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Genetic Data and the Law - A Critical Perspective on Privacy Protection (Hardcover)
Loot Price: R2,781
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Genetic Data and the Law - A Critical Perspective on Privacy Protection (Hardcover)
Series: Cambridge Bioethics and Law
Expected to ship within 12 - 17 working days
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Research using genetic data raises various concerns relating to
privacy protection. Many of these concerns can also apply to
research that uses other personal data, but not with the same
implications for failure. The norms of exclusivity associated with
a private life go beyond the current legal concept of personal data
to include genetic data that relates to multiple identifiable
individuals simultaneously and anonymous data that could be
associated with any number of individuals in different, but
reasonably foreseeable, contexts. It is the possibilities and
implications of association that are significant, and these
possibilities can only be assessed if one considers the
interpretive potential of data. They are missed if one fixates upon
its interpretive pedigree or misunderstands the meaning and
significance of identification. This book demonstrates how the
public interest in research using genetic data might be reconciled
with the public interest in proper privacy protection.
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