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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
"Animals in Translation" is the culmination of Temple Grandin's extraordinary life's work, drawing upon the latest research, her distinguished career as an animal scientist and her own experience of being autistic. With co-author Catherine Johnson, Grandin argues that while 'normal people' convert experience into words and abstractions, animals and autistics process the world as sensory information - specific pictures, sights and sounds. This difference is the key to understanding how animals see, think and feel. As much a revelation about life with autism as it is about life with animals, "Animals in Translation" explores pain, fear, aggression, love, friendship, communication and learning in a startling book that will change the way you think about animals.
This volume provides an in-depth, qualitative exploration of familial entrepreneurship as an innovative employment model, being established by families in response to difficulties faced by individuals with developmental disabilities in entering the labor market. Drawing on rich qualitative data collected via research with families, this volume explores how and why familial entrepreneurs in the United States have chosen to develop businesses to employ their loved ones. Chapters offer close analysis of the challenges and opportunities associated with familial entrepreneurship and highlight the ways in which this practice supports people with developmental disabilities by providing opportunities for skill development, social interaction, and participation in meaningful activity. Recognizing familial entrepreneurship as a new and distinct hybrid employment model, the text goes on to consider how curricula, policy, and state services might better support families and underpin this form of inclusive work. The volume provides important conclusions that contribute to the fields of Disability Studies, Entrepreneurship, Inclusive Education, Adult Education, Exceptional Student Education, Transition, and Vocational Rehabilitation. It is a key reading for scholars in these fields and across Education more widely.
'I realised I had been camouflaging my whole life - I'd been trying to mask my autistic traits and fit in with all the non-autistic people around me.' Growing up autistic can often feel as though you have to become a chameleon in social situations, camouflaging yourself to fit in with a seemingly neurotypical world. Combining lived experience with scientific research and practical advice, this book is the essential guide to understanding why you mask and how to feel confident without one. Focusing on diagnostic devices like the Camouflaging Autistic Traits Questionnaire (CAT-Q) to discover the situations in which you mask the most and why, alongside a range of techniques, from CBT, compassion based therapy, DBT, and mindfulness to relieve anxiety and reduce stress, this guide gives you all the tools and confidence you need to re-connect with yourself, the things you love and finally, take off your mask.
provides an overview of the area of OBM-IDD summarizes the extant literature offers research-to-practice recommendations includes operational strategies for building successful service settings synthesizes the published literature and directs practice and research in the areas of assessment and evaluation, training, supervision, and performance improvement, systems interventions, and organizational development an integral aid for professionals looking to improve different aspects of service delivery
provides an overview of the area of OBM-IDD summarizes the extant literature offers research-to-practice recommendations includes operational strategies for building successful service settings synthesizes the published literature and directs practice and research in the areas of assessment and evaluation, training, supervision, and performance improvement, systems interventions, and organizational development an integral aid for professionals looking to improve different aspects of service delivery
"When I grow up I want to be a screwdriver!" A small boy spins down the sidewalk as his mother follows him with her eyes and heart. Nicky has autism. Winner of the ASA Outstanding Literary Work of the Year Award, Just This Side of Normal is a powerful story of a parent's search for understanding in a world that sometimes makes no sense. This book was one of the first autobiographies written by a parent of a child with autism and it continues to inspire both parents and professionals in the autism community.
Uses sources from a wide variety of print and digital media to show how disability and neurodiversity is represented. Will be of interest to all scholars and students of disability studies, cultural studies, film studies, gender studies and sociology more broadly. Includes 16 newly written chapters with contributions from both the global north and the global south including the USA; Canada; India and Kenya.
This interdisciplinary volume links dis/ability and agency by exploring LatDisCrit's theory and activist emancipatory practice. It uses the author's experiential and analytical views as a blind brown Latinx engaged scholar and activist from the global south living and struggling in the highly racialized global north context of the United States. LatDisCrit integrates critically LatCrit and DisCrit which look at the interplay of race/ethnicity, diasporic cultures, historical sociopolitics and disability within multiple Latinx identities in mostly global north contexts, while incorporating global south epistemologies. Using intersectional analysis of key concepts through critical counterstories, following critical race theory methodological traditions, and engaging possible decoloniality treatments of material precarity and agency, this book emphasizes intersectionality's complex underpinnings within and beyond Latinidades. Through a careful interplay of dis/ability identity and dis/ability rights/empowerment, the volume opens avenues for intersectional solidarity and spaces for radical transformational learning. This book will be of interest to all scholars and students working in disability studies; intersectional disability justice activists; critical Latinx/Chicanx studies; critical geographies; intersectional political philosophy; and political and public sociology.
Shakespearean Drama, Disability, and the Filmic Stare synthesizes Laura Mulvey's male gaze and Rosemarie Garland-Thomson's stare into a new critical lens, the filmic stare, in order to understand and analyze the visual construction of disability in adaptations of Shakespearean drama. The book explores the intersections of adaptation studies, film studies, Shakespeare studies, and disability studies to analyze twentieth and twenty-first century representations of both physical disability and 'madness' in global cinematic film, television film, and digital broadcast cinema in Shakespeare's works. Shakespearean Drama, Disability, and the Filmic Stare argues that the filmic stare does not differentiate between male and female characters with disabilities, or between powerful and powerless figures in disability representation. This multi-disciplinary volume is ideal for disability studies scholars, Shakespeare scholars, and those interested in adaptations of Shakespeare's famous works.
By triangulating the Greco-Roman world, classical reception, and disability studies, this book presents a range of approaches that reassess and reimagine traditional themes, from the narrative voice to sensory studies. It argues that disability and disabled people are the 'forgotten other' of not just Classics, but also the Humanities more widely. Beyond the moral merits of rectifying this neglect, this book also provides a series of approaches and case studies that demonstrate the intellectual value of engaging with disability studies as classicists and exploring the classical legacy in the medical humanities. The book is presented in four parts: 'Communicating and controlling impairment, illness and pain'; 'Using, creating and showcasing disability supports and services'; 'Real bodies and retrieving senses: disability in the ritual record'; and 'Classical reception as the gateway between Classics and disability studies'. Chapters by scholars from different academic backgrounds are carefully paired in these sections in order to draw out further contrasts and nuances and produce a sum that is more than the parts. The volume also explores how the ancient world and its reception have influenced medical and disability literature, and how engagements with disabled people might lead to reinterpretations of familiar case studies, such as the Parthenon. This book is primarily intended for classicists interested in disabled people in the Greco-Roman past and in how modern disability studies may offer insights into and reinterpretations of historic case studies. It will also be of interest to those working in medical humanities, sensory studies, and museum studies, and those exploring the wider tension between representation and reality in ancient contexts. As such, it will appeal to people in the wider Humanities who, notwithstanding any interest in how disabled people are represented in literature, art, and cinema, have had less engagement with disability studies and the lived experience of people with impairments. FREE CHAPTER AVAILABLE! Please go to https://bit.ly/3pzpO7n to access the Introduction, which we have made freely available.
What does 'sexual citizenship' mean in practice for people with mobility impairments who may need professional support to engage in sexual activity? The book explores this subject through empirical investigation based on case studies conducted in four countries - Sweden, England, Australia and the Netherlands - and develops the abstract notion of 'sexual citizenship' to make it practically relevant to disabled people, professionals in disability services and policy-makers. Through a cross-national approach, it demonstrates the variability of how sexual rights are understood and their culturally specific nature. It also shows how the personal is indeed political: states' different policy approaches change the outcomes for disabled people in terms of support to explore and express their sexualities. By proposing a model of sexual facilitation that can be used in policy development, to better cater to disabled service users' needs as well as furthering the theoretical understanding of sexual rights and sexual citizenship, this book will be of interest to professionals in disability services and policy-makers as well as academics and students working in the following subject areas: Disability Studies, Sociology, Social Policy, Sexuality Studies/Sexology, Social Work, Nursing, Occupational Therapy and Public Health.
Ten years after the results of the Cash and Counseling Demonstration and Evaluation were released, this book assesses the impact of this study, which developed individualized plans for helping people with disabilities to stay independent in the community. The study was the first wide-scale test of people with disabilities managing their own budgets and results from the random-controlled trial demonstrated significant positive outcomes, encouraging the US federal and state governments to provide this option as part of their community-based care programs. This volume looks at what people with disabilities and their caregivers are saying about this option ten years removed from the study, and what the latest research shows in terms of what it will take to improve this approach, making the option available for all people with disabilities. The contributions also discuss what needs remain unmet even when people can manage their own budgets, and present participants' and their family caregivers' views on what support broker activities really help (or hurt). Finally, the book summarizes the results of a project involving the Council of Social Work Education and nine schools of social work to develop modules to train future social workers on person-centred planning and participant direction. Of interest to those researchers studying social care with a focus on disabilities, this book would also be of use to those training social workers and support staff. The chapters in this book were originally published in the Journal of Gerontological Social Work and Home Health Care Services Quarterly.
The onslaught of neoliberalism, austerity measures and cuts, impact of climate change, protracted conflicts and ongoing refugee crisis, rise of far right and populist movements have all negatively impacted on disability. Yet, disabled people and their allies are fighting back and we urgently need to understand how, where and what they are doing, what they feel their challenges are and what their future needs will be. This comprehensive handbook emphasizes the importance of everyday disability activism and how activists across the world bring together a wide range of activism tactics and strategies. It also challenges the activist movements, transnational and emancipatory politics, as well as providing future directions for disability activism. With contributions from senior and emerging disability activists, academics, students and practitioners from around the globe, this handbook covers the following broad themes: * Contextualising disability activism in global activism * Neoliberalism and austerity in the global North * Rights, embodied resistance and disability activism * Belonging, identity and values: how to create diverse coalitions for rights * Reclaiming social positions, places and spaces * Social media, support and activism * Campus activism in higher education * Inclusive pedagogies, evidence and activist practices * Enabling human rights and policy * Challenges facing disability activism The Routledge Handbook of Disability Activism provides disability activists, students, academics, practitioners, development partners and policy makers with an authoritative framework for disability activism.
Deep inside everyone, a red beast lies sleeping. When it is asleep, the red beast is quite small, but when it wakes up, it begins to grow and grow. This is the story of a red beast that was awakened. Danni is in the school playground when his friend, Charlie, kicks a ball that hits him in the stomach, waking up the sleeping red beast: `I hate you - I'm gonna get you!'. The red beast doesn't hear the teacher asking if he's okay. It doesn't see that Charlie is sorry - how can Danni tame the red beast? The second edition of this vibrant fully illustrated children's storybook is written for children aged 4-9, and has been updated with inclusive up-to-date language and new illustrations to make sure every child's red beast can learn to be tamed! This is an accessible, fun way to talk about anger, with useful tips about how to 'tame the red beast' and guidance for parents on how anger affects children who struggle to regulate their emotions.
Locates social attitudes towards disability in a contemporary cultural landscape. Interdisciplinary in its crossing of lines among education, the humanities, and the social sciences. 14 newly written chapters cover a broad range of disabilities and chronic conditions including blindness, autism, Down Syndrome, diabetes, cancer and HIV/AIDS.
Locates social attitudes towards disability in a contemporary cultural landscape. Interdisciplinary in its crossing of lines among education, the humanities, and the social sciences. 14 newly written chapters cover a broad range of disabilities and chronic conditions including blindness, autism, Down Syndrome, diabetes, cancer and HIV/AIDS.
This book explores the diverse ways in which disability activism and advocacy are experienced and practised by people with disabilities and their allies. Contributors to the book explore the very different strategies and campaigns they have used to have their demands for respect, dignity and rights heard and acted upon by their communities, by national governments and the international community. The book, with its contemporary global focus, makes a significant contribution to the field of disability and social justice studies, particularly at a time of major social, political and cultural upheaval. Global Perspectives on Disability Activism and Advocacy offers a significant intervention within the field of disability at a time of major social upheaval where actors, advocates and activists are seeking to hold onto existing claims for rights, equality and disability justice.
Social change in the twenty-first century is shaped by both demographic changes associated with ageing societies and significant technological change and development. Outlining the basic principles of a new academic field, Socio-gerontechnology, this book explores common conceptual, theoretical and methodological ideas that become visible in the critical scholarship on ageing and technology at the intersection of Age Studies and Science and Technology Studies (STS). Comprised of 15 original chapters, three commentaries and an afterword, the book explores how ageing and technology are already interconnected and constantly being intertwined in Western societies. Topics addressed cover a broad variety of socio-material domains, including care robots, the use of social media, ageing-in-place technologies, the performativity of user involvement and public consultations, dementia care and many others. Together, they provide a unique understanding of ageing and technology from a social sciences and humanities perspective and contribute to the development of new ontologies, methodologies and theories that might serve as both critique of and inspiration for policy and design. International in scope, including contributions from the United Kingdom, Canada, the United States, Australia, Germany, Norway, Denmark, Austria, the Netherlands, Spain and Sweden, Socio-gerontechnology is an agenda-setting text that will provide an introduction for students and early career researchers as well as for more established scholars who are interested in ageing and technology.
Mainstream gerontological scholarship has taken little heed of people ageing with disability, and they have also been largely overlooked by both disability and ageing policies and service systems. The Handbook on Ageing with Disability is the first to pull together knowledge about the experience of ageing with disability. It provides a broad look at scholarship in this developing field and across different groups of people with disability in order to form a better understanding of commonalities across groups and identify unique facets of ageing within specific groups. Drawing from academic, personal, and clinical perspectives, the chapters address topics stemming from how the ageing with disability experience is framed, the heterogeneity of the population ageing with disability and the disability experience, issues of social exclusion, health and wellness, frailty, later life, and policy contexts for ageing with disability in various countries. Responding to the need to increase access to knowledge in this field, the Handbook provides guideposts for researchers, practitioners, and policy makers about what matters in providing services, developing programmes, and implementing policies that support persons ageing with long-term disabilities and their families.
Following criticisms of the traditionally polarized view of understanding suffering through either medicine or social justice, Lowe makes a compelling argument for how the medical humanities can help to go beyond the traditional biographical and epistemic breaks to see into the nature and properties of suffering and what is at stake. Lowe demonstrates through analysis of major healthcare workforce issues and incidence of burnout how key policies and practices influence healthcare education and experiences of both patients and health professionals. By including first person narratives from health professionals as a tool and resource, she illustrates how dominant ideas about the self enter practice as a refusal of suffering. Demonstrating the relationship between personal experience, theory and research, Lowe argues for a pedagogy of suffering that shows how the moral anguish implicit in suffering is an ethical response of the emergent self. This is an important read for all those interested in medical humanities, health professional education, person-centred care and the sociology of health and illness.
A rediscovered modern classic: a life-affirming account of one man's journey into blindness 'A gift to the whole of humanity' Cathy Rentzenbrink Days before the birth of his first son, writer and academic John M. Hull started to go blind. He would lose his sight entirely, unable to distinguish any sense of light or shadow. Isolated and claustrophobic, he sank into a deep depression. Soon, he had forgotten what his wife and daughter looked like. In Notes on Blindness, John reveals his profound sense of loss, his altered perceptions of time and space, of waking and sleeping, love and companionship. With astonishing lucidity of thought and no self-pity, he describes the horror of being faceless, and asks what it truly means to be a husband and father. And eventually, he finds a new way of experiencing the world, of seeing the light. Based on John's diaries recorded on audio tape, this is a profoundly moving, wise and life-affirming account of one man's journey into blindness. 'Poignant and wise' Andrew Solomon Published in partnership with Wellcome Collection.
This handbook provides a much-needed holistic overview of disability and sexuality research and scholarship. With authors from a wide range of disciplines and representing a diversity of nationalities, it provides a multi-perspectival view that fully captures the diversity of issues and outlooks. Organised into six parts, the contributors explore long-standing issues such as the psychological, interpersonal, social, political and cultural barriers to sexual access that disabled people face and their struggle for sexual rights and participation. The volume also engages issues that have been on the periphery of the discourse, such as sexual accommodations and support aimed at facilitating disabled people's sexual well-being; the socio-sexual tensions confronting disabled people with intersecting stigmatised identities such as LGBTBI or asexual; and the sexual concerns of disabled people in the Global South. It interrogates disability and sexuality from diverse perspectives, from more traditional psychological and sociological models, to various subversive and post-theoretical perspectives and queer theory. This handbook examines the cutting-edge, and sometimes ethically contentious, concerns that have been repressed in the field. With current, international and comprehensive content, this book is essential reading for students, academics and researchers in the areas of disability, gender and sexuality, as well as applied disciplines such as healthcare practitioners, counsellors, psychology trainees and social workers.
This is the first book to offer an in-depth review of research pertaining to individuals with visual impairments across the full span of movement-related disciplines, from biomechanics and motor learning to physical education and Paralympic sport. Each chapter highlights current research trends, future research directions, and practical implications in a key discipline or area of professional practice, drawing on empirical research evidence and opening up new avenues for cross-disciplinary working. Covering physical activity across the life course, from children and young people through to older adults, and addressing the important topic of deafblindness in some depth, the book goes further than any other book published to date on visual impairment and movement. This is essential reading for all advanced students and researchers working in sport, exercise and disability, and an invaluable reference for practitioners and service providers, from in-service teachers and camp directors to physical therapists and physical activity promotion specialists.
This book provides an overview of the innovative, arts-based research method of body mapping and offers a snapshot of the field. The review of body mapping projects by Boydell et al. confirms the potential research and therapeutic benefits associated with body mapping. The book describes a series of body mapping research projects that focus on populations marginalised by disability, mental health status, and other vulnerable identities. Chapters focus on summarising the current state of the art and its application with marginalised groups; analytic strategies for body mapping; highlighting body mapping as a creation and a dissemination process; emerging body mapping techniques including web-based, virtual reality, and wearable technology applications; and measuring the impact of body maps on planning, practice, and behaviour. Contributors and editors include interdisciplinary experts from the fields of psychology, sociology, anthropology, and beyond. Offering innovative ways of engaging in body mapping research, which result in real-world impact, this book is an essential resource for postgraduate students and researchers.
The Routledge Handbook of Visual Impairment examines current debates as well as cross-examining traditionally held beliefs around visual impairment. It provides a bridge between medical practice and social and cultural research drawing on authentic investigations. It is the intention of this Handbook to provide an opportunity to engage with academic researchers who wish to ensure a coherent and rigorous approach to research construction and reflection on visual impairment that is in collaboration with, but sometimes is beyond, the medical realm. This Handbook is divided into ten thematic areas in order to represent the wide range of debates and concepts within visual impairment. The ten themes include: cerebral visual impairment; education; sport and physical exercise; assistive technology; understanding the cultural aesthetics; socio-emotional and sexual aspects of visual impairment; orientation, mobility, habitation, and rehabilitation; recent advances in "eye" research and sensory substitution devices; ageing and adulthood. The 27 chapters that explore the social and cultural aspects of visual impairment can be taken and used in a variety of different ways in order to promote research and generate debate among practitioners and scholars who wish to use this resource to inform their practice in supporting and developing positive outcomes for all. |
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