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In a strategy deliberately counter to many earlier texts which
focus on social aspects of death and dying this book will not
examine death through the social prism of US or British culture
alone. Drawing only on material from a single society gives readers
the misleading impression of a universal experience. As a text in
the sociology of death and dying this volume examines
culture-specific images and experiences of death in three major
western societies - Australia, Britain and the USA.
What does graffiti reveal about social behaviour?Where can you find
out about Australian social values without doing your own
survey?There is more to social research than surveys and in-depth
interviews. The Unobtrusive Researcher looks beyond the limited
accounts people provide of themselves to examine society at a
deeper level.Written in a clear, easy to read style, The
Unobtrusive Researcher is a practical guide to a range of methods
that can supplement and, at times, even replace conventional social
research. It is essential reading for new and experienced
researchers in the Social Sciences, Education, Communication
Studies and Cultural Studies.Methods discussed include:library and
archival workaudiovisual sourcesobservation techniquesmaterial
culturethe use of cameras and computers'Witty, clear and concise.a
remarkable overview of the field.' - Professor Bryan Turner, Deakin
University'One of the few guides to research methods which takes on
board the implications of poststructuralist theory for research,
The Unobtrusive Researcher will be useful both for practising
researchers wanting to broaden and update their approaches, and
those at the very beginning of learning how to do research.' -
Professor Ann Curthoys, University of Technology, Sydney
About 30 percent of hospice patients report a "visitation" by
someone who is not there, a phenomenon known in end-of-life care as
a deathbed vision. These visions can be of dead friends or family
members and occur on average three days before death. Strikingly,
individuals from wildly diverse geographic regions and
religions-from New York to Japan to Moldova to Papua New
Guinea-report similar visions. Appearances of our dead during
serious illness, crises, or bereavement are as old as the
historical record. But in recent years, we have tended to explain
them in either the fantastical terms of the supernatural or the
reductive terms of neuroscience. This book is about how, when, and
why our dead visit us. Allan Kellehear-a medical sociologist and
expert on death, dying, and palliative care-has gathered data and
conducted studies on these experiences across cultures. He also
draws on the long-neglected work of early anthropologists who
developed cultural explanations about why the dead visit. Deathbed
visions conform to the rituals that underpin basic social relations
and expectations-customs of greeting, support, exchange,
gift-giving, and vigils-because the dead must communicate with us
in a social language that we recognize. Kellehear emphasizes the
personal consequences for those who encounter these visions,
revealing their significance for how the dying person makes meaning
of their experiences. Providing vital understanding of a widespread
yet mysterious phenomenon, Visitors at the End of Life offers
insights for palliative care professionals, researchers, and the
bereaved.
Compassionate communities are communities that provide assistance
for those in need of end of life care, separate from any official
heath service provision that may already be available within the
community. This idea was developed in 2005 in Allan Kellehear's
seminal volume- Compassionate Cities: Public Health and End of Life
Care. In the ensuing ten years the theoretical aspects of the idea
have been continually explored, primarily rehearsing academic
concerns rather than practical ones. Compassionate Communities:
Case Studies from Britain and Europe provides the first major
volume describing and examining compassionate community experiments
in end of life care from a highly practical perspective. Focusing
on community development initiatives and practice challenges, the
book offers practitioners and policy makers from the health and
social care sectors practical discussions on the strengths and
limitations of such initiatives. Furthermore, not limited to
providing practice choices the book also offers an important and
timely impetus for other practitioners and policy makers to begin
thinking about developing their own possible compassionate
communities. An essential read for academic, practitioner, and
policy audiences in the fields of public health, community
development, health social sciences, aged care, bereavement care,
and hospice & palliative care, Compassionate Communities is one
of only a handful of available books on end of life care that takes
a strong health promotion and community development approach.
Public health approaches to palliative care have been growing in
policy importance and practice acceptance. This innovative volume
explores the major concepts, practice examples, and practice
guidelines for this new approach. The goal of 'comprehensive care'
- seamless support for patients as they transition between home
based care and inpatient services - relies on the principles of
health promotion and community development both to ensure services
are available and importantly appropriate for patients' needs. In
developing contexts, where hospitals and hospices may be
inaccessible, a public health approach provides not only continuity
of care but greater access to good end of life care. This book
provides both a historical and conceptual overview whilst offering
practical case examples from affluent and developing contexts, in a
range of clinical settings. Finally, it draws together
research-based guidelines for future practice. Essential reading
for public health researchers and practitioners with an interest in
end of life care and global health as well as those involved in
developing palliative care provision, International Perspectives on
Public Health and Palliative Care is the first volume to present an
overview of theory and practice in this emerging field.
Public health approaches to palliative care have been growing in
policy importance and practice acceptance. This innovative volume
explores the major concepts, practice examples, and practice
guidelines for this new approach. The goal of continuity of care' -
seamless support for patients in their experiences and transitions
from community to primary health services to inpatient services -
means that health promotion and community development become
important ways to achieve a holistic health approach to end of life
care. In developing contexts, where hospitals and hospices may be
inaccessible, a public health approach provides not only continuity
of care but greater access to good end of life care. This book
provides both a historical and conceptual overview whilst offering
practical case examples from affluent and developing contexts, in a
range of clinical settings. Finally, it draws together
research-based guidelines for future practice. Essential reading
for public health researchers and practitioners with an interest in
end of life care and global health as well as those involved in
developing palliative care provision, International Perspectives on
Public Health and Palliative Care is the first volume to present an
overview of theory and practice in this emerging field.
What does graffiti reveal about social behaviour? Where can you
find out about Australian social values without doing your own
survey? There is more to social research than surveys and in-depth
interviews. The Unobtrusive Researcher looks beyond the limited
accounts people provide of themselves to examine society at a
deeper level. Written in a clear, easy to read style, The
Unobtrusive Researcher is a practical guide to a range of methods
that can supplement and, at times, even replace conventional social
research. It is essential reading for new and experienced
researchers in the Social Sciences, Education, Communication
Studies and Cultural Studies. Methods discussed include: library
and archival work audiovisual sources observation techniques
material culture the use of cameras and computers 'Witty, clear and
concise.a remarkable overview of the field.' - Professor Bryan
Turner, Deakin University 'One of the few guides to research
methods which takes on board the implications of poststructuralist
theory for research, The Unobtrusive Researcher will be useful both
for practising researchers wanting to broaden and update their
approaches, and those at the very beginning of learning how to do
research.' - Professor Ann Curthoys, University of Technology,
Sydney
Imagine if whole communities - not simply a community's direct
health services - really cared about its member's health and social
well-being. Imagine if that care extended to the dying, death and
losses experienced by everyone in that community. Imagine if
"death" was an idea that went beyond the "death of the body" and
came to include the deaths of identity and belonging as these
endings apply to people living with dementia or the aftermath of
sexual abuse, dispossession of indigenous or refugee peoples. Such
community and policy frameworks partly do exist in the World Health
Organization's "Healthy Cities" international programs, but they
often do not include end-of-life care issues such as death, dying
and loss. This book takes the idea of the Healthy City and extends
these policy and practice ideas to include frequently overlooked
end-of-life care experiences and concerns. Compassion is an idea
that goes beyond "health" and "welfare" and embraces and promotes
empathy and support as new forms of "health promotion."
Beginning with an examination of the parallel histories of public
health and end-of-life care the book moves to a critique of the
current limits of both for human experiences of death, dying and
loss. The theory and policy ideas of Healthy Cities are introduced
and a comparison with Compassionate Cities policies made. Policies
of Compassionate Cities are discussed alongside their sociological
basis. The strengths and weaknesses of such large-scale programs
are examined. The final sections of the book outline and summarize
basic models of community development and action strategies for
implementing a "Compassionate Cities" program.
This is a book for practitionerswho want to include end-of-life
care issues into their health promotion and community development
practices. It is also a book for end-of-life care practitioners who
want to include community development and health promotion ideas
into their practice. For social sciences, public health and
end-of-life care academics this book argues that the integration of
death, loss and compassion into contemporary public health ideas
may address important long-standing limits and criticism of public
health. "Compassion" may go beyond "infection control" and "health
promotion" and invite us to think of a "third wave" movement of
public health that joins empathy, equality and action together as
practical policies for future domestic and international
well-being.
Imagine if whole communities - not simply a community's direct
health services - really cared about its member's health and social
well-being. Imagine if that care extended to the dying, death and
losses experienced by everyone in that community. Imagine if
"death" was an idea that went beyond the "death of the body" and
came to include the deaths of identity and belonging as these
endings apply to people living with dementia or the aftermath of
sexual abuse, dispossession of indigenous or refugee peoples. Such
community and policy frameworks partly do exist in the World Health
Organization's "Healthy Cities" international programs, but they
often do not include end-of-life care issues such as death, dying
and loss. This book takes the idea of the Healthy City and extends
these policy and practice ideas to include frequently overlooked
end-of-life care experiences and concerns. Compassion is an idea
that goes beyond "health" and "welfare" and embraces and promotes
empathy and support as new forms of "health promotion."
Beginning with an examination of the parallel histories of public
health and end-of-life care the book moves to a critique of the
current limits of both for human experiences of death, dying and
loss. The theory and policy ideas of Healthy Cities are introduced
and a comparison with Compassionate Cities policies made. Policies
of Compassionate Cities are discussed alongside their sociological
basis. The strengths and weaknesses of such large-scale programs
are examined. The final sections of the book outline and summarize
basic models of community development and action strategies for
implementing a "Compassionate Cities" program.
This is a book for practitionerswho want to include end-of-life
care issues into their health promotion and community development
practices. It is also a book for end-of-life care practitioners who
want to include community development and health promotion ideas
into their practice. For social sciences, public health and
end-of-life care academics this book argues that the integration of
death, loss and compassion into contemporary public health ideas
may address important long-standing limits and criticism of public
health. "Compassion" may go beyond "infection control" and "health
promotion" and invite us to think of a "third wave" movement of
public health that joins empathy, equality and action together as
practical policies for future domestic and international
well-being.
This practical guide summarizes the principles of working with
dying patients and their families as influenced by the commoner
world religions and secular philosophies. It also outlines the main
legal requirements to be followed by those who care for the dying
following the death of the patient. The first part of the book
provides a reflective introduction to the general influences of
world religions on matters to do with dying, death and grief. It
considers the sometimes conflicting relationships between ethics,
religion, culture and personal philosophies and how these
differences impact on individual cases of dying, death and loss.
The second part describes the general customs and beliefs of the
major religions that are encountered in hospitals, hospices, care
homes and home care settings. It also includes discussion of
non-religious spirituality, humanism, agnosticism and atheism. The
final part outlines key socio-legal aspects of death across the UK.
Death, Religion and Law provides key knowledge, discussion and
reflection for dealing with the diversity of the everyday care of
dying and death in different religious, secular and cultural
contexts. It is an important reference for practitioners working
with dying patients, their families and the bereaved.
This unique book recounts the experience of facing one's death
solely from the dying person's point of view rather than from the
perspective of caregivers, survivors, or rescuers. Such unmediated
access challenges assumptions about the emotional and spiritual
dimensions of dying, showing readers that -- along with suffering,
loss, anger, sadness, and fear -- we can also feel courage, love,
hope, reminiscence, transcendence, transformation, and even
happiness as we die. A work that is at once psychological,
sociological, and philosophical, this book brings together
testimonies of those dying from terminal illness, old age, sudden
injury or trauma, acts of war, and the consequences of natural
disasters and terrorism. It also includes statements from
individuals who are on death row, in death camps, or planning
suicide. Each form of dying addressed highlights an important set
of emotions and narratives that often eclipses stereotypical
renderings of dying and reflects the numerous contexts in which
this journey can occur outside of hospitals, nursing homes, and
hospices.Chapters focus on common emotional themes linked to dying,
expanding and challenging them through first-person accounts and
analyses of relevant academic and clinical literature in
psycho-oncology, palliative care, gerontology, military history,
anthropology, sociology, cultural and religious studies, poetry,
and fiction. The result is an all-encompassing investigation into
an experience that will eventually include us all and is more
surprising and profound than anyone can imagine.
What is it really like to die? Though our understanding about the
biology of dying is complex and incomplete, greater complexity and
diversity can be found in the study of what human beings encounter
socially, psychologically and spiritually during the experience.
Contributors from disciplines as diverse as social and behavioural
studies, medicine, demography, history, philosophy, art,
literature, popular culture and religion examine the process of
dying through the lens of both animal and human studies. Despite
common fears to the contrary, dying is not simply an awful journey
of illness and decline; cultural influences, social circumstances,
personal choice and the search for meaning are all crucial in
shaping personal experiences. This intriguing volume will be of
interest to clinicians, professionals, academics and students of
death, dying and end-of-life care, and anyone curious about the
human confrontation with mortality.
About 30 percent of hospice patients report a "visitation" by
someone who is not there, a phenomenon known in end-of-life care as
a deathbed vision. These visions can be of dead friends or family
members and occur on average three days before death. Strikingly,
individuals from wildly diverse geographic regions and
religions-from New York to Japan to Moldova to Papua New
Guinea-report similar visions. Appearances of our dead during
serious illness, crises, or bereavement are as old as the
historical record. But in recent years, we have tended to explain
them in either the fantastical terms of the supernatural or the
reductive terms of neuroscience. This book is about how, when, and
why our dead visit us. Allan Kellehear-a medical sociologist and
expert on death, dying, and palliative care-has gathered data and
conducted studies on these experiences across cultures. He also
draws on the long-neglected work of early anthropologists who
developed cultural explanations about why the dead visit. Deathbed
visions conform to the rituals that underpin basic social relations
and expectations-customs of greeting, support, exchange,
gift-giving, and vigils-because the dead must communicate with us
in a social language that we recognize. Kellehear emphasizes the
personal consequences for those who encounter these visions,
revealing their significance for how the dying person makes meaning
of their experiences. Providing vital understanding of a widespread
yet mysterious phenomenon, Visitors at the End of Life offers
insights for palliative care professionals, researchers, and the
bereaved.
Our experiences of dying have been shaped by ancient ideas about
death and social responsibility at the end of life. From Stone Age
ideas about dying as otherworld journey to the contemporary
Cosmopolitan Age of dying in nursing homes, Allan Kellehear takes
the reader on a 2 million year journey of discovery that covers the
major challenges we will all eventually face: anticipating,
preparing, taming and timing for our eventual deaths. This book,
first published in 2007, is a major review of the human and
clinical sciences literature about human dying conduct. The
historical approach of this book places our recent images of cancer
dying and medical care in broader historical, epidemiological and
global context. Professor Kellehear argues that we are witnessing a
rise in shameful forms of dying. It is not cancer, heart disease or
medical science that presents modern dying conduct with its
greatest moral tests, but rather poverty, ageing and social
exclusion.
The 40 short reflections in this book address the ways in which we
face the prospect of death and loss. The first 20 reflections are
designed to be read by (or to) anyone living with a
life-threatening illness; the other 20 are reflections on living
with grief, especially bereavement. Each reflection is based on a
single story drawn from one of three sources: Dr. Kellehear's
professional experience with individuals living with dying or loss;
his own experiences and stories from childhood; and the retelling
of some of the great myths and legends about life, love, and death,
selected from around the world-from Ireland to Japan, from
Melanesia to China. The book is written to be accessible to a wide
general audience.It can be read from beginning to end like a
conventional book; each self-contained piece is also suitable for
reading on a bus, train, or plane journey, or before bed at night.
Each piece can be selected as a stand-alone meditation for use as a
discussion topic in pastoral care, counseling, or sermons. These
reflections are stories about how we can make the most of life in
the shadow of death and loss. They are designed to instill hope and
meaning in the difficult times that can accompany human mortality.
A high level research text for advanced undergraduate and
post-graduate researchers in the health professions. Specific
examples of research are used to explore a variety of approaches
and possible ensuing problems. Fields covered include research in
multidisciplinary teams, epidemiological research in an industrial
setting and ethical dilemmas in studying other cultures. This book
should be of interest to postgraduate researchers in the health
professions, including nursing and medicine, physiotherapy,
midwifery and occupational therapy.
This unique book recounts the experience of facing one's death
solely from the dying person's point of view rather than from the
perspective of caregivers, survivors, or rescuers. Such unmediated
access challenges assumptions about the emotional and spiritual
dimensions of dying, showing readers that -- along with suffering,
loss, anger, sadness, and fear -- we can also feel courage, love,
hope, reminiscence, transcendence, transformation, and even
happiness as we die. A work that is at once psychological,
sociological, and philosophical, this book brings together
testimonies of those dying from terminal illness, old age, sudden
injury or trauma, acts of war, and the consequences of natural
disasters and terrorism. It also includes statements from
individuals who are on death row, in death camps, or planning
suicide. Each form of dying addressed highlights an important set
of emotions and narratives that often eclipses stereotypical
renderings of dying and reflects the numerous contexts in which
this journey can occur outside of hospitals, nursing homes, and
hospices.Chapters focus on common emotional themes linked to dying,
expanding and challenging them through first-person accounts and
analyses of relevant academic and clinical literature in
psycho-oncology, palliative care, gerontology, military history,
anthropology, sociology, cultural and religious studies, poetry,
and fiction. The result is an all-encompassing investigation into
an experience that will eventually include us all and is more
surprising and profound than anyone can imagine.
This practical guide summarizes the principles of working with
dying patients and their families as influenced by the commoner
world religions and secular philosophies. It also outlines the main
legal requirements to be followed by those who care for the dying
following the death of the patient. The first part of the book
provides a reflective introduction to the general influences of
world religions on matters to do with dying, death and grief. It
considers the sometimes conflicting relationships between ethics,
religion, culture and personal philosophies and how these
differences impact on individual cases of dying, death and loss.
The second part describes the general customs and beliefs of the
major religions that are encountered in hospitals, hospices, care
homes and home care settings. It also includes discussion of
non-religious spirituality, humanism, agnosticism and atheism. The
final part outlines key socio-legal aspects of death across the UK.
Death, Religion and Law provides key knowledge, discussion and
reflection for dealing with the diversity of the everyday care of
dying and death in different religious, secular and cultural
contexts. It is an important reference for practitioners working
with dying patients, their families and the bereaved.
Compassionate communities are communities that provide assistance
for those in need of end of life care, separate from any official
heath service provision that may already be available within the
community. This idea was developed in 2005 in Allan Kellehear's
seminal volume- Compassionate Cities: Public Health and End of Life
Care. In the ensuing ten years the theoretical aspects of the idea
have been continually explored, primarily rehearsing academic
concerns rather than practical ones. Compassionate Communities:
Case Studies from Britain and Europe provides the first major
volume describing and examining compassionate community experiments
in end of life care from a highly practical perspective. Focusing
on community development initiatives and practice challenges, the
book offers practitioners and policy makers from the health and
social care sectors practical discussions on the strengths and
limitations of such initiatives. Furthermore, not limited to
providing practice choices the book also offers an important and
timely impetus for other practitioners and policy makers to begin
thinking about developing their own possible compassionate
communities. An essential read for academic, practitioner, and
policy audiences in the fields of public health, community
development, health social sciences, aged care, bereavement care,
and hospice & palliative care, Compassionate Communities is one
of only a handful of available books on end of life care that takes
a strong health promotion and community development approach.
What is it really like to die? Though our understanding about the
biology of dying is complex and incomplete, greater complexity and
diversity can be found in the study of what human beings encounter
socially, psychologically and spiritually during the experience.
Contributors from disciplines as diverse as social and behavioural
studies, medicine, demography, history, philosophy, art,
literature, popular culture and religion examine the process of
dying through the lens of both animal and human studies. Despite
common fears to the contrary, dying is not simply an awful journey
of illness and decline; cultural influences, social circumstances,
personal choice and the search for meaning are all crucial in
shaping personal experiences. This intriguing volume will be of
interest to clinicians, professionals, academics and students of
death, dying and end-of-life care, and anyone curious about the
human confrontation with mortality.
In a strategy deliberately counter to many earlier texts which
focus on social aspects of death and dying this book will not
examine death through the social prism of US or British culture
alone. Drawing only on material from a single society gives readers
the misleading impression of a universal experience. As a text in
the sociology of death and dying this volume examines
culture-specific images and experiences of death in three major
western societies - Australia, Britain and the USA.
Death, dying, loss, and care giving are not just medical issues,
but societal ones. Palliative care has become increasingly
professionalised, focused around symptom science. With this
emphasis on minimizing the harms of physical, psychological, and
spiritual stress, there has been a loss of how cultures and
communities look after their dying, with the wider social
experience of death often sidelined in the professionalisation and
medicalisation of care. However, the people we know and love in the
places we know and love make up what matters most for those
undergoing the experiences of death, loss, and care giving. Over
the last 25 years the theory, practice, research evidence base, and
clinical applications have developed, generating widespread
adoption of the principles of public health approaches to
palliative care. The essential principles of prevention, harm
reduction, early intervention, and health and wellbeing promotion
can be applied to the universal experience of end of life,
irrespective of disease or diagnosis. Compassionate communities
have become a routine part of the strategy and service development
in palliative care, both within the UK and internationally. The
Oxford Textbook of Public Health Palliative Care provides a
reframing of palliative care, bringing together the full scope of
theory, practice, and evidence into one volume. Written by
international leaders in the field, it provides the first truly
comprehensive and authoritative textbook on the subject that will
help to further inform developments in this growing specialty.
The 40 short reflections in this book address the ways in which we
face the prospect of death and loss. The first 20 reflections are
designed to be read by (or to) anyone living with a
life-threatening illness; the other 20 are reflections on living
with grief, especially bereavement. Each reflection is based on a
single story drawn from one of three sources: Dr. Kellehear's
professional experience with individuals living with dying or loss;
his own experiences and stories from childhood; and the retelling
of some of the great myths and legends about life, love, and death,
selected from around the world-from Ireland to Japan, from
Melanesia to China. The book is written to be accessible to a wide
general audience.It can be read from beginning to end like a
conventional book; each self-contained piece is also suitable for
reading on a bus, train, or plane journey, or before bed at night.
Each piece can be selected as a stand-alone meditation for use as a
discussion topic in pastoral care, counseling, or sermons. These
reflections are stories about how we can make the most of life in
the shadow of death and loss. They are designed to instill hope and
meaning in the difficult times that can accompany human mortality.
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