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The Ethics of Uncertainty - Entangled Ethical and Epistemic Risks in Disorders of Consciousness (Hardcover)
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The Ethics of Uncertainty - Entangled Ethical and Epistemic Risks in Disorders of Consciousness (Hardcover)
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Disorders of Consciousness (DoCs) raise difficult and complex
questions about the value of life for persons with impaired
consciousness, the rights of persons unable to make medical
decisions, and our social, medical, and ethical obligations to
patients whose personhood has frequently been challenged and
neglected. Recent neuroscientific discoveries have led to enhanced
understanding of the heterogeneity of these disorders, and focused
renewed attention on the medical and ethical problem of
misdiagnosis. This book examines the entanglement of epistemic and
ethical uncertainty in DoCs and other medical contexts, and how
they interact to create both epistemic and ethical risks.
Philosopher and bioethicist L. Syd M Johnson pulls together
multiple threads in this work: the ontological mysteries of
consciousness, medical uncertainty about unconsciousness, ableist
bias, withdrawal of treatment in neurointensive care, and the
rarely questioned view that consciousness is essential to
personhood and moral status. Johnson challenges longstanding
bioethical dogmas about DoC patients, and argues for an ethics of
uncertainty for contexts where there is a need for decisive action
in the presence of unavoidable uncertainty. The ethics of
uncertainty refocuses ethical inquiry concerning persons with DoCs,
placing less emphasis on their contested personhood, and more on
inductive risk and uncertainty, on respect for autonomy, and
especially on epistemic justice. With applications to various
decisional contexts where uncertainty and ethical risk interact,
this ethical approach enables surrogate decision makers facing
fraught and risky choices to fulfill their obligations as moral and
epistemic agents.
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