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When Treatment Fails - How medicine cares for dying children (Hardcover)
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When Treatment Fails - How medicine cares for dying children (Hardcover)
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Medical care of the terminally ill is one of the most emotionally
fraught and controversial issues before the public today. As
medicine advances and technologies develop, end-of-life care
becomes more individualized and uncertain, guided less by science
and more by values and beliefs. The crux of the controversy is when
to withhold or withdraw curative treatments--when is enough,
enough?
Political debates rage about when treatment is no longer
effective; difficult cases are contested in courts; and the media
devour the most sensational aspects of end-of-life care. In all
this excitement and controversy, what is sadly overlooked is the
extreme pressure that care of the terminally ill puts on medical
staff as they deal with patients and their families and make
life-or-death decisions. That pressure--the psychological strain
and continuing uncertainties--is magnified when the patients are
children.
David Bearison looks at this controversial issue from the
perspective of the medical staff caring for dying children. Not
just doctors, but nurses and counselors as well. By capturing their
stories--as no other book has, Bearison is able to move beyond
broad, abstract ideas about end-of-life care to convey the situated
contexts of such care, including the complications, disagreements,
frustrations, confusions, and unexpected setbacks.
In addition to a discussion of questions surrounding whether to
withhold or withdraw curative treatments, When Treatment Fails
explores the crucial concerns of those medical practitioners who
care for dying children: education and training, relation with one
another, communicating with patients and families, and finally,
coping and moving on.Ultimately, the threads connecting these
themes are the great costs and rewards of this difficult work, and
the lessons that can be drawn from the nitty-gritty experiences of
medical practitioners who struggle to find the balance between
trying to defeat death and trying to provide comfort.
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