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Just Care is Akemi Nishida's thoughtful examination of care
injustice and social justice enabled through care. The current
neoliberal political economy has turned care into a business
opportunity for the healthcare industrial complex and a mechanism
of social oppression and control. Nishida analyzes the challenges
people negotiate whether they are situated as caregivers,
receivers, or both. Also illuminated is how people with
disabilities come together to assemble community care collectives
and bed activism (resistance and visions emerging from the space of
bed) to reimagine care as a key element for social change. The
structure of care, Nishida writes, is deeply embedded in and
embodies the cruel social order-based on disability, race, gender,
migration status, and wealth-that determines who survives or
deteriorates. Simultaneously, many marginalized communities treat
care as the foundation of activism. Using interviews, focus groups,
and participant observation with care workers and people with
disabilities, Just Care looks into lives unfolding in the
assemblage of Medicaid long-term care programs, community-based
care collectives, and bed activism. Just Care identifies what care
does, and asks: How can we activate care justice or just care where
people feel cared affirmatively and care being used for the
wellbeing of community and for just world making?
Just Care is Akemi Nishida's thoughtful examination of care
injustice and social justice enabled through care. The current
neoliberal political economy has turned care into a business
opportunity for the healthcare industrial complex and a mechanism
of social oppression and control. Nishida analyzes the challenges
people negotiate whether they are situated as caregivers,
receivers, or both. Also illuminated is how people with
disabilities come together to assemble community care collectives
and bed activism (resistance and visions emerging from the space of
bed) to reimagine care as a key element for social change. The
structure of care, Nishida writes, is deeply embedded in and
embodies the cruel social order-based on disability, race, gender,
migration status, and wealth-that determines who survives or
deteriorates. Simultaneously, many marginalized communities treat
care as the foundation of activism. Using interviews, focus groups,
and participant observation with care workers and people with
disabilities, Just Care looks into lives unfolding in the
assemblage of Medicaid long-term care programs, community-based
care collectives, and bed activism. Just Care identifies what care
does, and asks: How can we activate care justice or just care where
people feel cared affirmatively and care being used for the
wellbeing of community and for just world making?
This book explores the concept of "occupation" in disability well
beyond traditional clinical formulations of disability: it
considers disability not in terms of pathology or impairment, but
as a range of unique social identities and experiences that are
shaped by visible or invisible diagnoses/impairments,
socio-cultural perceptions and environmental barriers and offers
innovative ideas on how to apply theoretical training to real world
contexts. Inspired by disability justice and "Disability Occupy
Wall Street / Decolonize Disability" movements in the US and
related movements abroad, this book builds on politically engaged
critical approaches to disability that intersect occupational
therapy, disability studies and anthropology. "Occupying
Disability" will provide a discursive space where the concepts of
disability, culture and occupation meet critical theory, activism
and the creative arts. The concept of "occupation" is intentionally
a moving target in this book. Some chapters discuss occupying
spaces as a form of protest or alternatively, protesting against
territorial occupations. Others present occupations as framed or
problematized within the fields of occupational therapy and
occupational science and anthropology as engagement in meaningful
activities. The contributing authors come from a variety of
professional, academic and activist backgrounds to include
perspectives from theory, practice and experiences of disability.
Emergent themes include: all the permutations of the concept of
"occupy," disability justice/decolonization, marginalization and
minoritization, technology, struggle, creativity and change. This
book will engage clinicians, social scientists, activists and
artists in dialogues about disability as a theoretical construct
and lived experience.
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