This book explores our ethical responsibilities regarding health in general and disabilities in particular. Disability studies and human enhancement stand out as two emerging areas of research in medical ethics, prompting debates into ethical questions of identity, embodiment, discrimination, and accommodation, as well as questions concerning distributive justice and limitations on people's medical rights. Edited by two ethicist philosophers, this book combines their mastery of the theoretical debates surrounding disability and human enhancement with attention to real world questions that health workers and patients may face. By including a wide range of high-quality voices and perspectives, the book provides an invaluable resource for scholars who are working on this important and emerging area of leadership and health care ethics.

The editors of the Philosophy and Medicine series recognize with grat itude the foresight, understanding, hard labor, and patience of Prof. Kazumasa Hoshino. It is his perseverance that has made this volume a reality. It was his faith in ideas that brought together a cluster of scholars in Tokyo on September 2-4, 1994, at Sophia University for a U. S. -J apan Bioethics Congress. With the support of the Foundation for Advance ment of International Science, the Japan Foundation Center for Global Partnership, the Foundation of Thanatology, the Japanese Center for Quality of Life Studies, and Sophia University, scholars from Canada, Germany, Japan, and the United States were able to explore the differ ences and similarities in their approaches to bioethics and health care policy. That conference first produced a volume through Shibunkaku Publishers of Kyoto that appeared in 1995 in J apanese: The Dignity of Death, edited by Kazumasa Hoshino. Selections from those materials have been reworked for an English audience and now appear, along with new essays, in this volume. The field of comparative bioethics is only in its infancy. We are deeply grateful to Prof. Kazumasa Hoshino, one of the fathers of J apanese bioethics, for having made this volume possible. H. Tristram Engelhardt, Jr. Stuart F. Spicker Vll ACKNOWLEDGEMENTS This volume's editors and Kluwer Academic Publishers wish to thank Shibunkaku Press, Kyoto, Japan, for permission to publish, without charge, essays derived from the U. S."

Biomedical research is increasingly carried out in low- and middle-income countries. International consensus has largely been achieved around the importance of valid consent and protecting research participants from harm. But what are the responsibilities of researchers and funders to share the benefits of their research with research participants and their communities? After setting out the legal, ethical and conceptual frameworks for benefit sharing, this collection analyses seven historical cases to identify the ethical and policy challenges that arise in relation to benefit sharing. A series of recommendations address possible ways forward to achieve justice for research participants in low- and middle-income countries.

She is his doctor. He will be her downfall. The bestselling phenomenon returns... 'Beautifully paced' CARA HUNTER 'Beautifully written with an achingly real romance at its heart' SARAH HILARY 'A masterclass in upmarket thriller writing' CHARLOTTE PHILBY 'I raced through it!' EMMA CURTIS When Rachel, a GP in Salisbury, meets Luc, the attraction between them is instant. But Rachel is married with a daughter - and Luc isn't well. Despite themselves, a heady love affair begins - one that threatens to risk everything Rachel has worked for. And when someone in the town is found dead, the spotlight turns to Luc. Torn between her career, her marriage and her heart, Rachel finds herself in the middle of something much darker than she could have imagined... A beautifully written domestic suspense story from the master of the what-if novel. PRAISE FOR THE PATIENT: 'This elegant, multi-layered story has taken my breath away. Much more than a murder mystery, it explores mental health, middle age, marriage and love, while luring you to the edge of your seat' JANICE HALLETT 'A powerful obsession turns dark in this gripping tale of desire, betrayal and murder' T.M. LOGAN 'Constantly surprising' THE SUNDAY TIMES 'With plenty of tension and shocking moments, this atmospheric story is perfect for fans of Apple Tree Yard and Doctor Foster' CANDIS MAGAZINE 'A breath-taking dissection of a marriage' Woman & Home 'A compelling sense of place, good twists, and a tense, intense ending' Sarah Vaughan, bestselling author of Anatomy of a Scandal 'We absolutely loved this . . . It's difficult to believe that this accomplished book is a debut' Richard & Judy Book Club 'Utterly gripping. A tautly-coiled spring of suspicion and suspense which builds to a devastating ending' Mail on Sunday 'Gave me goosebumps' Claire Douglas, author of Then She Vanishes 'Jane Shemilt has a talent for taking you into her world - but be careful. It might not be what you think...' Jane Corry, Sunday Times bestselling author of I Made A Mistake 'Beautifully written and suffused with dread. A compelling literary thriller' Gilly Macmillan, bestselling author of The Nanny

The Elements of Ethical Dilemmas: Applied Psychology Ethics in Australia is a comprehensive and applied guide to practising psychology in an ethical and professional manner. This book is designed to assist applicants for general registration as a psychologist successfully navigate one of the eight core competencies for general registration set by the Psychology Board of Australia; specifically ethical, legal, and professional matters. The exploration of ethical dilemmas is a core task for the 4+2 pathway to general registration, while related ethical applications require exploration in the 5+1 and higher education pathways to registration as well. This book will teach readers how to identify, explore, and choose the appropriate professional course of action when confronted by ethical dilemmas in practice. The chapters include personal reflections from expert contributors relating to each of the ethical dilemmas, expertly highlighting clients' and stakeholders' circumstances, ethical codes and guidelines, scholarship and research, as well as other key elements in the ethical decision-making process. Especially relevant to those applying to become a registered psychologist in Australia, this book offers invaluable guidance on responding to ethical dilemmas as required by the Psychology Board of Australia in various pathways to general registration.

First published in 1967, Human Guinea Pigs is a report by a consultant physician on the implications of medical research on both the medical profession and on the men, women and children who are the subjects of medical experiments. It suggests that there are limits to the permissibility of experiments on humans. It points out how it has become a common occurrence for medical investigators to take risks with patients of which the patients themselves are frequently unaware, and to submit them to mental and physical distress and possible hazards which in no way are necessitated by or have connection with the treatment of the disease from which are suffering. The author describes a number of experiments which, in his opinion, raise important problems. In his view, medical research must go on, but there must be acknowledged and observed safeguards for patients. This book will be of interest to students of medicine, ethics, law, politics and social work.

Person-centred health care is increasingly endorsed as a key element of high-quality care, yet, in practice, it often means patient-centred health care. This book scrutinizes the principle of primacy of patient welfare, which, although deeply embedded in health professionalism, is long overdue for critical analysis and debate. It appears incontestable because patients have greater immediate health needs than clinicians and the patient-clinician encounter is often recognized as a moral enterprise as well as a service contract. However, Buetow argues that the implication that clinician welfare is secondary can harm clinicians, patients and health system performance. Revaluing participants in health care as moral equals, this book advocates an ethic of virtue to respect the clinician as a whole person whose self-care and care from patients can benefit both parties, because their moral interests intertwine and warrant equal consideration. It then considers how to move from values including moral equality in health care to practice for people in their particular situations. Developing a genuinely inclusive concept of person-centred care - accepting clinicians as moral equals - it also facilitates the coalescence of patient-centred care and evidence-based health care. This reflective and provocative work develops a constructive alternative to the taken-for-granted principle of primacy of patient welfare. It is of interest to students and academics in the health and caring sciences, philosophy, ethics, medical humanities and health management.

The History and Bioethics of Medical Education: "You've Got to Be Carefully Taught" continues the Routledge Advances in the History of Bioethics series by exploring approaches to the teaching of bioethics from disparate disciplines, geographies, and contexts. Van Rensselaer Potter coined the phrase "Global Bioethics" to define human relationships with their contexts. This and subsequent volumes return to Potter's founding vision from historical perspectives and asks, how did we get here from then? The patient-practitioner relationship has come to the fore in bioethics; this volume asks: is there an ideal bioethical curriculum? Are the students being carefully taught and, in turn, are they carefully learning? This volume will appeal to those working in both clinical medicine and the medical humanities, as vibrant connections are drawn between various ways of knowing.

Please note this is a 'Palgrave to Order' title (PTO). Stock of this book requires shipment from an overseas supplier. It will be delivered to you within 12 weeks. When seriously ill, what contributes to a sense of being truly cared for and respected? This compelling book explores healthcare inequalities by listening closely to Black and Latina women with breast cancer. It puts their stories into conversation with current healthcare statistics, sharp theological imagination, healthcare providers, and social ethics. Vigen contends that ethicists, healthcare providers, and scholars arrive at an adequate understanding of human dignity and personhood only when they take seriously the experiences and needs of those most vulnerable due to systemic inequalities.

Life and health sciences and biomedical studies have developed rapidly over the last few decades raising previously unanticipated ethical concerns and questions. New and emerging technologies require novel approaches, protocols and raised awareness to ensure adequate levels of biosecurity and biosafety as well as the implementation of special measures to prevent their potential misuse or dual use. This volume brings together an international collection of prominent ethics experts in health and life sciences, with the aim of providing clear and comprehensive guidelines for the establishment of efficient ethical strategies related to current and emerging biotechnologies and health research. Important current topics in research ethics including CRISPR-Cas9 technologies, gene editing, 'big data' in healthcare and life sciences, nutrition in medicine among other topics have found their place in this volume. In addition, the volume discusses the prospects for the implementation of an international unification of ethical standards in life sciences.

The Patient Self-Determination Act of 1990 required medical facilities to provide patients with written notification of their right to refuse or consent to medical treatment. Using this Act as an important vehicle for improving the health care decisionmaking process, Lawrence P. Ulrich explains the social, legal, and ethical background to the Act by focusing on well-known cases such as those of Karen Quinlan and Nancy Cruzan, and he explores ways in which physicians and other caregivers can help patients face the complex issues in contemporary health care practices. According to Ulrich, health care facilities often address the letter of the law in a merely perfunctory way, even though the Act integrates all the major ethical issues in health care today. Ulrich argues that well-designed conversations between clinicians and patients or their surrogates will not only assist in preserving patient dignity - which is at the heart of the Act - but will also help institutions to manage the liability issues that the Act may have introduced. He particularly emphasizes developing effective advance directives. Ulrich examines related issues, such as the negative effect of managed care on patient self-determination, and concludes with a seldom-discussed issue: the importance of being a responsible patient. Showing how the Patient Self-Determination Act can be a linchpin of more meaningful and effective communication between patient and caregiver, this book provides concrete guidance to health care professionals, medical ethicists, and patient-rights advocates.

Increasingly digital technologies are used in healthcare. This book explores eight digital health technologies, situated the context of a life span, from high-throughput genomic sequencing technologies and do-it-yourself (DIY) insulin delivery for diabetes management in paediatrics, to the use of robotic care assistants for older adults and digital advance care decisions. A scene-setting case scenario at the start of each chapter describes the digital technology and identifies the sometimes competing interests of the key stakeholders. Broad themes of resource allocation, access to technologies, informed consent, privacy of health data and ethical concerns are considered in context, alongside analysis of legal duties owed by healthcare professionals to act in their patients' best interests. This book addresses legal and ethical issues arising from the use of emerging digital health technologies and is of interest to academics, clinicians and regulators and anyone interested in the development of health technologies and the challenges they may present. It focusses on the Australian legal framework, with some comparison to other jurisdictions.

This book provides the first comprehensive, historically based, philosophical interpretations of two texts of Thomas Percival's professional ethics in medicine set in the context of his intellectual biography. Preceded by his privately published and circulated Medical Jurisprudence of 1794, Thomas Percival (1740-1804) published Medical Ethics in 1803, the first book thus titled in the global histories of medicine and medical ethics. From his days as a student at the Warrington Academy and the medical schools of the universities of Edinburgh and Leyden, Percival steeped himself in the scientific method of Francis Bacon (1561-1626). McCullough shows how Percival became a Baconian moral scientist committed to Baconian deism and Dissent. Percival also drew on and significantly expanded the work of his predecessor in professional ethics in medicine, John Gregory (1724-1773). The result is that Percival should be credited with co-inventing professionalism in medicine with Gregory. To aid and encourage future scholarship, this book brings together the first time three essential Percival texts, Medical Jurisprudence, Medical Ethics, and Extracts from the Medical Ethics of Dr. Percival of 1823, the bridge from Medical Ethics to the 1847 Code of Medical Ethics on the American Medical Association. To support comparative reading, this book provides concordances of Medical Jurisprudence to Medical Ethics and of Medical Ethics to Extracts. Finally, this book includes the first Chronology of Percival's life and works.

Torture doctors invent and oversee techniques to inflict pain and suffering without leaving scars. Their knowledge of the body and its breaking points and their credible authority over death certificates and medical records make them powerful and elusive perpetrators of the crime of torture. In The Torture Doctors, Steven H. Miles fearlessly explores who these physicians are, what they do, how they escape justice, and what can be done to hold them accountable. At least one hundred countries employ torture doctors, including both dictatorships and democracies. While torture doctors mostly act with impunity-protected by governments, medical associations, and licensing boards-Miles shows that a movement has begun to hold these doctors accountable and to return them to their proper role as promoters of health and human rights. Miles's groundbreaking portrayal exposes the thinking and psychology of these doctors, and his investigation points to how the international human rights community and the medical community can come together to end these atrocities.

The American Medical Association enacted its Code of Ethics in 1847, the first such national codification. In this volume, a distinguished group of experts from the fields of medicine, bioethics, and history of medicine reflect on the development of medical ethics in the United States, using historical analyses as a springboard for discussions of the problems of the present, including what the editors call "a sense of moral crisis precipitated by the shift from a system of fee-for-service medicine to a system of fee-for-system medicine, better known as 'managed care.'"

The authors begin with a look at how the medical profession began to consider ethical issues in the 1800s and subsequent developments in the 1900s. They then address the sociological, historical, ethical, and legal aspects of the practice of medicine. Later chapters discuss current and future challenges to medical ethics and professional values. Appendixes display various versions of the AMA's Code of Ethics as it has evolved over time.

Contributors: George J. Annas, J.D., M.P.H., Arthur Isak Applbaum, Ph.D., Robert B. Baker, Ph.D., Chester R. Burns, M.D., Ph.D., Arthur L. Caplan, Ph.D., Alexander Morgan Capron, J.D., Christine K. Cassel, M.D., Linda L. Emanuel, M.D., Ph.D., Eliot L. Freidson, Ph.D., Albert R. Jonsen, Ph.D., Stephen R. Latham, J.D., Ph.D., Susan E. Lederer, Ph.D., Florencia Luna, Ph.D., Edmund D. Pellegrino, M.D., Charles E. Rosenberg, Ph.D., Mark Siegler, M.D., Rosemary A. Stevens, Ph.D., Robert M. Tenery, Jr., M.D., Robert M. Veatch, Ph.D., John Harley Warner, Ph.D., Paul Root Wolpe, Ph.D.

* The book is balanced and comprehensive, recognising that both affordability and investment into innovation are necessary * The book is original, using ecological concepts to understand pharmaceutical innovation as an ecosystem. * The book is unique in its research foundation, building on the views of more than 70 expert informants from all parts of the pharmaceutical innovation ecosystem and all sides of the debate about drug pricing.

First book to examine the ethics of pandemics from a philosophical standpoint Examines the key and controversial issues that arise out of pandemics, such as government response, test and trace, restrictions on human freedom and movement and vaccine passports Very useful reading for those in related fields such as medicine and health care as well as applied ethics within philosophy Case studies from UK, south east Asia, US and Europe

Unlike Nazi medical experiments, euthanasia during the Third Reich is barely studied or taught. Often, even asking whether euthanasia during the Third Reich is relevant to contemporary debates about physician-assisted suicide (PAS) and euthanasia is dismissed as inflammatory. Physician-Assisted Suicide and Euthanasia: Before, During, and After the Holocaust explores the history of euthanasia before and during the Third Reich in depth and demonstrate how Nazi physicians incorporated mainstream Western philosophy, eugenics, population medicine, prevention, and other medical ideas into their ideology. This book reveals that euthanasia was neither forced upon physicians nor wantonly practiced by a few fanatics, but widely embraced by Western medicine before being sanctioned by the Nazis. Contributors then reflect on the significance of this history for contemporary debates about PAS and euthanasia. While they take different views regarding these practices, almost all agree that there are continuities between the beliefs that the Nazis used to justify euthanasia and the ideology that undergirds present-day PAS and euthanasia. This conclusion leads our scholars to argue that the history of Nazi medicine should make society wary about legalizing PAS or euthanasia and urge caution where it has been legalized.

* Helps readers become proficient ethical decision-makers using the 2020 NASP ethical code and to critically engage the ethical standards and work through ethical dilemmas that often occur in school and clinical settings * Over 100 ethical case studies are presented in the text that specifically relate to NASP's Principles for Professional Ethics * Readers are provided step-by-step directions on how to use the ethical decision-making model when problem solving each case scenario

This book provides an in-depth analysis of the ethical, social and philosophical issues related to modern genetic research and gene technology. The aim of the book is to introduce systematic research on the social and ethical impacts of the use and development of genetically modified organisms (GMOs) as well as the acquisition, use and storage of human genetic information (HGI). The book has been written from the viewpoint of social and political philosophy.

The terms gender, careers and inequalities were chosen to delineate the conceptual framework of this book - the second volume of a new series focussed on equality, diversity and inclusion issues. Each of the concepts adds to a different and unique dimension to the study of medicine and medical education. Gender allows for a reading of power and exclusion of women in medicine and medical education. Careers and inequalities draw attention to the multiplicity of factors that influence women's participation in the medical profession including the interconnectedness of gender, race, ethnicity, age, sexuality, creed and disability in the workplace. Scholars bring insights from across disciplines of social sciences, including sociology, medical anthropology, psychology, and human resources management and have been encouraged to provide cross-national and multi-dimensional insights through comparative analysis.

This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one's own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.

This book explores, through case studies, the interplay between religion, culture, government, and politics in diverse societies on questions arising in the domain of bioethics. The case studies draw from multiple disciplinary perspectives, including history, theology, law, bioethics, public policy, science, and medicine. The text's global perspective permits a comparison of the differing approaches adopted by countries facing similar bioethical quandaries and the extent to which religion has or has not been instrumental in addressing such dilemmas. Secular and religious societies across the globe are being confronted with complex questions involving religious belief and the extent to which specific religious perspectives have in the past or should in the future be adopted as official policy. Bioethical issues involving the interplay of religion and government have become particularly notable in recent years. How these issues are resolved has major implications for individuals, healthcare providers, and the future of medical research and medical care. Topics explored among the chapters include: Homosexuality: Sin, Crime, Pathology, Identity, Behavior Medical Error: Truthtelling, Apology, and Forgiveness Refusal of Medical Treatment Medical Deportation Case Study: Nazism, Religion, and Human Experimentation The New Frontier: Cloning Case Studies in Society, Religion, and Bioethics will find an engaged audience among researchers and scholars in history, religion/theology, medicine, and bioethics interested in the influence of religion on bioethical decision-making. Students-particularly upper-level undergraduate and graduate students interested in bioethics, humanities, and theology-will find the text helpful in understanding the processes through which religion may serve as a basis for both societal policy and law and individual decision-making in health-related matters.

As a society, we are faced with a series of dilemmas-abortion, euthanasia, genetic engineering, organ transplant allocation, support or non-support of the elderly and fragile-that seem to offer no resolution. How do we choose between the needy and the ailing? Choices must be made in both the world of law and the realm of medical ethics. What we need is what we do not have-a perspective in the larger sense of the word-a view that makes apparent the sweep of the issues at hand. The failure of perspective in bioethics and medical decision making is absolute. It results from the limits of an 18th century philosophy and philosophical method. Simply, current methods of examining these issues can not resolve them because the method itself is limited. Answers are possible. They require, Koch argues, a new approach. In it, principle is the goal, not the mechanism of solution. Its parts must be defined and their application considered in context. This is demonstrated using two distinct contemporary problems. The first: Who gets available organ transplants? How do we decide between the equally needy when there are not enough organs for all? The second: The problem of Baby K, the care or non-care of brain stem, anencephalic babies. These problems are defined using multicriterion approach and resolved through a series of focus group discussions that involve medical and lay personnel. What results is a new, more inclusive view of medicine and a new, more complex understanding of what consensus may mean in an evolving, twenty-first century society. This is must reading for lay people, medical personal, and policymakers concerned with bioethics and medical philosophy issues.