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Ethical Considerations for Research on Housing-Related Health Hazards Involving Children (Paperback)
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Ethical Considerations for Research on Housing-Related Health Hazards Involving Children (Paperback)
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Ethical Considerations for Research on Housing-Related Health
Hazards Involving Children explores the ethical issues posed when
conducting research designed to identify, understand, or ameliorate
housing-related health hazards among children. Such research
involves children as subjects and is conducted in the home and in
communities. It is often conducted with children in low-income
families given the disproportionate prevalence of housing-related
conditions such as lead poisoning, asthma, and fatal injuries among
these children. This book emphasizes five key elements to address
the particular ethical concerns raised by these characteristics:
involving the affected community in the research and responding to
their concerns; ensuring that parents understand the essential
elements of the research; adopting uniform federal guidelines for
such research by all sponsors (Subpart D of 45 CFR 46); providing
guidance on key terms in the regulations; and viewing research
oversight as a system with important roles for researchers, IRBs
and their research institutions, sponsors and regulators of
research, and the community. Table of Contents Front Matter
Executive Summary 1 Introduction 2 Housing and Health 3 Grimes v.
Kennedy Krieger Institute: Revisiting the Ethical Issues 4
Characteristics of Housing Health Hazards Research 5 Community
Involvement 6 Parental Permission, Consent, and Payment 7
Researchers' Responsibilities 8 Research Oversight References
Appendix Biographical Sketches of Committee Members and Staff
General
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