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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Drawing on rich empirical work emerging from core conflict regions within the island nation of Sri Lanka, this book illustrates the critical role that women with disabilities play in post-armed conflict rebuilding and development. This pathbreaking book shows the critical role that women with disabilities play in post-armed conflict rebuilding and development. Through offering a rare yet important insight into the processes of gendered-disability advocacy activation within the post-conflict environment, it provides a unique counter narrative to the powerful images, symbols and discourses that too frequently perpetuate disabled women's so-called need for paternalistic forms of care. Rather than being the mere recipients of aid and help, the narratives of women with disabilities reveal the generative praxis of social solidarity and cohesion, progressed via their nascent collective practices of gendered-disability advocacy. It will be of interest to academics and students working in the fields of disability studies, gender studies, post-conflict studies, peace studies and social work.
Drawing upon vivid and harrowing life history narratives of people labelled intellectually disabled, this book examines the ways in which disabled subjects are constituted, regulated, governed, and violated through an account of abjection. Extending interdisciplinary dialogues and approaches, it abandons a construct of violence (which by law requires a stable notion of a victim and a perpetrator) and moves to a theorisation of abjection to explore the ways in which disabled subjects are (re)produced, constituted, and treated through time. Deploying a wide range of interdisciplinary approaches, this book sits at the intersections of criminology and sociology, re-thinks notions of dis/ability, violence, and subjectivity, and utilises crip and queer theory to imagine dis/ability differently. It will be of interest to all scholars and students of disability studies, sociology and criminology, and specifically those working the areas of life history work, post-structuralism, hate crime, and post-modern criminology.
This book investigates how being diagnosed with various disabilities impacts on identity. Once diagnosed with a disability, there is a risk that this label can become the primary status both for the person diagnosed as well as for their family. This reification of the diagnosis can be oppressive because it subjugates humanity in such a way that everything a person does can be interpreted as linked to their disability. Drawing on narrative approaches to identity in psychology and social sciences, the bio-psycho-social model and a holistic approach to disabilities, the chapters in this book understand disability as constructed in discourse, as negotiated among speaking subjects in social contexts, and as emergent. By doing so, they amplify voices that may have otherwise remained silent and use storytelling as a way of communicating the participants' realities to provide a more in-depth understanding of their point of view. This book will be of interest to all scholars and students of disability studies, sociology, medical humanities, disability research methods, narrative theory, and rehabilitation studies.
This volume analyzes representations of disability in art from antiquity to the twenty-first century, incorporating disability studies scholarship and art historical research and methodology. This book brings these two strands together to provide a comprehensive overview of the intersections between these two disciplines. Divided into four parts: Ancient History through the 17th Century: Gods, Dwarfs, and Warriors 17th-Century Spain to the American Civil War: Misfits, Wounded Bodies, and Medical Specimens Modernism, Metaphor and Corporeality Contemporary Art: Crips, Care, and Portraiture and comprised of 16 chapters focusing on Greek sculpture, ancient Chinese art, Early Italian Renaissance art, the Spanish Golden Age, nineteenth century art in France (Manet, Toulouse-Lautrec) and the US, and contemporary works, it contextualizes understandings of disability historically, as well as in terms of medicine, literature, and visual culture. This book is required reading for scholars and students of disability studies, art history, sociology, medical humanities and media arts.
* Based on blog entries providing an authentic reflection of the lived experience at some of the key stages along the road to recovery. * Author has a medical background which provides an articulate and interesting perspective into the difficulties around providing and withdrawing intensive care therapy, focusing particularly on understanding the wishes of patients with regard to the treatment of critical injuries. * Provides a peer-level approach to helping readers understand and navigate their new lives, from pragmatic concerns about new daily difficulties, to loftier concerns about their new place in life * Provides much needed support for patients and family members adjusting to life after brain injury.
Much has been written about the profoundly deaf, but the lives of
the nearly 30 million partially deaf people in the United States
today remain hidden. "Song without Words" tells the astonishing
story of a man who, at the age of thirty-four, discovered that he
had been deaf since childhood, yet somehow managed to navigate his
way through Andover, Yale, and Columbia Law School, and to
establish a prestigious international legal career.
Grounded in scientific research on thinking styles and learning, the guidance and advice throughout has been developed to help individuals put theory into practice Provides a unique hands-on approach to managing dyslexia/SpLD Presented in a dyslexic-friendly style, including visual learning aids such as mind-maps, boxed features and colour throughout Written by individuals with dyslexia, who fully understand the complexities of managing the condition
Grounded in scientific research on thinking styles and learning, the guidance and advice throughout has been developed to help individuals put theory into practice Provides a unique hands-on approach to managing dyslexia/SpLD Presented in a dyslexic-friendly style, including visual learning aids such as mind-maps, boxed features and colour throughout Written by individuals with dyslexia, who fully understand the complexities of managing the condition
Provides a new and innovative approach through an ethnographic and people-centred conceptualization of "access", and a consideration of why social change appears to be slowing down, hampered or even sidestepped. Provides empirical studies but also elaborates on theoretical perspectives and concepts. Provides chapters written from a range of subjects including disability studies, social work, sociology, ethnology, social anthropology, political science and organization studies.
This book includes a critical analysis of pedagogy in performance training environments. Includes descriptions of teaching interventions, research and exploratory practice to support the needs and abilities of the individual with dis/ability or difference. Outlines support for individuals in a variety of areas, such as: dyslexia, dyspraxia, visual or hearing impairment, learning and physical dis/abilities, wheelchair users, aphantasia, attention-deficit/hyperactivity disorder and autistic spectrum.
This book includes a critical analysis of pedagogy in performance training environments. Includes descriptions of teaching interventions, research and exploratory practice to support the needs and abilities of the individual with dis/ability or difference. Outlines support for individuals in a variety of areas, such as: dyslexia, dyspraxia, visual or hearing impairment, learning and physical dis/abilities, wheelchair users, aphantasia, attention-deficit/hyperactivity disorder and autistic spectrum.
Progressive, untreatable nerve and muscle diseases transformed the author's life from having been a college athlete to needing a wheelchair and special equipment for day-to-day activities. While dealing with his own conditions, he was faced with the unique challenge of being the sole caregiver for his wife who suffers from Alzheimer's disease. He has written this experience-based book to help people with life-altering medical conditions and those dealing with challenging caregiving responsibilities. Comprehensive in scope, it covers topics including grief, finances, safety and end-of-life planning. This is a resource book containing many references aimed at helping the reader overcome their challenges, maintain their independence and have happy, fulfilling lives.
provides an overview of the area of OBM-IDD summarizes the extant literature offers research-to-practice recommendations includes operational strategies for building successful service settings synthesizes the published literature and directs practice and research in the areas of assessment and evaluation, training, supervision, and performance improvement, systems interventions, and organizational development an integral aid for professionals looking to improve different aspects of service delivery
provides an overview of the area of OBM-IDD summarizes the extant literature offers research-to-practice recommendations includes operational strategies for building successful service settings synthesizes the published literature and directs practice and research in the areas of assessment and evaluation, training, supervision, and performance improvement, systems interventions, and organizational development an integral aid for professionals looking to improve different aspects of service delivery
Uses sources from a wide variety of print and digital media to show how disability and neurodiversity is represented. Will be of interest to all scholars and students of disability studies, cultural studies, film studies, gender studies and sociology more broadly. Includes 16 newly written chapters with contributions from both the global north and the global south including the USA; Canada; India and Kenya.
This interdisciplinary volume links dis/ability and agency by exploring LatDisCrit's theory and activist emancipatory practice. It uses the author's experiential and analytical views as a blind brown Latinx engaged scholar and activist from the global south living and struggling in the highly racialized global north context of the United States. LatDisCrit integrates critically LatCrit and DisCrit which look at the interplay of race/ethnicity, diasporic cultures, historical sociopolitics and disability within multiple Latinx identities in mostly global north contexts, while incorporating global south epistemologies. Using intersectional analysis of key concepts through critical counterstories, following critical race theory methodological traditions, and engaging possible decoloniality treatments of material precarity and agency, this book emphasizes intersectionality's complex underpinnings within and beyond Latinidades. Through a careful interplay of dis/ability identity and dis/ability rights/empowerment, the volume opens avenues for intersectional solidarity and spaces for radical transformational learning. This book will be of interest to all scholars and students working in disability studies; intersectional disability justice activists; critical Latinx/Chicanx studies; critical geographies; intersectional political philosophy; and political and public sociology.
This volume provides an in-depth, qualitative exploration of familial entrepreneurship as an innovative employment model, being established by families in response to difficulties faced by individuals with developmental disabilities in entering the labor market. Drawing on rich qualitative data collected via research with families, this volume explores how and why familial entrepreneurs in the United States have chosen to develop businesses to employ their loved ones. Chapters offer close analysis of the challenges and opportunities associated with familial entrepreneurship and highlight the ways in which this practice supports people with developmental disabilities by providing opportunities for skill development, social interaction, and participation in meaningful activity. Recognizing familial entrepreneurship as a new and distinct hybrid employment model, the text goes on to consider how curricula, policy, and state services might better support families and underpin this form of inclusive work. The volume provides important conclusions that contribute to the fields of Disability Studies, Entrepreneurship, Inclusive Education, Adult Education, Exceptional Student Education, Transition, and Vocational Rehabilitation. It is a key reading for scholars in these fields and across Education more widely.
What does 'sexual citizenship' mean in practice for people with mobility impairments who may need professional support to engage in sexual activity? The book explores this subject through empirical investigation based on case studies conducted in four countries - Sweden, England, Australia and the Netherlands - and develops the abstract notion of 'sexual citizenship' to make it practically relevant to disabled people, professionals in disability services and policy-makers. Through a cross-national approach, it demonstrates the variability of how sexual rights are understood and their culturally specific nature. It also shows how the personal is indeed political: states' different policy approaches change the outcomes for disabled people in terms of support to explore and express their sexualities. By proposing a model of sexual facilitation that can be used in policy development, to better cater to disabled service users' needs as well as furthering the theoretical understanding of sexual rights and sexual citizenship, this book will be of interest to professionals in disability services and policy-makers as well as academics and students working in the following subject areas: Disability Studies, Sociology, Social Policy, Sexuality Studies/Sexology, Social Work, Nursing, Occupational Therapy and Public Health.
The onslaught of neoliberalism, austerity measures and cuts, impact of climate change, protracted conflicts and ongoing refugee crisis, rise of far right and populist movements have all negatively impacted on disability. Yet, disabled people and their allies are fighting back and we urgently need to understand how, where and what they are doing, what they feel their challenges are and what their future needs will be. This comprehensive handbook emphasizes the importance of everyday disability activism and how activists across the world bring together a wide range of activism tactics and strategies. It also challenges the activist movements, transnational and emancipatory politics, as well as providing future directions for disability activism. With contributions from senior and emerging disability activists, academics, students and practitioners from around the globe, this handbook covers the following broad themes: * Contextualising disability activism in global activism * Neoliberalism and austerity in the global North * Rights, embodied resistance and disability activism * Belonging, identity and values: how to create diverse coalitions for rights * Reclaiming social positions, places and spaces * Social media, support and activism * Campus activism in higher education * Inclusive pedagogies, evidence and activist practices * Enabling human rights and policy * Challenges facing disability activism The Routledge Handbook of Disability Activism provides disability activists, students, academics, practitioners, development partners and policy makers with an authoritative framework for disability activism.
Ten years after the results of the Cash and Counseling Demonstration and Evaluation were released, this book assesses the impact of this study, which developed individualized plans for helping people with disabilities to stay independent in the community. The study was the first wide-scale test of people with disabilities managing their own budgets and results from the random-controlled trial demonstrated significant positive outcomes, encouraging the US federal and state governments to provide this option as part of their community-based care programs. This volume looks at what people with disabilities and their caregivers are saying about this option ten years removed from the study, and what the latest research shows in terms of what it will take to improve this approach, making the option available for all people with disabilities. The contributions also discuss what needs remain unmet even when people can manage their own budgets, and present participants' and their family caregivers' views on what support broker activities really help (or hurt). Finally, the book summarizes the results of a project involving the Council of Social Work Education and nine schools of social work to develop modules to train future social workers on person-centred planning and participant direction. Of interest to those researchers studying social care with a focus on disabilities, this book would also be of use to those training social workers and support staff. The chapters in this book were originally published in the Journal of Gerontological Social Work and Home Health Care Services Quarterly.
Locates social attitudes towards disability in a contemporary cultural landscape. Interdisciplinary in its crossing of lines among education, the humanities, and the social sciences. 14 newly written chapters cover a broad range of disabilities and chronic conditions including blindness, autism, Down Syndrome, diabetes, cancer and HIV/AIDS.
Locates social attitudes towards disability in a contemporary cultural landscape. Interdisciplinary in its crossing of lines among education, the humanities, and the social sciences. 14 newly written chapters cover a broad range of disabilities and chronic conditions including blindness, autism, Down Syndrome, diabetes, cancer and HIV/AIDS.
Written by expert professionals, this book provides comprehensive information about available support for women and girls with ADHD and tips for clinicians and professionals who work with them. The symptoms of ADHD are no less impairing in females than males, but can be missed or misunderstood. This book arms professionals, parents, and women themselves as it maps out where to go for information, who can help and how to understand ADHD better. It explains routes to assessment and diagnosis for girls and young women, how to access support in education, available treatments, and the impact of living with ADHD on overall mental health. It explores the benefits of ADHD coaching for girls to help develop their unique strengths and talents. There is also a focus on ADHD diagnosis for women in adulthood and specific advice about treatment and medication for later in life. Central to the book are the personal experiences of ADHD from women and girls from a variety of backgrounds. These tell of late diagnosis, missed opportunities, a lifetime of adaptations and the power of recognition and treatment and are powerful stories for professionals and individuals with ADHD alike.
This book explores the diverse ways in which disability activism and advocacy are experienced and practised by people with disabilities and their allies. Contributors to the book explore the very different strategies and campaigns they have used to have their demands for respect, dignity and rights heard and acted upon by their communities, by national governments and the international community. The book, with its contemporary global focus, makes a significant contribution to the field of disability and social justice studies, particularly at a time of major social, political and cultural upheaval. Global Perspectives on Disability Activism and Advocacy offers a significant intervention within the field of disability at a time of major social upheaval where actors, advocates and activists are seeking to hold onto existing claims for rights, equality and disability justice.
Mainstream gerontological scholarship has taken little heed of people ageing with disability, and they have also been largely overlooked by both disability and ageing policies and service systems. The Handbook on Ageing with Disability is the first to pull together knowledge about the experience of ageing with disability. It provides a broad look at scholarship in this developing field and across different groups of people with disability in order to form a better understanding of commonalities across groups and identify unique facets of ageing within specific groups. Drawing from academic, personal, and clinical perspectives, the chapters address topics stemming from how the ageing with disability experience is framed, the heterogeneity of the population ageing with disability and the disability experience, issues of social exclusion, health and wellness, frailty, later life, and policy contexts for ageing with disability in various countries. Responding to the need to increase access to knowledge in this field, the Handbook provides guideposts for researchers, practitioners, and policy makers about what matters in providing services, developing programmes, and implementing policies that support persons ageing with long-term disabilities and their families. |
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