Beginning in late 2004, the IOM began a project to take a new look
at disability in America. It will review developments and progress
since the publication of the 1991 and 1997 Institute reports. For
technical contracting reasons, the new project was split into two
phases. During the limited first phase, a committee appointed by
IOM planned and convened a 1-day workshop to examine a subset of
topics as background for the second phase of project. As was agreed
upon with the sponsor of the workshop, the Centers for Disease
Control and Prevention (CDC), the topics were: methodological and
policy issues related to the conceptualization, definition,
measurement, and monitoring of disability and health over time;
trends in the amount, types, and causes of disability; disability
across the age spectrum and in the context of normal aging; and
secondary health conditions. The phase-one workshop was held in
Washington, D.C. on August 1, 2005. Its participants included
researchers, clinicians, social service professionals, policy
experts, and consumer representatives and advocates. The meeting
agenda and list of participants are included in Appendix A.
Workshop on Disability in America: A New Look- Summary and
Background Papers summarizes the workshop presentations and
discussions. The background papers prepared for the workshop are
included in Appendixes B through O. Some papers were submitted and
circulated in advance of the meeting, whereas others were first
presented at the meeting. The analyses, definitions, and views
presented in the papers are those of the paper authors and are not
necessarily those of the IOM committee. Likewise, the discussion
summary is limited to the views of the workshop participants. Table
of Contents Front Matter Introduction Summary of Workshop
Presentations and Discussions Appendix A Workshop Agenda and
Participants Appendix B Conceptual Models of Disability: Past,
Present, and Future--Gale Whiteneck Appendix C Defining and
Classifying Disability in Children--Rune J. Simeonsson Appendix D
How Does the Environment Influence Disability? Examining the
Evidence--Julie J. Keysor Appendix E Late-Life Disability Trends:
An Overview of Current Evidence--Vicki A. Freedman Appendix F
Chronic Disease and Trends in Severe Disability in Working-Age
Populations--Jay Bhattacharya, Kavita Choudhry, and Darius
Lakdawalla Appendix G Trends in Disability in Early Life--Ruth E.
K. Stein Appendix H Aspects of Disability Across the Life Span:
Risk Factors for Disability in Late Life--Jack M. Guralnik Appendix
I Health Care Transition of Adolescents and Young Adults with
Disabilities and Special Health Care Needs: New Perspectives--John
Reiss and Robert Gibson Appendix J Secondary Conditions and
Disability--Margaret A. Turk Appendix K A User's Perspective on
Midlife (Ages 18 to 65) Aging with Disability--June Isaacson Kailes
Appendix L Impact of Exercise on Targeted Secondary
Conditions--James H. Rimmer and Swati S. Shenoy Appendix M
Secondary Conditions with Spinal Cord Injury--William A. Bauman
Appendix N Depression as a Secondary Condition in People with
Disabilities-Bryan Kemp Appendix O Promoting Health and Preventing
Secondary Conditions Among Adults with Developmental
Disabilities--Tom Seekins, Meg Traci, Donna Bainbridge, Kathy
Humphries, Nancy Cunningham, Rod Brod, and James Sherman Appendix P
Biographical Sketches of Workshop Committee and Workshop Presenters
General
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