Learning to Live with Huntington's Disease - One Family's Story (Paperback)

Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritizing relationships and retaining a sense of humor.

General

Imprint:	Jessica Kingsley Publishers
Country of origin:	United Kingdom
Release date:	April 2007
First published:	April 2007
Contributors:	Danny Dourado • Phil Dourado • Wendy Dant • Bromley Sulaiman • Chantel Sulaiman
Authors:	Sandy Sulaiman
Dimensions:	232 x 154 x 12mm (L x W x T)
Format:	Paperback - Trade
Pages:	176
ISBN-13:	978-1-84310-487-2
Categories:	Books > Fiction > True stories > General Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with illness Promotions
LSN:	1-84310-487-3
Barcode:	9781843104872

Is the information for this product incomplete, wrong or inappropriate? Let us know about it.

Does this product have an incorrect or missing image? Send us a new image.

Is this product missing categories? Add more categories.

Review This Product

No reviews yet - be the first to create one!