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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with illness
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Learning to Live with Huntington's Disease - One Family's Story (Paperback)
Loot Price: R625
Discovery Miles 6 250
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Learning to Live with Huntington's Disease - One Family's Story (Paperback)
Expected to ship within 12 - 17 working days
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Huntington's Disease (HD) is a hereditary illness passed on via a
defective gene. There is a fifty per cent chance of inheriting it
from a parent and there is yet no cure. Learning to Live with
Huntington's Disease is one family's poignant story of coping with
the symptoms, the diagnosis and the effects of HD. This book
presents the struggles and strengths of the whole family when one
member loses their future to a terminal illness. Told by the
sufferer and other significant family members, the individuals
describe the burden of watching yourself and others for symptoms of
HD, including involuntary movements, depression, clumsiness, weight
loss, slurred speech and sometimes violent tendencies. The family
recounts the challenge to remain united and describes how they
approached issues such as whether or not to be tested for HD, how
much information to disclose to relatives, whether to have children
or not and guilt if one sibling inherits the illness and one does
not. Both honest and positive, the author stresses the importance
of re-inventing yourself and your present, prioritizing
relationships and retaining a sense of humor.
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