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"An engaging introduction to an exciting multidisciplinary field
where positive impact depends less on technology than on
understanding and responding to human motivations, specific
information needs, and life constraints." -- Betsy L. Humphreys,
former Deputy Director, National Library of Medicine This is a book
for people who want to design or promote information technology
that helps people be more active and informed participants in their
healthcare. Topics include patient portals, wearable devices, apps,
websites, smart homes, and online communities focused on health.
Consumer Healthcare Informatics: Enabling Digital Health for
Everyone educates readers in the core concepts of consumer health
informatics: participatory healthcare; health and e-health
literacy; user-centered design; information retrieval and trusted
information resources; and the ethical dimensions of health
information and communication technologies. It presents the current
state of knowledge and recent developments in the field of consumer
health informatics. The discussions address tailoring information
to key user groups, including patients, consumers, caregivers,
parents, children and young adults, and older adults. For example,
apps are considered as not just a rich consumer technology with the
promise of empowered personal data management and connectedness to
community and healthcare providers, but also a domain rife with
concerns for effectiveness, privacy, and security, requiring both
designer and user to engage in critical thinking around their
choices. This book's unique contribution to the field is its focus
on the consumer and patient in the context of their everyday life
outside the clinical setting. Discussion of tools and technologies
is grounded in this perspective and in a context of real-world use
and its implications for design. There is an emphasis on
empowerment through participatory and people-centered care.
"An engaging introduction to an exciting multidisciplinary field
where positive impact depends less on technology than on
understanding and responding to human motivations, specific
information needs, and life constraints." -- Betsy L. Humphreys,
former Deputy Director, National Library of Medicine This is a book
for people who want to design or promote information technology
that helps people be more active and informed participants in their
healthcare. Topics include patient portals, wearable devices, apps,
websites, smart homes, and online communities focused on health.
Consumer Healthcare Informatics: Enabling Digital Health for
Everyone educates readers in the core concepts of consumer health
informatics: participatory healthcare; health and e-health
literacy; user-centered design; information retrieval and trusted
information resources; and the ethical dimensions of health
information and communication technologies. It presents the current
state of knowledge and recent developments in the field of consumer
health informatics. The discussions address tailoring information
to key user groups, including patients, consumers, caregivers,
parents, children and young adults, and older adults. For example,
apps are considered as not just a rich consumer technology with the
promise of empowered personal data management and connectedness to
community and healthcare providers, but also a domain rife with
concerns for effectiveness, privacy, and security, requiring both
designer and user to engage in critical thinking around their
choices. This book's unique contribution to the field is its focus
on the consumer and patient in the context of their everyday life
outside the clinical setting. Discussion of tools and technologies
is grounded in this perspective and in a context of real-world use
and its implications for design. There is an emphasis on
empowerment through participatory and people-centered care.
Danger of health misinformation online, long a concern of medical
and public health professionals, has come to the forefront of
societal concerns during the COVID-19 pandemic. Regardless of their
motives, creators and sharers of misinformation promote
non-evidence-based health advice and treatment recommendations, and
often deny health methods, measures, and approaches that are
supported by the best evidence of the time. Unfortunately, many
infrastructural, social, and cognitive factors make individuals
vulnerable to misinformation. This book aims to assist information
and health professionals and educators with all phases of
information provision and support, from understanding users'
information needs, to building relationships, to helping users
verify and evaluate sources. The book can be used as a textbook in
library and information science programs, as well as nursing,
communication, journalism, psychology, and informatics programs.
The book, written from the e-health literacy perspective, is unique
in its nuanced approach to misinformation. It draws on psychology
and information science to explain human susceptibility to
misinformation and discusses ways to engage with the public deeply
and meaningfully, fostering trust and raising health and
information literacy. It is organized into three parts. Part I: The
Ecology of Online Health Information' overviews the digital health
information universe, showing that misinformation is prevalent,
dangerous, and difficult to define. Part II: Susceptibility to
Misinformation: Literacies as Safeguards addresses factors and
competencies that affect individual vulnerability and resilience.
Part III: Solutions focuses on education and community engagement
initiatives that help the public locate and evaluate health
information. Chapters within the three Parts discuss technological
innovation and social media as posing novel risks as well as
presenting novel solutions to helping the public connect with high
quality information and building trusting relationships among the
public and information and health professionals.
Meeting Health Information Needs Outside of Healthcare addresses
the challenges and ethical dilemmas concerning the delivery of
health information to the general public in a variety of
non-clinical settings, both in-person and via information
technology, in settings from public and academic libraries to
online communities and traditional and social media channels.
Professionals working in a range of fields, including
librarianship, computer science and health information technology,
journalism, and health communication can be involved in providing
consumer health information, or health information targeting
laypeople. This volume clearly examines the properties of health
information that make it particularly challenging information to
provide in diverse settings.
Danger of health misinformation online, long a concern of medical
and public health professionals, has come to the forefront of
societal concerns during the COVID-19 pandemic. Regardless of their
motives, creators and sharers of misinformation promote
non-evidence-based health advice and treatment recommendations, and
often deny health methods, measures, and approaches that are
supported by the best evidence of the time. Unfortunately, many
infrastructural, social, and cognitive factors make individuals
vulnerable to misinformation. This book aims to assist information
and health professionals and educators with all phases of
information provision and support, from understanding users'
information needs, to building relationships, to helping users
verify and evaluate sources. The book can be used as a textbook in
library and information science programs, as well as nursing,
communication, journalism, psychology, and informatics programs.
The book, written from the e-health literacy perspective, is unique
in its nuanced approach to misinformation. It draws on psychology
and information science to explain human susceptibility to
misinformation and discusses ways to engage with the public deeply
and meaningfully, fostering trust and raising health and
information literacy. It is organized into three parts. Part I: The
Ecology of Online Health Information' overviews the digital health
information universe, showing that misinformation is prevalent,
dangerous, and difficult to define. Part II: Susceptibility to
Misinformation: Literacies as Safeguards addresses factors and
competencies that affect individual vulnerability and resilience.
Part III: Solutions focuses on education and community engagement
initiatives that help the public locate and evaluate health
information. Chapters within the three Parts discuss technological
innovation and social media as posing novel risks as well as
presenting novel solutions to helping the public connect with high
quality information and building trusting relationships among the
public and information and health professionals.
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