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Embodied Narratives - Protecting Identity Interests through Ethical Governance of Bioinformation (Hardcover)
Loot Price: R2,835
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Embodied Narratives - Protecting Identity Interests through Ethical Governance of Bioinformation (Hardcover)
Series: Cambridge Bioethics and Law
Expected to ship within 10 - 15 working days
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Increasing quantities of information about our health, bodies, and
biological relationships are being generated by health
technologies, research, and surveillance. This escalation presents
challenges to us all when it comes to deciding how to manage this
information and what should be disclosed to the very people it
describes. This book establishes the ethical imperative to take
seriously the potential impacts on our identities of encountering
bioinformation about ourselves. Emily Postan argues that identity
interests in accessing personal bioinformation are currently
under-protected in law and often linked to problematic
bio-essentialist assumptions. Drawing on a picture of identity
constructed through embodied self-narratives, and examples of
people's encounters with diverse kinds of information, Postan
addresses these gaps. This book provides a robust account of the
source, scope, and ethical significance of our identity-related
interests in accessing - and not accessing - bioinformation about
ourselves, and the need for disclosure practices to respond
appropriately. This title is also available as Open Access on
Cambridge Core.
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