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Carville's Cure - Leprosy, Stigma, and the Fight for Justice (Hardcover)
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Carville's Cure - Leprosy, Stigma, and the Fight for Justice (Hardcover)
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The Mississippi River between Baton Rouge and New Orleans curls
around an old sugar plantation that long housed one of America's
most painful secrets. Locals knew it as Carville, the site of the
only leprosy colony in the continental United States, where
generations of afflicted Americans were isolated-often against
their will and until their deaths. Following the trail of an
unexpected family connection, acclaimed journalist Pam Fessler has
unearthed the lost world of the patients, nurses, doctors, and
researchers at Carville who struggled for over a century to
eradicate Hansen's disease, the modern name for leprosy. Amid
widespread public anxiety about foreign contamination and
contagion, patients were deprived of basic rights-denied the right
to vote, restricted from leaving Carville, and often forbidden from
contact with their own parents or children. Neighbors fretted over
their presence and newspapers warned of their dangerous condition,
which was seen as a biblical "curse" rather than a medical
diagnosis. Though shunned by their fellow Americans, patients
surprisingly made Carville more a refuge than a prison. Many carved
out meaningful lives, building a vibrant community and finding
solace, brotherhood, and even love behind the barbed-wire fence
that surrounded them. Among the memorable figures we meet in
Fessler's masterful narrative are John Early, a pioneering crusader
for patients' rights, and the unlucky Landry siblings-all five of
whom eventually called Carville home-as well as a butcher from New
York, a 19-year-old debutante from New Orleans, and a pharmacist
from Texas who became the voice of Carville around the world.
Though Jim Crow reigned in the South and racial animus prevailed
elsewhere, Carville took in people of all faiths, colors, and
backgrounds. Aided by their heroic caretakers, patients rallied to
find a cure for Hansen's disease and to fight the insidious stigma
that surrounded it. Weaving together a wealth of archival material
with original interviews as well as firsthand accounts from her own
family, Fessler has created an enthralling account of a lost
American history. In our new age of infectious disease, Carville's
Cure demonstrates the necessity of combating misinformation and
stigma if we hope to control the spread of illness without
demonizing victims and needlessly destroying lives.
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