People with dementia are uniquely qualified to discuss the
challenges of their condition and the features of effective
support, but their voices are all too often drowned out in research
and debates about policy. It's time for that to change. Dementia
Enquirers is an ambitious and novel programme of work which has
tested out what it means for people with dementia to lead research
and has developed a new 'driving seat' approach to co-research.
This ground-breaking book features 26 research projects led by
groups of people with dementia, supported by group facilitators and
academics, to make their voices heard. Topics include giving up
driving, GP dementia reviews, living alone with dementia, and using
AI platforms such as Amazon Alexa. The book also describes how
people with dementia shaped the entire programme, and addressed
head-on issues such as ethics approval processes and complex
research language. A key read for anyone involved in dementia
support, this research brings the voices of people with dementia to
the fore to explore their experiences of researching the condition.
General
Imprint: |
Jessica Kingsley Publishers
|
Country of origin: |
United Kingdom |
Release date: |
April 2024 |
Editors: |
Rachael Litherland
• Philly Hare
|
Dimensions: |
229 x 152mm (L x W) |
Pages: |
176 |
ISBN-13: |
978-1-78775-702-8 |
Categories: |
Books
Promotions
|
LSN: |
1-78775-702-1 |
Barcode: |
9781787757028 |
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