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Bioethics and Disability provides tools for understanding the
concerns, fears and biases that have convinced some people with
disabilities that the health care setting is a dangerous place and
some bioethicists that disability activists have nothing to offer
bioethics. It wrestles with the charge that bioethics as a
discipline devalues the lives of persons with disabilities, arguing
that reconciling the competing concerns of the disability community
and the autonomy-based approach of mainstream bioethics is not only
possible, but essential for a bioethics committed to facilitating
good medical decision making and promoting respect for all persons,
regardless of ability. Through in-depth case studies involving
newborns, children and adults with disabilities, it proposes a new
model for medical decision making that is both sensitive to and
sensible about the fact of disability in medical cases.
Bioethics and Disability provides tools for understanding the
concerns, fears, and biases that have convinced some people with
disabilities that the health care setting is a dangerous place and
some bioethicists that disability activists have nothing to offer
bioethics. It wrestles with the charge that bioethics as a
discipline devalues the lives of persons with disabilities, arguing
that reconciling the competing concerns of the disability community
and the autonomy-based approach of mainstream bioethics is not only
possible, but essential for a bioethics committed to facilitating
good medical decision making and promoting respect for all persons,
regardless of ability. Through in-depth case studies involving
newborns, children, and adults with disabilities, Bioethics and
Disability proposes a new model for medical decision making that is
both sensitive to and sensible about the fact of disability in
medical cases. Disability-conscious bioethics will bring together
disability experts and bioethicists to identify and mitigate
disability bias in our health care systems.
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