Colin Farrelly contemplates the various ethical and social quandaries raised by the genetic revolution. Recent biomedical advances such as genetic screening, gene therapy and genome editing might be used to promote equality of opportunity, reproductive freedom, healthy aging, and the prevention and treatment of disease. But these technologies also raise a host of ethical questions: Is the idea of "genetically engineering" humans a morally objectionable form of eugenics? Should parents undergoing IVF be permitted to screen embryos for the sex of their offspring? Would it be ethical to alter the rate at which humans age, greatly increasing longevity at a time when the human population is already at potentially unsustainable levels? Farrelly applies an original virtue ethics framework to assess these and other challenges posed by the genetic revolution. Chapters discuss virtue ethics in relation to eugenics, infectious and chronic disease, evolutionary biology, epigenetics, happiness, reproductive freedom and longevity. This fresh approach creates a roadmap for thinking ethically about technological progress that will be of practical use to ethicists and scientists for years to come. Accessible in tone and compellingly argued, this book is an ideal introduction for students of bioethics, applied ethics, biomedical sciences, and related courses in philosophy and life sciences.

This book explores the ethical dilemma clinicians may face when disclosing a diagnosis of atypical sex. The moment of disclosure reveals an epistemic incompatibility between scientific fact and social meaning in relation to sex. Attempting to assess the bio-psychosocial implications of this dilemma highlights a complex historic antagonism between fact and meaning making satisfactory resolution of this dilemma difficult. Drawing on David Hume, WVO Quine and Michel Foucault the author presents an integrative model, which views scientific fact and social meaning as codetermining threads in one fabric of knowledge. From this epistemic perspective, the ethical dilemma is understood as a tear in the fabric signifying a rupturing of ontological integrity. To mend this tear and resolve the ethical dilemma three metaphysical perspectives are considered: essentialism, naturalism and emergentism. The book's unique features include: an exploration of the impact of diagnostic disclosure on people with atypical sex (intersex); a synthesis of the epistemic perspectives of social and natural science facilitating interdisciplinary collaboration; a critical evaluation of three metaphysical perspectives on atypical sex (intersex); the application of Hume's epistemological and moral distinctions to contemporary biomedicine and bioethics. The book's target audience includes academics, students and professionals whose work intersects the natural and social sciences, and individuals interested in the metaphysics, epistemology and meta-ethics of sex.

As the state of the natural world declines, environmentally related health problems will increasingly shape the landscape of human health and disease. The confluence of several global trends - rapid population growth combined with an even more dramatic increase in natural resource consumption - drives ecological deterioration, and this in turn poses serious challenges to health. U.S. medicine and bioethics have too long ignored the relevance of these global trends to health care. This groundbreaking work is a call to attention. It brings bioethics and health care squarely into the 21st century.

The book shows how environmental decline relates to human health and to health care practices in the U.S. and other industrialized countries. It outlines the environmental trends that will strongly affect health, and challenges us to see the connections between ways of practicing medicine and the very envrionmental problems that damage ecosystems and make people sick. In addition to philosophical analysis of the converging values of bioethics and environmental ethics, the book offers case studies as well as a number of practical suggestions for moving health care toward sustainability. The exploration of a hypothetical Green Health Center, in particular, offers an intellectual and moral framework for talking about environmental values in health care. Engaging and challenging, this book will appeal not only to health professionals and philosophers, but to anyone concerned about how to preserve and promote both human health and the health of the natural world.

This Open Access book highlights the ethical issues and dilemmas that arise in the practice of public health. It is also a tool to support instruction, debate, and dialogue regarding public health ethics. Although the practice of public health has always included consideration of ethical issues, the field of public health ethics as a discipline is a relatively new and emerging area. There are few practical training resources for public health practitioners, especially resources which include discussion of realistic cases which are likely to arise in the practice of public health. This work discusses these issues on a case to case basis and helps create awareness and understanding of the ethics of public health care. The main audience for the casebook is public health practitioners, including front-line workers, field epidemiology trainers and trainees, managers, planners, and decision makers who have an interest in learning about how to integrate ethical analysis into their day to day public health practice. The casebook is also useful to schools of public health and public health students as well as to academic ethicists who can use the book to teach public health ethics and distinguish it from clinical and research ethics.

How ought the law to deal with novel challenges regarding the use and control of human biomaterials? As it stands the law is ill-equipped to deal with these. Quigley argues that advancing biotechnology means that the law must confront and move boundaries which it has constructed; in particular, those which delineate property from non-property in relation to biomaterials. Drawing together often disparate strands of property discourse, she offers a philosophical and legal re-analysis of the law in relation to property in the body and biomaterials. She advances a new defence, underpinned by self-ownership, of the position that persons ought to be seen as the prima facie holders of property rights in their separated biomaterials. This book will appeal to those interested in medical and property law, philosophy, bioethics, and health policy amongst others.

This is the second edition of the comprehensive guide to diabetes for nurses and is updated to take account of changes in dietary advice, legislation and terminology. The text addresses diabetes as both a biochemical disease and a psychosocial problem. It provides research-based information with suggestions for problem solving and planning.

The book is divided into three sections. The first introduces diabetes and examines the altered physiology, the diagnosis, the treatments available and the complications of diabetes. The second section addresses the practice of patient education and the clinical management of diabetes. The third section puts diabetes in care into context. It examines the broader issues involved in diabetes care, including the psychological and ethical aspects of diabetes.

Many of the significant developments of our era have resulted from advances in technology, including the design of large-scale systems; advances in medicine, manufacturing, and artificial intelligence; the role of social media in influencing behaviour and toppling governments; and the surge of online transactions that are replacing human face-to-face interactions. These advances have given rise to new kinds of ethical concerns around the uses (and misuses) of technology. This collection of essays by prominent academics and technology leaders covers important ethical questions arising in modern industry, offering guidance on how to approach these dilemmas. Chapters discuss what we can learn from the ethical lapses of #MeToo, Volkswagen, and Cambridge Analytica, and highlight the common need across all applications for sound decision-making and understanding the implications for stakeholders. Technologists and general readers with no formal ethics training and specialists exploring technological applications to the field of ethics will benefit from this overview.

This book is a collection of original, interdisciplinary essays on the topic of medical error. Given the complexities of understanding, preventing, and responding to medical error in ethically responsible ways, the scope of the book is fairly broad. The contributors include top scholars and practitioners working in bioethics, communication, law, medicine and philosophy. Their contributions examine preventable causes of medical error, disproportionate impacts of errors on vulnerable populations, disclosure and apology after discovering medical errors, and ethical issues arising in specific medical contexts, such as radiation oncology, psychopathy, and palliative care. They also offer practical recommendations for respecting autonomy, distributing burdens and benefits justly, and minimizing injury to patients and other stakeholders. Ethics and Error in Medicine will be of interest to a wide range of researchers, students, and practitioners in bioethics, philosophy, communication studies, law, and medicine who are interested in the ethics of medical error.

Mental health nurses need to work within the law to ensure good, legal care for their patients, while at the same time being guided by appropriate values. This practical handbook for mental health nurses offers an accessible and invaluable guide to mental health law and values based practice.

Written in an accessible and friendly way, the book covers the different stages of mental healthcare delivery in a range of healthcare settings. The book includes guidance on: The Human Rights Act The Mental Capacity Act 2005 The Deprivation of Liberty safeguards The revised Mental Health Act Admitting people to hospital Discharging people into the community Working with those in care homes Working with children and young people The chapters include case studies based on real life, to show how nurses can deal with complex and daunting scenarios in practice. The book includes clear explanations of all relevant legislation as well as step-by-step guidance on how to deal with situations where mental health law applies.

This book is suitable for those preparing to qualify as well as those already qualified and working in a range of healthcare settings. An essential text, this book will empower nurses to practise with confidence.

""I welcome this book as its integration of values based practice and legislation into the complex world of decision making in mental health services clarifies many issues. This book is sure to become essential reading for students of mental health nursing."
Ian Hulatt, Mental Health Advisor, Royal College of Nursing UK

"This is an invaluable guide for all professionals working in mental health services, written by two people who have unparalleled understanding of mental health and mental capacity law. It should help practitioners understand both the intricacies of the law and how to retain a person-centred approach when applying it."
Paul Farmer, Chief Executive, Mind

"An impressive and enlightening book that spans law, ethics, values and practice. With the help of realistic scenarios it explains and applies the law with clarity and great practical understanding. It will inform and reassure those struggling with the often painful dilemmas confronted over the course of providing nursing care to service users with mental disabilities."
Genevra Richardson, Professor of Law, King's College London, UK

In this work, Professors Mancini and Rosenfeld have brought together an impressive group of authors to provide a comprehensive analysis on the greater demand for religions exemptions to government mandates. Traditional religious conscientious objection cases, such as refusal to salute the flag or to serve in the military during war, had a diffused effect throughout society. In sharp contrast, these authors argue that today's most notorious objections impinge on the rights of others, targeting practices like abortion, LGTBQ adoption, and same-sex marriage. The dramatic expansion of conscientious objection claims have revolutionized the battle between religious traditionalists and secular civil libertarians, raising novel political, legal, constitutional and philosophical challenges. Highlighting the intersection between conscientious objections, religious liberty, and the equality of women and sexual minorities, this volume showcases this political debate and the principal jurisprudence from different parts of the world and emphasizes the little known international social movements that compete globally to alter the debate's terms.

The adult critical care setting requires complex clinical decisions to be made that have a dramatic impact on the lives of patients and their families. This textbook offers evidence-based case histories around shared decision making, providing practical advice to clinicians who are trying to navigate routine clinical scenarios in adult critical care. Early chapters explore the definition of the shared decision making process and practical steps that aid its implementation. The greater part of the book focuses on how shared decision making can be practiced in specific situations that are common in adult critical care, highlighting the relevant knowledge base necessary to manage each situation. Do-not-resuscitate and do-not-intubate orders, ECMO, and resolving conflicts regarding potentially inappropriate treatment are among the topics covered. An essential resource for healthcare professionals working in critical care and those looking for a framework for the use of shared decision making in this setting.

Historically and across societies people with disabilities have been stigmatized and excluded from social opportunities on a variety of culturally specific grounds. In this collection, the authors explore the impact that the philosophical framing of disability can have on public policy questions, in the clinic, in the courtroom, and elsewhere. They examine the implications of this understanding for legal and policy approaches to disability, strategies for allocating and accessing health care, the implementation of the Americans with Disabilities Act, health care rights, and other legal tools designed to address discrimination. This volume should be read by anyone seeking a balanced view of disability and an understanding of the connection between the framing of disability and policies that have a real-world impact on individuals.

How far should we go in protecting and promoting public health? Can we force people to give up unhealthy habits and make healthier choices? Should we stop treating smokers who refuse to give up smoking, for example, or put a tax on fatty foods and ban vending machines in schools to address the obesity epidemic ? Or can we nudge people towards healthy options without compromising their freedom to choose? Such questions are at the heart of public health ethics. In this second edition of his well respected textbook, Stephen Holland shows that to understand and debate these issues requires philosophy: moral philosophies, including utilitarianism and deontology, as well as political philosophies such as liberalism and communitarianism. And philosophy informs other aspects of public health, such as epidemiology, health promotion, and screening. The new edition has been fully revised and updated to reflect recent developments in the field. There is a new chapter on the ethics of 'harm reduction', looking at policies which aim to reduce the harmful effects of unhealthy behaviour, such as using illicit drugs, as opposed to trying to get people to abstain. Additional material has been added on the recent interest in 'nudging' people towards more healthy choices in a new theoretical section on libertarian paternalism, as well as more on debates on the ethics of other current public health policies, such as using financial incentives to get people to take more responsibility for their own health. Public Health Ethics provides a lively, accessible and philosophically informed introduction to such issues. As well as being an ideal textbook for students taking courses in public health ethics, Holland s systematic discussion of the ethics of public health will engage and inform the more advanced reader too.

This book is open access under a CC BY license. This book is the first to develop explicit methods for evaluating evidence of mechanisms in the field of medicine. It explains why it can be important to make this evidence explicit, and describes how to take such evidence into account in the evidence appraisal process. In addition, it develops procedures for seeking evidence of mechanisms, for evaluating evidence of mechanisms, and for combining this evaluation with evidence of association in order to yield an overall assessment of effectiveness. Evidence-based medicine seeks to achieve improved health outcomes by making evidence explicit and by developing explicit methods for evaluating it. To date, evidence-based medicine has largely focused on evidence of association produced by clinical studies. As such, it has tended to overlook evidence of pathophysiological mechanisms and evidence of the mechanisms of action of interventions. The book offers a useful guide for all those whose work involves evaluating evidence in the health sciences, including those who need to determine the effectiveness of health interventions and those who need to ascertain the effects of environmental exposures.

The world of dementia care can be a difficult one for carers to navigate, posing new challenges at every stage from diagnosis to end of life. In her ground-breaking investigation, rooted in original empirical data, Rosie Harding explores the regulatory and legal dimensions of caring for a person with dementia. By exploring carers' experiences of dementia care, she critiques the limitations of current approaches to health and social care regulation. This socio-legal work is a new contribution to the study of feminist care ethics, relationality, and vulnerability theory. Duties to Care argues that by understanding the relational contexts that shape everyday experiences of regulatory structures, we will better understand where law is operating to support carers, and where it adds to the difficulties they experience. Ultimately, the challenges that dementia poses will be addressed only if we find solutions that take account of the relationality of life, dementia, and law.

In this timely book, Ruud ter Meulen argues that the current trend towards individual financial responsibility for health and social care should not be at the expense of the welfare of vulnerable and dependent individuals. Written with a multidisciplinary perspective, the book presents a new view of solidarity as a distinct concept from justice with respect to health and social care. It explains the importance of collective responsibility and takes the debate on access to healthcare beyond the usual framework of justice and rights. Academics from a range of backgrounds, including sociology, ethics, philosophy and policy studies will find new perspectives on solidarity and fresh ideas from other disciplines. Policymakers will better appreciate the contribution of family carers to the well-being of dependent and vulnerable people, and the importance of the support of solidarity in these types of care.

The Cambridge World History of Medical Ethics is the first comprehensive scholarly account of the global history of medical ethics. Offering original interpretations of the field by leading bioethicists and historians of medicine, it will serve as the essential point of departure for future scholarship in the field. The book reconceptualises the history of medical ethics through the creation of new categories, including the life cycle; discourses of religion, philosophy, and bioethics; and the relationship between medical ethics and the state, which includes a historical reexamination of the ethics of apartheid, colonialism, communism, health policy, imperialism, militarism, Nazi medicine, Nazi 'medical ethics', and research ethics. Also included are the first global chronology of persons and texts; the first concise biographies of major figures in medical ethics; and the first comprehensive bibliography of the history of medical ethics. An extensive index guides readers to topics, texts, and proper names.

This innovative workbook enables students and those working in health and social care to deepen their understanding of the values that underpin their practice. Rich in practical exercises and downloadable resources that invite the reader to engage with their own values, it explores how values, though not often reflected on, define the quality of care delivered. Supported by case studies and including a glossary of key terms and concepts, the workbook provides an overview of how values are adopted and adapted in professional contexts across health and social care services. With an emphasis on the ever-evolving nature of values, it examines professional ethics through the lens of legislation, codes of conduct, cost-effectiveness and whole-organisation management. This unique resource allows readers to gain a clearer picture of what their values are and how they can realistically implement them in their work, thus achieving the highest possible quality of care delivery.

A practical, insightful guide to the moral and ethical standards of healthcare

Succeeding in the healthcare field means more than just making a diagnosis and writing a prescription. Healthcare professionals are responsible for convincing patients and their family members of the best course of action and treatments to follow, while knowing how to make the right moral and ethical choices, and so much more. Unlike daunting and expensive texts, "Medical Ethics For Dummies" offers an accessible and affordable course supplement for anyone studying medical or biomedical ethics.- Follows typical medical and biomedical ethics courses- Covers real ethical dilemmas doctors, nurses and other healthcare workers may face- Includes moral issues surrounding stem cell research, genetic engineering, euthanasia, and morePacked with helpful information, "Medical Ethics For Dummies" arms aspiring medical professionals with the philosophical and practical foundation for advancing in a field where critical ethical and moral decisions need to be rapidly and convincingly made.

Numerous issues confront women's healthcare today, among them the medicalization of women's bodies, cosmetic genital surgery, violence against women, HIV, perinatal mental health disorders. This volume uniquely explores such difficult topics and others at the intersection of clinical practice, policy, and bioethics in women's health care through a feminist ethics lens. With in-depth discussions of issues in women's reproductive health, it also broadens scholarship by responding to a wider array of ethical challenges that many women experience in accessing health care. Contributions touch on many themes previously tackled by feminist ethics, but in new, contemporary ways. Some chapters expand into new fields in the bioethics literature, such as the ethical issues related to the care of Indigenous women, uninsured refugees and immigrants, women engaged in sex work, and those with HIV at different life stages and perinatal mental health disorders. Authors seek to connect theory and practice with users of the health system by including women's voices in their research. Bringing to bear their experience in active clinical practice in medicine, nursing, and ethics, the authors contemplate new conceptual approaches to important issues in women's healthcare, and make ethical practice recommendations for those grappling with these issues. Topical and up-to-date, this book provides a valuable resource for physicians, nurses, clinical ethicists, and researchers working in some of the most critical areas of women's health and applied ethics today.

Health systems need to set priorities fairly. In one way or another, part of this important task will fall to physicians. How do they make judgments about resource stewardship, and how should they do so? How can they make such decisions in a manner that is compatible with their clinical duties to patients? In this book, philosophers, bioethicists, physicians, lawyers and health policy experts make the case that priority setting and rationing contribute significantly to the possibility of affordable and fair healthcare and that clinicians play an indispensable role in that process. The book depicts the results of a survey of European physicians about their experiences with rationing and other cost containment strategies, and their perception of scarcity and fairness in their health care systems. Responding to and complementing these findings, commentators discuss why resource allocation and bedside rationing is necessary and justifiable. The book explores how bedside rationing relates to clinical judgments about medical necessity and medical indications, marginal benefits, weak evidence based medicine, off-label use. The book highlights how comparative studies of health care systems can advance more effective and fair bedside rationing through learning from one another. From a practical standpoint, the book offers a number of strategies for health care systems and clinicians to work in tandem to allocate and ration resources as fairly as possible: how to foster more attention to fairness when rationing at the bedside, how to avoid exacerbating health disparities when allocating resources, how to teach about bedside rationing to students, how to discuss rationing more explicitly in the public arena and in the doctor's office.

Is evidence-based practice really best practice? This is a hotly debated question in health and social care circles and the starting point for this book. Engaging firmly in the debate, Values-Based Health & Social Care calls into question the dominance of evidence-based practice and sets out an alternative vision of care which places holism, professional judgement, intuition and client choice at its centre. Bringing together writers from a range of health and social care backgrounds, the book describes the rise of evidence-based practice and explores major criticisms of the approach. It argues that evidence should be seen as part of a broader vision of practice which places equal value on: - a holistic vision of the needs of patients and clients. - professional knowledge and intuition, and - seeing patients and clients as partners in their care. Examples are used throughout the book to help readers link the concepts to practice. The book concludes with suggestions on how to develop a values-based approach in practice and through professional education. Values-Based Health & Social Care sets out key debates surrounding the nature of practice which will be of interest to students and practitioners alike.

Conscience in Reproductive Health Care responds to the growing worldwide trend of health care professionals conscientiously refusing to provide abortions and similar reproductive health services in countries where these services are legal and professionally accepted. Carolyn McLeod argues that conscientious objectors in health care should prioritize the interests of patients in receiving care over their own interest in acting on their conscience. She defends this "prioritizing approach" to conscientious objection over the more popular "compromise approach" without downplaying the importance of health care professionals having a conscience or the moral complexity of their conscientious refusals. McLeod's central argument is that health care professionals who are gatekeepers of services such as abortions are fiduciaries for their patients and for the public they are licensed to serve. As such, they owe a duty of loyalty to these beneficiaries and should give primacy to their beneficiaries' interests in accessing care. This conclusion is informed by what McLeod believes is morally at stake for the main parties to the conflicts generated by conscientious refusals: the objector and the patient. What is at stake, according to McLeod, depends on the relevant socio-political context, but typically includes the objector's integrity and the patient's interest in avoiding harm.

When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improve drug safety, or ill, as in insurance discrimination? Will it disrupt health care (and the health care system) as we know it? Will it be possible to protect our health privacy? What barriers will there be to collecting and utilizing health big data? What role should law play, and what ethical concerns may arise? This timely, groundbreaking volume explores these questions and more from a variety of perspectives, examining how law promotes or discourages the use of big data in the health care sphere, and also what we can learn from other sectors.

This interdisciplinary text is the first to address the many questions and controversies surrounding the use of children as research subjects. Experts in the field of biomedical and behavioural research with children consider the issues in terms of biomedical science, child psychology, ethics, and the law, providing a careful balance between individual and societal benefits. This practical guide will be invaluable to everyone involved in performing or reviewing research involving children.