Rapid advances in high-throughput genome sequencing technologies foreshadow a near-future in which millions of individuals will gain affordable access to their complete genome sequence. This promises to offer unprecedented insights into the fundamental biological nature of ourselves and our species: where we came from, how we begin our lives, how we develop and grow, how we interact with our environment, how we get sick, how we get well, and how we age. Personal genomics is an essential component of the inevitable transition towards personalized health and medicine. As the medical establishment begins to explore and evaluate the role of personal genomics in health and medicine, both clinicians and patients alike will gain from becoming well versed in both the power and the pitfalls of personal genomic information. Furthermore, it is likely that all students of the biomedical sciences will soon be required to gain crucial understanding in the emerging field of personal genomics. Exploring Personal Genomics provides a novel, inquiry-based approach to the understanding and interpretation of the practical, medical, physiological, and societal aspects of personal genomic information. The material is presented in two parts: the first provides readers of all backgrounds with a fundamental understanding of the biology of human genomes, information on how to obtain and understand digital representations of personal genomic data, tools and techniques for exploring the personal genomics of ancestry and genealogy, discovery and interpretation of genetic trait associations, and the role of personal genomics in drug response. The second part offers more advanced readers an understanding of the science, tools, and techniques for investigating interactions between a personal genome and the environment, connecting DNA to physiology, and assessing rare variants and structural variation. This book aims to support undergraduate and graduate studies in medicine, genetics, molecular biology, and bioinformatics. Additionally, the design of the content is such that medical practitioners, professionals working in the biomedical sciences or related fields, and motivated lay individuals interested in exploring their personal genetic data should find it relevant and approachable.

William LaFleur (1936-2010), an eminent scholar of Japanese studies, left behind a substantial number of influential publications, as well as several unpublished works. The most significant of these examines debates concerning the practice of organ transplantation in Japan and the United States, and is published here for the first time. This provocative book challenges the North American medical and bioethical consensus that considers the transplantation of organs from brain dead donors as an unalloyed good. It joins a growing chorus of voices that question the assumption that brain death can be equated facilely with death. It provides a deep investigation of debates in Japan, introducing numerous Japanese bioethicists whose work has never been treated in English. It also provides a history of similar debates in the United States, problematizing the commonly held view that the American public was quick and eager to accept the redefinition of death. A work of intellectual and social history, this book also directly engages with questions that grow ever more relevant as the technologies we develop to extend life continue to advance. While the benefits of these technologies are obvious, their costs are often more difficult to articulate. Calling attention to the risks associated with our current biotech trajectory, LaFleur stakes out a highly original position that does not fall neatly onto either side of contemporary US ideological divides.

The complex, highly problematic, often thorny dynamics of trust and authority are central to the anthropological study of legitimacy. In this book, this sine qua non runs across the in-depth examination of the ways in which healthcare and public health are managed by the authorities and experienced by the people on the ground in urban Europe, the USA, India, Africa, Latin America and the Far and Middle East. This book brings comparatively together anthropological studies on healthcare and public health rigorously based on in-depth empirical knowledge. Inspired by the current debate on legitimacy, legitimation and de-legitimation, the contributions do not refrain from taking into account the impact of the Covid-19 pandemic on the health systems under study, but carefully avoid letting this issue monopolise the discussion. This book raises key challenges to our understanding of healthcare practices and the governance of public health. With a keen eye on urban life, its inequalities and the ever-expanding gap between rulers and the ruled, the findings address important questions on the complex ways in which authorities gain, keep, or lose the public’s trust.

This book takes up the challenge of examining women's understandings of eating disorders and child sexual abuse away from a framework focused on pathology. The central argument is that women's distress is an enactment of their engagement with certain discourses and practices, rather than a reaction triggered by child sexual abuse. Guided by a contemporary feminist framework and Mikhail Bakhtin's sociological linguistics, to substantiate the argument, women's own poetry and drawings are used as evidence to develop, support and supplement research findings. The book establishes that an eating disorder is 'an understandable response' to sexual trauma and shifts the focus away from 'a damaged personality'. Even more importantly, it demonstrates that women with eating disorders are using their bodies as a form of resistance to express silenced traumas that remain in the silenced female body. This is an active way of making sense of experiences of child sexual abuse.

The age-friendly community movement is a global phenomenon, currently growing with the support of the WHO and multiple international and national organizations in the field of aging. Drawing on an extensive collection of international case studies, this volume provides an introduction to the movement. The contributors - both researchers and practitioners - touch on a number of current tensions and issues in the movement and offer a wide-ranging set of recommendations for advancing age-friendly community development. The book concludes with a call for a radical transformation of a medical and lifestyle model of aging into a relational model of health and social/individual wellbeing.

This open access book applies insights from the anthropology of hospitality to illuminate ethnographic accounts of migrant reception in various parts of the Mediterranean. The contributors ground the idea and practice of hospitality in concrete ethnographic settings and challenge how the casual usage of Derridean or Kantian notions of hospitality can blur the boundaries between social scales and between metaphor and practice. Host-guest relations are multiplied through pregnancy and childbirth, and new forms of hospitality emerge with the need to offer mortuary practices for dead strangers, helping to illuminate the spatial and scalar dimensions of morality and politics in Mediterranean migrant reception.

This book explores Native American literary responses to biomedical discourses and biomedicalization processes as they circulate in social and cultural contexts. Native American communities resist reductivism of biomedicine that excludes Indigenous (and non-Western) epistemologies and instead draw attention to how illness, healing, treatment, and genetic research are socially constructed and dependent on inherently racialist thinking. This volume highlights how interventions into the hegemony of biomedicine are vigorously addressed in Native American literature. The book covers tuberculosis and diabetes epidemics, the emergence of Native American DNA, discoveries in biotechnology, and the problematics of a biomedical model of psychiatry. The book analyzes work by Louise Erdrich, Sherman Alexie, LeAnne Howe, Linda Hogan, Heid E. Erdrich, Elissa Washuta and Frances Washburn. The book will appeal to scholars of Native American and Indigenous Studies, as well as to others with an interest in literature and medicine.

This book explores the ways in which socio-technical settings in medical contexts find varying articulations in a specific locale. Focusing on Japan, it consists of nine case studies on topics concerning: experiences with radiation in Hiroshima, Nagasaki, and Fukushima; patient security, end-of-life and high-tech medicine in hospitals; innovation and diffusion of medical technology; and the engineering and evaluating of novel devices in clinical trials. The individual chapters situate humans and devices in medical settings in their given semantic, pragmatic, institutional and historical context. A highly interdisciplinary approach offers deep insights beyond the manifold findings of each case study, thereby enriching academic discussions on socio-technical settings in medical contexts amongst affiliated disciplines. This volume will be of broad interest to scholars, practitioners, policy makers and students from various disciplines, including Science and Technology Studies (STS), medical humanities, social sciences, ethics and law, business and innovation studies, as well as biomedical engineering, medicine and public health.

In a world now filled with more people who are overweight than underweight, public health and medical perspectives paint obesity as a catastrophic epidemic that threatens to overwhelm health systems and undermine life expectancies globally. In many societies, being obese also creates profound personal suffering because it is so culturally stigmatized. Yet despite loud messages about the health and social costs of being obese, weight gain is a seemingly universal aspect of the modern human condition. Grounded in a holistic anthropological approach and using a range of ethnographic and ecological case studies, Obesity shows that the human tendency to become and stay fat makes perfect sense in terms of evolved human inclinations and the physical and social realities of modern life. Drawing on her own fieldwork in the rural United States, Mexico, and the Pacific Islands over the last two decades, Alexandra A. Brewis addresses such critical questions as why obesity is defined as a problem and why some groups are so much more at risk than others. She suggests innovative ways that anthropology and other social sciences can use community-based research to address the serious public health and social justice concerns provoked by the global spread of obesity.

This book provides a solid basis to understand two centuries of bodily measurement practices and their scientific and political scope throughout the Western world. By exploring various cases, it proposes a new approach of measurement from an epistemological point of view and demonstrates the central role of the measurement of the body for political purposes. By studying categorizations of race, age and quality of life between the 19th and 20th century, the first part of the book highlights how human body measurements extend from the flesh to subjective experience. The second part shows how genomic correction and life support technologies reshape the frontiers between things, humans and social subjects. The final part reveals how contemporary measurements of age, race and disease gave rise to new hierarchies between human beings and social groups. The book concludes by considering different styles of measuring the body and their ontological consequences.

This book provides a definitive account of koro, a topic of long-standing interest in the field of cultural psychiatry in which the patient displays a fear of the genitals shrinking and retracting. Written by Professor A.N. Chowdhury, a leading expert in the field, it provides a comprehensive overview of the cultural, historical and clinical significance of the condition that includes both cutting-edge critique and an analysis of research and accounts from the previous 120 years published literature. The book begins by outlining the definition, etymology of the term, and clinical features of koro as a culture-bound syndrome, and contextualizes the concept with reference to its historical origins and local experience in Southeast Asia, and its subsequent widespread occurrence in South Asia. It also critically examines the concept of culture-bound disorder and the development of the terminology, such as cultural concepts of distress, which is the term that is currently used in the DSM-5. Subsequent chapters elaborate the cultural context of koro in Chinese and South Asian cultures, including cultural symbolic analysis of associations with animals (fox and turtle) and phallic imagery based on troubling self-perceived aspects of body image that is central to the concept. The second section of the book offers a comprehensive, global literature review, before addressing the current status and relevance of koro, clinically relevant questions of risk assessment and forensic issues, and research methodology. This landmark work will provide a unique resource for clinicians and researchers working in cultural psychiatry, cultural psychology, anthropology, medical sociology, social work and psychosexual medicine.

This volume reflects on how anthropologists have engaged in medical education and aims to positively influence the future careers of anthropologists who are currently engaged or are considering a career in medical education. The volume is essential for medical educators, administrators, researchers, and practitioners, those interested in the history of medicine, global health, sociology of health and illness, medical and applied anthropology. For over a century, anthropologists have served in many roles in medical education: teaching, curriculum development, administration, research, and planning. Recent changes in medical education focusing on diversity, social determinants of health, and more humanistic patient-centered care have opened the door for more anthropologists in medical schools. The chapter authors describe various ways in which anthropologists have engaged and are currently involved in training physicians, in various countries, as well as potential new directions in this field. They address critical topics such as: the history of anthropology in medical education; humanism, ethics, and the culture of medicine; interprofessional and collaborative clinical care; incorporating patient perspectives in practice; addressing social determinants of health, health disparities, and cultural competence; anthropological roles in planning and implementation of medical education programs; effective strategies for teaching medical students; comparative analysis of systems of care in Japan, Uganda, France, United Kingdom, Mexico, Canada and throughout the United States; and potential new directions for anthropological engagement with medicine. The volume overall emphasizes the important role of anthropology in educating physicians throughout the world to improve patient care and population health.

Abject Relations presents an alternative approach to anorexia nervosa, long considered the epitome of a Western obsession with individualism, beauty, self-control, and autonomy. Through detailed ethnographic investigations, Megan Warin looks at the heart of what it means to live with anorexia on a daily basis. Participants describe difficulties with social relatedness, not being at home in their body, and feeling disgusting and worthless. For them, anorexia becomes a seductive and empowering practice that cleanses bodies of shame and guilt, becomes a friend and support, and allows them to forge new social relations. Unraveling anorexia's complex relationships and contradictions, Warin constructs a new theoretical perspective rooted in a socio-cultural context of bodies and gender. Abject Relations departs from conventional psychotherapy approaches and offers a different "logic," one that involves the shifting forces of power, disgust, and desire. It provides new ways of thinking that may have implications for future treatment regimes. Megan Warin is a social anthropologist in the Discipline of Gender, Work, and Social Inquiry at the University of Adelaide. She has previously worked across anthropology, psychiatry, and public health at various institutions, including Durham University, the University of Adelaide, and Flinders University of South Australia. Praise for Abject Relations: "Warin has taken the topic of anorexia, which many of us feel that we know something about, and brilliantly cast a whole new light on it. Through vivid ethnography and evocative prose, she ensures that you won't think about anorexia or those affected by it in quite the same way ever again."-C. H. Browner, UCLA School of Medicine "Anthropologist Megan Warin combines rich multisited ethnographic research on anorexic women's lived experiences with a sophisticated theoretical approach based on concepts of abjection and relatedness to offer fascinating and original insights into anorexia nervosa."-Carole M. Counihan, author of The Anthropology of Food and Body: Gender, Meaning, and Power

Organ Donation in Japan: A Medical Anthropological Study by Maria-Keiko Yasuoka reveals insight into Japan as the country with the most severe organ shortages and the lowest numbers of organ donations among medically advanced countries. The history of organ transplantation in Japan is a unique and troubled one. Many academic hypotheses such as cultural barriers, the Japanese concept of the dead body, traditional beliefs, and so on have been advanced to explain the situation. However, little research has yet revealed the truth behind the world of Japanese organ transplantation. Yasuoka conducts direct interview research with Japanese "concerned parties" in regards to organ transplantation (including transplant surgeons, recipients, and donor families). In this book, she analyzes their narrative responses, considering their distinctive ideas, interpretations, and dilemmas, and sheds light on the real reasons behind the issues. Organ Donation in Japan is the first book to delve into the challenging and taboo Japanese concepts of life and death surrounding organ transplantation by thoroughly presenting and investigating the narratives of concerned parties.

Recent work in the mobilities literature has highlighted the importance of thinking about mobility and immobility as a continuum, where movement intersects with processes that might entail episodes of transition, waiting, emptiness, and fixity. This focus on stillness, things that are stuck, incomplete or in a state of transition can point to new theoretical, methodological and practical dimensions in social studies of medicine. This edited volume brings the concept of immobility to the forefront of social studies of medicine to explore how immobility shapes processes of medical care and the theoretical and methodological challenges of studying immobility in medical contexts. The authors in this volume draw from a wide range of case studies across the globe to make contributions to our current understanding of health, illness and medicine, mobilities and immobilities. Chapter 2 "Lists in Flux, Lives on Hold? Technologies of Waiting in Liver Transplant Medicine" is available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.

As a group, western diseases such as type 2 diabetes, cardiovascular disease, breast cancer, allergies and mental health problems constitute one of the major problems facing humans at the beginning of the 21st century, particularly as they extend into poorer countries. An evolutionary perspective has much to offer standard biomedical understandings of western diseases. At the heart of this approach is the notion that human evolution occurred in circumstances very different from the modern affluent western environment and that, as a consequence, human biology is not adapted to the contemporary western environment. Written with an anthropological perspective and aimed at advanced undergraduates and graduates taking courses in the ecology and evolution of disease, Tessa Pollard applies and extends this evolutionary perspective by analysing trends in rates of western diseases and providing a new synthesis of current understandings of evolutionary processes, and of the biology and epidemiology of disease.

This book explores Ireland's Marriage Bar, examining its impact on women's lives and the predominantly feminised nursing profession. Information on the history of nursing and the evolution of the nursing profession tends to focus on critical events or key persons who shaped the profession. What is less known and explored is the women nurses' work experiences or how the world outside the ward affected the nurse and the nursing profession at moments in time. This book takes one of these moments in time, the period of the Marriage Bar, and examines the women nurses' lives and the nursing profession during this period of Ireland's history. It does so by adopting a historical perspective and a lived experience perspective of women who had to negotiate this practice. Fifty years on from the Bar removal, as remnants of this time in Ireland's history remain, legislative and constitutional change are required to right the wrongs of the past.

Written from the perspective of a diagnostic radiography educator, t his book introduces readers to ethnography as a methodology and examines how an ethnographic researcher sees the world in which they live.

Autism is a complex phenomenon that is both individual and social. Showing both robust similarities and intriguing differences across cultural contexts, the autism spectrum raises innumerable questions about self, subjectivity, and society in a globalized world. Yet it is often misrepresented as a problem of broken bodies and disordered brains. So, in 2015, a group of interdisciplinary scholars gathered in Rio de Janeiro, Brazil for an intellectual experiment: a workshop that joined approaches from psychological anthropology to the South American tradition of Collective Health in order to consider autism within social, historical, and political settings. This book is the product of the ongoing conversation emerging from this event. It contains a series of comparative histories of autism policy in Italy, Brazil, and the United States; focuses on issues of voice, narrative, and representation in autism; and examines how the concept of autism shapes both individual lives and broader social and economic systems. Featuring contributions from: Michael Bakan Benilton Bezerra Pamela Block M. Ariel Cascio Jurandir Freire Costa Barbara Costa Andrada Cassandra Evans Elizabeth Fein Clara Feldman Roy Richard Grinker Rossano Lima Francisco Ortega Dawn Prince-Hughes Clarice Rios Laura Sterponi Thomas S. Weisner Enrico Valtellina

This edited collection explores the multiple ways in which ethnography and health emerge and take form through the research process. There is now a plethora of disciplinary engagements with ethnography around the topic of health, including anthropology, sociology, geography, science and technology studies, and in health care professions such as nursing and occupational therapy. This dynamic and evolving landscape means ethnography and health are entangled in new and different ways, providing a timely opportunity to explore what these entanglements do and affect in the social production of knowledge. Rather than discussing the strengths (and limitations) of ethnography for engaging with health, the book asks: what does ethnography enable, make visible and possible for knowing and doing health in contemporary research settings and beyond?

In the fertility and cosmetics industries, women's body products - such as urine, eggs, and placentas - have moved from being seen as waste to becoming valuable ingredients. Taking a sociological and anthropological perspective, the author focuses in particular on the role that countries like Denmark, Spain, the Netherlands, and Japan play in the reproductive products industry, and discusses the moral limits of the cultural and rhetorical trajectories that turn women's body products into internationally mobile substances.

This book describes and analyzes the impact of COVID-19 on the relationship between the United States and China in its human, social and political dimensions. It does so through the experience of faculty and students at Duke University and Duke Kunshan University, a US-China joint venture university. The book reveals the intimate stories of Chinese people trapped in quarantine, situating these stories in a longer historical perspective of plagues and disease prevention in China. It describes the impact of the virus on the racialized perceptions of Chinese-Americans and Chinese students in America. Finally, it offers a preliminary assessment of the impact of the coronavirus on the legitimacy of the Chinese Communist Party, and on US-China relations. Featuring the work of artists, student journalists, historians, anthropologists and political scientists, this book presents a breadth of insights into the impact of COVID-19.

The popularization of the Internet, due in larger part to the advent of multifunctional cell phones, poses new challenges for health professionals, patients, and caregivers as well as creates new possibilities for all of us. This comprehensive volume analyzes how this social phenomenon is transforming long-established healthcare practices and perceptions in a country with one of the highest numbers of Internet users: Brazil. After an opening text that analyzes the Internet and E-Health Care as a field of study, the book comprises six parts. The first part introduces the emergence and development of the internet in Brazil, its pioneering experience in internet governance, digital inclusion, and online citizen participation. The second part is dedicated to internet health audiences by analyzing the cases of patients, the young, and the elderly seeking and sharing health information online, especially in virtual communities. The third part is dedicated to the challenges that the expansion of the internet in healthcare poses to all of us, such as the evaluation of the quality of health information available online and the prevention of the risks involved with online sales, cyberbullying, and consumption of prescription medicines. The fourth presents some innovative e-learning experiences carried out with different groups in Brazil, while the fifth part analyses some practical applications involving the Internet and health, including studies on M-Health, the Internet of things, serious games and the use of new information and communication technologies in health promotion. The last chapter analyses the future of healthcare in the Internet Age. The authors establish a critical and creative debate with international scholarship on the subject. This book is written in a direct and comprehensible way for professionals, researchers, students of communication and health, as well as for stakeholders and others interested in better understanding the trends and the different challenges related to the social phenomenon of the internet in health.

The field of medical anthropology is a discipline that incorporates the perspective of a wide range of approaches--from anthropologists, sociologists, epidemiologists, physicians, nurses, public health administrators, biologists, and many others, including the general public--to health care. This approach places culture and cultural relativism at the forefront and center of every model, and examines the ethics and fairness of health care issues associated with the African American population.

The author examines data on mortality, census, preventive health, alternative medical practices, clinical research, and intervention from a comprehensive perspective. Finally, fieldwork in a public health department setting provides the medical anthropologist with a unique opportunity to investigate cultural and health issues of a particular population in a public health setting. The author explains the steps and procedures for conducting an applied medical anthropological study, based on his experience doing fieldwork projects over the past 15 years.

This book is open access under a CC BY 4.0 license. This book examines the concept of care and care practices in healthcare from the interdisciplinary perspectives of continental philosophy, care ethics, the social sciences, and anthropology. Areas addressed include dementia care, midwifery, diabetes care, psychiatry, and reproductive medicine. Special attention is paid to ambivalences and tensions within both the concept of care and care practices. Contributions in the first section of the book explore phenomenological and hermeneutic approaches to care and reveal historical precursors to care ethics. Empirical case studies and reflections on care in institutionalised and standardised settings form the second section of the book. The concluding chapter, jointly written by many of the contributors, points at recurring challenges of understanding and practicing care that open up the field for further research and discussion. This collection will be of great value to scholars and practitioners of medicine, ethics, philosophy, social science and history.