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We are in the early years of a technological revolution arising
from our understanding of the genetic meaning of life. Scientists'
ability to manipulate and decode genes is advancing at an
extraordinary pace - so fast we are often unprepared to handle the
many vexing legal, economic, ethical and social issues they raise.
The combination of genetic research and information technology
raises often chilling questions of privacy and genetic
discrimination. Should individuals be allowed personal property
rights to their DNA, cells or tissues? How should policymakers
regulate the biotechnology industry to maximize safety without
stifling innovation? What are the appropriate uses of gene therapy
and other genetic manipulations? In "Genetic Testing and the Use of
Information", leading scholars grapple with issues of genetic
privacy, the regulation of genetic testing and genetic
discrimination. They consider such questions as: Who should have
access to information derived from a genetic test? Should one be
obligated to tell a spouse or a child test results? Should
governments ever appropriately mandate individual genetic testing
or community-wide genetic screening? Will employers be able to
require the release of genetic records as a condition of
employment? Will insurance companies be allowed to use genetic
information to determine risk? At what point does a genetic
condition qualify as a disability under the American with
Disabilities Act?
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