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The volume aims to capture a European gist of theoretical
sensibilities, conceptual resources, and research interests, but
not in an adversarial way, as opposed to American bioethics. The
volume gathers contributions from European scholars as they
collaborate and form a research network, drawing on a diversity of
philosophical traditions and local knowledge, with the aim of
debating universal bioethical problems. ABSTRACTING & INDEXING
Contemporary Debates in Bioethics: European Perspectives is covered
by the following services: Baidu Scholar DOAB (Directory of Open
Access Books) EBSCO Discovery Service Google Scholar J-Gate Naviga
(Softweco) Primo Central (ExLibris) ReadCube Semantic Scholar
Summon (ProQuest) TDOne (TDNet) WorldCat (OCLC)
The financial burden and the level of specialized care required to
look after older adults with dementia has reached the point of a
public health crisis. Older adults diagnosed and living with the
disorder reached 35.6 million worldwide in 2010 and is expected to
increase to 135.5 million in 2050, with costs soaring to $1.1
trillion. In the face of the increasing burden this disorder poses
to health care systems and the management of this patient
population, intelligent assistive technologies (IATs) represent a
remarkable and promising strategy to meet the need of persons
suffering from dementia. These technologies aim at helping
individuals compensate for specific physical and cognitive
deficits, and maintain a higher level of independence at home and
in everyday activities. However, the rapid development and
widespread implementation of these technologies are not without
associated challenges at multiple levels. An international and
multidisciplinary group of authors provide future-oriented and
in-depth analysis of IATs. Part I delineates the current landscape
of intelligent assistive technologies for dementia care and
age-related disability from a global perspective, while the
contributions in Part II analyze and address the major
psycho-social implications linked to the development and clinical
use of IATs. In the last section, essays examine the major ethical,
social and regulatory issues associated with the use of IATs in
dementia care. This volume provides an authoritative and
comprehensive overview of how IATs are reshaping dementia care.
Population genomics research drawing on genetic databases has
expanded rapidly, with some of this information being combined in
'biobanks'. Managing this information in an appropriate way is a
highly complex ethical issue in the health policy arena. This book
combines theoretical and empirical research to analyze the areas of
conflict and consensus in the regulatory and ethical frameworks
that have been developed to govern biobanks. Ethicists from the
Department of Ethics, Trade, Human Rights and Health Law (ETH) of
the World Health Organization, the Institute of Biomedical Ethics
of Geneva University and the Institute of Biomedical Ethics of the
University of Zurich, with the support of the Geneva International
Academic Network (GIAN), examine the conditions under which genetic
databases can be established, kept, and made use of in an ethically
acceptable way. In addition to a comprehensive review of the
scientific literature and a comparative analysis of existing
normative frameworks, they present the results of in-depth
interviews with experts around the world concerning the most
unresolved and controversial issues. The results of that study,
combined with their normative analysis, leads to recommendations
for a better international framework.
Population genomics research drawing on genetic databases has
expanded rapidly, with some of this information being combined in
'biobanks'. Managing this information in an appropriate way is a
highly complex ethical issue in the health policy arena. This book
combines theoretical and empirical research to analyze the areas of
conflict and consensus in the regulatory and ethical frameworks
that have been developed to govern biobanks. Ethicists from the
Department of Ethics, Trade, Human Rights and Health Law (ETH) of
the World Health Organization, the Institute of Biomedical Ethics
of Geneva University and the Institute of Biomedical Ethics of the
University of Zurich, with the support of the Geneva International
Academic Network (GIAN), examine the conditions under which genetic
databases can be established, kept, and made use of in an ethically
acceptable way. In addition to a comprehensive review of the
scientific literature and a comparative analysis of existing
normative frameworks, they present the results of in-depth
interviews with experts around the world concerning the most
unresolved and controversial issues. The results of that study,
combined with their normative analysis, leads to recommendations
for a better international framework.
Following the boom in population databases in recent years there
has been sustained and intense international debate about political
processes and legal and ethical issues surrounding the protection
and use of genetic data. As a result, several national and
international organizations and committees have published widely
differing guidelines and statements concerning genetic databases
and biobanks. Ethical Issues of Human Genetic Databases compares
the new area of biobanking with the tradition of ethically accepted
classical research and highlights the distinctive features of
existing databases and guidelines. The volume identifies areas of
consensus and controversy while investigating the challenges posed
to classical health research ethics by the existence of genetic
databases, analyzing the reasons for such varying guidelines. The
book will be essential to academics, biobankers, policy-makers and
researchers in the field of medical ethics.
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