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Books > Medicine > General issues > Public health & preventive medicine > Epidemiology & medical statistics
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Legal and Ethical Aspects of HIV-Related Research (Paperback, Softcover reprint of the original 1st ed. 2002)
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Legal and Ethical Aspects of HIV-Related Research (Paperback, Softcover reprint of the original 1st ed. 2002)
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The motivation and inspiration for this book come directly from
expe- ences with clients during the years that I practiced
HIV-related law at the Legal Aid Society of San Diego, Inc. The
issues discussed in this work reflect issues that arose on a
recurring basis with clients participating in HIV research studies,
with investigators calling for guidance on the legal implications
of particular aspects of their proposed studies, and with research
institutions and health care facilities struggling to make sense of
legal maneuvers aimed at obtaining the records of their
HIV-infected patients. It is impossible to thank each of these
persons individually for their provocative questions and their
insights. The discussion of ethical and legal issues relating to
the design of clinical trials reflects questions raised during
discussions with Donald J. Slymen, Ph.D. Don was one of the first
researchers, in my realm of experience, to pay close attention to
ethical concerns, and I am greatly appreciative of his contribution
to both my professional growth and the development of various
scenarios discussed in this text. The portions of this text dealing
with confidentiality are the result of many hours of thoughtful
discussion and analysis with Penn Lerblance, J.D., now deceased and
still missed. Penn and I often participated together as presenters
of in-service training programs for health prof- sionals. Penn
addressed discrimination, and I focused on confidentiality.
General
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