When bioethicists debate the use of technologies like surgery and pharmacology to shape our selves, they are, ultimately, debating what it means for human beings to flourish. They are debating what makes animals like us truly happy, and whether the technologies at issue will bring us closer to or farther from such happiness. The positions that participants adopt in debates regarding such ancient and fundamental questions are often polarized, and cannot help but be deeply personal. It is no wonder that the debates are sometimes acrimonious. How, then, should critics of and enthusiasts about technological self-transformation move forward? Based on his experience at the oldest free-standing bioethics research institute in the world, Erik Parens proposes a habit of thinking, which he calls "binocular." As our brains integrate slightly different information from our two eyes to achieve depth of visual perception, we need to try to integrate greatly different insights on the two sides of the debates about technologically shaping our selves-if depth of intellectual understanding is what we are after. Binocular thinking lets us benefit from the insights that are visible from the stance of the enthusiast, who emphasizes that using technology to creatively transform our selves will make us happier, and to benefit from the insights that are visible from the stance of the critic, who emphasizes that learning to let our selves be will make us happier. Parens observes that in debates as personal as these, we all-critics and enthusiasts alike-give reasons that we are partial to. In the throes of our passion to make our case, we exaggerate our insights and all-too-often fall into the conceptual traps that language sets for us. Foolishly, we make conceptual choices that no one who truly wanted understanding would accept: Are technologies value-free or value-laden? Are human beings by nature creators or creatures? Is disability a medical or a social phenomenon? Indeed, are we free or determined? Parens explains how participating in these debates for two decades helped him articulate the binocular habit of thinking that is better at benefiting from the insights in both poles of those binaries than was the habit of thinking he originally brought to the debates. Finally, Parens celebrates that bioethics doesn't aspire only to deeper thinking, but also to better acting. He embraces not only the intellectual aspiration to think deeply about meaning questions that don't admit of final answers, but also the ethical demand to give clear answers to practical questions. To show how to respect both that aspiration and that demand, the book culminates in the description of a process of truly informed consent, in the context of one specific form of using technology to shape our selves: families making decisions about appearance normalizing surgeries for children with atypical bodies.

Death comes for us all, and the desire to ease into that death is as ancient as humankind. The idea that sometimes it is better to die quickly and in control of that death--rather than linger in pain and misery once impending death is certain--has troubled yet comforted humankind. In Doctor, Please Help Me Die, author Tom Preston, MD, presents a thorough overview and discussion of end-of-life issues and physician-assisted death in America.

Doctor, Please Help Me Die traces the history of patients seeking relief from suffering at the end of life and discusses how cultural and professional customs have inhibited many doctors from helping their patients at the end. Preston shows how most doctors fail their patients by not discussing dying with them and by refusing to consider legal physician aid in dying--ultimately deceiving the public in their refusal to help patients die. He discusses the religious, political, and legal battles in this part of the culture war and gives advice to patients on how to gain peaceful dying.

Preston presents a strong argument for why every citizen who is dying ought to be extended an inalienable right to die peacefully, and why every physician has an ethical obligation to assist patients who want to exercise this right safely, securely, and painlessly.

Neuroethics is concerned with the wide array of ethical, legal and social issues that are raised in research and practice. The field has grown rapidly over the last five years, becoming an active interdisciplinary research area involving a much larger set of academic fields and professions, including law, developmental psychology, neuropsychiatry, and the military.
Neuroethics and Practice helps to define and foster this emerging area at the intersection of neuroethics and clinical neuroscience, which includes neurology, neurosurgery, psychiatry and their pediatric subspecialties, as well as neurorehabiliation, clinical neuropsychology, clinical bioethics, and the myriad other clinical specialties (including nursing and geriatrics) in which practitioners grapple with issues of mind and brain. Chatterjee and Farah have brought together leading neuroethicists working in clinically relevant areas to contribute chapters on an intellectually fascinating and clinically important set of neuroethical topics, involving brain enhancements, brain imaging, competence and responsibility, severe brain damage, and consequences of new neurotechnologies. Although this book will be of direct interest to clinicians, as the first edited volume to provide an overall comprehensive perspective on neurethics across disciplines, it is also a unique and useful resource for a wide range of other scholars and students interested in ethics and neuroscience.

Brent admired the chimpanzee he sketched at the zoo. He regarded the animal as contemplative. He was unaware that similar animals in the wilds of Africa were the source of a virus that would lead to his death from AIDS. Brent became infected with HIV from the medicine he infused to treat his hemophilia. At six months of age, his parents were alarmed when they discovered bruises on his chest which led to the discovery of hemophilia. From that moment forward, he received frequent intravenous infusions of concentrate to treat recurrent bleeding episodes. Infusions of the medicine relieved pain and suffering from bleeding. His life seemed normal. Unexpectedly, Brent's life changed after the discovery of HIV contamination of the medicine. The medicine was manufactured from the plasma of paid blood donors. Unbeknownst to Brent, the plasma was polluted with HIV. The SIV in chimpanzees changed to become HIV in humans. But the chimpanzees were not the cause of the transfer of SIV in animals to HIV in humans. The change from SIV in animals to HIV in humans was the result of human activity. The change came about with the production of the hepatitis B vaccine. Who was responsible for the pollution of the hemophilia medicine with HIV and hepatitis viruses? Was Brent's death preventable?

After the Nancy Cruzan case was decided by the Supreme Court in 1990, and ultimately resolved by the Courts of the State of Missouri, the decision to withhold or withdraw life-prolonging nutrition and hydration appeared to many to be as noncontroversial as decisions to refuse respirators or dialysis. Even the Catholic Church held that, although there should be a presumption in favor of providing nutrition and hydration, the patient or the patient's surrogate could overrule this presumption, if either believed the treatment was disproportionate or burdensome. The Schiavo case changed all that. Although the decision to remove Terri Schiavo's nutrition and hydration was made by her husband - her legal surrogate - based on his wife's belief that such treatment was disproportionate, Schiavo's immediate family protested so much that the case took years to resolve. It eventually involved all branches of government at both the state and federal levels. The ethical dilemmas that such cases pose continue to stir great controversy. This in-depth examination of these dilemmas provides information and documentation from many perspectives. The editors have included a foreword by Dr. Jay Wolfson, Terri Schiavo's court-appointed guardian ad litem, as well as Dr. Wolfson's report to Gov. Jeb Bush on the case and Gov. Bush's reply; public statements by President George Bush and Senators David Weldon, Rick Santorum, Tom DeLay, Bill Frist, and Barney Frank; statements by the pope and other representatives of the Catholic Church on this issue; plus much medical and legal background material on both precedents to the Schiavo case and its aftermath, including the results of the autopsy report. For anyone wishing an in-depth understanding of these complex ethical issues, issues many of us will have to confront in our own families, this volume is indispensable.

On a blustery night, detectives from the Massachusetts State Police knocked on Amy Gleason's door. Gleason, along with fellow nurse Kim Hoy, had helped a patient deal with pain and suffering at the end of her life. Now the patient was dead, and the two nurses were being investigated for murder. Both believed they had done the right thing, but they had no idea what it would cost them. In this captivating and powerful true story, Dr. Lewis M. Cohen uses the experiences of Gleason, Hoy, and the nursing assistant who accused them of murder to explore what happens when decisions about end-of-life care shift from the hospital to the courtroom and the church. Tracing this issue from the uproar over Terri Schiavo's feeding tube to the controversial figure of Jack Kevorkian, and to the legitimate threat of serial killer medical professionals, Cohen goes behind the scenes on both sides of this debate. He examines how advances in modern medicine have given us tremendous tools for prolonging life but have also forced us to address how we treat patients who are dying and suffering.

Genomics and Bioethics: Interdisciplinary Perspectives, Technologies and Advancements contributes to the existing gap in interdisciplinary research on comparative studies of cultural, social and ethical implications of genomics and bioinformatics. This work focuses on ethical, social, cultural, and legal implications of genetics, genomics and genetic databanking as they relate to concrete cultural and historical traditions.

* PRE-ORDER YOUR COPY TODAY * The compelling and moving memoir of forensic psychiatrist Dr Duncan Harding

Unlike the rest of the advanced industrialized world, the United States does not have a national healthcare system that guarantees that all residents have access to medical services. Over the past century a number of unsuccessful attempts have been made to create and implement a unified, coordinated healthcare system. Piecemeal progress has been made, such as with the passage of Medicare, Medicaid, and the Affordable Care Act. However, the US still has the dubious distinction of possessing the most expensive healthcare in the world as well as health-related outcomes that are shameful for a wealthy country, mostly due to the number of people who lack decent care. The continuing escalation in medical costs is also threatening the financial stability of the nation. In his first book, Rationing is Not a Four-Letter Word, Philip M. Rosoff argued that the only way to control costs is to impose rationing, and the only way to do so fairly is to have it apply to all. The key to rationing is how it is accomplished. He outlined a general approach to making rationing decisions that involved a comprehensive explication of procedural fairness and illustrated this with the real-life accepted system of solid organ allocation for transplantation. In this book, he discusses how to decide what should and should not be covered in a generous benefits plan for all. He considers a variety of ways this might be done and concludes that the most just approach is to utilize a transparent process in which experts and lay people develop a consensus on what should be covered by focusing on both clinical evidence of need and the effective and appropriate means to address those needs. He also considers the various objections and impediments to this proposal and concludes that they are obstacles that can be successfully met.

This timely volume illustrates how and why the fight against quackery in modern America has largely failed, laying the blame on an unlikely confluence of scientific advances, regulatory reforms, changes in the medical profession, and the politics of consumption. Throughout the 20th century, anti-quackery crusaders investigated, exposed, and attempted to regulate allegedly fraudulent therapeutic approaches to health and healing under the banner of consumer protection and a commitment to medical science. Quack Medicine: A History of Combating Health Fraud in Twentieth-Century America reveals how efforts to establish an exact border between quackery and legitimate therapeutic practices and medications have largely failed, and details the reasons for this failure. Digging beneath the surface, the book uncovers the history of allegedly fraudulent therapies including pain medications, obesity and asthma cures, gastrointestinal remedies, virility treatments, and panaceas for diseases such as arthritis, asthma, diabetes, and HIV/AIDS. It shows how efforts to combat alleged medical quackery have been connected to broader debates among medical professionals, scientists, legislators, businesses, and consumers, and it exposes the competing professional, economic, and political priorities that have encouraged the drawing of arbitrary, vaguely defined boundaries between good medicine and "quack medicine." Previously unpublished images from medical almanacs and drug advertisements sent directly to doctors Images of materials used by "quackbusters" in their public educational campaigns, including posters used by the AMA and anti-quackery pamphlets produced by governmental agencies

The utilization of information and communication technologies in almost all spheres of modern society has changed the social picture in significant ways while simultaneously leading to tensions with regard to traditional ethical and legal practices-particularly given the global context of its application. Where these technologies impact on the practice and implementation of healthcare, it is vital to recognize the extent and nature of the ethical and social impact both at the level of professional practice and the patient. Ethical, Legal and Social Issues in Medical Informatics presents a fundamental compendium of research on the ethical, social, and legal issues facing the healthcare industry as it adopts information technologies to provide fast, efficient, and cost effective healthcare. An essential resource for every reference library, this comprehensive book offers a multidisciplinary perspective, drawing from the expertise of a wide variety of global industries including law, ethics, medicine, philosophy, and computer science.

Telepatients using connected objects to collect time-sensitive data about their health are not neutral carriers of diagnosable symptoms. Patients are persons, or personal beings as well as co-carers, whose personal experience, history and know-how must be acknowledged in time-sensitive telecare practices. Such practices require a relational ethics, inspired by medical ethics and an ethics of virtues, focusing on vulnerability and emotional health, to oversee telecare good practices, define a new therapeutic alliance compliant with patients' values, and reconcile the technical and human sides of telemedicine.