To lose a child is tragic; to lose a child who still lives is
beyond comprehension. Yet this is the experience of the mothers and
fathers who tell their very personal stories in this important
book. Their children, born healthy and happy, lost their minds to a
mysterious disorder with no known cause or cure: Childhood
Disintegrative Disorder (CDD). Also called late-onset autism, this
malady differs from typical autism in that it afflicts children
after one or even two years of apparently normal development. In
the long term, deterioration leads to still poorer behavioral and
developmental functioning.
How do families respond to such ever-present loss? In When
Autism Strikes, the parents of eight such children from around the
world present their own stories, in their own words. They describe
their first suspicions, their struggles to find a cause, and the
means by which they cope, day to day. By turns heartbreaking and
inspiring, this courageous document brings to light a scientific
mystery and a human tragedy.
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