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Danger of health misinformation online, long a concern of medical and public health professionals, has come to the forefront of societal concerns during the COVID-19 pandemic. Regardless of their motives, creators and sharers of misinformation promote non-evidence-based health advice and treatment recommendations, and often deny health methods, measures, and approaches that are supported by the best evidence of the time. Unfortunately, many infrastructural, social, and cognitive factors make individuals vulnerable to misinformation. This book aims to assist information and health professionals and educators with all phases of information provision and support, from understanding users' information needs, to building relationships, to helping users verify and evaluate sources. The book can be used as a textbook in library and information science programs, as well as nursing, communication, journalism, psychology, and informatics programs. The book, written from the e-health literacy perspective, is unique in its nuanced approach to misinformation. It draws on psychology and information science to explain human susceptibility to misinformation and discusses ways to engage with the public deeply and meaningfully, fostering trust and raising health and information literacy. It is organized into three parts. Part I: The Ecology of Online Health Information' overviews the digital health information universe, showing that misinformation is prevalent, dangerous, and difficult to define. Part II: Susceptibility to Misinformation: Literacies as Safeguards addresses factors and competencies that affect individual vulnerability and resilience. Part III: Solutions focuses on education and community engagement initiatives that help the public locate and evaluate health information. Chapters within the three Parts discuss technological innovation and social media as posing novel risks as well as presenting novel solutions to helping the public connect with high quality information and building trusting relationships among the public and information and health professionals.
"An engaging introduction to an exciting multidisciplinary field where positive impact depends less on technology than on understanding and responding to human motivations, specific information needs, and life constraints." -- Betsy L. Humphreys, former Deputy Director, National Library of Medicine This is a book for people who want to design or promote information technology that helps people be more active and informed participants in their healthcare. Topics include patient portals, wearable devices, apps, websites, smart homes, and online communities focused on health. Consumer Healthcare Informatics: Enabling Digital Health for Everyone educates readers in the core concepts of consumer health informatics: participatory healthcare; health and e-health literacy; user-centered design; information retrieval and trusted information resources; and the ethical dimensions of health information and communication technologies. It presents the current state of knowledge and recent developments in the field of consumer health informatics. The discussions address tailoring information to key user groups, including patients, consumers, caregivers, parents, children and young adults, and older adults. For example, apps are considered as not just a rich consumer technology with the promise of empowered personal data management and connectedness to community and healthcare providers, but also a domain rife with concerns for effectiveness, privacy, and security, requiring both designer and user to engage in critical thinking around their choices. This book's unique contribution to the field is its focus on the consumer and patient in the context of their everyday life outside the clinical setting. Discussion of tools and technologies is grounded in this perspective and in a context of real-world use and its implications for design. There is an emphasis on empowerment through participatory and people-centered care.
Danger of health misinformation online, long a concern of medical and public health professionals, has come to the forefront of societal concerns during the COVID-19 pandemic. Regardless of their motives, creators and sharers of misinformation promote non-evidence-based health advice and treatment recommendations, and often deny health methods, measures, and approaches that are supported by the best evidence of the time. Unfortunately, many infrastructural, social, and cognitive factors make individuals vulnerable to misinformation. This book aims to assist information and health professionals and educators with all phases of information provision and support, from understanding users' information needs, to building relationships, to helping users verify and evaluate sources. The book can be used as a textbook in library and information science programs, as well as nursing, communication, journalism, psychology, and informatics programs. The book, written from the e-health literacy perspective, is unique in its nuanced approach to misinformation. It draws on psychology and information science to explain human susceptibility to misinformation and discusses ways to engage with the public deeply and meaningfully, fostering trust and raising health and information literacy. It is organized into three parts. Part I: The Ecology of Online Health Information' overviews the digital health information universe, showing that misinformation is prevalent, dangerous, and difficult to define. Part II: Susceptibility to Misinformation: Literacies as Safeguards addresses factors and competencies that affect individual vulnerability and resilience. Part III: Solutions focuses on education and community engagement initiatives that help the public locate and evaluate health information. Chapters within the three Parts discuss technological innovation and social media as posing novel risks as well as presenting novel solutions to helping the public connect with high quality information and building trusting relationships among the public and information and health professionals.
"An engaging introduction to an exciting multidisciplinary field where positive impact depends less on technology than on understanding and responding to human motivations, specific information needs, and life constraints." -- Betsy L. Humphreys, former Deputy Director, National Library of Medicine This is a book for people who want to design or promote information technology that helps people be more active and informed participants in their healthcare. Topics include patient portals, wearable devices, apps, websites, smart homes, and online communities focused on health. Consumer Healthcare Informatics: Enabling Digital Health for Everyone educates readers in the core concepts of consumer health informatics: participatory healthcare; health and e-health literacy; user-centered design; information retrieval and trusted information resources; and the ethical dimensions of health information and communication technologies. It presents the current state of knowledge and recent developments in the field of consumer health informatics. The discussions address tailoring information to key user groups, including patients, consumers, caregivers, parents, children and young adults, and older adults. For example, apps are considered as not just a rich consumer technology with the promise of empowered personal data management and connectedness to community and healthcare providers, but also a domain rife with concerns for effectiveness, privacy, and security, requiring both designer and user to engage in critical thinking around their choices. This book's unique contribution to the field is its focus on the consumer and patient in the context of their everyday life outside the clinical setting. Discussion of tools and technologies is grounded in this perspective and in a context of real-world use and its implications for design. There is an emphasis on empowerment through participatory and people-centered care.
Meeting Health Information Needs Outside of Healthcare addresses the challenges and ethical dilemmas concerning the delivery of health information to the general public in a variety of non-clinical settings, both in-person and via information technology, in settings from public and academic libraries to online communities and traditional and social media channels. Professionals working in a range of fields, including librarianship, computer science and health information technology, journalism, and health communication can be involved in providing consumer health information, or health information targeting laypeople. This volume clearly examines the properties of health information that make it particularly challenging information to provide in diverse settings.
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