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Understanding Disparities in Access to Genomic Medicine - Proceedings of a Workshop (Paperback)
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Understanding Disparities in Access to Genomic Medicine - Proceedings of a Workshop (Paperback)
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Genomic medicine is defined as the routine use of genomic
information about an individual as part of his or her clinical care
as well as the health outcomes and policy implications of that
clinical use. It is one approach that has the potential to improve
the quality of health care by allowing practitioners to tailor
prevention, diagnostic, and treatment strategies to individual
patients. In recent years, research breakthroughs, technological
advances, and the decreasing cost of DNA sequencing have led to the
wider adoption of genomic medicine. However, as with the
introduction of new technologies into health care, there are
concerns that genetic and genomic testing and services will not
reach all segments of the population both now and in the near
future, and there remains a gap in knowledge regarding potential
health care disparities in genomic medicine and precision health
approaches. On June 27, 2018, the National Academies of Sciences,
Engineering, and Medicine hosted a public workshop to examine the
gaps in knowledge related to access to genomic medicine and to
discuss health care disparities and possible approaches to
overcoming the disparate use of genomic medicine among populations.
Workshop participants discussed research on access to genetics and
genomics services in medically underserved areas, model programs of
care for diverse patient populations, and current challenges and
possible best practices for alleviating health care disparities as
they relate to genomics-based approaches. This publication
summarizes the presentations and discussions from the workshop.
Table of Contents Front Matter 1 Introduction and Overview 2
Exploring the Barriers to Accessing Genomic and Genetic Services 3
The Role of Health Systems in Delivering Equitable Access 4 How Can
Providers and Payers Make Genomic Medicine More Accessible? 5
Exploring Innovative Solutions and Models of Success 6 Considering
Unmet Needs to Alleviate Disparities in Genomic Medicine References
Appendix A: Summary of the Pre-Workshop Twitter Chat Appendix B:
Workshop Agenda Appendix C: Speaker Biographical Sketches Appendix
D: Statement of Task Appendix E: Registered Attendees
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