The Health Insurance Portability and Accountability Act (HIPAA) of
1996 was enacted to improve the portability and continuity of
health insurance; promote medical savings accounts; improve access
to long-term care services and coverage; and simplify the
administration of health insurance. HIPAA's Administrative
Simplification provisions focus on facilitating the electronic
exchange of information for financial and administrative functions
related to patient care. However, the very advances that make it
easier to transmit information also present challenges to
preserving the confidentiality of potentially sensitive personal
information contained in medical records. In 2003, the President's
Cancer Panel discovered HIPAA Privacy Rule slowed research on
cancer survivors, as well as causing increased bureaucracy,
informed consent problems, and complications for clinical trials.
Effect of the HIPAA Privacy Rule on Health Research evaluates the
impact of HIPAA provisions and provides guidance to legislators on
amendments needed to make this law better serve the interests of
cancer survivors and others. Table of Contents Front Matter 1
Introduction 2 Prepared Presentationsand Discussion Glossary
Appendix Workshop Agenda
General
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