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Genetic Discrimination - Transatlantic Perspectives on the Case for a European Level Legal Response (Paperback)
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Genetic Discrimination - Transatlantic Perspectives on the Case for a European Level Legal Response (Paperback)
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As genetic technologies advance, genetic testing may well offer the
prospect of detecting the onset of future disabilities. Some
research also forwards that certain behavioural profiles may have a
strong genetic basis, such as the determination to succeed, or the
propensity for risk-taking. As this technology becomes more
prevalent, there is a danger that genetic information may be
misused by third parties and that particular genetic profiles may
be discriminated against by employers, by providers of social goods
and services, such as insurance companies and even by educational
facilities. This book explores the different forms and potential
uses of genetic testing. Drawing together leading experts in
disability law, bioethics, health law and a range of related
fields, it highlights the ethical and legal challenges arising as a
result of emerging and rapidly advancing genetic science. On
examining transatlantic perspectives on the matter, chapters in the
book ask whether the US Genetic Information Nondiscrimination Act
(GINA) is proving to be an effective tool in addressing the issue
of genetic discrimination and alleviating fears of discrimination.
The book also reviews what insights may be gained from GINA within
employment and health insurance contexts, and asks how the UN
Convention on the Rights of Persons with Disabilities (CRPD) may
impact similar debates within the European Union. The book focuses
particularly on the legislative and policy framework in the
European Union, with an emphasis on the gaps in protection and the
scope for specific legislative action in this area. This book will
be of great interest to scholars and students of discrimination
law, bioethics and disability law, and will be of considerable use
to legal practitioners, medical practitioners and policy-makers in
this area.
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