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Metagnosis - Revelatory Narratives of Health and Identity (Hardcover)
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Metagnosis - Revelatory Narratives of Health and Identity (Hardcover)
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Bridging memoir with key concepts in narratology, philosophy and
history of medicine, and disability studies, this book identifies
and names the phenomenon of metagnosis: the experience of learning
in adulthood of a longstanding condition. It can occur when the
condition has remained undetected (e.g. colorblindness) and/or when
the diagnostic categories themselves have shifted (e.g. ADHD). More
broadly, it can occur with unexpected revelations bearing upon
selfhood, such as surprising genetic test results. Though this
phenomenon has received relatively scant attention, learning of an
unknown condition is often a significant and bewildering
revelation, one that subverts narrative expectations and customary
categories. How do we understand these revelations? In addressing
this topic Danielle Spencer approaches narrative medicine as a
robust research methodology comprising interdisciplinarity,
narrative attentiveness, and the creation of writerly texts.
Beginning with Spencer's own experience, the book explores the
issues raised by metagnosis, from communicability to narrative
intelligibility to different ways of seeing. Next, it traces the
distinctive metagnostic narrative arc through the stages of
recognition, subversion, and renegotiation, discussing this
trajectory in light of a range of metagnostic experiences-from
Blade Runner to real-world mid-life diagnoses. Finally, it situates
metagnosis in relation to genetic revelations and the broader
discourses concerning identity. Spencer proposes that better
understanding metagnosis will not simply aid those directly
affected, but will serve as a bellwether for how we will all
navigate advancing biomedical and genomic knowledge, and how we may
fruitfully interrogate the very notion of identity.
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