Values and Ethics for Care Practice introduces readers to values and ethics and their importance in patient-centred care. Values and ethics are integral to the provision, practice and delivery of patient-centred health and social care. This book, which is an expanded and updated version of Values for Care Practice, introduces readers to these concepts and helps them understand how they can apply them to become compassionate care professionals. The patient perspective and patient voice are seen and heard throughout the book. Readers are encouraged to reflect on their personal values and on those underpinning health and social care work and to understand how values and ethics are articulated in the latest Codes of Practice. The text uses activities and case studies to enable readers to apply theory in their practice. This book will help readers to understand why good caring is more than merely a practical intervention; it also requires a personal investment and quality of character that involves genuine concern and respect for others.

This book is the result of over 30 years of collaboration among its authors. It uses the systematic account of our common morality developed by one of its authors to provide a useful foundation for dealing with the moral problems and disputes that occur in the practice of medicine. The analyses of impartiality, rationality, and of morality as a public system not only explain why some bioethical questions, such as the moral acceptability of abortion, cannot be resolved, but also provide a method for determining the correct answer for those occasions when a bioethical question has a unique correct answer. This new edition includes an entire chapter that has been added to address the controversial issue of abortion within the authors' distinct framework.
This book presents the latest revisions of the authors' original analyses of the concepts of death and disease, analyses that have had a significant impact on the field of bioethics. It also includes an added chapter on mental disorders, where the authors' definition influenced what psychiatry classifies as a mental disorder, and so has had an impact that reveals beyond the field of bioethics.
In this edition, the authors also offer a new, more developed perspective on the concept of valid or informed consent by considering what information physicians should be required to know before proposing screening, diagnostic testing, prescribing medications, or performing surgery. The book also integrates some of the important insights of the field of clinical epidemiology into its discussion of valid consent. Its account of paternalism and its justification, perhaps the most ubiquitous moral problem in medical ethics, has had considerableinfluence. Its discussion of euthanasia and physician assisted suicide challenges the standard views that have been put forward by both proponents and opponents of physician assisted suicide and voluntary active euthanasia.

This handbook is a thorough and state of the art overview of a central and fast-growing topic making it the ideal reference source for both students and scholars Essential reading for students and researchers in political philosophy, bioethics, public health ethics, or philosophy of medicine. The handbook will also be very useful for those in related fields, such as medicine and public health This is the only handbook to pull together a thoroughly comprehensive overview of the topic of the philosophy of public health. This handbook will help the field of study organise itself into a proper subject: it will be a rallying point for any student and researcher interested in the subject All chapters are specially commissioned, written by an international team of renowned contributors.

Nursing Ethics and Professional Responsibility in Advanced Practice, Fourth Edition, remains the only comprehensive textbook available on the ethical issues faced by APRNs providing front-line care. It introduces the foundations of professional responsibility and makes difficult philosophical and ethical concepts accessible to students so they can facilitate their own ethical decision-making. The authors, both APRNs and ethicists, demystify the principles and language of healthcare ethics. Beginning from a foundation of nursing practice, this unique resource guides students in developing ethical decision-making skills they can apply to a range of circumstances, from everyday issues to complex dilemmas. The updated Fourth Edition features expanded information on social justice, including advocacy for vulnerable populations and global issues, as well as new discussions on managing social media, electronic health records, and ethical issues specific to CRNAs and CNSs in the perioperative setting.

Human embryo research touches upon strongly felt moral convictions, and it raises such deep questions about the promise and perils of scientific progress that debate over its development has become a moral and political imperative. From in vitro fertilization to embryonic stem cell research, cloning, and gene editing, Americans have repeatedly struggled with how to define the moral status of the human embryo, whether to limit its experimental uses, and how to contend with sharply divided public moral perspectives on governing science. Experiments in Democracy presents a history of American debates over human embryo research from the late 1960s to the present, exploring their crucial role in shaping norms, practices, and institutions of deliberation governing the ethical challenges of modern bioscience. J. Benjamin Hurlbut details how scientists, bioethicists, policymakers, and other public figures have attempted to answer a question of great consequence: how should the public reason about aspects of science and technology that effect fundamental dimensions of human life? Through a study of one of the most significant science policy controversies in the history of the United States, Experiments in Democracy paints a portrait of the complex relationship between science and democracy, and of U.S. society's evolving approaches to evaluating and governing science's most challenging breakthroughs.

Stories Matter examines the many ways that narrative methods of analysis and interpretation are transforming the work of medicine and ethics. The contributors-philosophers, literary scholars, psychologists, and physicians-offer new understandings of the implications of stories for the ethical practice of medicine. The book's double attention to theory and practice provides both clear conceptual content and a practical guide to using narrative ethics in the service of patients and their families.

Reproductive donation is the most contentious area of assisted reproduction. Even within Europe there are wide variations in what is permitted in each country. This multi-disciplinary book takes a fresh look at the practices of egg, sperm and embryo donation and surrogacy, bringing together ethical analysis and empirical research. New evidence is offered on aspects of assisted reproduction and the families these create, including non-traditional types. One of the key issues addressed is should children be told of their donor origin? If they do learn the identity of their donor, what kinds of relationships may be forged between families, the donor and other donor sibling families? Should donation involve a gift relationship? Is intra-familial donation too close for comfort? How should we understand the growing trend for 'reproductive tourism'? This lively and informed discussion offers new insights into reproductive donation and the resulting donor families.

It has been close to six decades since Watson and Crick discovered the structure of DNA and more than ten years since the human genome was decoded. Today, through the collection and analysis of a small blood sample, every baby born in the United States is screened for more than fifty genetic disorders. Though the early detection of these abnormalities can potentially save lives, the test also has a high percentage of false positives-inaccurate results that can take a brutal emotional toll on parents before they are corrected. Now some doctors are questioning whether the benefits of these screenings outweigh the stress and pain they sometimes produce. In Saving Babies?, Stefan Timmermans and Mara Buchbinder evaluate the consequences and benefits of state-mandated newborn screening - and the larger policy questions they raise about the inherent inequalities in American medical care that limit the effectiveness of this potentially life - saving technology. Drawing on observations and interviews with families, doctors, and policy actors, Timmermans and Buchbinder have given us the first ethnographic study of how parents and geneticists resolve the many uncertainties in screening newborns. Ideal for scholars of medicine, public health, and public policy, this book is destined to become a classic in its field.

In the wake of the Charlie Gard and Alfie Evans cases, a wide-ranging international conversation was started regarding alternative thresholds for intervention and the different balances that can be made in weighing up the rights and interests of the child, the parent's rights and responsibilities and the role of medical professionals and the courts. This collection provides a comparative perspective on these issues by bringing together analysis from a range of jurisdictions across Europe, North and South America, Africa and Asia. Contextualising the differences and similarities, and drawing out the cultural and social values that inform the approach in different countries, this volume is highly valuable to scholars across jurisdictions, not only to inform their own local debate on how best to navigate such cases, but also to foster inter-jurisdictional debate on the issues. The book brings together commentators from the fields of law, medical ethics, and clinical medicine across the world, actively drawing on the view from the clinic as well as philosophical, legal and sociological perspectives on the crucial question of who should decide about the fate of a child suffering from a serious illness. In doing so, the collection offers comprehensive treatment of the key questions around whether the current best interests approach is still appropriate, and if not, what the alternatives are. It engages head-on with the concerns seen in both the academic and popular literature that there is a need to reconsider the orthodoxy in this area.

Many counselors learn about ethics in graduate school by applying formal, step-by-step ethical decision-making models that require counselors to be aware of their values and refrain from imposing personal values that might harm clients. However, in the real world, counselors often make split-second ethical decisions based upon personal values. Values and Ethics in Counseling illustrates the ways in which ethical decisions are values-but more than that, it guides counselors through the process of examining their own values and analyzing how these values impact ethical decision making. Each chapter presents ethical decision making as what it is: a very personal, values-laden process, one that is most effectively illustrated through the real-life stories of counselors at various stages of professional development-from interns to seasoned clinicians-who made value-based decisions. Each story is followed by commentary from the author as well as analysis from the editors to contextualize the material and encourage reflection.

Surgery inevitably inflicts some harm on the body. At the very least, it damages the tissue that is cut. These harms often are clearly outweighed by the overall benefits to the patient. However, where the benefits do not outweigh the harms or where they do not clearly do so, surgical interventions become morally contested. Cutting to the Core examines a number of such surgeries, including infant male circumcision and cutting the genitals of female children, the separation of conjoined twins, surgical sex assignment of intersex children and the surgical re-assignment of transsexuals, limb and face transplantation, cosmetic surgery, and placebo surgery. When, if ever, do the benefits of these surgeries outweigh their costs? May a surgeon perform dangerous procedures that are not clearly to the patient's benefit, even if the patient consents to them? May a surgeon perform any surgery on a minor patient if there are no clear benefits to that child? These and other related questions are the core themes of this collection of essays.

From 1932 to 1972, the United States Public Health Service conducted a non-therapeutic experiment involving over 400 black male sharecroppers infected with syphilis. The Tuskegee Study had nothing to do with treatment. It purpose was to trace the spontaneous evolution of the disease in order to learn how syphilis affected black subjects. The men were not told they had syphilis; they were not warned about what the disease might do to them; and, with the exception of a smattering of medication during the first few months, they were not given health care. Instead of the powerful drugs they required, they were given aspirin for their aches and pains. Health officials systematically deceived the men into believing they were patients in a government study of "bad blood", a catch-all phrase black sharecroppers used to describe a host of illnesses. At the end of this 40 year deathwatch, more than 100 men had died from syphilis or related complications. "Bad Blood" provides compelling answers to the question of how such a tragedy could have been allowed to occur. Tracing the evolution of medical ethics and the nature of decision making in bureaucracies, Jones attempted to show that the Tuskegee Study was not, in fact, an aberration, but a logical outgrowth of race relations and medical practice in the United States. Now, in this revised edition of "Bad Blood", Jones traces the tragic consequences of the Tuskegee Study over the last decade. A new introduction explains why the Tuskegee Study has become a symbol of black oppression and a metaphor for medical neglect, inspiring a prize-winning play, a Nova special, and a motion picture. A new concluding chapter shows how the black community's wide-spread anger and distrust caused by the Tuskegee Study has hampered efforts by health officials to combat AIDS in the black community. "Bad Blood" was nominated for the Pulitzer Prize and was one of the "N.Y. Times" 12 best books of the year.

A comprehensive textbook for athletic training students, educators, and practitioners, Professional Ethics in Athletic Training: Practicing and Leading With Integrity, Second Edition provides a framework for understanding and applying ethical principles across the career span of an athletic training professional. Esteemed authors Gretchen A. Schlabach and Kimberly S. Peer explain the necessity of practicing and leading with integrity across one's athletic training career. The text explores issues related to cultural competence and professional behavior as well as ethical leadership and decision-making skills that both inform and transcend the athletic training profession. Each chapter is accompanied by frameworks that lead to both analysis and awareness of legal statutes, ethical principles, regulatory practice acts, and professional practice standards that encourage responsible reasoning and conduct. Contemporary journal articles can also be found in every chapter to help readers make connections between content and clinical practice. The text also includes assessment tools, sample models for ethical decision making, writing about moral issues, and sample course design and delivery for teaching ethics. Included in the instructor's materials are nearly 50 cases to promote critical thinking as well as learning activities for each chapter. Instructors in educational settings can visit www.efacultylounge.com for additional materials to be used for teaching in the classroom. Covering all levels of ethical practice-from the entry-level student to the experienced athletic trainer-Professional Ethics in Athletic Training synthesizes and integrates ethical theory and practical application for those who practice and lead with integrity.

Solving intractable biotechnological questions of evolution, medicine, and genetics is now easier due to methods permitting the rapid analysis of molecular sequence data. These advances have exposed ethical and policy concerns. How would genomic information be used and by whom? Should individuals be able to make decisions regarding their own genomic data? How accurate are these genetic tests and how should they be regulated? These and other ethical conundrums are the subject of this book. Bioethicists, biomedical policy experts and lawyers, physicians, nursing and allied health students as well as science educators will find this book helpful and engaging in exploring the complexities of modern evolutionary, genetic and biomedical data.

Solving intractable biotechnological questions of evolution, medicine, and genetics is now easier due to methods permitting the rapid analysis of molecular sequence data. These advances have exposed ethical and policy concerns. How would genomic information be used and by whom? Should individuals be able to make decisions regarding their own genomic data? How accurate are these genetic tests and how should they be regulated? These and other ethical conundrums are the subject of this book. Bioethicists, biomedical policy experts and lawyers, physicians, nursing and allied health students as well as science educators will find this book helpful and engaging in exploring the complexities of modern evolutionary, genetic and biomedical data.

In the 21st century, people in the developed world are living longer. They hope they will have a healthy longer life and then die relatively quickly and peacefully. But frequently that does not happen. While people are living healthy a little longer, they tend to live sick for a lot longer. And at the end of being sick before dying, they and their families are frequently faced with daunting decisions about whether to continue life prolonging medical treatments or whether to find meaningful and forthright ways to die more easily and quickly. In this context, some people are searching for more and better options to hasten death. They may be experiencing unacceptable suffering in the present or may fear it in the near future. But they do not know the full range of options legally available to them. Voluntary stopping eating and drinking (VSED), though relatively unknown and poorly understood, is a widely available option for hastening death. VSED is legally permitted in places where medical assistance in dying (MAID) is not. And unlike U.S. jurisdictions where MAID is legally permitted, VSED is not limited to terminal illness or to those with current decision-making capacity. VSED is a compassionate option that respects patient choice. Despite its strongly misleading image of starvation, death by VSED is typically peaceful and meaningful when accompanied by adequate clinician and/or caregiver support. Moreover, the practice is not limited to avoiding unbearable suffering, but may also be used by those who are determined to avoid living with unacceptable deterioration such as severe dementia. But VSED is "not for everyone." This volume provides a realistic, appropriately critical, yet supportive assessment of the practice. Eight illustrative, previously unpublished real cases are included, receiving pragmatic analysis in each chapter. The volume's integrated, multi-professional, multi-disciplinary character makes it useful for a wide range of readers: patients considering present or future end-of-life options and their families, clinicians of all kinds, ethicists, lawyers, and institutional administrators. Appendices include recommended elements of an advance directive for stopping eating and drinking in one's future if and when decision making capacity is lost, and what to record as cause of death on the death certificates of those who hasten death by VSED.

Autobiography of a Disease documents, in experimental form, the experience of extended life-threatening illness in contemporary US hospitals and clinics. The narrative is based primarily on the author's sudden and catastrophic collapse into a coma and long hospitalization thirteen years ago; but it has also been crafted from twelve years of research on the history of microbiology, literary representations of illness and medical treatment, cultural analysis of MRSA in the popular press, and extended autoethnographic work on medicalization. An experiment in form, the book blends the genres of storytelling, historiography, ethnography, and memoir. Unlike most medical memoirs, told from the perspective of the human patient, Autobiography of a Disease is told from the perspective of a bacterial cluster. This orientation is intended to represent the distribution of perspectives on illness, disability, and pain across subjective centers-from patient to monitoring machine, from body to cell, from caregiver to cared-for-and thus makes sense of illness only in a social context.

Are you alive? What makes you so sure? Most people believe this question has a clear answer that some law defines our status as living (or not) for all purposes. But they are dead wrong. In this pioneering study, Elizabeth Price Foley examines the many, and surprisingly ambiguous, legal definitions of what counts as human life and death.

Foley reveals that not being dead is not necessarily the same as being alive, in the eyes of the law. People, pre-viable fetuses, and post-viable fetuses have different sets of legal rights, which explains the law's seemingly inconsistent approach to stem cell research, in vitro fertilization, frozen embryos, in utero embryos, contraception, abortion, homicide, and wrongful death.

In a detailed analysis that is sure to be controversial, Foley shows how the need for more organ transplants and the need to conserve health care resources are exerting steady pressure to expand the legal definition of death. As a result, death is being declared faster than ever before. The "right to die," Foley worries, may be morphing slowly into an obligation to die.

Foley s balanced, accessible chapters explore the most contentious legal issues of our time including cryogenics, feticide, abortion, physician-assisted suicide, brain death, vegetative and minimally conscious states, informed consent, and advance directives across constitutional, contract, tort, property, and criminal law. Ultimately, she suggests, the inconsistencies and ambiguities in U.S. laws governing life and death may be culturally, and perhaps even psychologically, necessary for an enormous and diverse country like ours.

This insightful study examines the deeply personal and heart-wrenching tensions among financial considerations, emotional attachments, and moral arguments that motivate end-of-life decisions. America's health care system was built on the principle that life should be prolonged whenever possible, regardless of the costs. This commitment has often meant that patients spend their last days suffering from heroic interventions that extend their life by only weeks or months. Increasingly, this approach to end-of-life care is coming under scrutiny, from a moral as well as a financial perspective. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and growing acceptance of the idea that a life consumed by suffering may not be worth living. Values at the End of Life combines an in-depth historical analysis with an extensive study conducted in three hospitals, where Livne observed terminally ill patients, their families, and caregivers negotiating treatment. Livne describes the ambivalent, conflicted moments when people articulate and act on their moral intuitions about dying. Interviews with medical staff allowed him to isolate the strategies clinicians use to help families understand their options. As Livne discovered, clinicians are advancing the idea that invasive, expensive hospital procedures often compound a patient's suffering. Affluent, educated families were more readily persuaded by this moral calculus than those of less means. Once defiant of death-or even in denial-many American families and professionals in the health care system are beginning to embrace the notion that less treatment in the end may be better treatment.

In hospital rooms across the country, doctors, nurses, patients, and their families grapple with questions of life and death. Recently, they have been joined at the bedside by a new group of professional experts, bioethicists, whose presence raises a host of urgent questions. How has bioethics evolved into a legitimate specialty? When is such expertise necessary? How do bioethicists make their decisions? And whose interests do they serve?
Renowned sociologist Charles L. Bosk has been observing medical care for thirty-five years. In "What Would You Do?" he brings his extensive experience to bear on these questions while reflecting on the ethical dilemmas that his own ethnographic research among surgeons and genetic counselors has provoked. Bosk considers whether the consent given to ethnographers by their subjects can ever be fully voluntary and informed. He questions whether promises of confidentiality and anonymity can or should be made. And he wonders if social scientists overestimate the benefits of their work while downplaying the risks.
Vital for practitioners of both the newly prominent field of bioethics and the long-established craft of ethnography, "What Would You Do?" will also engross anyone concerned with how our society addresses difficult health care issues.

Highly Commended, BMA Medical Book Awards 2014 Comprehensive and erudite, Forensic Psychiatry: Clinical, Legal and Ethical Issues, Second Edition is a practical guide to the psychiatry of offenders, victims, and survivors of crime. This landmark publication has been completely updated but retains all the features that made the first edition such a well-established text. It integrates the clinical, legal, and ethical aspects of forensic psychiatry with contributions from internationally regarded experts from a range of clinical professions. The Second Edition features updates to all current chapters and several new chapters that explore: * The genetics of antisocial behavior * Disorders of brain structure and function that relate to crime * Offenders with intellectual disabilities * Older people and the criminal justice system * Deviant and mentally ill staff Although the book focuses on jurisdictions in the UK, a substantial comparative chapter written by an international group from all five continents explores the different philosophies, legal principles, and style of services elsewhere. This book is an essential reference for specialists and postgraduate trainees in forensic psychiatry but also for general psychiatrists, and clinical and forensic psychologists. It is also an invaluable resource for other forensic mental health professionals, including nurses, social workers, occupational therapists, probation service staff, police, attorneys, criminologists, and sociologists.

Develop a practical and comprehensive view of professional ethics In the newly updated Second Edition of Positive Ethics for Mental Health Professionals: A Proactive Approach, distinguished psychologists Drs. Sharon K. Anderson and Mitchell M Handelsman deliver an insightful guide for mental health professionals and trainees to stregthen and/or develop their professional and ethical identities. Utilizing the same informal and inviting tone of the first edition, Anderson and Handelsman share the literature and provide positive discussions, exercises, case scenarios, and writing assignments, to help you explore and develop your ethical core. You'll also develop your self-reflective skills to learn how to make excellent ethical choices regarding psychotherapy and couseling. This edition of the book also offers: An introduction of the idea of "tripping points", or predictable pitfalls, when making ethical choices. Discussions of nonrational factors in ethical decision-making, including biases, heuristics, and emotional influences. A renewed focus on ethical acculturation, which emphasizes the importance of your own background in the development of your ethical identity. Perfect for undergraduate and graduate students studying psychotherapy and mental health counseling, Positive Ethics for Mental Health Professionals, will also earn a place in the libraries of mental health practitioners seeking a primer on the complicated ethical issues that inevitably arise in their practices- and how to prepare for them and navigate them.

How far should society go in permitting people to buy and sell goods and services? Should they be able to treat such things as babies, body parts, and sex as commodities that can be traded in a free market? Should politics be thought of as just economics by another name? Margaret Jane Radin addresses these controversial issues in a detailed exploration of contested commodification. Economists, lawyers, policy analysts, and social theorists have been sharply divided between those who believe that commodifying some goods naturally tends to devalue them and those who believe that almost everything is legitimate grist for the market mill. In recent years, the free market position has been gaining strength. In this book, Radin provides a nuanced response to its sweeping generalization. Not only are there willing buyers for body parts or babies, Radin observes, but some desperately poor people would be willing sellers, while better-off people find such trades abhorrent. Radio argues that many such areas of contested commodification reflect a persistent dilemma in liberal society: we value freedom of choice and simultaneously believe that choices ought to be restricted to protect the integrity of what it means to be a person. She views this tension as primarily the result of underlying social and economic inequalities, which need not reflect an irreconcilable conflict in the premises of liberal democracy.

Ethics is commonly assumed to be the one realm in which luck and risk do not
intrude. It has been said that 'While one can be lucky in one's business, in
one's married life, and in one's health, one cannot, so it is commonly
assumed, be subject to luck as far as one's moral worth is concerned.' But
although we do not normally hold people responsible for outcomes beyond
their control, a serious examination of the role of luck and risk may lead
us to conclude that very few outcomes are really within people's control.
This is the paradox of 'moral luck'. "

"Risk and Luck in Medical Ethics" examines the 'moral luck' paradox in greater
detail, relating it to Kantian, consequentialist, and virtue-based
approaches to ethics. Dickenson applies the paradoxes of risk and
luck to medical ethics, including timely discussion of risk and luck in the
allocation of scarce health care resources, informed consent to treatment,
decisions about withholding life-sustaining treatment, psychiatry,
reproductive ethics, genetic testing, and medical research and
evidence-based medicine.

The book concludes with an examination of the relevance of risk and luck in
a medical context to the study of global ethics. If risk and luck are taken
seriously, it would seem to follow that we cannot develop any definite moral
standards at all, that we are doomed to moral relativism. However, Dickenson
offers strong counter-arguments to this view that enable us to think in
terms of universal standards for judging ethical systems. This claim has
direct practical relevance for practitioners as well as philosophers.

Countless public health agencies are trying to solve our most intractable public health problems - among them, the obesity and opioid epidemics - by partnering with corporations responsible for creating or exacerbating those problems. We are told industry must be part of the solution. But is it time to challenge the partnership paradigm and the popular narratives that sustain it? In The Perils of Partnership, Jonathan H. Marks argues that public-private partnerships and multi-stakeholder initiatives create "webs of influence" that undermine the integrity of public health agencies; distort public health research and policy; and reinforce the framing of public health problems and their solutions in ways that are least threatening to the commercial interests of corporate "partners". We should expect multinational corporations to develop strategies of influence - but public bodies can and should develop counter-strategies to insulate themselves from corporate influence in all its forms. Marks reviews the norms that regulate public-public interactions (separation of powers) and private-private interactions (antitrust and competition law), and argues for an analogous set of norms to govern public-private interactions. He also offers a novel framework to help public bodies identify the systemic ethical implications of their current or proposed relationships with industry actors. Marks makes a compelling case that the default public-private interaction should be at arm's length: separation, not collaboration. He calls for a new paradigm that avoids the perils of corporate influence and more effectively protects and promotes public health. The Perils of Partnership is essential reading for public health officials and policymakers - but anyone interested in public health will recognize the urgency of this book.