasis on communication, the author seeks to ensure that families and organisations are able to converse effectively about a relative's health and care. The book looks at how to recognise when changes in the health of a relative with an intellectual disability could indicate the onset of dementia, as well as addressing common concerns surrounding living situations, medication and care plans. Each chapter is structured to identify strategies for support whilst working towards outcomes identified by families as dementia progresses.
Mainstream gerontological scholarship has taken little heed of people ageing with disability, and they have also been largely overlooked by both disability and ageing policies and service systems. The Handbook on Ageing with Disability is the first to pull together knowledge about the experience of ageing with disability. It provides a broad look at scholarship in this developing field and across different groups of people with disability in order to form a better understanding of commonalities across groups and identify unique facets of ageing within specific groups. Drawing from academic, personal, and clinical perspectives, the chapters address topics stemming from how the ageing with disability experience is framed, the heterogeneity of the population ageing with disability and the disability experience, issues of social exclusion, health and wellness, frailty, later life, and policy contexts for ageing with disability in various countries. Responding to the need to increase access to knowledge in this field, the Handbook provides guideposts for researchers, practitioners, and policy makers about what matters in providing services, developing programmes, and implementing policies that support persons ageing with long-term disabilities and their families.
Personal stories and professional research findings make this highly readable book a ready summary of the current knowledge surrounding autism. Recent coverage in popular media has increased awareness and understanding of this condition, creating the need for access to current scientific research and reports of common experiences with it. Directed toward parents and professionals, this book explains what research has revealed and supports it with personal accounts written by people with autism and the parents of autistic children. The focus of the book encompasses the wide spectrum of characteristics and ability levels that exist within autism and their implications for individuals as children, older adolescents, and adults. From the first diagnosis of autism by Leo Kanner in 1943 to the most recent research by neurologists Isabelle Rapin and Robert Katzman, the study of autism has shed increasing light on the mysteries of this disorder. This book summarizes research findings as it explores the dilemmas faced by parents and individuals with autism in their search for early diagnosis, professional help, and suitable services. Chapters include discussions of co-existing conditions, causes of autism, and its relationship to Asperger Syndrome. Appendices include a glossary of related terms and an international directory of support organizations and publications.
The ability to communicate is amazing. No other human ability is so complicated, so sophisticated, so important to civilization-and yet so taken for granted. How tragic would life be without the marvelous ability to communicate? In "Simply Amazing: Communication Sciences and Disorders," Dr. Dennis C. Tanner explores the stages of the communication chain and examines the act of speech communication from the speaker's thoughts to the listener's understanding of them. Relying on more than forty years of experience studying, teaching, researching, and providing clinical services in the communication sciences discipline, Tanner provides a frank and informative discussion about the subject, including both conventional and offbeat theories of human communication, unique and sometimes bizarre disorders, and intriguing patients. Through anecdotes, examples, illustrations, case studies, and personal asides of the amazing human ability to communicate-as well as the myriad disorders, defects, delays, and disabilities that can lay waste to it-"Simply Amazing: Communication Sciences and Disorders" provides keen insight into the world of communication.
In 2011 the world was shocked when the news broke that Joost van der Westhuizen, known for years as the golden boy of South African rugby and a former Springbok captain, had been diagnosed with motor neuron disease (MND). This rare condition attacks the central nervous system, causing progressive disability. There is no known cure. All who have seen Joost in action will know that he is not one to give up without a fight. His game-changing prowess as a brilliant scrum half is now focused on a battle for survival and, more importantly, on making a difference to the lives of others with the disease. In a race against time, Joost has a dream to fulfil. He says: “In the beginning you go through all the emotions and you ask, ‘Why me?’ It’s quite simple. ‘Why not me?’ If I have to go through this to help future generations, why not me?” His acceptance of his symptoms is equally pragmatic: “One day you can’t move your arm, another day you don’t have speech. Every day you are reborn and you take the day as it comes.” Glory Game – The Joost van der Westhuizen Story is a compelling narrative of redemption set against the backdrop of an illustrious career in rugby. It is the story of a modern-day warrior forced to face his own human frailty. Joost shows us that beyond ambition, success and fame lies the true wealth of family and friends, and that within a ravaged body the spirit can remain invincible.
* Based on blog entries providing an authentic reflection of the lived experience at some of the key stages along the road to recovery. * Author has a medical background which provides an articulate and interesting perspective into the difficulties around providing and withdrawing intensive care therapy, focusing particularly on understanding the wishes of patients with regard to the treatment of critical injuries. * Provides a peer-level approach to helping readers understand and navigate their new lives, from pragmatic concerns about new daily difficulties, to loftier concerns about their new place in life * Provides much needed support for patients and family members adjusting to life after brain injury.
First published in 1979, this book concerns itself primarily with the mothers of mentally handicapped children. It discusses the problems of assistance that they may have experienced from their families, the community, or the available services. Whilst arguing for far more support for mothers when they are the main carer, this book also suggests reasons why some families are more easily able to cope with the problems of caring for severely handicapped children. This study is based on research that was conducted for and funded by the Department of Health and Social Security between 1973 and 1976.
Captures the importance of belonging and the need for social connectedness- a key driver for positive adjustment post-injury. Highlights the issues around how people with brain injuries are 'managed' in a residential home environment that is predominantly intended for elderly and frail individuals. Covers a decades-long timespan of a survivor of brain injury. Provides much needed support for patients and family members adjusting to life after brain injury.
Locates social attitudes towards blindness in a personal and cultural landscape. Is interdisciplinary in its crossing of lines among education, the humanities, and the social sciences. Includes case-studies from Canada, Cyprus, India, Indonesia, Italy, Poland, the United States, the United Kingdom, South Africa, South America, and Spain.
Social change in the twenty-first century is shaped by both demographic changes associated with ageing societies and significant technological change and development. Outlining the basic principles of a new academic field, Socio-gerontechnology, this book explores common conceptual, theoretical and methodological ideas that become visible in the critical scholarship on ageing and technology at the intersection of Age Studies and Science and Technology Studies (STS). Comprised of 15 original chapters, three commentaries and an afterword, the book explores how ageing and technology are already interconnected and constantly being intertwined in Western societies. Topics addressed cover a broad variety of socio-material domains, including care robots, the use of social media, ageing-in-place technologies, the performativity of user involvement and public consultations, dementia care and many others. Together, they provide a unique understanding of ageing and technology from a social sciences and humanities perspective and contribute to the development of new ontologies, methodologies and theories that might serve as both critique of and inspiration for policy and design. International in scope, including contributions from the United Kingdom, Canada, the United States, Australia, Germany, Norway, Denmark, Austria, the Netherlands, Spain and Sweden, Socio-gerontechnology is an agenda-setting text that will provide an introduction for students and early career researchers as well as for more established scholars who are interested in ageing and technology.
Much of the recent research in autism comes from a quantitative, researcher's viewpoint. However, this book's mission is to look at the "whole picture" in order to capture the meaning of Autism and its effects on the family. The book is written primarily for social work professionals in the field of autism and developmental disabilities, Students, individuals affected with Autism Spectrum Disorders and their families alike, and anyone who has a special interest in the ASD field. In order to capture the impact of autism, the autor utilizes her own personal and professional experience in identifying the different aspects that make up the culture of autism: its history, the biological and environmental aspects; past and present governmental and educational policies; the social impact of autism and its impact on the family unit.
A book on dance-making, centred on practitioners with disabilities but valuable for dancers in all situations. Aimed at the huge range of dance-makers looking to make their work accessible, inclusive and diverse. A leading book in the field on this topic, now updated and expanded to reflect current trends and debates.
Inside this book are reflections on the nature of vision and blindness. Further, there are explorations of interpretive research, and presentations of some seminal and contemporary publications in the field of blindness. The other major fodder for conversation with you the reader is an elaborated example of empirical research entitled Blind Online Learners. Each element of this inquiry is explicitly reflected upon as an example of interpretive research. This book is intended for four intersecting groups of readers. If you are a philosopher, closet or sanctioned, then you cannot ponder the nature of being without due consideration for vision, and cannot contemplate the role of seeing in our lives without listening to the stories of those who are blind. The tales within this text are particularly contemporaneous because they are contextualized by the cyber-phenomena of online learning. This segues to the second group of readers, as the described empirical research was originally intended to bring greater depth and breadth of understanding to the field of educational technology, particularly as it intersects with disability studies. There is a paucity of published literature that has inquired into disabled online learners, and this research study responds to that call. Third, this book may be used as a textbook on approaches to interpretive empirical research. It is as close as one may come to a recipe, walking students through a specific example. Because it is situated in actual empirical research, the intention was that it avoid the trap of being prescriptive or formulaic. Finally, the text is intended for readers interested in the field of blindness. The text reviews some of the seminal and contemporary research on blindness, and then presents an elaborated example of what we can and should expect to emerge in the knowledge production industry, changing what it means to be blind. |
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