Due to the digitization of medical records, more and more health
data is readily available. This dynamic has created many
opportunities to unlock this information and use it to improve
medical practice, and through research and surveillance understand
the effectiveness and side effects of drugs and medical devices to
ultimately improve the public's health. This data can also be used
for commercial purposes such as sales and marketing. However, this
newfound utility raises some profound questions about how this data
ought to be used and how it will impact personal privacy. Unless we
are able to address these privacy issues in a convincing and
defensible way, there will be increased breaches of personal
privacy. This will provoke regulators to impose new rules limiting
the use and disclosure of health data for secondary purposes,
patients increasingly to adopt privacy protective behaviours
because they no longer trust how their health information is being
managed, or healthcare providers to be reluctant to share their
patients' data. By adopting responsible data sharing practices,
researchers, companies and the general public can gain the benefits
and the promise of big data analytics without sacrificing personal
privacy or infringing upon law or regulation. Risky Business -
Sharing Health Data While Protecting Privacy illustrates how this
goal can be achieved. Bringing articles from a diverse collection
of health data experts to inform the reader on contemporary policy,
legal and technical issues surrounding health information privacy
and data sharing. It is a uniquely practical work to inform the
reader on how best - and how not to - share health data in the US
and Canada.
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