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Presenting real life cases from clinical practice, this book claims
that children can be conceived of as moral equals without ignoring
the fact that they still are children and in need of strong family
relationships. Drawing upon recent advances in childhood studies
and its key feature, the 'agentic child', it uncovers the ideology
of adultism which has seeped into much what has been written about
childhood ethics. However, this book also critically examines those
positions that do accord moral equality to children but on grounds
not strong enough to support their claim. It lays the groundwork
for a theory of moral equality by assessing the concepts of
parenthood, family, best interest, paternalism, and, above all,
autonomy and trust which are so important in envisioning what we
owe the child. It does not only show how children - like adults -
should be considered moral agents from infancy but also how ethical
theories addressing adults can significantly profit from
recognizing this. The analysis takes into account contributions
from European as well as American scholars and makes use of a wide
range of ethical, psychological, cultural, and social-scientific
research.
Presenting real life cases from clinical practice, this book claims
that children can be conceived of as moral equals without ignoring
the fact that they still are children and in need of strong family
relationships. Drawing upon recent advances in childhood studies
and its key feature, the 'agentic child', it uncovers the ideology
of adultism which has seeped into much what has been written about
childhood ethics. However, this book also critically examines those
positions that do accord moral equality to children but on grounds
not strong enough to support their claim. It lays the groundwork
for a theory of moral equality by assessing the concepts of
parenthood, family, best interest, paternalism, and, above all,
autonomy and trust which are so important in envisioning what we
owe the child. It does not only show how children - like adults -
should be considered moral agents from infancy but also how ethical
theories addressing adults can significantly profit from
recognizing this. The analysis takes into account contributions
from European as well as American scholars and makes use of a wide
range of ethical, psychological, cultural, and social-scientific
research.
Dieser Sammelband analysiert die klinische Anwendung von humanen
induzierten pluripotenten Stammzellen (hiPS-Zellen) aus
naturwissenschaftlicher, unternehmerischer, patientenorientierter,
ethischer und rechtsvergleichender Perspektive. Die Beitrage des
vorliegenden Bandes sind systematisch nach Stakeholdern gegliedert,
also nach jenen Personen oder Organisationen, die von einem
Transfer der Stammzellforschung in die klinische Medizin direkt
oder indirekt betroffen sind. Dies ermoeglicht eine zielgerechte
Suche nach Antworten auf individuelle Fragen im Translationsprozess
fur neuartige Therapien. Daruber hinaus enthalt der Sammelband die
Empfehlungen des Forschungsverbunds ClinhiPS, die sich an alle
Stakeholder, insbesondere an Forscher, Kliniker und Patienten,
sowie an Gesetzgeber richten. Diese Empfehlungen sollen zu einer
erfolgreichen Umsetzung der hiPS-Zell-Forschung in die klinische
Praxis in Deutschland und OEsterreich unter Beachtung hoechster
Qualitats-, Sicherheits- und Wirksamkeitsstandards beitragen.Das
Kapitel Naturwissenschaftliche, ethische und rechtliche
Empfehlungen zur klinischen Translation der Forschung mit humanen
induzierten pluripotenten Stammzellen und davon abgeleiteten
Produkten wird auf link.springer.com unter der Creative Commons
Namensnennung 4.0 International Lizenz veroeffentlicht.
The volume examines current developments in human genome research
and biomedicine. The new possibilities for insight and intervention
now that human genes have been decoded confront researchers and
society with ethical, legal, and sociocultural issues in human gene
research. The book offers an overview of the state of research and
serves as a helpful introduction to the current discussion.
Detailed attention is given to the areas of genetic diagnostics,
functional research with therapeutic purposes, pharmacogenetics,
and the individualized medicine of the future
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