Losing her smile to synkinesis after unresolved Bell’s palsy
changed how Faye Linda Wachs was seen by others and her internal
experience of self. In Metamorphosis, interviewing over one hundred
people with acquired facial difference challenged her presumptions
about identity, disability, and lived experience. Participants
described microaggressions, internalizations, and minimalizations
and their impact on identity. Heartbreakingly, synkinesis disrupts
the ability to have shared moments. When one experiences
spontaneous emotion, wrong nerves trigger misfeel and misperception
by others. One is misread by others and receives confusing internal
information. Communication of and to the self is irrevocably
damaged. Wachs describes the experience as a social disability.
People found a host of creative ways to reinvigorate their sense of
self and self-expression. Like so many she interviewed, Wachs
experiences a process of change and growth as she is challenged to
think more deeply about ableism, identity, and who she wants to be.
General
Imprint: |
Rutgers University Press
|
Country of origin: |
United States |
Release date: |
September 2023 |
First published: |
2023 |
Authors: |
Faye Linda Wachs
|
Dimensions: |
229 x 152 x 17mm (L x W x T) |
Pages: |
226 |
ISBN-13: |
978-1-978805-32-3 |
Categories: |
Books
|
LSN: |
1-978805-32-2 |
Barcode: |
9781978805323 |
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