Reader Views Kids Award for Best Children's Book of the Year 2010
and Mom's Choice Gold Award Outstanding Young Contributor This is
not your usual boy-meets-dog, boy-loves-dog, dog-helps-boy story.
But then Morasha Winokur is not your usual eleven-year-old sister.
"My Invisible World" cleverly exposes a hidden, completely
preventable, public health crisis that impacts each of us. Up to 1
out of 100 live births are affected by prenatal alcohol exposure
and it is the leading known preventable cause of intellectual
disability. Fetal alcohol spectrum disorders (FASDs) are life-long
birth defects. An individual may live with neurological, emotional,
cognitive, and behavioral challenges. FASDs may be the most
undiagnosed/misdiagnosed developmental disability of our time.
Eleven-year-old Morasha shares her in-depth and personal life story
of what it feels like to be the sister of a sibling that struggles
with FASDs. "My Invisible World" is an incredible inside account of
the daily issues that arise for a child that deals with an
invisible brain injury. Winokur, describes her brother's disability
with tween-humor and addresses her struggles in knowing she is
mentally and physically healthy while her brother has special needs
beyond her ability to fix. Morasha and her brother Iyal are
non-biological siblings who were adopted by a loving couple and
traveled from Russia to their new family's home in Georgia. Young
Morasha shows her commitment to her brother's disability by sharing
her inner-most thoughts in an effort to raise awareness in her
peers so they too can understand the importance of not drinking
while pregnant. As the "typical" sister, Winokur wrestles with the
angst of whether or not it is better to remain translucent in her
existence, or whether she should embrace the visibility that having
a service dog in the family creates. Not only is an eleven year old
boy's hidden disability validated by Chancer, a service dog - but
the effort it takes for an entire family to support this person
becomes perceptible. The unconditional presence and specifically
trained skills of an irresistible 90 pound Golden Retriever help to
heal not only Winokur's brother, but each member of the family in
unexpected ways. "Whether you are learning to cope with a
disability in your own family, or simply interested in reading a
great book that shows immeasurable strength and courage, this is a
must read - Melissa Lacquement' An honest and sensitive assessment
of life for the sibling of a special needs child. Eleven year-old
Morasha puts into words the burdens faced growing up with a brother
affected by Fetal Alcohol Spectrum Disorder (FASD). The reader
learns how the whole family embraces the challenges of living with
an FASD child and finds support in a specially trained service dog,
named Chancer. This book provides insight, and is an appropriate
read, for any parent or sibling of a of special needs child - not
limited to only FASD affected families. - J Michael Williams This
is a great book to share with others, especially children. This
book should be in every elementary and middle school library in the
county. Morasha tells it like it is - J Liebman Heartfelt voice of
a young sister's love and her own internal struggle of acceptance
with her sibling's disability. Wonderful read for inspiring
authors, siblings and parents. Wish elementary schools would use
this book for their student's curriculum and writer's workshops.
There are so many lessons embedded in this 11 year old Morasha's
story: embracing diversity, empathy, self-acceptance, siblings,
growing up, being an agent of change, and the importance of
prevention. My son read it to me as his homework, but the lessons
have only begun to start to take root. - Gailynn Gluth
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