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Books > Medicine > General issues > Medical ethics
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Ethical Issues in Governing Biobanks - Global Perspectives (Paperback)
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Ethical Issues in Governing Biobanks - Global Perspectives (Paperback)
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Population genomics research drawing on genetic databases has
expanded rapidly, with some of this information being combined in
'biobanks'. Managing this information in an appropriate way is a
highly complex ethical issue in the health policy arena. This book
combines theoretical and empirical research to analyze the areas of
conflict and consensus in the regulatory and ethical frameworks
that have been developed to govern biobanks. Ethicists from the
Department of Ethics, Trade, Human Rights and Health Law (ETH) of
the World Health Organization, the Institute of Biomedical Ethics
of Geneva University and the Institute of Biomedical Ethics of the
University of Zurich, with the support of the Geneva International
Academic Network (GIAN), examine the conditions under which genetic
databases can be established, kept, and made use of in an ethically
acceptable way. In addition to a comprehensive review of the
scientific literature and a comparative analysis of existing
normative frameworks, they present the results of in-depth
interviews with experts around the world concerning the most
unresolved and controversial issues. The results of that study,
combined with their normative analysis, leads to recommendations
for a better international framework.
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